Patiëntenplatform Sarcomen @ppsarcomen.bsky.social Patiëntenplatform Sarcomen biedt informatie over botsarcomen, wekedelensarcomen, GIST en borderlinetumoren (zoals desmoid, reusceltumor en phyllodes).
Buffer @buffer.com The social media management platform for scheduling, publishing & analytics across every major network. Plan your content calendar in one place. This account is managed by real humans. 💙
⬇️ buffer.com/bluesky
Cum Cura vzw @cumcura.be Cum Cura is a Belgian patient organisation for people suffering from rare benign, locally aggressive and malignant bone and soft tissue tumors: sarcoma, desmoid and giant cell tumor.
Cory Archibald @cmarchibald.bsky.social I do comms stuff. | Likes: animals, Trek, and politics. | Genocide opposer | All opinions my own (no one else wants them). | she/her
Winette van der Graaf @winettevandergraaf.bsky.social Passion for Med Onc #Sarcoma #AYA cancer #RareCancers @Netherlands Cancer Institute; ErasmusMC;
President @EORTC Brussels;
Chairman Dutch AYA cancer network #MedSky #OncSky #AYACSM
Chordoma Foundation Labs @cflabsresearch.bsky.social Chordoma Foundation's patient driven research laboratory 100% dedicated to accelerating cures for chordoma.
Jon Trent @jtrent.bsky.social Sarcoma Medical Oncologist @ Sylvester Comprehensive Cancer Center University of Miami
Sydney Stern, PhD @stern-sydney.bsky.social Scientist-Patient-Advocate👩🏻🔬 improving rare disease treatments 🦓🦓🦓 | check out http://TGCTSupport.org | views and opinions are entirely my own. #MedSky #ScienceSky
Sarcoma UK @sarcoma.org.uk
Bone Cancer Research Trust @bcrt-uk.bsky.social The leading charity dedicated to saving lives and fighting primary bone cancer through #Research, #Information, #Awareness and #Support. We are #TeamBones.
Liposarcoma Support Network @liposarcomasupport.bsky.social LSN provides education, resources, support for patients & caregivers. Program of The Life Raft Group.
www.liposarcomasupport.org
The Life Raft Group - GIST Support @liferaftgroup.bsky.social Enhancing survival and quality of life for people living with GIST and other rare diseases through patient-powered research, education and empowerment and global advocacy efforts.
https://liferaftgroup.org/
liferaftgroup.org/donate
Sarcoma Foundation of America (SFA) @curesarcoma.bsky.social Official Bluesky account for Sarcoma Foundation of America (SFA)
www.curesarcoma.org
Roger Wilson @amocras.bsky.social Sarcoma survivor and advocate. Involved in research. Board member of SPAGN and founder of Sarcoma UK.
Bluesky @bsky.app official Bluesky account (check username👆)
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