Freya @freyaliusy.bsky.social #DogMom #Brainstorming #1A #2A
Jeannemaire @jeannemcardle.bsky.social 
Igal Katz @igalkatz.bsky.social https://swigal.blogspot.com/
Calista @kohuke.bsky.social I’m not afraid to speak my mind on the West Coast, and I enjoy keeping up with global news and political developments—information and humor are equally important to me.
Baby Richman @babyrichmanband.bsky.social REMEMBER TO HIT THE BELL (🔔+ ) 👆
SO YOU’RE NOTIFIED WHEN WE GO LIVE 📺
VO XO @voxo-wav.bsky.social Ride the wav 🌊
Love Herself out now
listen / save / add to ur playlists 💙
Linktr.ee/voxo.wav
Supporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social 💙UK Registered Charity: 1205685
💙Long COVID doesn’t stop the care - neither do we.
💙Join our Campaign: #SafeAir4All
Marion Michell @marjojo2004.bsky.social Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
Phil Latouche @platouche.com Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate
Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
Gry @creatrixandme.bsky.social Battling ME/Cfs on a daily basis. Love cats, arts and food. I despise Trump and his administration, and I will support the people of the USA in their struggle for a better future. Slava Ukraina.
@beyondchaz.bsky.social @beyondchaz.bsky.social Blue-state girl, cares about social fairness, environmental protection, and the little joys in life.
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
@stripeyfruit.bsky.social @stripeyfruit.bsky.social They/them etcetc
Arlette @arlette.bsky.social I am one of the #MillionsMissing
32 years old
Netherlands
She/her
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Michael Nobbs @michaelnobbs.bsky.social Artist and tea drinker living on a hillside in Wales.
Learning to live a gentle creative life and encouraging others to do the same.
Diagnosed with #MECFS in 1997.
www.patreon.com/gogently
https://linktr.ee/michaelnobbs
✍️🧶
Laurel @dreamsatstake.bsky.social Mostly bedridden with severe myalgic encephalomyelitis/ME
Interests: health, reading, nature, film, photography, art, travel, social issues
Former blog: www.dreamsatstake.com
Scholen Veilig (Safe Schools) @scholenveilig.bsky.social Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com
🌍The Netherlands
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
dSavannah @dsavannah.bsky.social ~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014
~ #LiveInBedButIAintDead
~ When brain & body behave: Chronic Illness Advocate
~ Discworldian, Browncoat
~🐱(x3)🐢💐🌻🌷📸📚🖼️
~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷
https://linktr.ee/thedsavannah
Jess Badger @jesshoneybadger.bsky.social Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
John Clutter @theclutterer.bsky.social John Clutter from Twitter. Economist, Theologian. Introverted idealist. Trying out new things. ME/CFS and stuff. Skeet!
ThreeBucks @threebucks.bsky.social #LongCovid OG, #PEM #ME (formerly #MECFS) #pwME #vWD #BleedingDisorders #ADHD #Teacher on medical leave, #design nerd, Mac lover, dog mama, #Illini fan, kind of ok at #pacing, really good at doing too much.
Abby @abbyneedsanap.bsky.social Housebound neurodivergent artist with Myalgic Encephalomyelitis #MECFS, POTS, MCAS, FM.
Enjoyer of cozy fluffy things, tea, books, and the way the light filters through the forest.
Passionate about animal welfare + nutrition, the paranormal, & weather.
Sarah @birbsarereal.bsky.social Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her.
Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
Ted Monroe @tedmonroe91.bsky.social English teacher; writer; impatient Long Covid patient
Read: https://tedmonroe91.substack.com/
Bea Dekkers @beadekkers.bsky.social LongCovid, MEcvs, POTS en MCAS sinds oktober 2020.
Voorheen autisme specialist MSEN, persoonlijk begeleider VG zorg, nu WIA, IVA
Samen met @marcbalemans en labrador Fiep
Fran Friel @franfriel.bsky.social Author, Nature Rewilder🌱 Science/SF Geek🚀 Painter, Two-time Bram Stoker Award Finalist, Black Quill Award Winner, Ireland via California, LCFirstWave
Marloes Letteboer @marlette75.bsky.social 
Eelco de Rook @eelco.bsky.social Bekritiseer ik de ander op wat 'k verafschuw in — oh, grúwel 😜 — @eelco?
Hoeveel hypocrisie kan ik van mezelf verdragen?
#VoorWeinigCovid #vitamineD
Ook op Mastodon 👉 https://mastodon.nl/@eelco
Martin W. Angler @martinangler.com Science Journalist
#LongCovid Context
ABSW 2024 Awards Finalist
theMHS 2024 Awards "Highly Commended"
Portfolio https://muckrack.com/martinangler
QuyetPawz - Mutual Aid @qpmutualaid.bsky.social Only those I follow can reply.
Follow me and I'll check if your account boosts mutual aid or posts mutual aid. 💜
MA threads return in September 2026.
Do not tag me to boost MA posts, you will be unfollowed.
https://voggtech.ca/qp/
Brenda MacIntyre, ᒪᐢᑭᑭᓂᑲᒧᐣ ᐃᐢᑫᐧᐤ 😷 @mswcreations.bsky.social Medicine Song Woman. 🎤😷Indigenous Keynote Speaker/Singer, Hand Drummer. Long COVID, CFS/ME & CPTSD. GenX. Trauma-informed virtual circles and mentoring for COVID-conscious women. NO DMs without permission. https://medicinesongwoman.com 😷she/her
Merlot Vine @merlotvine.bsky.social Kitchen garden, DIY fundamentalist. Science news about SARSCoV2, Covid19, longcovid.
Cats! Has ME/cfs and LongCovid
Lydia Morsman @lydiamorsman.bsky.social ✍🏻 forever trying to write a novel
👩🎓somehow, a 3rd year OU student
♿️ ambulant chair user
🧟♀️ me/cfs - pro zombie
🫠 CPTSD - allergic to noises and sleeping
💃 LNK
🧘♀️ marked safe from yoga
Ashley Hultman @ashleyhultman.bsky.social #TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Taija Rutanen @taijarutanen.bsky.social TtM | Kansanterveystieteilijä | Työkykykoordinaattori | Työllisyysasiantuntija | Sairaanhoitaja | Kiinnostunut pandemiaan liittyvistä asioista ja työhyvinvoinnista | long covid since 04/2020
Pete Caruso @petecaruso.bsky.social Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
Liz Burlingame @lizmeactga.bsky.social Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Martin v Oers 2🦋 @m02.bsky.social ❤️🐬& #HumanRights ! 🌍🌏🌎❣️
😇Vaccinaties:💉Ja,+🦠 #preventie bittere noodzaak!🌬️😷:
#LangeCOVID🦼/ #CovAIDS⚠️
🆘Stop de ‘ #virusplicht! ‘☠️
🌊 https://ContainmentNU.nl 🫂
☮️☀️🍉🌻🌈🌱🕊️
🐘 https://mas.to/@M02
https://twitter.com/M02
JB @jessicabailiff.bsky.social Musician & Photographer. Photo by Steve Swartz.
Tristan @hydrangea-blues.bsky.social agender - they/them xe/xem - UK
autistic & disabled (mecfs)
white
mostly lurking, liking and reposting
sorry in advance if i take a joke too literally ✌️
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
@babst-g.bsky.social @babst-g.bsky.social Getting by a day at a time as best I can with ME/cfs
Ellie @madknittrsteaparty.bsky.social Love crafts, history, stories, natural world & spending time with husband, children, family & friends. When M.E /CFS & POTS doesn't stop me - which is most of the time right now. Usually found in a dressing gown. Devon, UK ♿🌿🏳️🌈🏳️⚧️🕊
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Becs #TeamPlanet @becsteamplanet.bsky.social Team animals, (eco and social) mindfulness,
climate psychology, IDG Ambassador, Work that Reconnects, me/cfs, PSV
Psychosociaal counselor & mindfulness trainer.
Schijn een klimaatdrammende woke deugder te zijn. Ben vooral lief.
Lauren Sabina Kneisly @sabina.kneisly.org Activist: Queer Nation, ACT-UP, WHAM, BARF, clinic escort, Feminist. Queer Femme, Bastard/adult adoptee, T2D, Covid infuriated, masking. Spent the last couple decades researching wingnuts. A cranky Cassandra at times
https://linktr.ee/laurensabinakneisly
Tufano79 ~ Josie @tufano79.bsky.social She/her
Human
Musician
Democrat
Dog mom
Teacher
LGBTQIA+ Ally
Friend
Book Nerd
Warrior … in my mind
#BlueResister
#BlueCrew
Inge ZV (she/her) @ingezv.bsky.social Svp no DMs. I won't react. I'm too ill.
LongCovid, jurist, author, art, travel, mountains, crochet, lid van #NietHersteld
God is the best artist. God has no closet 🏳️🌈🏳️⚧️
A just-an-emoji-reaction is not lack of being interested but lack of words.
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Tiff @creativetiff78.bsky.social I'm in N. California, 47 y/o Married, Chronically Ill ( #SmallFiberNeuropathy, #mecfs, #migraine, #dysautonomia, #hEDS, #fibromyalgia, #HS) retired LCSW, disabled
#artist #knitter #witch #advocate #writer
Bi 🌈🧙♀️🦥🥄🧶🎨🌻💙🌊
https://linktr.ee/CreativeTiff78
Brent Forman 🇨🇦 @joeblow604.bsky.social Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative
Former Electro-Mechanical Prototyper
Inclusive
#pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness
#art #artist #painting #oilpainting #digitalart #photography
Jason Jasonson @jaseygalore.bsky.social Disabled by #MyalgicEncephalomyelitis ° Ambulatory wheelchair user ° Nazi lives don't matter ° Science is real ° #AuDHD ° #Lutruwita
I mostly repost things rather than write Bluestuff because my mind isn't sharp and lively anymore 😔
her most high dairiness @ladyofthecheese.bsky.social river mermaid, crafter, gamer, and nature lover. ready to disappear into the woods on a moment's notice.
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
Sickandtiredaus Jordan Crane @sickandtiredaus.bsky.social http://heymp.com.au/sickandtired
http://change.org/LongCOVIDInquiry
http://www.instagram.com/sickandtiredaus
https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09
https://www.facebook.com/share/19nSvtGPNz/
Becci Jewell @beccijewell.bsky.social Huge fan of nature and travel writing, cake, and our oceans. RNLI crew. Not actually a penguin.
Bradt New Travel Writer of the Year Shortlist 2024
Baroness Barbara Keeley @baronesskeeley.bsky.social Labour Peer. Former MP for Worsley & Eccles South & former Shadow Minister for the Arts and Music.
Helen Leach @pippypipkins.bsky.social Nottingham. NFFC. Books. Libraries. Genealogy. Sewing. Musician. Polish heritage. Improve thyroid treatment.
Suzanne Forbes aka Slurketta @suzanneforbes.bsky.social Queer disabled MECFS (and Filth!) Elder in Berlin, housebound retired artist. Still respirator masking. Trans rights FOREVER. Sex worker ally. Baby vegan. Location: Atlantis by Gaslight. She/her.
Chris Hutchings #ChoirsForClimate @hutchingsmusic.bsky.social Composer, climate campaigner, dad.
Main site: https://hutchingsmusic.co.uk
Songs trying to save the world: http://choirsforclimate.com
Listen: http://soundcloud.com/hutchingsmusic
Videos: http://youtube.com/@choirsforclimate
he/they, Edinburgh
Anna Biggs @writebiggs.bsky.social Reader, writer, sleeper agent
Loves history, folklore & growing things
ME + expansion packs
ADCI network ♿️ | she/her
LL Lucy Cavendish Prize ‘24,
won: Greene Door ‘25, Curtis Brown Breakthrough ’24, Jericho Writers Mentorship ‘24, Novelry Octopus ‘23
AutumnSun9 @autumnsun9.bsky.social Joined Bluesky Nov 7, 2024. Ocean girl forever 🐬
I ❤️🔥 science, nursing, film noir, art, guitars, protecting animals, people, ocean & earth, 60s70s rock, lite jazz, giive me humor.
David Archer @davidetc.bsky.social 36 trillion cells trying to get some rest. he/him
Musician, writer, bookseller, etc. based in Haida Gwaii. #pwME
I like boosting solutions. Better ways and amazing people are all around. www.davidarcher.net
Lia Pas @liapas.bsky.social #SciArt symptomatology and #anatomy #embroidery, writing, and #MECFS. A bit of music too. Canadian settler. she/her. https://linktr.ee/lia_pas
Casey Doherty @caseydoherty.bsky.social she/her
Disability policy by day, PhD student by night, building @disabilitypolicy.bsky.social by later night
ME/Long Covid/Lyme/MCAS, PMOS, OCD+
Need masks in the DMV area? Msg me!
Opinions my own. Reposts/likes not endorsements.
emskware 💙😇👩🦳 @emskware.bsky.social Retired paralegal, blue dot in a red county on the Jersey Shore. Here for the camaraderie. #Disabled #ChronicPain. #ACLU. #MoveOn. #DemCast.
Medically Induced Hermit @fallsthroughcracks.bsky.social • Spoonie🥄 • I ❤️ Nature & Wildlife photos 📷 • #ME/CFS • Healthcare worker (COTA) until disabled with multiple chronic illnesses & chronic pain • HERmit • Armchair Traveler • Slipping through the cracks = Medically Induced Hermit 👎•
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Illustrator Interrupted @franceyme.bsky.social https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
Litsa Dremousis @litsadremousis.bsky.social ALTITUDE SICKNESS (Future Tense Books). Upcoming: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. The Blvr, Esquire, Flare Lit Mag, McSwy's, NPR, NY Mag, NYT, Pictura Journal, P&W, PW, The Rumpus, Short Beasts, et al. #pwME https://litsadremousis.com
Wendy Kloiber @wendykloiber.bsky.social So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her. Ashland, WI —> MSP.
RikkaPik @rikkapik.bsky.social Suffering from ME/CFS, turning to art to keep (almost) sane. PTSD survior, broken brain lefty and demiace Gen X.
Some stuff:https://www.deviantart.com/rikkapik
Sebastiaan Deetman @lymecfs.bsky.social Down with chronic Lyme disease, Long Covid, ME/CFS and POTS. Researcher in Environmental Sciences, Industrial Ecologist, Born at 348 ppm.
patientledhypothesis.github.io
Dan Gabriel @dangabrielgames.bsky.social Austro-argentinean game and narrative designer, writer. Cares about stories, empathy & high level analytical thinking. Open for work.
Homebound due to #ME/CFS.
linkedin.com/in/dangabrielgames
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS
ME/CFS | Disability | Social Justice
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
Dinet Koopman @dinetkoopman.bsky.social Klinisch psycholoog BIG, traumaspecialist. Geeft les over trauma. Eigen praktijk.
Poezen, Italië en Engeland, moestuin.
Ian Weissman, DO @drianweissman.bsky.social Radiologist @DeptVetAffairs #AdvocatingForPatients #PublicHealth #Activist @RadiologyACR and @RSNA #Leadership http://www.linkedin.com/in/ianweissmando
PurpleSpeedwell @purplespeedwell.bsky.social Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment.
Toronto, Canada
Ally of #pwLC
#pwME #LongCovid #POTS #MCAS #MEcfs
Hettyt @hettyt.bsky.social Imagine….☮️🍉
❤️familie en vrienden. Duinwandelingen en het strand in NHN
Voor gelijkwaardigheid, brede maatschappelijke belangstelling, o.a. gezondheidszorg w.o. LC, cultuur, muziek, sport, politiek, geschiedenis, literatuur, klimaat #ANTIFASCISTISCH
Harry van Gerven @drenrettiwt.bsky.social Born @ 335.42 ppm CO2 #LongCovid since april 2020.