Robert Joyce

@robertjoyce.wsocial.eu

23 Followers 137 Following

EUPATI Fellow, Patient Advocate and I live with Secondary Progressive Multiple Sclerosis. I will share what it is like to live with chronic illness, and how people like me can use their experience to improve health research and policy.

A person with chronic illness fell in a hole... Doctor: Can you keep a symptom diary down there? Also, have you tried pacing? Benefits assessor: Please provide evidence that you're still in the hole. Again. On this form. Family member: But you looked fine yesterday? Wellness influencer: Cut gluten, sugar, dairy, joy. Heal your gut. Another chronically ill person: I'm here. I'll climb down. I know this hole. I've brought snacks, a charger, and zero judgement. We'll rest when you need to.
A man with glasses, and very little hair and a colourful shirt, with the Minister for Health (Mental Health) of Ireland Mary Butler at the Patient Engagement Open Forum Conference in Sevilla, Spain