Hannah 🫧 @ahumbleburrito.bsky.social flirty but flaky, chaos included 💀
HannahWeber @hannahweber1985.bsky.social Loving simple moments and good conversations.
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Sergio Perez F @sergiopf.bsky.social THE NUCLEAR QUANTUM GRAVITY ☢️
https://www.researchgate.net/publication/371896737
Interest Score over 99%, 2023 in Researchgate
@skellou.bsky.social @skellou.bsky.social - M @mavie04.bsky.social @mavie04.bsky.social
Temme Tacsume @tem-me.bsky.social #CitizenScientist living with challenging chronic illnesses, among them severe skin conditions triggered by allergies. #ME/CFS. Promoting advocacy and efforts to improve research into these debilitating illnesses. Mastodon: @Temme@chaos.social
Thank You for Masking! @thanksformasking.bsky.social A sticker project supporting a wonderful family in Gaza - Bahaa, Manal, and their two kids Anwar (3) and Ayla (6mo).
https://linktree.com/thanksformasking
Cyril Voyant @cyrilvoyant.bsky.social Research Director @ Mines Paris – PSL (O.I.E.).
Renewable energy forecasting, AI for time series, solar variability & energy systems resilience.
Meta-science, research evaluation & open science.
Medical physics.
Bridging physics, data, and impact
@ravenfingers.bsky.social @ravenfingers.bsky.social They/them. Against oppression, patriarchy + psychopaths in positions of power. Egalitarian. Democratic eco-something. Lover of all wildlife, not a lover of homo sapiens. Neurodivergent zebra. Love 60s/70s/90s culture
Nev @alphukit.bsky.social Outdoors and all things nature type of guy.
I love camping, hiking, foraging and travelling anywhere, anytime.
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Too Tired To Make @tootiredtomake.bsky.social Too Tired To Make: An act of thinking in public about how creativity actually happens under constraint.
#M.E.
#CFA
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#ADHD
#Creators
#Makers
Astrid Hainzl @astridhainzl.bsky.social #MECFS
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Reese @puppylove23.bsky.social 🐶 Woof! I'm Reese , a Boston Terrier with a black belt in snuggles. My human, BRETT CULBERT– you know, my actor papa who's on TV and all that? – thinks he's the star, but let's be real, I'm the real leading role here.
Helma @helma.bsky.social Ein freundliches Hallo an alle :)
(she/her)
"One day at a time. We cross the bridge when we get there"
Bibesch Header:
Ein Rüsseltier
Bibesch Profilfoto:
Gesicht mit Maske
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Maud Sac @papillyon.bsky.social Severe ME/CFS, mostly bedbound.
@voxem.bsky.social
Vanessa Global @vanessaglobal.bsky.social 199K LIBRARY: universities,libraries,politicians,scientists,academics, lawyers,economists,linguists,historians,writers,BLUE, ANTIFA!
Me: brown NA,Oregonian,veteran,globetrotter,critical thinker,linguist,teacher,reader,atheist,constructive,ANTI-TRUMPIST
ProdigalHoosier @prodigalhoosier.medsky.network Co-conspirator/Partner to @Bellmore
Mom
OG Punk Rock Grrrl
IU Alum
CASA Volunteer
Mantid Mom
Future Corvid Murder Bestie
NERD: History, Politics, Policy
Healthcare, Justice, & Education Equity, Organizing, Books, Research, Data, Trauma Informed Care
Jim Vanderwal @jimvanderwal.bsky.social Climate change ~ Clean air ~ Clean water ~ Convening for change
Unceded Syilx territory
He/him
@mecfsrecluse.bsky.social @mecfsrecluse.bsky.social Lawyer. ME since Oct 2000. Mostly housebound since 2014. #ME #hEDS #dysautonomia #Citrate synthase deficiency #impaired oxygen extraction #celiac #mitochondrial disease
Interested in ME research and treatment options.
Steph @handle.invalid I am a beautiful young adult vixen thats waiting for something.
Beverly Stark 🌻💙💛 @beverlystark.bsky.social Writer, carer, tea drinker. Probably out walking the dog. Trying to stay hopeful.
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Film Milf 🌊💙Blue Dem. Resister. 🏳️🌈 LGBTQ+ 📚 @filmilf.bsky.social Work @ TrixStarT Film Productions.
🌊💙Blue Dem. Resister. 🏳️🌈LGBTQ+ 📚
Fully Full Frontal 4 Film. Crazy Cool Comics.
Narelle G @rellieg.bsky.social Interested in Dysautonomia, POTS, Aneurysms, Post Thrombotic Syndrome, Patient and client advocacy/consultation, 🧬
Jen Davies @jendavies.bsky.social I study motor control, mostly of balance and walking. Particularly interested in the effect of our environment and psychological state on how we control movement. (I'm terming this "psychoneuromechanics" for now). Senior Lecturer at Cardiff University
Odilon Couzin @odiloncouzin.bsky.social Public Health, former MSF, Journo in past life, on a Zero Carbon mission. London, Hong Kong, Kunming, Chicago. 新聞自由 #EndFossilFuels #COVIDisAirborne
Andreas Longva @andlon.bsky.social Previously: Researcher and PhD candidate @ RWTH Aachen University, now probably disabled by Long COVID.
Physics simulation, mathematics, software and science
andreaslongva.com- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Bridget @brid41.bsky.social Chair, #MEAction Maryland
@meactmaryland.bsky.social
https://linktr.ee/meactmd
adolescent onset #MECFS, #LongCovid, #POTS, #dysautonomia, #MCAS, CPT2, #migraines, #PostHerpeticNeuralgia, #TrigeminalNeuralgia, recurrent #shingles
Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
👉Safe housing needed 🏡
#Melbourne 🇦🇺
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Patrick McGahon @paadzer.bsky.social Irish gay guy in the East of England 🏳️🌈
In my fifties
EastEnders & Bargain Hunt fan
RIP mum 💔 2022
Worked at Cambridge University & NHS
Awful at responding to DMs
Sober a few years
Not looking for hookups or onlyfans subscriptions
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person 
@icedaft.bsky.social @icedaft.bsky.social Conglomerat - Human - German - European - Pensive 🤔 Husband - Father - Humanist - Direct🫣 #Triumph #Motorbikes #Motorcycles #Volunteer #Firefighter 🚒🚨 #Europe 🇪🇺 #Travel #HSSP #onlinegamer #gamer
https://www.threads.net/@icedaft?igshid=NTc4MTIwNjQ2YQ==
SAGE POETESS, WRITER, EDITOR @sagetaylorkingsley.bsky.social 🌊💙🌀Protest + Mystic POET *BEAUTIFUL LATE BLOOMER* Best-Selling Author EDITOR GHOSTWRITER 100 books. LoA~Self-Love~Lover of democracy, nature, dogs, life! Kindness is my religion 🙏
TONS of poetry ➡️ https://sagepoetess.substack.com
ME-CFS Spoonie Bibliophile
Teri @teri42.bsky.social 
Montagsmensch @gimufi.bsky.social Bei der Vergabe ausgefallener Erkrankungen besonders eifrig aufgezeigt, dysautonom und neurodivergent.
Auf X als Hyperfocusdeep.
ALT:
Profilbild: eine eingeschaltete Plasmakugel vor schwarzem Hintergrund.
Banner: Himmel mit Wolken in Rottönen.
Sparrow Zennik (They/Them) @sparrowzennik.bsky.social Climate destabilization, me/cfs, infectious disease tracking, food security, city design, green transportation, passive architecture, and others
Long distance travel and flight free since 2020.
Stands with Palestine, Ukraine, and Sudan.
Michelle Mahoney @michellemahoney.bsky.social Neurodivergent Activist, Writer, Educator, Disability Advocate.
Author of Strange Fellow Bobby: The Neurodivergence of Robert F. Kennedy, Sr.
Substack: michellemahoneyautisticadvocate.substack.com
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
@groundpizza.bsky.social @groundpizza.bsky.social 
fhronesis @fhronesis.bsky.social Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
MissingDOCTORSandPSYCHOTHERAPISTS @medocspsytheras.bsky.social Austausch für Ärzt*innen, Mediziner*innen, Apotheker*innen und Psychotherapeut*innen, die von ME/CFS, LongCovid, PostVac und ähnlichen Erkrankungen betroffen sind.
David Holl @postobject.bsky.social Strategy. Futures. What is and what could be.
Author of Strategy Tactics https://pipdecks.com/pages/strategy-tactics-card-deck
Former bayarean, currently self-exiled in LA
Rupert Rivett @rupertrivett.bsky.social 📸 Photographer | capturing life's candid moments with my camera 📸
🌍 https://rupertrivett.photoshelter.com 🌍
#RealStreetPhotography #Photojournalism|
Skilled in unobtrusive, authentic #storytelling
📣NEW SUBSTACK 📔
👇📸👇📸👇📸👇📸
https://rupephoto.substack.com/- J @justindstern.bsky.social @justindstern.bsky.social
Jen @jensojourner.bsky.social 💙💙 GenX progressive. 🚫 MAGATs 🚫 porn 🚫 idiotic DMs.
Travel LCSW and CAADC specializing in First Nations.
Geocacher. Farmer. True Crime. Owned by a zoo of multiple beasts.
Freedom and peace to all. 🇵🇸🇸🇩🇺🇦💙💙
Nic @lilnic000.bsky.social 
THE ANOINTED ATHEIST @theanointedatheist.bsky.social Atheist. Social democrat. Vegetarian. Science.
Baseball. Humor. Books. Dog rescuer. Advocate.
Fan of critical thinking. I write about religion.
If my posts offend you, turn the other cheek.
❄❄Warthog Elsa❄❄🌊🇺🇦🇹🇼🎮😷 ☂️🗽🌏🏴🎗️🧡☀️🦁 @socookre.bsky.social Robloxian. #LongCOVID patient. #FreeLanternSociety supporter. I'm also known as Elsa Fidelis. Slava Ukraini! 🇺🇦
https://linkat.blue/socookre.bsky.social
Phoenix 🏳️⚧️ - free hugs 💜 @anyaphenix.bsky.social they/she, demi/autistic/sapphic disabled by long covid
trying to take care of my kids & help all marginalized folks
I love nature and everything in it, including you 🥰
🌎🌞🌙 - my trinity
Paypal.me/anyaphenix
https://gofund.me/8f262228
pics by me
ChildRapeSurvivor @childrapesurvivor.bsky.social Nowhere I ran could I outrun my father who stalked me for decades. Now he is dead I can talk about it. Decades of trauma.
1 in 3 girls lives with child rape.
I have PTSD & Intergenerational Trauma.
No Genocide, Covid Safe, Queer, Climate Change Action
Ruth Spencer @ruthmspencer.bsky.social GP Glasgow, interests- Homelessness, addictions, mental health.
@maritskotheim.bsky.social @maritskotheim.bsky.social Society, politics, human rights, science, research.
Myalgic Encephalopathy (ME) since 2010.
MSc Chem Eng. Former B2B advisor. 🇳🇴 🤝 🇺🇦
@shannonrlake.bsky.social @shannonrlake.bsky.social 
Fiona Bolger @fabtknz.bsky.social Teacher. Interested in everything. Kdramas. Aotearoa NZ.
Isabelle @invisibleisabelle.bsky.social Posting about my live with #LongCovid in order to find new ways of engaging with it and making an invisible illness visible- G @gregoryscottyoung.bsky.social @gregoryscottyoung.bsky.social
Yvie Juniper-Johnson @yviejohnson.com 🌈Illustrator & Storyteller & Poet
♿️ ME & TN // ✨AuDHD // 🪴Intuitive
🦋 Disability, Creativity & Feeling Whole
🏴 Denbigh, Wales // dw i'n dysgu 🏴
Delightful: https://yviejohnson.com
GelfyCheriru @gelfycheriru.bsky.social 🎨🖌️Artist/Designer/Photographer/Crafter 🖼️📷
🥄 Spoonie/Disabled ♿ Neurodivergent
🕸️ Alternative&Witchy🕸️
🦹♀️She/her🧙♀️
🚫No Ai/NFT
https://linktr.ee/gelfycheriru - for all links
https://ko-fi.com/gelfycheriru - for support, memberships, and shop
Keith White @keithwhite832.bsky.social HTX Age 44, a huge sports fan, political nerd, Anti Trump, Anti Racist, pro freedom, pro women's rights and pro porn at times. #BLM #BIPOC African American, Native American and Afro Latino. x.com/keithwhite346
Rob @robuncorked.bsky.social passions: running, golfing, hiking, backpacking, coffee, and my richmond, bc community. husband, dad, and friend, business intelligence and process management professional. support movember, twowheelgear, steveston icebreaker8k, and parkrun.
Cato Frederiks 🏳️🌈🏳️🌈 @catofrederiks.bsky.social Trying to live my life, preferably without a dozen chronic issues, assisted by a healthy dose of DnD, and the very slow production of my (Dutch) trilogy.
Follow my journey after a spinal fusion
https://linktr.ee/catofrederiks
Sit At The Table™ (est. 2011) @sitatthetable.bsky.social Time for more women, diversity and inclusion on corporate boards and csuite ☯ Men need to be part of the change 🇨🇦 2012 @WOIGlobal Cdn Diversity Champion 🚫no politics/religion/porn #SitAtTheTable
Sebastiaan Deetman @lymecfs.bsky.social Down with chronic Lyme disease, Long Covid, ME/CFS and POTS. Researcher in Environmental Sciences, Industrial Ecologist, Born at 348 ppm.
patientledhypothesis.github.io
@wordsmithing.bsky.social @wordsmithing.bsky.social Bookworm, word nerd, lover of learning, #hEDS
Bente Karen @bentekaren.bsky.social 
Beth F W @omfcharitymugs.bsky.social Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
https://omfcharitymugs.teemill.com- M @miaregine.bsky.social @miaregine.bsky.social
@nde13.bsky.social @nde13.bsky.social 
Fred All In 🇺🇸🇺🇦 @fred-all-in.bsky.social Civil and Voting Rights Advocate! Pro-Democracy, Pro-Democrats, Pro-Choice, Pro-Human Rights, Pro-Mother Earth! Let's continue to hold the line against hate, racism, bigotry, and fascism!
F MUSK, F TRUMP, F MAGA GOP
💙 VOTE BLUE '26 💙
@mkdue.bsky.social @mkdue.bsky.social 
Krister Pettersson @retsirk.bsky.social Pragmatiker. Löjligt förtjust i katter. Vårdar mitt jämtländska arv ömt.
Folkskygg, om ni frågar min kära sambo.
ME-anhörig
EDS-anhörig
Long Island Witch @longislandwitch.bsky.social 🕉🌙✝️
@patrb.bsky.social @patrb.bsky.social Love cats, books, music, art, and Democracy
Mia @miaingrid.bsky.social 
Supporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social 💙UK Registered Charity: 1205685
💙Long COVID doesn’t stop the care - neither do we.
💙Join our Campaign: #SafeAir4All
@beateste.bsky.social @beateste.bsky.social 
MECFS Advocate @mecfs-advocate.bsky.social ME/CFS patient advocating for research, medical education, treatment and support re: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
SurvivingME✌️ @akadarenupton.bsky.social Retired medically. Expert in extreme resting. Politically homeless. Cat man 🐈 & father. Used to enjoy golf gigs food out and stuff. UKMC #bcfc ⚽️ ✌️💙
Hoa @nocaffeineplz.bsky.social Graphic & web designer, mainly using this account for illness fieldnotes.
♿ Chronically ill & disabled with ME/CFS, MCAS, hEDS, Psoriasis, Endometriosis/Adenomyosis, a̶n̶d̶ l̶i̶k̶e̶l̶y̶ s̶o̶m̶e̶ r̶a̶m̶p̶a̶n̶t̶ u̶n̶d̶i̶a̶g̶n̶o̶s̶e̶d̶ A̶D̶H̶D̶ and ADHD
Je poste principalement en anglais !