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H. John Tran @johnhtran.bsky.social The story behind the story.
Signals on money, power, people & consequences.
🔴 Harm · 🟠 Pressure · 🟡 Emerging
🟢 Positive · 🔵 Structural
@daosdojqwrlas.bsky.social @daosdojqwrlas.bsky.social Independent. Open-minded. Always curious.
✨ Freedom to be yourself. Courage to be different.
Living life on my own terms.
Picard online, his face palmed @archispite.bsky.social Spite house architect (no, seriously). Disabled and bedbound; surviving severe stage ME/CFS, and all the super-fun comorbidities </s> that came with it, since 2021
The internet was a mistake
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@dianataylor.bsky.social @dianataylor.bsky.social #LongCovid. Ex-teacher retired early due to LC.
Susan K @susankmecfs.bsky.social Scientist. Current interest in #IACC. Progressive worsening of #mecfs triggered by virus, Feb 1996.
Volunteer Blue @volunteerblue.bsky.social Volunteer Blue is a collaboration of more than 40 grassroots orgs with >40K volunteers offering effective options to volunteers interested in registering and electing Democrats, particularly in close races.
https://volunteerblue.org/?utm_medium=BSKY
JBGarrity Photography @joegarrity.bsky.social I enjoy taking photos and sharing them, mostly of nature. All genres from astro, landscape, macro, marine life, wildlife, insects, flowers, etc.
Eleanor Lewis @eleanorlewis.bsky.social Phonetics PhD. Life on hiatus with ME/CFS. Cats, music and excessive screen time. Naarm/Melbourne. (she/her)
Poly Crisis @jenn030303.bsky.social
Interests: Hypersensitivity reactions, MCAS Long COVID, ME/CFS, Children's rights, Anti Genocide Anti Invasions,Science/Medicine, Art/Culture, Ireland and UK
Ranked News @rankednews.bsky.social Ranked News is the most diverse, unbiased/uncensored free news platform. Articles ranked, summarized and translated in +200 languages. More in the iOS/Android app.
iOS app https://apps.apple.com/app/ranked-news/id6753876990
Website: https://Ranked.News
Negatively_fatigued @chata.bsky.social LC, ME/CFS and most of the other typical diagnosis 🤷🏼♀️
DreamWave Ambient @dreamwaveyoutube.bsky.social 🌙 Creating peaceful nature ambience for deep sleep, relaxation & meditation. Original ambient music, calming nature scenes, and soothing sounds. Welcome to DreamWave.
Precinct Connect @precinct-connect.solidarity.social Connect with your voting precinct via
https://precinct-connect.us
to work together on election defense for Nov 2026 and more.
Coordinate with the election defenders tagged in the pinned post below to make your work impactful.
Matthew D White @mdwhite1013.bsky.social Artist / Musician / New Orleans Expatriate
Key West, FL
All photographs here are by me unless otherwise noted.
www.matthewwhitestudio.com
https://matthewdwhite.tumblr.com
#Canucks
Brian Wooldridge @therealninjabob.bsky.social Feminist, anarchist, martial artist, physicist, historian, veteran. Long Covid. Camp Blue Sky, Ozark Mountains.
Chiara @resistingly.bsky.social Animal lover | Feminist | E̴n̴g̴l̴i̴s̴h̴ ̴t̴e̴a̴c̴h̴e̴r̴ | L̴i̴t̴e̴r̴a̴t̴u̴r̴e̴ ̴s̴c̴h̴o̴l̴a̴r̴ | Reader | Foodie | TV | Vegetarian | Mental health | Dogs | She/her | #longcovid | #me/cfs | #notjustsad | #adhd
Tara Hulen @thulen.bsky.social Former journalist, retired due to disabling ME/CFS. I love cats, Halloween, Sidewalk Film Festival and Cinema, Lodge 49, Resident Alien, Evil (the TV show - not the upcoming nightmare) trying to stay sane.
Dragonflies & Dreams (aka Nathalie) @dragonflydreams-za.bsky.social Diagnosed with #MyalgicEncephalomyelitis in 1990. Bed bound since 2017. Design personalized gifts & ME awareness t-shirts, etc. online. www.zazzle.com/store/dragonfliesanddreams. Typing is hard so not very active on social media. Johannesburg, South Africa
@h-ealthylife.bsky.social @h-ealthylife.bsky.social ALIEXPRESS
BEST DEALS 😍
Solidarity Social @solidarity.social Sign up at
solidarity.social
to add DM privacy to your Bluesky account (via E2E Encryption), and to bolster censorship resilience. Join to build solidarity and organize action.
*NOT A BOT* Please read replies
Mélanie Marron ⚜️🇨🇦 @melmarron.bsky.social Communications, science, politique, lecture, photo, nature et beaucoup de thé.
J'ai l'EM depuis 2023
#encephalomyelitemyalgique #mecfs
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Paul Cochrane @paulcochrane87.bsky.social Global Services Manager @ Hyland | Passionate about services, healthcare, digital health, AI & cloud | BSc, PRINCE2, MSP, L6σ Green Belt | Opinions are my own | https://linktr.ee/paulcochrane
Meg seanchaibeag @seanchaibeag.bsky.social Writer. Disabled (CP, RA, Long Covid and more). Lifelong political nerd (US/UK/RoI/RU/UKR/etc). Owned by cats. Yes, that's Paul McCartney in the profile pic- and me, left.
Dee @deeruddock.bsky.social 🧑🏻🦳daughter, sister, wife & auntie; avid reader, shower singer, over-thinker, coffee drinker
📖 currently reading VILLAGER (Tom Cox)
📍 W.Sussex 🌊
Liz. 508 [Loop Detected] @grief-enduring.northsky.social My belief system is straight forward. ALL humans deserve basic HUMAN rights. Food, shelter, freedom of thought & ability to find joy. Religion is personal & QUIET. Healthcare's free & widely available. Ppl are horrible though & the human experiment failed.
Michael Nobbs @michaelnobbs.bsky.social Artist and tea drinker living on a hillside in Wales.
Learning to live a gentle creative life and encouraging others to do the same.
Diagnosed with #MECFS in 1997.
www.patreon.com/gogently
https://linktr.ee/michaelnobbs
✍️🧶
Temme Tacsume @tem-me.bsky.social #CitizenScientist living with challenging chronic illnesses, among them severe skin conditions triggered by allergies. #ME/CFS. Promoting advocacy and efforts to improve research into these debilitating illnesses. Mastodon: @Temme@chaos.social
@nikki-992.bsky.social @nikki-992.bsky.social #MECFS #longcovid
Liz Burlingame @lizmeactga.bsky.social Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Sarah @scooternan.bsky.social Socialist who is #CovidAware so still shielding & masking - MS & COPD. She/Her
Joanne Smith (Jo) @joannesmith.bsky.social ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs inc.welfare eg #LucysLaw .Wildlife. Books. Bit of Politics. #pwME Twitter Handle @_joannesmith 
Jamie Crawford @jamiecrawford68.bsky.social NUFC, ME/CFS, handcrafts, dogs, and an abiding hatred for fascists and racists. Speaketh not to fools, for they despise knowledge.
carapace shell @carapaceshell.bsky.social failed librarian, archivist, celticist, medievalist, and linguist; long covid and m.e. enjoyer
somewhere near tacoma
fix your hearts or die
pfp: skeleton cradling flower (hugo simberg's garden of death)
banner: siamese cat tucked into bed watching tv
Vera Kober Art @vera-kober-art.bsky.social Modern Floral Painter
https://www.verakober.com/floral
David Archer @davidetc.bsky.social 36 trillion cells trying to get some rest. he/him
Musician, writer, bookseller, etc. based in Haida Gwaii. #pwME
I like boosting solutions. Better ways and amazing people are all around. www.davidarcher.net
Meder @itsmeder.bsky.social from @cleanairla
https://covid-studies.org/
https://covid-list.org/
Sick Ness @sickness.bsky.social She / her
MIA secondary SEND teacher.
Sick.
Londoner.
Sewer: embroidery, needlepoint (but only for 40 mins a day max 😩)
Trapped in an unsuitable home #EndOurCladdingScandal
Katie J. @kjohnstone.bsky.social ME/CFS and related things. (she/her)
I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social
@phabphoeb.bsky.social @phabphoeb.bsky.social 
Liz Perry @liz-sailor5.bsky.social PEI resident, ME/CFSx27yrs., Vax injured
MS Sucks 🎗 @itreallydoes.com Web Developer #Joomla | Beekeeper | Widow
Disabled USMC Vet | Living with #DDD & #MS
📓 MS Sucks: a snarky journal for tracking your MS bullshit → mssucks.co/links
☕️ Buy me a coffee ➜ https://buymeacoffee.com/mssucks
Stephanie Ko @sinistralscribe.bsky.social Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers.
💙 #MECFS et al. | 🎭 GM at @operamariposa.bsky.social
📍MST Territories (Greater Vancouver, BC)
https://stephanieko.carrd.co
Richard Lewis @z3r0gravitas.bsky.social Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 43. Please correct me. https://linktr.ee/ZeroGravitas
Steve Bullock @guitarmoog.bsky.social Large, slow-moving, land mammal. Bed-dweller. Horizontal guitarist. Loser of remote controls, vapes and plectrums in blankets. Deactivater of account for no reason sometimes. Late adopter of fuzz. Haver of Long Covid. He/him/Moog
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚
Princess in the Tower @apainprincess.bsky.social Healing Portal for everyone affected by severe #ChronicPain & #ChronicIllness~by a princess with full body #CRPS.
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Carey @29carey29.bsky.social Adjusting to chronic illness caused by a virus being ignored by society. Wanting to connect with others to learn and find community.
#LC #POTS #Keepmasksinhealthcare #AirborneAware #Covidisn’tover
Lacinda @lacindahummel.bsky.social Chicago parent interested in local and international human rights, chronic illness treatment, and social justice. I like board games, beautiful outdoor spaces, and speculative fiction.
*my icon is a photo of green leafy branches against a blue sky
Julia North @juliaknorth.bsky.social Married, Mum of 2.
ME since 1995.
#ME #MECFS #PwME
Fastleen @fastleen.bsky.social Working for the community. Living with ME/CFS. Proud mother.
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
Ultrasfcdk @ultrasfcdk.bsky.social 
Kelsey @ksureart.bsky.social I love flowers and type!
alana @birdbone.bsky.social life on pause. mostly here for #LongCovid #MECFS community. currently very severe. other interests may include climate, music, sports, queer stuff (she/her)
Karen Coombes @kc14762.bsky.social Socialist, scientist, autistic, ME carer, still masking 😷. Born at 316ppm 
PH 🕊️🌱😷 @ph-ph-ph.bsky.social 🕊 2050 is too late 🌏 it’s a climate + biodiversity EMERGENCY 🦋 SARS-CoV-2 is in the AIR: ventilate/HEPA #BetterMasks 😷 #ZeroCovid 🌱 PUBLIC Health
EVERYTHING is connected
30,000(+) 💔 AUS SARS2
The Mouthy Renegade Writer @mouthyrenegade.bsky.social I write humor articles. Anti-Trump, pro-LGBTQ, and I support women's rights. I want to make you laugh and think. Join our Mouthy Militia!
https://www.facebook.com/substackmouthy
themouthyrenegadewriter.substack.com/subscribe
Alister Martin @alisterfmartin.bsky.social Commissioner of Health - New York City Department of Health and Mental Hygiene
Rose @nebraskaredrose.bsky.social A nurse who finally retired after 46 years DNP, RN. Long Covid changed my life. Mask up. Completed LC PT/OT and it helped a little. Now planning to experiment with an auricular vagus nerve stimulator. Hope it takes me further along in my recovery!
Dawn @sapherby.bsky.social Personal Blog: https://dawnsupernova.dreamwidth.org/
Covid-cautious person living in the midwest!
It's never too late to start masking!
Find your local maskbloc: https://maskbloc.org/
Profile Picrew by: @makowka.bsky.social
Patient Dreams @patientdreams.bsky.social Impatient non-patient with #MECFS since 2000. Trying not to get Darwined. Dreaming of becoming a patient with appropriate medical care one day soon.
Jo @justjo.bsky.social Interested in goings on. Small life lived in a small house. Past best before date. Lefty. ME/POTS #Anti-RecoveryActivist
A Chronic Voice @achronicvoice.com I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
https://achronicvoice.com/
Lena @lena16.bsky.social Carer for my daughter with very severe ME | ME-Myalgic Encephalomyelitis |