Cystic Fibrosis Ireland @cfireland.bsky.social Cystic Fibrosis Ireland is the national charity advocating for people with Cystic Fibrosis in Ireland.
Registered Charity Number 20011376
Rare Disease Clinical Trial Network @rarediseasectn.bsky.social HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Melissa Kinch @melissa-kinch.bsky.social PhD candidate UCD | Child, Adolescent & Family Research | Patient Voice & Engaged Research | Rare Disease Research | Methods Enthusiast | All views are my own
Bernadette Sheehan Gilroy @sheehangilroy.bsky.social Lecturer Researcher Advocate
#PKU #LowProtein #BrainHealth #RareDisease
"Ní neart go cur le chéile"
The views and opinions expressed here are solely my own
Sarah Delaney @sarahdelaney73.bsky.social Research Support Manager at Health Research Charities Ireland.
Autism! Cats! Sea! Weather! Cake! Books! Music! Cooking unnecessarily elaborate meals!
Richard Roche @rrocheneuro.bsky.social Professor at Maynooth University Psychology Dept. Neuroscience, brain, memory, art, science, folklore, mythology, writing, music, football.
Laura Kirwan @laurakirwan.bsky.social Statistician and Head of Research at Cystic Fibrosis Registry of Ireland, Tennis Player, Hiker and Girl Guide Leader
Health Research Charities Ireland @hrci.bsky.social Health Research Charities Ireland (HRCI) is the national umbrella organisation of over 45 charities engaged in health, medical and social care research, collectively representing over 2 million people in Ireland. www.hrci.ie
Avril Kennan @avrilkennan.bsky.social CEO, Health Research Charities Ireland @hrci.bsky.social (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her
🤹♀️ PPI | research impact | health data | evidence-based policy | genomics | rare diseases...
John Greally @greally.bsky.social Using genomic information to improve medicine
Marita Hennessy @maritahennessy.bsky.social Researcher | PhD | Ireland
#PregnancyLoss #ReproductiveHealth #ReproductiveJustice #WeightStigma #MensHealth #CDoH #COI #PublicHealth #SDoH #ImpSci #KnowledgeTranslation #GraphicMedicine
Cassandra Dinius @cassandradinius.bsky.social Passionate about promoting science accessibility for all. 🤓🧠 Collaborates with patient and community groups on health and ageing research. From rainy Portland, now living in rainy Dublin.
Michael Foley @civicmichael.bsky.social Civic engagement, public involvement, stakeholder partnering... call it what you like, I'm trying to figure out how universities can do it better.
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