Susannah Fox

@susannahrfox.bsky.social

341 Followers 229 Following

Author, REBEL HEALTH. Amateur sunflower farmer. There are people who would love to help you, if only they knew how to find you.

Orange sunflower flanked by two unopened buds
Cover of the book No More Tears: the dark secrets of Johnson & Johnson by Gardiner Harris. "A masterpiece of muckraking" - Publishers Weekly
Nearly all Americans use at least one AI-enabled product weekly. Bar chart showing the in the past seven days, only 1% of U.S. adults used zero, 2% used one, 5% used two, 9% used three, 20% used four, 31% used five, and 31% used all six AI-enable products listed (personal virtual assistant like Alexa or Siri; navigation apps; weather apps; social media, streaming services like Netflix, and online shopping apps or sites). Survey conducted by Telescope/Gallup Nov 26-Dec 4, 2024
A yellow sunflower growing in an unlikely spot -- the extremely dry rocky side of a mountain with little vegetation nearby.
Book cover for the American Way of Death by Jessica Mitford
Advice from caregivers: Expand your family
GenZ are caregivers too: 27% of 18- to 29-year-olds report providing unpaid care to a friend or loved one in the year prior to the survey. Intensity drivers of younger and older caregivers: Caregivers under age 50 are more likely to experience family disagreements, money concerns, worrying that it is all too much, and feeling stressed out or depressed. Older caregivers are more likely to say they are confident navigating money and benefits for others. - ARCHANGELS
Sunflower just starting to bloom. Spiky green leaves cover most of the disk. Five yellow petals are unflolded
Orange petals surround a brown disk of florets on a sunflower that has grown over six feet tall
Book cover for Manufacturing My Miracle: One Woman's Quest to Create her Personalized Gene Therapy, by Jill Dopf Viles. Ilustrated by a red and blue double helix. In the center is a picture of the author as a young girl
Large sunflower with yellow petals and a brown disk - half open, with spiky green leaves folded over the top
Orange petals surround a brown disk, two bees harvesting the pollen
Tight green sunflower bud
3 posters are pasted on a wall above 3 folding chairs. Poster one reads "Type 1 Diabetes" and is in the style of a Beatles album cover. Poster two reads "Rage Bolus" and features a fist holding an insulin pen. Poster three is a stylized portrait of a man with the word "Insulin" under his image.
Horizontal axis labeled Needs not met at the far left; Needs met at the right. Vertical axis labeled Visible at the top; Invisible at the bottom. Along the bottom of the image is the credit line: Rebel Health by Susannah Fox
A green sunflower seedling with a black seed husk on a lower leaf. There’s a white seashell behind the seedling to show the contrast.
US Supreme Court in background, large group of people with protest signs in foreground. One sign reads “I’m for cancer screenings”
A white newspaper box along a country road is covered in lichen. Faded letters are barely legible: Washington Post. There's a church in the background and the light is dimming.
Yellow book with blue type: Rebel Health by Susannah Fox is pulled from a bookstore shelf labeled Science
15% of US adults live in a household affected by rare disease or an undiagnosed illness
A slide showing a collage of a journal article and slides
Rare disease is not rare. 8% of US households have someone diagnosed with rare disease. A rare disease is one that affects fewer than 200,000 people in the U.S. That's more than 10 million households across the country living with rare disease. Tech savvy: 63% have seen a doctor via telehealth in the past year. Don't go it alone: 50% have looked online in the past year for someone who shares similar health concerns. Exploring new territory: 38% have used an AI tool like ChatGPT or Gemini to access health info. Mental health matters: 29% have seen a mental health professional or therapist online or via telehealth in the past year. Survey conducted by SSRS for ARCHANGELS, the Association for Aging in NY, and Susannah Fox.
"No matter what you're sufering, you are not alone. There are people who would love to help you if only they knew how to find you." - Susannah Fox, author of Rebel Health: A field guide to the patient-led revolution in medical care. Creating a new health care with Dr. Zeev Neuwirth.
This study was conducted by SSRS on its Opinion Panel Omnibus platform for Susannah Fox and ARCHANGELS, with support from the Association on Aging in New York. The SSRS Opinion Panel Omnibus is a national, twice-per-month, probability-based survey. Data collection was conducted on two waves of the omnibus, from January 17 to January 21, 2025 and from February 7 to February 10, 2025, among a total sample of N = 2,012 respondents. The survey was conducted via web (n = 1,952) and telephone (n = 60) and administered in English (n = 2,012).
15% of US adults live in a household affected by rare disease or an undiagnosed illness
In dark times shine your light brighter. #Paint the storefronts. Illustration shows a hand holding a lightbulb and stars surrounding the words. Photo by Ted Eytan in 2020.
A child's Valentine card that includes the clipped ingredient list for the candy enclosed.
The back of a sunflower in bloom with sunlight illuminating the yellow petals
Necklace made up of almost all blue beads. One yellow bead stands out. There is a silver pendant of the dopamine molecule. Necklace is coiled on top of a light brown dog.
A rectangle nearly covered in blue dots. One red dot is highlighted with text that reads: To manage her Parkinson's disease, Sara Riggare spends 1 hour in neurological healthcare and 8,765 hours in selfcare per year. www.riggare.se Sara Riggare, 2014
Can you and your loved ones answer these questions? 1. On a scale of 1 to 5, where do you fall on this continuum: 1 = Let me die without medical intervention; 5 = Don’t give up on me no matter what, try any proven and unproven intervention possible. 2. If there were a choice, would you prefer to die at home, or in a hospital? 3. Could a loved one correctly describe how you’d like to be treated in the case of a terminal illness? 4. Is there someone you trust whom you’ve appointed to advocate on your behalf when the time is near? 5. Have you completed any of the following: written a living will, appointed a health care power of attorney, or completed an advance directive? Engagewithgrace.org The One Slide Project
Can you and your loved ones answer these questions? 1. On a scale of 1 to 5, where do you fall on this continuum: 1 = Let me die without medical intervention; 5 = Don’t give up on me no matter what, try any proven and unproven intervention possible. 2. If there were a choice, would you prefer to die at home, or in a hospital? 3. Could a loved one correctly describe how you’d like to be treated in the case of a terminal illness? 4. Is there someone you trust whom you’ve appointed to advocate on your behalf when the time is near? 5. Have you completed any of the following: written a living will, appointed a health care power of attorney, or completed an advance directive? Engagewithgrace.org The One Slide Project
A woman stands in front of the US Capitol holding a yellow and blue book titled Rebel Health