Jeff Tiedrich @jefftiedrich.bsky.social ugh, who invited this guy
Cindy @rainbowsunflowers.bsky.social Mama 👩👦 🐈 | Inquisitive 🧐
Neurodiverse ♾️ | LGBTQIA 🌈
Nature Photography 🌅 📷
Book Lover 📚 | Quilter 🧵
Covid Cautious 😷
Disabled by Long Covid 🦠
Former Rocket Scientist & Tech Strategist 🚀
ME/CFS News Aggregator @me-cfs.mastodon.social.ap.brid.gy ME/CFS News Aggregator run by
Yann @me-cfs.bsky.social.
Based on my news aggregator webpage
https://mecfsadvocacy.org/news/community/
(Run by @me-cfs.bsky […]
[bridged from https://mastodon.social/@me_cfs on the fediverse by https://fed.brid.gy/ ]
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Karla Monterroso @karlaliliana.bsky.social Part chaplain, part cross-pollinator, part coach, part builder. Multiracial multicultural institution dreamer. Brava pero vulnerable.
www.bravaleaders.com
Isabella Cueto @isabellacueto.bsky.social Reporter covering chronic disease, MAHA and more for STAT.
🔗 https://www.statnews.com/staff/isabella-cueto/
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
Vice President of ISLC & PAIS
Chloë Lum @compulsiveobserver.bsky.social Installation artist. Perfume fanatic. Chronically ill. Concordia University PhD student(disability studies + performance studies + practice-based research.) Ex jammer, current failure. She/her Montréaler in Edmonton. https://linktr.ee/ChloeLum
Holly Chessman @hollychessman.bsky.social Storyteller, #Writer, #NoKings, #Pinks, #HandsOff, 💙💙 #DoctorWho, #Marvel, 💖 Dark Chocolate, #Feminist, Mom of 4, #disability, #chronicillness: #LongCovid, #MECFS, #Migraine, #POTS, etc. 🚫DMs w/out permission
https://www.linkedin.com/in/hollychessman
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Alone LL @ladylonghaul.bsky.social Born 324 ppm. small spoons & sensory spaces. 🥄🎧
#ADHD #hEDS #LongCovid #MCAS #pwME #Migraine #POTS #PsoriaticArthritis #Tinnitus #Disability #Adoptee #Climate
ko-fi.com/ladylonghaul
LongCovidKids
Awareness Banner
5 years since Long Covid Changed Lives
Holly H-K @hollyhk.bsky.social Professor of literacy education. PhD. Mom: 2 great kids, 2 great rescue pups. Lifelong public school educator. Cajun born, Texas resident. ❤️Fiction & Podcasts❤️Currently living life at a slower pace with Long COVID.
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Katharina 🦋🍋🍀 @katha1970.bsky.social Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Supporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social 💙UK Registered Charity: 1205685
💙Long COVID doesn’t stop the care - neither do we.
💙Join our Campaign: #SafeAir4All
Mindy Jackson @mrsjacks.bsky.social Covid Longhauler (and associated conditions), Cat lover, fierce advocate for human rights, exmormon, vocational rehabilitation counselor.
🧡GO VOLS!🧡
Eliza Charley | Actress on Pause @elizacharley.bsky.social Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
Pete Caruso @petecaruso.bsky.social Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
🌻🪻🌼
Regina M @rejayjay.bsky.social Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. 💜
Taylor with ME/LC @taylorpartdeux.bsky.social 28 | Chemist | Disabled | ME/LC/RA/CPP | AuDHD | RKC ❤️ | #FreePalestine 🇵🇸| Chess player ♟️| Expert of my own experience |
Maya Lindemann @mayalongcovid.bsky.social RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Sue @inkblue01.bsky.social Mostly posting about Long Covid
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
👉Safe housing needed 🏡
#Melbourne 🇦🇺
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Stephen Vincent @chelseaman.bsky.social Literature and Philosophy, and in the real world a Bakunin style anarchist
Married to @pkalways.sheshed.rocks 💝
Miss G (she/her) @missg.bsky.social Canadian • educator • traveller • lover of all things language & culture • disability & human rights • chronic illness community • climate change • altac • books • clean air, N95s & not catching C19 • in my phoenix era
PamC @pammckc.bsky.social Mom, wife, engineer, ice cream addict. Trying to focus on what I still can do versus what I can’t while sidelined with dysautonomia from Covid.
MoleyME Caroline @moleyme.bsky.social Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Kim @justkim.bsky.social Using social media to try to find ways to heal from long COVID. And learning things in general.
Patricia Fortlage @pfortlage.bsky.social Photographic Artist and Storyteller based in Los Angeles.
MG and MECFS. Chronic Illness/Disability Awareness.
On a mission to close the gender gap in power and respect.
https://linktr.ee/patriciafortlage
Anna Davidson @annadavidson.bsky.social Writing, editing, publishing. Poetry as A. K. Davidson. Debut novel April 27.
Writer Meet Editor on Substack - information & connection for authors, poets & book editors, across traditional, indie & hybrid publishing.
Links: https://linktr.ee/akdavidson
Sleepy Amy @sleepyamy.bsky.social Pile of poor coping mechanisms in a malfunctioning meatsack.
POTS, EDS, probable ME/CFS and more 🙃 Nature lover, bird watcher, politically left. @amy_is_tired on The Other Place. Mask up! 😷
For my music, follow @amyclaromusic.bsky.social
@pehpunkt.bsky.social @pehpunkt.bsky.social ich bin krank. jeden tag. das ist keine metapher.
#jederTagMECFS
Daniel Moore @talmandaniel.bsky.social Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Judyintheskynet @judyintheskynet.bsky.social Neo-artist & ex researcher with severe #MECFS, very severe #MCAS, #CSFleak & more. Co-founder of blackferkstudio.com (art & science for ME/CFS). 💘 for piglets. PhD in social sciences. 🇦🇹. Insta & Masto: judyintheskynet
https://linktr.ee/Judyintheskynet
Lia Pas @liapas.bsky.social #SciArt symptomatology and #anatomy #embroidery, writing, and #MECFS. A bit of music too. Canadian settler. she/her. https://linktr.ee/lia_pas
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Ruth Ann Crystal @drruth.bsky.social Also known as @CatchTheBaby on Twitter
OBGYN physician, innovator, baker
Weekly newsletter at https://drruth.substack.com/
#Medsky #LongCOVID
Christophe Veltsos @drinfosec.bsky.social University prof. on cyber risk & systemic risk | He/him | Posts/RTs lots on #Covid #LongCovid. Covid is significant systemic risk. #COVIDisAirborne #MaskUp #IAQ #AirQ
Astronomer Royal for Scotland | Catherine Heymans @astroroyalscot.bsky.social Astronomer Royal for Scotland, Professor of Astrophysics, Edinburgh University. Author of How to Design a Universe. @astronomerroyal on insta (She/her)
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Angela MV (she.he.they) @angelamswinca.bsky.social 🦠😷♿️#LongCovid disabled | 📢 fmr prez Body Politic | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice
alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Henk Bulder 🪫 @henkbulder.nl hampel • noordnerd • eerlijke vinder • maakt • het kan hooguit misgaan • links gelateraliseerd • graag van begrip • heeft (het soms over) #LongCOVID • is op @melan-choly.eurosky.social • aardhommelflauwtefirstresponder • houtist
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
Tatiana Prowell, MD @tmprowell.bsky.social Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky
Team hope/good trouble/go high💙
https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
Ommer Draven ($0 net today)⚒️🏳⚧♿ @ommerdraven.unitedsyncretic.org Soon-to-be-housed Disabled Enby Syncretic Minister w/ Trans Daughter
Glendale, CA⬅️💨Raleigh, NC ☭⚘Ⓐ
Wood & Metal-working, Music, Art, Prop & Puppet Making, TTRPG, Esotericism
📺 https://twitch.tv/OmmerDraven
▶️ https://youtube.com/@OmmerDraven
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Molly Gordon, she/her @mollyboom.bsky.social Typically preoccupied with wisdom & justice. Occasionally unwise or unjust.
Tough canary. Ecstatic cranky. Queer.
#LongCovid #MECFS FUNCAP 1.1
Barbara Wimmer @shroombab.bsky.social preisgekrönte Journalistin, Buch-Autorin, Speakerin, Expertin, FH-Lektorin. Themen: Netzpolitik. Digitalisierung. Datenschutz. IoT. ITSec. KI. Überwachung. Krimi. Sachbuch Privat: Wald. Blumen. Leben on hold due to #LongCovid #MECFS #MCAS #POTS
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
loscharlos @loscharlos.bsky.social 😎🌁🎷 #LongCovid March 2020 😵💫
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Rabbi Sara Zober @rebbesmz.bsky.social Rabbi, hospice chaplain, #narcolepsy T1 #longCOVID, D&D nerd, mom, heavily meditated, GIF game on 🔥, born at 344ppm🌍, all of the pronouns, none of the gender 🌈
https://linktr.ee/smzober
Laura Miers @lauramiers.bsky.social Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
Aaron Mills 🏳️⚧️ @cloudhunter.co.uk Transfemme, neurodivergent, more tired than I look 🏳️⚧️ | #AuDHD · #ActuallyAutistic · Long COVID/ME | Code, infra & questionable commit messages @creeperhost.net | Minecraft modder in recovery | Wrestling | Sheffield | She/Her · He/Him | #TransRights
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Monica Verduzco-Gutierrez @mvgutierrezmd.bsky.social Professor & Chair of Rehab Med in SATX | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
tern @1goodtern.bsky.social truth, science, hope
Amanda Finley Digs All the Things @rubyslippahs.bsky.social COVID long-hauler. Former archaeologist, opera, fed employee. Kids & homeless. Feral princess. Topes #WearAMask Comms: @publichealthaction.bsky.social
📍 Ba'al Pit
FB: is.gd/bp2vTA
Media: covidlonghaulers@gmail.com
YouTube.com/@covidlonghaulers
She/her
Howard Tayler @howardtayler.bsky.social He/Him, Husband to Sandra Tayler, Father of Four, Fully Vaxxed, #mecfs/#LongCovid, howardtayler.com, schlockmercenary.com, writingexcuses.com. This feed is 100% artisanal human me.
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app