Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Jawn Quincy Adams @jawnquincyadams.bsky.social Phila
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Amy 🌤️ @cloudsandsunshine.bsky.social #CovidisAirborne
#LongCovidKids
#pwLC
#pwME
A life long reader, a sometimes baker and a community gardener.
Views are my own.
Holly Chessman @hollychessman.bsky.social Storyteller, #Writer, #NoKings, #Pinks, #HandsOff, 💙💙 #DoctorWho, #Marvel, 💖 Dark Chocolate, #Feminist, Mom of 4, #disability, #chronicillness: #LongCovid, #MECFS, #Migraine, #POTS, etc. 🚫DMs w/out permission
https://www.linkedin.com/in/hollychessman
Supporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social 💙UK Registered Charity: 1205685
💙Long COVID doesn’t stop the care - neither do we.
💙Join our Campaign: #SafeAir4All
Alone LL @ladylonghaul.bsky.social Born 324 ppm. small spoons & sensory spaces. 🥄🎧
#ADHD #hEDS #LongCovid #MCAS #pwME #Migraine #POTS #PsoriaticArthritis #Tinnitus #Disability #Adoptee #Climate
ko-fi.com/ladylonghaul
LongCovidKids
Awareness Banner
5 years since Long Covid Changed Lives
Holly H-K @hollyhk.bsky.social Professor of literacy education. PhD. Mom: 2 great kids, 2 great rescue pups. Lifelong public school educator. Cajun born, Texas resident. ❤️Fiction & Podcasts❤️Currently living life at a slower pace with Long COVID.
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
🌻🪻🌼
Julie for M.E./LC treatment 😷 @dualiejulie.bsky.social In LongCOVID/M.E. hell looking for a way out! First wave Longhauler.
Trying to get my personality back from the disease.
Very cute dog.
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Maggie @heytheremaggs.bsky.social Sooo… I really like dessert
Applied Maths (BS), Data Science (MS), Graphic Design
Wear a mask
“Too young for that”
#NEISvoid #Accessibility
Maya Lindemann @mayalongcovid.bsky.social RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Pete Caruso @petecaruso.bsky.social Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Kristin Houlihan, Writer @kristinwrites.bsky.social Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com- L @lasos.bsky.social @lasos.bsky.social
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Chronic Lawyer Momma @chroniclawyermomma.bsky.social Lawyer, Twin Momma, Wife, Long Covid since Jan '21 (yes, before vaccines). #LongCovid. No posts/comments are legal advice.
@jenlso on other socials.
Becca @longcovidbecca.bsky.social Long Covid since 2022, ME/CFS and POTS. All damage from one infection. Former functioning person. Navigating the grief that comes with this illness taking so much from us.
#CovidIsAIRBORNE 😷
Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
👉Safe housing needed 🏡
#Melbourne 🇦🇺
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Alisontomyradioooo @arisonsned.bsky.social Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
PamC @pammckc.bsky.social Mom, wife, engineer, ice cream addict. Trying to focus on what I still can do versus what I can’t while sidelined with dysautonomia from Covid.
MoleyME Caroline @moleyme.bsky.social Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
Molly Gordon, she/her @mollyboom.bsky.social Typically preoccupied with wisdom & justice. Occasionally unwise or unjust.
Tough canary. Ecstatic cranky. Queer.
#LongCovid #MECFS FUNCAP 1.1
Barbara Wimmer @shroombab.bsky.social preisgekrönte Journalistin, Buch-Autorin, Speakerin, Expertin, FH-Lektorin. Themen: Netzpolitik. Digitalisierung. Datenschutz. IoT. ITSec. KI. Überwachung. Krimi. Sachbuch Privat: Wald. Blumen. Leben on hold due to #LongCovid #MECFS #MCAS #POTS
Ruby Engel @rubyengel.bsky.social Street Team @capitoltheatre.bsky.social - #LongCovid and #ME/CFS - Live music junkie (classic rock and jambands, esp. the Grateful Dead) - Former Program Director for non-profit - Research Psychologist (in a past life) - Covid cautious
Sue @inkblue01.bsky.social Mostly posting about Long Covid
Aaron Mills 🏳️⚧️ @cloudhunter.co.uk Transfemme, neurodivergent, more tired than I look 🏳️⚧️ | #AuDHD · #ActuallyAutistic · Long COVID/ME | Code, infra & questionable commit messages @creeperhost.net | Minecraft modder in recovery | Wrestling | Sheffield | She/Her · He/Him | #TransRights
Sleepy Amy @sleepyamy.bsky.social Pile of poor coping mechanisms in a malfunctioning meatsack.
POTS, EDS, probable ME/CFS and more 🙃 Nature lover, bird watcher, politically left. @amy_is_tired on The Other Place. Mask up! 😷
For my music, follow @amyclaromusic.bsky.social 
Christophe Veltsos @drinfosec.bsky.social University prof. on cyber risk & systemic risk | He/him | Posts/RTs lots on #Covid #LongCovid. Covid is significant systemic risk. #COVIDisAirborne #MaskUp #IAQ #AirQ
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Amanda Finley Digs All the Things @rubyslippahs.bsky.social COVID long-hauler. Former archaeologist, opera, fed employee. Kids & homeless. Feral princess. Topes #WearAMask Comms: @publichealthaction.bsky.social
📍 Ba'al Pit
FB: is.gd/bp2vTA
Media: covidlonghaulers@gmail.com
YouTube.com/@covidlonghaulers
She/her
Kim @justkim.bsky.social Using social media to try to find ways to heal from long COVID. And learning things in general.