@beyondchaz.bsky.social @beyondchaz.bsky.social Blue-state girl, cares about social fairness, environmental protection, and the little joys in life.
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Health Citizens Institute @healthcitizens.org From Environment to Health
From Science to Policy-Making
Matthew MASCOLINO @cubs790.bsky.social Hello everybody my name is Matthew
🍎 Taylor Twins 🍏 @thirstytwins.satan.social 🦋Taylor Twins TWINS BING TWINS🦋
🌀gemelos Taylor Gemelos siendo gemelas🌀
⓸ 泰勒双胞胎 双胞胎就是双胞胎 ⓸
#instagram #threads #X #tumblr #bluesky https://0-info.my.canva.site/barcode-century-docx
Chronically Pondering @chronicleofdays.bsky.social Spoonie. Neurodivergent. Chihuahua enthusiast. Poet. Enjoys film photography and crafting. ME/CFS. Wheelchair User.
@fowlo.bsky.social @fowlo.bsky.social 
Kirsty 🌻 @kirstysmestory.bsky.social Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
VegPlotter: Online Vegetable Garden and Allotment Planner @vegplotter.com The best online Vegetable Garden & Allotment planning software to get you organised in the garden.
Fully featured garden planner vegplotter.com
Frost dates and growing zone calculator frostdates.com
Penelope Friday (they/them) @penthewriter.bsky.social Novelist (Bella Books & Nine Star Press) and Regency Period writer.
This is my happy place.
Find photos of cats & Cornwall, good news, funny things, updates of writing, and always ALT TEXT! #writersky
No alt text, no follow.
http://penelopefriday.com
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Keto diet @saghan.bsky.social Sharing keto diet recipes
saskia papadakis @sazpaps.bsky.social geographer / sociologist / oral historian interested in race, gender, class, life stories, place, gay stuff
@jennawhatjennawho.bsky.social @jennawhatjennawho.bsky.social 
Ntisec @ntisec.bsky.social Father, creative, thinker, asks questions. Since 1997 mild MEcfs, since early March 2020 rather severe longcovid. Dutch & English
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Robbie @robbielane87.bsky.social Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD..
Trying to get by one day at a time 🖤
Si Craner @cranervirus.bsky.social Full time carer of child with severe Long Covid ME/CFS. Former school leader and financial analyst for national campaigning non profit
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
@rsch @richard-schachtel.bsky.social 
Eva @dieeva.bsky.social #MECFS moderat, durch psych.Sportreha sehr verschlechtert.Autoimmunerkr.spät diagnostiziert, während aktiver Zöliakie langwierige, schwere Infekte, nicht wieder gesund geworden.Hier zum Austausch,u.a.Therapiemöglichkeiten.
Auch zu Lp(a)/kardiovas.Vorsorge
@skorckjevje.bsky.social @skorckjevje.bsky.social 
A Darkened Room @adarkenedroom.bsky.social One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@annem2024.bsky.social @annem2024.bsky.social Nature People Equality Equity
Morgana for Democracy🎗️🇮🇱 🍌 🪷 🐝 @morganarae.bsky.social Menopausal Democrat and best selling author with cats. Professional life coach for 31 years.
Masked & vaxxed science geek.
Semi-competent West Coast Swing dancer.
OG member of #KHive
I support Israel's right to exist.
Jon Moses @jon-moses.bsky.social Co-director of Right to Roam 🥾
Co-editor of WILD SERVICE: Why Nature Needs You 🌿
https://linktr.ee/jonathanmoses
Dr. Blome aka Dr. Strange @blomechristine.bsky.social Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Stacy @stacysp.bsky.social Former healthcare worker #MECFS #FM
Kenny Boy @kenkers10.bsky.social Let’s cook!! I’ll show you…If at all possible, please subscribe to my cooking YouTube channel https://youtube.com/@kenkers10?si=_OwLZ0YRFxuC-zMZ Ken…married 2 children, and I love gardening, dogs, strong IPA beer, and bourbon. Go NY Giants, NJ Devils!!!
Chrissie P @chrissiep.bsky.social Dog-, Book, Sea-, Camping-, Music-, Yoga-, Nature-, Espresso-Lover. #Booktober #Yoga #Poetry
Melissa @melissabreen.bsky.social writer | aspiring screenwriter | editor | saoirse don Phalaistíne | sí/í
Patient Advocacy @patientadvocacy.bsky.social patientadvocacy100@gmail.com
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS
ME/CFS | Disability | Social Justice
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
Jason Jasonson @jaseygalore.bsky.social Disabled by #MyalgicEncephalomyelitis ° Ambulatory wheelchair user ° Nazi lives don't matter ° Science is real ° #AuDHD ° #Lutruwita
I mostly repost things rather than write Bluestuff because my mind isn't sharp and lively anymore 😔
M @emgilso.bsky.social Housebound pwME
Audhd
Currently burnt out
Sydney 😷 @sydklugs.bsky.social in a continuous attempt to be someone who lives and dies giving a damn | PGY1 anesthesiology | opinions=mine |
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
Douglas Kell @dbkell.bsky.social Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/. 
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Smile For ME @smileformeuk.bsky.social We are a UK charity that sends Smiles to ME sufferers and their carers to brighten their day and make them smile 😊 Registered Charity Number 1185760 🩵 www.smileforme.org.uk
Sarah Weston RD @sarahwestonrd.bsky.social Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume.
Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍
Facilitator PACE program 👣🫂🌈
Millions Missing France @millionsmissingfr.bsky.social Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
Kevin Paterson @kippertshirt.bsky.social From the Isle of Lewis (Scotland) he/him- cat person.
Xbox gamer and Socialist ex Labour activist TU member (Unite). DM's usually ignored a reply is an honour.
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social COVID-19 Longhauler Advocacy Project is a patient-led #LongCOVID 501(c)(3).
Visit longhauler-advocacy.org/lcamonth26 to learn more and take action this #LongCOVIDAwarenessMonth.
#LongCOVIDAwareness #OneInfectionAway
@davidallen12.bsky.social @davidallen12.bsky.social I am very looking hard working man I love and care I am very honest man and I like reading my Bible 🌲🚜
Sarah @birbsarereal.bsky.social Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her.
Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
Laura @harmonicsoul.bsky.social X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community.
Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.
Colandme (Extremist Allegedly) 🏴 @coldon1983.bsky.social Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 13 years #pwME #rejoin #FBPE 🏴
Lauren Jonik @laurenjonik.bsky.social Writer and photographer with a vision disability. Books, cats, music, nature and the arts and chronic illness advocacy are my passions.
"I have such a desire to do everything, my head is bursting with it." - Claude Monet
shootlikeagirlphotography.com
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@ramyisback1989.bsky.social @ramyisback1989.bsky.social Long covid and mecfs warrior
MaryGR65 @marygr65.bsky.social
Retired RN & Qualified Social Worker. #LongCovid since March 2020 Advocate
FBLC
Adult son, 3 grandchildren and 4 cats
A bit preoccupied after serious house fire on 15/10/24, living in temporary accommodation while they rebuild
https://gofund.me/99cc079b
Kurtzer_MD @kurtzermd.bsky.social Activist doc vs interpersonal violence violence. Med Dir #TraumaInformedCare GYN Northwestern Chicago. Long COVID Mar ‘2020
#AMWA-PATH
#DoctorsForAmerica
#MomsDemandAction
#LongCOVID Doc
TIC gynecology
sexmedmenopause.nm.org
Posts my own & not employer’s
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Golightly @holdgolightly.bsky.social Früher Künstlerin, Textildesignerin, Reisende.
Eine von #MillionsMissing seit ca. 1987
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
Johan Van Weyenbergh @johanvawe.bsky.social Immunologist curious about viruses, cancer, evolution and all things human
Likes all #systems thinking and still working out all the #omics 🤓
#immunosky #medsky #idsky
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
̷L̷o̷r̷e̷n̷z̷ ̷ @restthingever.bsky.social formerly{{Passionate Software Developer. Guitarist, singer, songwriter. Foodie and traveller}}. Lover of Art Déco, geometry & Sci-Fi.
Struggling with ME/CFS since 2020. Currently at Bell 50.
Based in 🇨🇭
#MECFS #pwME #MyalgicEncephalomyelitis
Harry van Gerven @drenrettiwt.bsky.social Born @ 335.42 ppm CO2 #LongCovid since april 2020.
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
Edna, ME Advocate & Carer 💙 @ednamacnamara.bsky.social 💙 M.E.Carer of son aged 32, ME for 13yrs 💙.
RaisingAwareness for
#PwME.
#Carers
#LCovid
#greatestMEdicalscandal
X Edna, M.E.Advocate 🇨🇮
https://www.irishexaminer.com/news/arid-40218716.html
http://www.idonate.ie/aMothersWalkforMECFSresearch
Ona Albizu - PhD MSc BD @onaalbizu.bsky.social Empowering persons w Myalgic Encephalomyelitis. 35y w/ME
Colab at ONG PEM Spain, ME-International.org, EMEA
ICPrimer our best tool.
#UniteToFight2024
Empoderando a #pcME. El Manual-CI nuestra mejor herramienta.
Informando ME, MCAS, ANPE, LC
Oliver Striebling ♿️ @ostriebling.bsky.social #MECFS seit 2017 - Bell 20-30
Weibsbild @weibsbild.eurosky.social WasmitMenschen. Ostgewächs. Darss-Fan. Nordlicht. Intro. Single. she/her. PlaylistCoHörende von #DerVolljährige. BGE. Ex-Chorsängerin. Online seit CI$ 1995. Folgen≠mögen. #TeamVernunft. #TeamScience. Mildes #MEcfs seit 08/2022. Manchmal geht nur🫂 oder 🫶.
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
🐾Kitty.P.🐾☀️ @skittlydoo.bsky.social 🇬🇧 Love animals and travel. Take photos of everything I see just for fun 📸. I also love cake 🍰and wine🍷 o and sleeping 😴
Eliza Charley | Actress on Pause @elizacharley.bsky.social Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
Nigel Taylor @silverlotheni.bsky.social Calling for an NHS that’s there for Long COVID and ME
Rosanna @rosannawregor.bsky.social Cosmopolitan, DVM, caregiver for soulmate with very severe ME, the barbell keeps me sane. 
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Celia Silvani @celiasilvani.bsky.social Author (Baby Teeth, out on 6 Feb 2025 with Orion) and reality tv superfan.
Represented by Hannah Schofield @ LBA