Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Michael Stingl @neurostingl.bsky.social Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Dr. Melissa Geraghty, Psy.D. @drmelissageraghty.bsky.social 🦋 CEO of Phoenix Rising with Dr. G
🦋 Clinical Health Psychologist (Complex Medical, Rare Disease, Eating Disorders)
🦋 Medical Gaslighting Sensitivity Trainer
🦋 Keynote Speaker
🦋 #IamRare 🦓 ♿
Chronic Illness Humor @chronicillness.bsky.social Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com
https://mybodyistryingtokillme.com/
https://www.redbubble.com/people/ChronicillnessT
#chronicillness
UK Charity Invest in ME Research @investinmeresearch.bsky.social An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
Science for ME (S4ME) @s4me.info We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who support us.
Facts about ME/CFS:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Bluesky Support @support.bsky.team Submit bug reports, feature requests, and feedback with the in-app form in your left side menu (mobile) or right column (desktop), or email us at support@bsky.app.
George Monbiot @georgemonbiot.bsky.social Ungainly on land
Katrin Was here! @katrinfriberg.bsky.social Emigrerat från Twitter/X där jag bott sedan 2011.
Är mestadels hemmabunden pga ME/CFS och EDS. Sitter ibland i rullstol, ibland inte.
Fru, mamma och matte som bor i Hedemora.
SusannaD @susannad.bsky.social Miljöinriktad agronom med samhällsintresse, gård, gitarr o pensel. Efter ME-skov 2015 lever jag så halvdant det går med 20%-igt energikonto, hjärndimma, POTS mm.
En av de #MillionsMissing
Mer biomedicinsk ME-forskning och vård!
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Treaty of Westphalia @twestphalia.bsky.social Academic background: Comparative Literature (European 19th c)
Bluesky focus: LC/ME, Russian invasion into Ukraine, Arts/Culture
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
KarenG @tenaciousmumma.bsky.social Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
Cyrus @cyruxime.bsky.social Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Jonas R. Kunst @kunstjonas.bsky.social Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo
Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in
Father. Views are my own.
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
Nina Steinkopf @ninasteinkopf.bsky.social Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com
Anti-genocide.
Shelley @shellchat.bsky.social Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
European ME Coalition (EMEC) @emec.bsky.social Advocacy organization for ME/CFS patients and their carers in Europe
Ruth Lampard @ruthlampard.bsky.social Looking out for blessings: in wildlife, nature, & kindness. Fan of rewilding, life too. Slow Pilgrim, priest.
Usually moderate to mild in views, occasionally sharp. No DMs, will block
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Dx Revision Watch @dxrevisionwatch.bsky.social Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
#MillionsMissing Sweden @millionsmissingswe.bsky.social #MillionsMissing is a global campaign for ME health equality!
https://meaction.net
#MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
ME/CFS San Diego @mecfssd.bsky.social ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
ez @elinz.bsky.social ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden
#pwME #MECFS #NEISvoid #ChronicIllness
Came here from: https://twitter.com/ezchili
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Trish Davis @ozfish.bsky.social Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info 
Dan Wyke @danwyke.bsky.social Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 31 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/