The Alzheimer Society of Ireland @alzheimersocirl.bsky.social The Alzheimer Society of Ireland is the leading dementia-specific service provider in Ireland. The ASI works across the country in the heart of local communities, providing dementia-specific services and supports . . .
Fundacja SMA @fsma.pl Fundacja SMA jednoczy osoby żyjące z rdzeniowym zanikiem mięśni (SMA), wspiera ich i reprezentuje ich głos.
Ranked News @rankednews.bsky.social Ranked News is the most diverse, unbiased/uncensored free news platform. Articles ranked, summarized and translated in +200 languages. More in the iOS/Android app.
iOS app https://apps.apple.com/app/ranked-news/id6753876990
Website: https://Ranked.News
DuraSight Foundation @durasight.bsky.social Advancing vision through research, awareness & innovation—working toward a future free from inherited & preventable blindness.
CT Rare Advocate @rarectadvocate.com Rare Disease advocate in CT. Raising Awareness and advocating for Rare Diseases patients and caregivers.
🔗 https://rarectadvocate.com - Archive and Rare Disease Resources
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Mark Hensley @hensleybiostats.bsky.social Founder & Managing Director, Hensley Biostats. I write about the statistics behind why clinical trial results hold up, or don't.
Farheen Bano @farheenbano.bsky.social 
Heiða Rut 🇮🇸 @heidarut.bsky.social Navigating the world as someone rare, medically and ancestrally, in every way. Writing it all down, on purpose, out of order.
🇮🇸 #amwriting
instagram.com/heida_rut
Dementia Services Information and Development Centre @dsidc.bsky.social Dementia Services Information and Development Centre (DSiDC) is a centre for best practice in all aspects of dementia care.
@afgnetwork.bsky.social @afgnetwork.bsky.social 
E.St.V.M. @estvm.bsky.social Posting the occasional Edna St. Vincent Millay poem, random science, and other thoughts. But mostly political ravings. Proud Progressive/Democratic Socialist. All views explicitly mine.
Melissa Whiter Boyer @melissawhiteboyer.bsky.social Writer. Entrepreneur. Rare disease advocate. Cancer survivor. Mom of three.
Sharing stories of grit, growth, and the messy middle of life so no one has to feel alone.
Dave @davejeeping.bsky.social 🌞
Robert Joyce @handle.invalid EUPATI Fellow, Patient Advocate and I live with Secondary Progressive Multiple Sclerosis. I will share what it is like to live with chronic illness, and how people like me can use their experience to improve health research and policy.
Carmichael Ireland @carmichaelireland.bsky.social Carmichael is a leading specialist training and support body for nonprofits in Ireland. To stay up to date with news, events and training for the nonprofit sector, sign up to our newsletter: https://www.carmichaelireland.ie/newsletter-signup/
Paul Cochrane @paulcochrane87.bsky.social Global Services Manager @ Hyland | Passionate about services, healthcare, digital health, AI & cloud | BSc, PRINCE2, MSP, L6σ Green Belt | Opinions are my own | https://linktr.ee/paulcochrane
lizzie-radford.bsky.social @lizzie-radford.bsky.social Assistant professor and paediatric neurologist @ Cambridge, interested in genetic variation and the brain
@m-olls.bsky.social @m-olls.bsky.social 
@chiaraeicher.bsky.social @chiaraeicher.bsky.social 
Taryn Stone @trombonella.bsky.social Canadian, Newfoundlander, Tuberous Sclerosis Complex, Lymphangioleiomyomatosis, Rosicrucian Order AMORC, Tibetan Buddhist, Kin Club of Canada, Adult Educator, Disability Advocate, Needle Felter, Frequent Volunteer, Music Concerts, Festivals, and Musicals
betancur . n @nelbeu.bsky.social art & architectural historian / visual, material & religious culture
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Hamidah.Ghani @hamidahghani.bsky.social PhD student at CRT Genomics Data Science ♤ FutureNeuro RCSI Dublin♤ Ireland 🇮🇪 ♤Epilepsy research🧠 ♤ Malaysian 🇲🇾♡
@laoch-phrionsa.bsky.social @laoch-phrionsa.bsky.social 
British Journal of Hospital Medicine @bjhmoffice.bsky.social BJHM: An open-access monthly journal dedicated to publishing original investigative and clinical research in hospital medicine. We invite your submission!
Impact Factor: 1.7 | Published by IMR Press
Link: https://www.imrpress.com/journal/BJHM
Dr Suzanne Barr @drsuzannebarr.bsky.social Director & Education Lead @hercuwise.bsky.social | Visiting Senior Research Fellow @ Kings College London | Workplace Health | Preventive Health
@shaygurion.bsky.social @shaygurion.bsky.social 
@rampant-cytokines.bsky.social @rampant-cytokines.bsky.social 
Lars Folkestad @larsfolkestad.bsky.social Bone head with a special interest in the effect of ageing and bone health in common and rare diseases from Osteoporosis to Osteogenesis Imperfecta.
I like to read books and tell you about it. I like to watch F1 races and nag about it.
C17 Council @c17council.bsky.social An organization composed of the institutionally appointed heads of the sixteen pediatric hematology, oncology, and stem cell transplant programs across Canada. https://www.c17.ca/
https://www.c17.ca/committees/CYP-C/
Rare Disease Advisor @rarediseaseadvisor.bsky.social Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor.com/
@deb-lambert.bsky.social @deb-lambert.bsky.social 
Rosa HP Sca @rosca26.bsky.social Postdoc'ing @WashU 👩🏻🔬 AHA fellow 🫀
Rare musculoskeletal diseases & ion channels🔬
Bookworm 📚 avocaddicted 🥑 4strings lover 🎻
SYNTHEMA @synthemaeu.bsky.social A cross-border hub to develop & validate #AI techniques for anonymization & synthetic data generation in rare hematological diseases 🔬🩸🇪🇺 #HorizonEU project
👉 https://synthema.eu/
Casandra Poitras @casandrapoitras.bsky.social ➡️ Master’s student at the École nationale d’administration publique (ENAP)
➡️ Research assistant
➡️ Founder of Conseils Zèbre Politique
➡️ Passionate about public policy, health, rare diseases, civic participation… and coffe.
Naomi Mittet @naolimit.bsky.social Circadian sleep disorders advocate. Raising awareness for Non-24 in sighted people. #DSPD mom of a #Non24 young adult. Former board member at https://csd-n.org. Full time caregiver. She/Her.
Cover photo by Daniel Kordan.
Brian DeViteri @bsbeamer.bsky.social Video Producer & Motion Graphics Artist, Photographer, Videographer, Patiently waiting to be replaced by AI. Lots of NJ News, Health and Pro-Vaccines. One of the 30M living with a rare disease. Typos and opinions are my own.
@msulka.bsky.social @msulka.bsky.social Book lover and publisher sales rep. Living with #Scleroderma. Out here trying my best.
Molecular Diagnostics and Precision Medicine 2027 @mdpm2026.bsky.social I am pleased to invite you to Advances in Molecular Diagnostics and Precision Medicine 2027, a hybrid (in-person and online) conference taking place on June 17–18, 2027, in Zurich, Switzerland. For details, visit: https://advancedmoleculardx.com/
Criss Diaz @criss924.bsky.social MD MSc PhD || Interested in Genomics, Genetics, Medicine, Fertility, Cancer and Non-coding genome
🧬
Natasha Sneddon @natasha-sneddon.bsky.social PhD student ✍️ | Sleep and Huntington’s disease 😴🧠
In my spare time, I’m probably training for a marathon 🏃🏻♀️
📍 Woolcock Institute of Medical Research at Macquarie University 🎓
John O’Connor @johnoconnor10.bsky.social Postdoctoral researcher at Maynooth University | creation, sharing and use of evidence in public policy. @maynoothuniversity.ie
@mu-ssi.bsky.social https://orcid.org/0000-0001-9027-8214 🇮🇪
Kevalkumar @kevalkumar.bsky.social Motivational Quotes Writer
Nadiad, Gujarat, India 🇮🇳
Contact:+918866868474
Native Dialogs in German @nativedialogsde.bsky.social Practice #German by chatting to virtual humans.
HD Reach Game Over HD @hdreachgameoverhd.bsky.social 501 (c3) Nonprofit streaming video games and spreading awareness for Huntington's disease.
Socials, Streams, Join the fun!
https://linktr.ee/HDReachGameoverHD
Daphne Jackson Trust @daphnejacksontr.bsky.social We support people returning to research after a career break.
Native Dialogs in Irish @nativedialogsga.bsky.social Practice your #Gaeilge by chatting to virtual humans.
Deborah @deborahhh.bsky.social Interests varies. Follow along if you’d like but be warned, I’m boring
She/Her
Rosen Lab @cjrosenlab.bsky.social Official Acct: Dr. Cliff Rosen's group researching the metabolic & biochemical fate of marrow stromal cells as progenitor osteoblasts & adipocytes at MaineHealth
ROCKY LASTER🌱🦍 @rockylaster.bsky.social Feral Alaskan Hoosier. 17% Sasquatch DNA. High Priestess of the Leguminati 🫘. Allegedly Afraid of🐀 Mice. Watermelon Enthusiast 🍉. Awesome Dad🎖. Adoring Husband. Impossibly Humble. Susceptible to Flattery, 🥑's, and Wizardry. Balding Vegan Earthling 🌎
Anticoagulation Forum @anticoagforum.bsky.social Join the leading organization of anticoagulation management specialists dedicated to improving the quality of patient care by educating healthcare professionals and advocating for clinical best practices. More details at https://linktr.ee/anticoagforum
HSE Technology and Transformation @hsetandt.bsky.social Delivering #digital health for Ireland | @HSElive #HIT #ConnectedHealth | Not monitored 24/7
Content on #DigitalForCare #Benefits #Leadership #eHealth4All
Kasia Milto @km-milto.bsky.social Plastic and Reconstructive Surgery registrar, SCREDs post-doctoral clinical lecturer at the University of Edinburgh interested in face development and neural crest research
Nicola Mountford @nmountford.bsky.social Associate Professor and PhD Director at School of Business, Maynooth University.
Katie Owens @ktowens.bsky.social EUComms person and cancer thriver
Interested in public communication and literacy, especially linked to health (physical and mental) and nutrition/food safety
Views my own
@jakobstaruplinde.bsky.social @jakobstaruplinde.bsky.social 
Jon Sissons @jonpsyc.bsky.social Trainee Clinical Psychologist @lancasteruni.bsky.social
Researching emotions in caregivers of people with psychosis:
https://linktr.ee/LancasterCARES
Jillian Hastings Ward @jillianhw.bsky.social 'that mother' - #R4Today🎙 Patient advocate, mum and wife. Genomics fan. GRI genes. Rare disease life. Poet and photographer. MBE!
@b-hauser.bsky.social @b-hauser.bsky.social Rheumatologist, interest in osteoporosis and rare bone diseases, outdoor enthusiast
Elena Della Bella @elena-db.bsky.social Senior Scientist at AO Research Institute Davos. Bone and stem cell research. Passionate about science, space, and cats.
She/her
@aendsley.bsky.social @aendsley.bsky.social 
Global Health EDCTP3 @globalhealthedctp3.bsky.social The African-European research partnership on #infectiousdiseases
Supported by @horizoneu.bsky.social @ec.europa.eu
We fund clinical research, train scientists, and strengthen health systems in sub-Saharan Africa.
🔗 europa.eu/!xbygghgk
Rajesh Jain MD @rkjainmd.bsky.social Endocrinologist at UChicago Medicine, focused on metabolic bone disease. Program Director, Endocrinology Fellowship Program
Suzanne M. Cadarette @cadarette.bsky.social Associate Professor, Pharmacy and Epidemiology, University of Toronto
Associate Editor, Osteoporosis International & Archives of Osteoporosis
Patricia Juárez Camacho ☀️ @patrijuarez.bsky.social 🇲🇽 Scientist. Cancer & Bone lover 🦴🫶. 🐭 & 🐠 models. Group Leader @CICESE | Former Visiting Professor @ICFO. ASBMR & IFMRS Councilor, AMMOM & CABS BOD|
Women in science 💪 🧜♀️ 🌻🐈❤️
Alliance for Clinical Trials in Oncology @alliance-org.bsky.social Part of the National Clinical Trials Network, the Alliance is a leader in advancing cancer research, uniting more than 25,000 oncologists and other specialists at 112 main institutions and 1,400 affiliates across the U.S. and Canada. #oncdsky #medsky
@pedslupusrenal.bsky.social @pedslupusrenal.bsky.social 
Melissa 🌱 @melissa323.bsky.social #livecrueltyfree 🌱
Melanie Haffner-Luntzer @melaniehl.bsky.social apl. Prof. in Germany, Orthopedic Research and Biomechanics, mum of 👧🏻 and 🐈🐈 scientist, realist, optimist
Joel Boerckel @jboerckel.bsky.social Assc Prof @pennmedicine.bsky.social.
Co-Director, McKay Orthopaedic Research Labs.
Mechanobiology of development & regeneration.
Prov. 25:2. 🦛
Philadelphia, PA
Christa Maes (@SCEBP Lab) @scebplab.bsky.social We study skeletal stem/progenitor cells (SSPCs) and osteoblasts, their interplay with the bone vasculature, and their roles in the broader physiology of the organism.
@KU Leuven
https://bit.ly/2VVZMvQ
Mícheál Ó Breasail "ME-HAWL" @mobreasail.bsky.social Research Fellow at Monash University interested in musculoskeletal imaging, global health, and nutrition. All opinions my own.
Ciarraíoch san Astráil. Ag iarraidh mo chuid Gaolainn a fheabhsú.
Anish Kar @anish-endo.bsky.social #endocrinologist lifelong #internist-in-training🩺⚕️ #bonehealth🦴#adrenophile #rarediseaseadvocate #vocalist #scifi/fantasynut
https://www.linkedin.com/in/anish-kar-8a1b0b13b?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app
Maria Lindqvist,PhD (Åbo,Stockholm,Uppsala,Roma) @amazingmariapian.bsky.social PhD and postdoc in medicin
https://balticseanews.se/ http://www.finlandiabiosciences.com
http://www.educateandhelplocally.eu
instagram: https://www.instagram.com/balticseanews/
youtube: https://www.youtube.com/@finlandiabiosciences
@rr-ritik.bsky.social @rr-ritik.bsky.social 
Michaël Laurent @michaellaurent.bsky.social Geriatrician MD PhD. Bone enthousiast. Osteoporosis, Belgian Bone Club. Rare bone diseases. Orthogeriatrics.
Marian Schini @marianschini.bsky.social Consultant in Metabolic Bone. Sheffield Teaching Hospitals. University of Sheffield,UK. Mellanby centre for musculoskeletal research. Background in endocrinology. MD, PhD, she/her.
Albert Kim @albertendoc.bsky.social MBBS MMed(Clin Epi) FRACP PhD
Endocrinologist, Early Career Clinician-Scientist
Sydney, Australia
Osteoporosis NL @osteoporosis-nl.bsky.social For public & professionals scientific news about osteoporosis and bone disease by Coen Netelenbos, em. prof. endocrinology Amsterdam UMC, NL. All views are mine.
Jenna Galloway @jennagalloway.bsky.social Associate Professor, Department of Orthopaedic Surgery, Harvard Medical School, Massachusetts General Hospital, Harvard Stem Cell Institute
Claire E Clarkin @clarkinbonebiol.bsky.social Professor of Skeletal & Developmental Biology
Director Knowledge Exchange & Enterprise sotonbiosciences.bsky.social
CoDirector http://cdfuos.bsky.social
https://www.datascienceforhealthequity.com/themes/musculoskeletal-health
Catherine Reilly @cathyreilly.bsky.social News Editor, Medical Independent
catherine@mindo.ie
RCSI Faculty of Nursing & Midwifery @rcsi-facnurmid.bsky.social Welcome to the official Bluesky page of the Faculty of Nursing and Midwifery, RCSI.
🔗 https://www.rcsi.com/dublin/about/faculty-of-nursing-and-midwifery
The Research Room Podcast @theresearchroom.bsky.social A podcast about the science that's shaping your future health.
Discover the groundbreaking clinical trials happening at the York Trials Unit at the University of York!
PA Rare Disease Advisory Council @pardac.bsky.social 
ERN EuroBloodNet @erneurobloodnet.bsky.social ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases.
Funded by the European Union.
Millennium Institute on Immunology and Immunotherapy @imii.cl Scientific and technological research at the frontiers of knowledge
Cork Greens @corkgreens.bsky.social Cork Greens, the Cork City & County branch of the Green Party/An Comhaontas Glas
Michelle Smyth @smythm86.bsky.social Critical Care Research Nurse, @RCSICritCare
Critical Care Nurse
PI @irnm
All remarks my own
Elena Vaughan @elenavaughan.bsky.social Sociologist of health. Interested in social determinants of health, HIV stigma, sexual health, and rights-based approaches to health. Views my own.
Liam Galvin @ipfthurles.bsky.social Co-Founder & Board Member at European Pulmonary Fibrosis Federation (EU-PFF) - Patient Advocate
@mha-67.bsky.social @mha-67.bsky.social 
Creative Brain Week @creativebrainweek.bsky.social Creative Brain Week: A heady mix of World-Leading Neuroscientists, Educationalists, Health Policy Makers, Artists and Innovators exploring the brain and creativity.
Takes place on the first week of March 2027 in Dublin.
www.creativebrainweek.com
ukmsregister @ukmsregister.bsky.social The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK. Let's make sense of MS.