- I Inactive account @inactiveaccount27k.bsky.social
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid ๐ https://linktr.ee/renegaderesearch โข Runs @remissionbiome.bsky.social
Indivisible โ๐ @indivisible.org Weโre organizing against this fascist regime the only way that actually works โ with on-the-ground, volunteer-led, communities of people power: https://linktr.ee/indivisibleteam
Laura @harmonicsoul.bsky.social X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community.
Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.
Charlie Park @givesnospoons.bsky.social Disability and Healthcare Expert
โฟ Disabled Autistic Spoonie
๐ง Former psych
๐๏ธ Live screaming from bed
๐ฃ๏ธ Disability rights, policy, supports, life
.
Formally @meanderingpark
Still Masked and Living the Dream @anaraesia.bsky.social She/Elle. Teacher of students who are deaf/hard of hearing. I โค๏ธ my ๐โโฌ, ๐ชดs, languages, ๐ถ, food, truth, and equal opportunity for all. Happily and monogamously married.
Neuro-๐ถ๏ธ, hEDS, POTS, MCAS, ME/CFS.
Milwaukee-born, now in Quebec
Mica @rashmica.bsky.social Formerly healthy, fit and adventurous, now living a shell of a life thanks to SARS-CoV2
LoraT @ltimonin.bsky.social Wordy!
Wife'nMom, Geek, AuADHD, superfat, uu. NY -Not NYC -unceded Gayogoฬฑhรณ:nวซโ lands.
Too many pets, not enough gardening.
Failed my mammo, lopped off my boobs. Suppressing to survive. Making do with the new normal, whatever turns out to be.
Ayre ๐ฒ @ayricross.bsky.social My scars mean hope.
They say
"You'll survive this too. You always do."
Phoenix ๐ณ๏ธโโง๏ธ - free hugs ๐ @anyaphenix.bsky.social they/she, demi/autistic/sapphic disabled by long covid
trying to take care of my kids & help all marginalized folks
I love nature and everything in it, including you ๐ฅฐ
๐๐๐ - my trinity
Paypal.me/anyaphenix
https://gofund.me/8f262228
pics by me
Connect with ME! @connectwithmecfs.bsky.social Hi I'm Megan! This space is dedicated to building community for those with me/cfs through online accessible spaces
Linktr.ee/connect_with_mecfs
Gabriel Bell Memorial Foundation @gbellmemorial0924.bsky.social An every day man who gave his life to protect the staff and give the residents of San Francisco's Sanctuary District A a voice.
Definitely not a time traveler.
@alisonshimey.bsky.social @alisonshimey.bsky.social 
dev @sagesprig.bsky.social Botanist, evolutionary ecologist, nature enthusiast, music lover, and disabled dude with ME/CFS.
Plants, science, views and random thoughts (if I ever post here..)
Mennonite Mom (she/her) โค๏ธโ๐ฉน๐ฅ๐๐๐ @mennonitemom.bsky.social Follower of Jesus, Cranky Old Broad, Mennonite mom&wife, lover of books, world, peo, poetry & art. Disabled Spoonie๐ฅ(MCTD, RA, Sjogrens,lupus) Fierce Mama Bear ๐ณ๏ธโ๐ of lesbian daughter (33) and pan & autistic son(28) ๐ค๐คโค๏ธ๐งก๐๐๐๐
Jocelynn ๐ @spongebob104.bsky.social Business inquiries: mclaughlinjocelynn3@gmail.com
My TikTok page link:
https://www.tiktok.com/@jocelynn.mclaughl?_t=ZT-90ghHOkOWmt&_r=1
My instagram link:
https://www.instagram.com/jocelynnmclaughlin?igsh=aDJsOXNwOGhtbmhz&utm_source=qr
Rachel Graves @rachelgraves.bsky.social Haver of all the diseases. Mask wearer. Political obsessive, JD, (former-ish) newspaper reporter. Lover of Tacoma & the PNW. In a relationship. She/her.
KnightHawk @knighthawk899.bsky.social Millennial him/he
Disabled & Chronically ill,
Into Movies, Video Games,
โฟ Disability Awarenessโฟ+Politics
Needs of the disabled are not being met in the US, help me change that!
My Links๐
๐ https://ko-fi.com/knighthawk899
๐ venmo.com/u/Knighthawk899
Hannah McManus @rookdigoo.bsky.social Hey, it's me.
Writer, reader, crafter, nerd, and amateur folklorist. Chronically ill (long covid) and won't be silent about it. We are still in a pandemic.
Wish I was a tiny mouse living in a tiny mushroom. ๐ญ๐ | She/her
Dan Gabriel @dangabrielgames.bsky.social Austro-argentinean game and narrative designer, writer. Cares about stories, empathy & high level analytical thinking. Open for work.
Homebound due to #ME/CFS.
linkedin.com/in/dangabrielgames
Judy My Love ๐ฆ๐จ๐ฆ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ๐ฉผ๐ถ @judymylove.bsky.social LISTEN, FEEL, SING, HEAL. WEโRE HERE. #disability #mentalhealth #chronicpain #allgenders #allraces #music Empowerment through music. We will rise up and fight the power! https://medium.com/@judymylove/healing-words-for-you-and-for-me-25782f55bdea
emskware ๐๐๐ฉโ๐ฆณ @emskware.bsky.social Retired paralegal, blue dot in a red county on the Jersey Shore. Here for the camaraderie. #Disabled #ChronicPain. #ACLU. #MoveOn. #DemCast.
Stacy @stacysp.bsky.social Former healthcare worker #MECFS #FM
Jason Jasonson @jaseygalore.bsky.social Disabled by #MyalgicEncephalomyelitis ยฐ Ambulatory wheelchair user ยฐ Nazi lives don't matter ยฐ Science is real ยฐ #AuDHD ยฐ #Lutruwita
I mostly repost things rather than write Bluestuff because my mind isn't sharp and lively anymore ๐- F Rick Ford @fordski.bsky.social Retired Canadian currently living in Mexico. Mostly home-bound and bed-bound with Long Covid since mid 2022.
multipaldev ๐ณ๏ธโโง๏ธ๐ผ๐ต๐ญ @multipaldev.bsky.social York & (Zach) A perfectionist and a (stoner) โข Blender Appreciators โข Spoonie(s) โข Plural โข Working on projects with @pandesoft.itch.io & @cmdrpandesoft.bsky.social See our progress in #Multipaldevlog #doppelgangerdev
Charles โ๐ฟ๐คโฟ๐ถโค๏ธ๐ค๐ @oldassnerd.bsky.social Old Nerd who loves comics and action figures
โจ Soft Grit Spoonie โจ @softgritspoonie.bsky.social Chronic illness advocate | Disability awareness | Spoonie | Mental health | CPTSD | Migraine | Fibromyalgia | Invisible illness | Daily life, support, humor & healing.
TheRGBvision @thergbvision.bsky.social 30. he/him. Married. #Spoonie
Books, art, fantasy, and tenderness
Disabled, queer, and creating as I can.
Living somewhere between books and art
Fantasy worlds, fandom joy, and honest feelings.
https://linktr.ee/thergbvision
Janel Comeau ๐ @verybadllama.bsky.social Writer, comedian, illustrator, blogger and international woman of mystery. Sworn enemy of the Swedish Yule Goat. Writer of jokes in The Beaverton and Cracked. ๐จ๐ฆ
Joni Rae @jlrae.bsky.social I am also Tales of a Kitchen Witch โค๏ธ patreon.com/jonirae
Julie Deibel-Pundt @juliedeibelpundt.bsky.social 
Wynter Chatman @wynter-noel.bsky.social Business Owner, Actor, Dancer, Aspiring Voice Actor. Foodie! Miss the Rose Motel. On Wednesdays I wear ๐๐
Gillian Kent @cambridgegill.bsky.social 
Robbie @robbielane87.bsky.social Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD..
Trying to get by one day at a time ๐ค
Jessie @jessie-siobhan.bsky.social Hi! I'm Jessie. Full time Covid Longhauler surviving in Meanjin/Brisbane, Australia with my fluffy little demon cat, Harry.
amelia @ameliacidervinegar.bsky.social Living with pulmonary fibrosis. Love cats, books, video games, art, and science. She/her.
Exhausted Noodle @zoeybirduwu.bsky.social Chronically ill mess, JRA, IgA vasculitis, long covid, CFS
Librarian, artist, gamer and streamer โจ๏ธ
Elle C @tis-me-elle.bsky.social Was ocean and climate modelling phd | Now bedbound advocacy | masking is community care | #SevereME
BlueZebra @bluezebra30.bsky.social M.E. since 1976. In the golden rolling hills of California.
Looking at screens sets my eyeballs on fire so there will be pauses.
Ande[']s Candies @abobandrea.myatproto.social she/any [non-neuter, non-weaponized]
queer neurodivergent ill disabled realist
i'm pissed off, funny, and warm / i'm a good man in a storm
Caleigh ๐น๐ฉท๐๐ @glimmersofrose.bsky.social ๐Queer โข ๐Bookworm โข ๐ฅSpoonie
๐๏ธSpiritual โข โ๏ธWriter โข ๐ฎCozy Gamer
๐ซLover of picnics, potlucks & tea parties
IG: @_glimmersofrose
Dr Sally Riggs | PVT for Long Covid @drsallyriggs.bsky.social Psychologist & long-hauler sharing polyvagal strategies & how to travel with disability for nervous system expansion Fora Travel Advisor
Brenda @bcmaguire.bsky.social ๐จ๐ฆ Leftist poli nerd migrating from the bird app. Covid Conscious. Rescue Dogs. She/Her. #NeverPoilievre
Alexis Gilbert @alexisme.bsky.social Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
Rod Garrett @rodgarrett.bsky.social Former normal person until covid came along. Now I have long covid. Over 6 years now. I'm too healthy for help and not healthy enough to help myself. Life's a paradox. And finally, DJT is a child rapist, liar, asshole and dumbshit.
Lyric (7.3 spoilers) @scientiaclan.etheirys.social Plural, Polyam, nonbinary/bigender SAHP.
37, disabled gamer, writer, gposer. Not a bot just a lot of free time
Multifandom. Profic/prosurvivor. Fiction =/= reality.
Do no harm, but take no shit.
#RinShots - gposes w/Rin!
#gpose - all gpose!
Kay @thingsyoujustcant.bsky.social Living with M.E. type LC.
Fighting for remission.
Tea, cocoa, petitions, snacks, memes, and bedside musings.
For now, on IG as @thingsyoujustcantspeak
#mecfs #longcovid #pWme
Lindsay (she/her/hers) @spoonfuloflindsay.bsky.social chronic illness life & disability lit ๐๐ชด๐๐
honoring the hard & finding joy along the way
migraine | SF neuropathy | POTS | ME/CFS |
long COVID | MCAS | ambulatory โฟ 
Phil Meyerson (he/him) @pmeyerson.bsky.social 
Sarah @justsmidgen.bsky.social 
Jenn LeRoy @jenn-leroy.bsky.social Queer southern Gen Xer just trying to live life to the fullest.
@beefjerkyguy.bsky.social @beefjerkyguy.bsky.social 
Eleanor Fielding @meownersclub.bsky.social โWeโre driving in the dark with our sunglasses on!โ
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS Bโham, feminism, politics, culture, disability, science, music, languages. Woke AF
meownersclub@bsky.social
Maker of #FanningTheFlames
Narcolepsy Barbie @maricotona.bsky.social Childless Spinster ๐
Mexicana en Chicago ๐ฒ๐ฝ
FuckSCOTUS
AuDHD
Severe MECFS POTS MCAS Sjogren's
Mask so you don't get the yuppie flu too ๐ท
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Lydia Morsman @lydiamorsman.bsky.social โ๐ป forever trying to write a novel
๐ฉโ๐somehow, a 3rd year OU student
โฟ๏ธ ambulant chair user
๐งโโ๏ธ me/cfs - pro zombie
๐ซ CPTSD - allergic to noises and sleeping
๐ LNK
๐งโโ๏ธ marked safe from yoga
I Overcome ME @iovercomeme.bsky.social โ๏ธโบ๏ธ SARAH ๐ท๐ฅฑ๐ด (she/her)
Severe ME due to LC (2023)
ME/CFS (1999 dx 2008)
UC/IBD (2002)
ADHD (Birth๐)
Debra Ruh (she/her/hers) @debraruh.bsky.social Debra Ruh, CEO of Ruh Global IMPACT, Founder of Billion Strong - #WeAreBillionStrong, Co-Host of #AXSChat, 3x Author, US State Speaker, Market Influencer, Human Inclusion, Accessibility, SmartCities, Tech4All, AI4Good, BlockChain, & SDGs. [Don't check DMs]
Maggie Boxey Writes @maggieboxey.bsky.social Writer & bridge-builder. For the stuck, the healing, and the waking up. Author . Podcaster . TEDx Speaker . in recovery . ME/CFS . collective hope ๐ฆ
Cranky Old Man ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ ๐ช๐ฆ @crankyoldman.bsky.social I can write cursive, tell the time on a clock with hands, and balance a checkbook! I rode a bike with no helmet, played outside all day, and ran around barefoot. I received all of my childhood vaccines, too! Yet, here I am. No DMs, please!
Jacy Sonne โฟ๏ธ @jacysonne.bsky.social Disability Advocacy #FMMECFS #Migraineur #POTS #Dystonia #Spoonie
Rare brain tumor survivor
Too many med dx to list here
DV and the Disabled.
Pro: Science
LGBTQ
BIPOC
AAPI
Medically Induced Hermit @fallsthroughcracks.bsky.social โข Spoonie๐ฅ โข I โค๏ธ Nature & Wildlife photos ๐ท โข #ME/CFS โข Healthcare worker (COTA) until disabled with multiple chronic illnesses & chronic pain โข HERmit โข Armchair Traveler โข Slipping through the cracks = Medically Induced Hermit ๐โข
Tiff @creativetiff78.bsky.social I'm in N. California, 47 y/o Married, Chronically Ill ( #SmallFiberNeuropathy, #mecfs, #migraine, #dysautonomia, #hEDS, #fibromyalgia, #HS) retired LCSW, disabled
#artist #knitter #witch #advocate #writer
Bi ๐๐งโโ๏ธ๐ฆฅ๐ฅ๐งถ๐จ๐ป๐๐
https://linktr.ee/CreativeTiff78
Bathrobe Gal @bathrobegal.bsky.social Hi, it's Bathrobe Gal! I draw comics about my adventures as an adult-diagnosed #autistic woman, writer, and chronic bathrobe-wearer. Mainly on Instagram: https://www.instagram.com/bathrobe_gal
https://bathrobegal.com/
(My real name is Sarah Jane.)
Twist Firebeard (SFW) @tfirebeard.bsky.social He/Him, They/Them | IT Nerd | On the Spectrum | Bear | Gamer (PS5, PC) | California Native stuck on the wrong coast | Entering my 50s in 3...2.... OH FUUUCK.... Also, Younger GenX Bear. You know, the FAFO generation.
Crazy Childless Cat Ladies Unite @aphoenix-rising.bsky.social 42 queer ๐ณ๏ธโ๐ cis-woman, she/her, NJ, cat mom, plant mom, crafty, dorky, sarcastic, atheist/humanist, socialist democrat, shy, ADHD, BPD, PTSD, spoonie, ever evolving, forever learning. BLM, trans rights are human rights ๐ณ๏ธโโง๏ธ. Fuck fascism, free Palestine, ๐บ๐ฆ, โ๏ธ
Tatiana Trifan #FBLC @tatianatrifan.bsky.social Life is full of surprises, but never when you need one.
Completely allergic to any form of racism, sexism, genderism.
#StandWithUkraine
Views are my own
Sally Bourliakas @sallybourliakas.bsky.social Mum, scientist, Sci-Fi reader Studio Ghibli fanโฎ๏ธ ๐ ๐ช ! Iโve had #LongCovid for 4+years Covid is Airborne wear FFP2/3 masks! Air filtration needed in schools & workplaces now.
#Teamclots #RejoinEU #FreePalestine
LC @apostraphehehe.bsky.social 
AutumnSun9 @autumnsun9.bsky.social Joined Bluesky Nov 7, 2024. Ocean girl forever ๐ฌ
I โค๏ธโ๐ฅ science, nursing, film noir, art, guitars, protecting animals, people, ocean & earth, 60s70s rock, lite jazz, giive me humor.
Eileen Iona ๐ฆ She/Her ๐ฆ @eileenfoster.bsky.social Raised Reagan Republican and have been moving Left since I could walk. Farm kid, horse girl, Tomboy. I love my country, not my government. Staunchly Pro-Choice & Pro-Palistine. #Phish #BLM #WWDITS #Ganga
๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ๐ต๐ธ๐๐ป
Dr. Devin Guthrie @drdevinguthrie.bsky.social Existential Psychologist, ACT Coach, Death Doula. (They/Them) LifeandDeathCoaching.com
Work centers neurodiversity, disability, climate crisis, queerness, & meaning in life in spite of the inevitability of death.
Currently accepting new clients!
Jemma Brown @jemmabrown.bsky.social Blind accessibility advocate and influencer living neurospicy and chronic illness life. https://linktr.ee/jemmabrown
Colandme (Extremist Allegedly) ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ @coldon1983.bsky.social Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 13 years #pwME #rejoin #FBPE ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ
skateintraffic @skateintraffic.bsky.social trying to understand how this is all put together so we can craft a just and flourishing society when capitalism falls ๐ด
he/him
e-biking ๐ฒ๐longboarder ๐น gardener ๐ฑ scavenger โป๏ธ tool collecting ๐งฐ sewing โ๏ธ 3D printing ๐จโ๐ป electronics repair ๐ฒ
Sanni Winter @sannibenke.bsky.social Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community.
Sharing #bookrewievs and #liMEricks.
- P Pink Opal Rose @pinkopalrose.bsky.social I love art & music & cooking & baking & reading & animals & am nuerospicy lol. I have chronic health problems & PTSD. Democrat, obviously. I don't post much but follow lots because I'm isolated & lonely ๐
Tesni / jan Tensi @tesni-rhys.bsky.social Enjoying my active and other hobbies while coping with a variety of chronic illnesses. She/they, bi, spoonie, rodent mom, SASS witch. Martial arts, hiking, strength training, musician, video & tabletop gaming, Toki Pona, the color pink and more.
Adrian Farrell ๐ฌ๐ง๐ช๐บ๐บ๐ฆ @adrianfarrellat.eurosky.social Alexander Technique teacher and author of Effortless Guitar (Amazon & Audible). #pwME
https://www.alexander-technique.london/
Rory (they/them) @roryq.bsky.social Taxonomist (MSc @ Imperial/NHM) | (Ethno) botanist | Autistic/ADHD/ME โฟ | Queer | Ex-(ethno)musicologist | Excited about cross stitch, mosses, fantasy plants, Tolkien
Mona Lisa @monalisadarling.bsky.social If you love melodies that hit deep, weโre probably on the same wavelength.
VRAIE-IDEA @vraie-idea.ca A team of applied researchers building employer capacity to develop inclusive and accessible workplaces for persons with disabilities.
Affiliated w/ McMaster University and the Institute for Work & Health
https://vraie-idea.ca
#InclusiveEmployment #pwd
Jezebel @jezebeldotcom.bsky.social Still without airbrushing. Still with teeth.
Subscribe: https://bit.ly/3PLBUJ8
Newsletter: https://jezebel.com/newsletter
Mother Jones @motherjones.com Investigative journalism ๐ต๏ธ, politics ๐ณ๏ธ, chart-tastic ๐, and sometimes sarcastic ๐๐๐คช
Join our people-powered nonprofit newsroom: motherjones.com/subscribe
Orbital Policy Group @druidorbital.bsky.social Viewpoints and opinions on policy issues relating to Low Earth Orbit, including policy, science, governance, and cybersecurity.- J Jessika @jessikafe.bsky.social ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions ๐
#MECFS #LongCovid #IACC #PAIS
๐ https://crunchme.org/
NOT A WOLF @sickofwolves.bsky.social COFFEE LOVER. GRAPHIC DESIGNER. DEFINITELY NOT A WOLF PRETENDING TO BE A MAN
Jenny Edwards CBE @jennyedwards.bsky.social Personal capacity. Chair People's Health Trust, Trustee Affinity Trust. Fellow Fac Public Health. Mental Health, Arts, Learning Disability, Health Inequalities, Mindfulness, Peace, Nature Connection, Swans. Studied Archaeology & Anthropology. Typos galore
Jess Badger @jesshoneybadger.bsky.social Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
Sara @saramitch74.bsky.social Saving democracy one sky note at a time ๐
Envixer @envixer.com He/Him, Non-Binary (Genderfluid), Polymath, Creative, GenX, Brown, Woke AF, G+ alum.
Charlie Delavida @charliedelavida.com Gen X Geek / Democratic Socialist / Cat Dad / Traveler / Foodie / PC Gamer / TTRPG Player / LGBTQ+ Ally / 25+ Year I.T. Vet / Anti-Fascist / Tea Drinker / Science Nerd / Married to @melissadelavida.com
~
Formerly Charlie Hoover
Geek Questioner (G+)
Jim McCloskey @jimmccloskey.com I am a meat popsicle.
Di Cleverly @dicleverly.bsky.social PhD scientist, writer, presenter, G+ alum, animal lover, extremely curious. A clippy.
Bruce Shark @bruceshark.bsky.social IMMA SHARK
Same shark, same plan...eat racists, make stuff.
Mostly jolly, sometimes i get hangry.
Gud about sharing recipes and shit.
INCAPABLE OF CRITICAL THOUGHT๐คฃ
Don't be a dick.
๐ฆ ๐
Brad Leclerc @bradleclerc.bsky.social Old, disabled, autistic, and generally just trying to stay sane...ish.
Mari @marithomas.bsky.social Happy, friendly, Nerd, Geek ๐ค all around hyperfocusing Deep Diver into anything and everything. Gardening, tech, politics, the human condition. She/Her
I also support everyones right to live the life they want to live as long as it isnt hurting others.โค
Sarah Rios @sasseebioche.bsky.social Reader, writer, artist. Social media lurker. Chaos goblin. I'm on most socials under this same handle so if you found me again then congrats!