@malin-and-me.bsky.social @malin-and-me.bsky.social Swede, writing in English, polyglot wannabe, M.Sc. EE, professional fault-finder in law, logic and lies, Private Finder of Things,
Family first. Music always.
Sigrid C. Degener @esceedee.bsky.social Horizontaalvirtuoos
Nachthaker
Runt af en toe een bed & brakdag
Maakt* de wereld graag mooier
(*handwerken, koken, fotograferen, schrijven) wanneer het lijf het toelaat
🇳🇴Trøndertun ‘90/‘91
#pwME
Prof. Jennie Roe-mick 🏳️🌈 @romich.bsky.social Social welfare scholar, recovering neoliberalist, mom, enthusiastic punctuator!!!!
👎🏻: poverty, late-stage racial capitalism
👍🏻: admin data, social workers in policy, work-life balance
UW SSW but sky-eets R mine
Pic1: ww on zoom
Pic2: the mess offscreen
Hannahh 💞 @heljens.bsky.social lowkey your favorite mistake 🎀
Marion Michell @marjojo2004.bsky.social Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
Signe Calder @signecalder.bsky.social Like a mountain river born from ice, my affection is fierce but narrow. No desire to please everyone; only wanting to carve a unique path through the hardest stones of life, leaving a trace of cold clarity behind
@beyondchaz.bsky.social @beyondchaz.bsky.social Blue-state girl, cares about social fairness, environmental protection, and the little joys in life.
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Astrid Meyer-Knutsen @astridmeyerknutsen.bsky.social Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
Arthur @unrealarthur.bsky.social ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
@skellou.bsky.social @skellou.bsky.social
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Charlie Hillier @charliehillier.bsky.social Science, Molecular Biology, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Temme Tacsume @tem-me.bsky.social #CitizenScientist living with challenging chronic illnesses, among them severe skin conditions triggered by allergies. #ME/CFS. Promoting advocacy and efforts to improve research into these debilitating illnesses. Mastodon: @Temme@chaos.social
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
Andreas Longva @andlon.bsky.social Previously: Researcher and PhD candidate @ RWTH Aachen University, now probably disabled by Long COVID.
Physics simulation, mathematics, software and science
andreaslongva.com
Kathryn Hoffmann @kathrynhoffmann.bsky.social ME/CFS & postakute Infektionssyndrome (PAIS). Prävention & Primärversorgung.
- Univ.Prof. und Ärztin -
!Alles hier: my own opinion! = Private account
Spielt kein Taubenschach!
Audrey Ryback @aryback.bsky.social ME researcher at the University of Edinburgh.
Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Matt Lazell-Fairman @mfairma.bsky.social ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
Jason Murphy @jasemurphy.bsky.social Author of one(1) book. Journalist. Economist. #rstats #mecfs #ausecon. May be found walking his dog in Melbourne, Australia.
Moon Spotting @moonspotting1221.bsky.social
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Chris Persky @thegreatpersky.bsky.social Childless Cat Man Pro Science Pro Choice Pro Democracy (The North will rise again!!) I pay for good journalism and give it away. Branded affiliate for vegan fashion accessories. https://www.corkor.com/wwwlinkedincominchrispersky
@danirmt.bsky.social @danirmt.bsky.social
Vanessa Global @vanessaglobal.bsky.social 209K LIBRARY: universities,libraries,politicians,scientists,academics, lawyers,economists,linguists,historians,writers,BLUE, ANTIFA!
Me: brown NA,Oregonian,veteran,globetrotter,critical thinker,linguist,teacher,reader,atheist,constructive,ANTI-TRUMPIST
Ellie @ellie9.bsky.social Climate lawyer on pause with ME/CFS and LC
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
🍎 Taylor Twins 🍏 @thirstytwins.satan.social 🦋Taylor Twins TWINS BING TWINS🦋
🌀gemelos Taylor Gemelos siendo gemelas🌀
⓸ 泰勒双胞胎 双胞胎就是双胞胎 ⓸
#instagram #threads #X #tumblr #bluesky https://0-info.my.canva.site/barcode-century-docx
Davewata 🌱 @davewata.bsky.social
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person
@kudosscience.bsky.social @kudosscience.bsky.social
Nic @lilnic000.bsky.social
Sammy Det Vel @sammydetvel.bsky.social Trivelig flåkjeft/ Offisell Ølhund/ ME-far/ Gift oppover/ Prosjekthåve/ Planner/ "Sentrumsekstrem Rabulist"
"Triveligere i virkeligheten enn på nettet"
#YNWA #NORWAY
Meinar en mykje må ein tåle at enkelte meinar noko anna!
Aka: Sammy Myklebust
BM/NN/EN
@maritskotheim.bsky.social @maritskotheim.bsky.social Society, politics, human rights, science, research.
Myalgic Encephalopathy (ME) since 2010.
MSc Chem Eng. Former B2B advisor. 🇳🇴 🤝 🇺🇦
Informed Citizens @johnrwilder.bsky.social Political commentator. Cat dad. Professional meme handler. All about protecting democracy, fighting disinformation, and exposing corruption. 100% independent. Neurodivergent / moderately bipolar. Follow at your own risk.
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Kenneth Kronstad @kennethkronstad.bsky.social Bachelor's degree in early childhood education
Interested in medicine, ME/CFS and long covid research
Low Society @metacapitalism.bsky.social Deeply committed to opposing MAGA. my pup, books, TV, old movies, jazz, rock, and classical music, beach walks, writing (fiction and non-fiction), abstract painting, stone sculpting, deep sleep, and non-violent villainy.
@benafo12.bsky.social @benafo12.bsky.social Respect, be good, be loyal, and have understanding
@helsv.bsky.social @helsv.bsky.social
Sandi Leiss @leiss.bsky.social Juristin. Patient:innenvertreterin. Scientist. Interested in and suffering from #MECFS #PostCovid. Personal opinions.
Au Contraire @jcontraire.bsky.social Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
Sue @sueb228.bsky.social Long Covid, ME/CFS, Lyme.
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
JK @fyttirakkernagitt.bsky.social "I was in the minority. As a matter of fact, I was the entire minority."
Skeptisk til dømmingen i norsk fotball.
KimK @kimk-research.bsky.social Retired 🪷 Grandmother ♿️ amputee 🤍 domestic violence advocacy 🥄 longCOVID advocacy @renegaderesearch.bsky.social 🥩 animal-based keto
David W. Hardy, Esq. @hardymediation.bsky.social Atty, mediator, teacher. Lawrence, KS Advocate, MBA, former uni admin. Spouse:🧑🤝🧑@bsbadger INTJ/ENTJ 🚫DMs 🚫 Porn 🚫 Crypto 🚫 OnlyFans 🚫GoFundMe YES to int. news, sci, law, art, philos, Left pol, philanth, nature
Charlie Park @givesnospoons.bsky.social Disability and Healthcare Expert
♿ Disabled Autistic Spoonie
🧠 Former psych
🛏️ Live screaming from bed
🗣️ Disability rights, policy, supports, life
.
Formally @meanderingpark
@l-afg.bsky.social @l-afg.bsky.social
Gethin Coles @getho.bsky.social (Don’t want to be defined by my) mecfs & adhd. Too fatigued to be on the barricades but I'll make the cocktails
under_transformation @trans4m8tion.bsky.social Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS
Mastodon: @_trans4m8tion@zeroes.ca
@patchworkgeneva.bsky.social @patchworkgeneva.bsky.social Just a patchwork dog in DC. Living with a rare disease.
monique d'hooghe ♿ they/she @moniquedhooghe.bsky.social They, she
♿ peace & social justice activist
anarchist
Nothing about us without us- F Lena Kjempengren-Vold @foxfoot.bsky.social Stor tilhenger av faktabasert kunnskap og god forskning, etter 30 år som leder av Komparativ Medisin-Radiumhospitalet, OUS. Nå ME-pasient og -student.
Karen @mosedott.bsky.social
Rouha G @roomcmoo.bsky.social Research in Connective tissue/Osteoimmunol. Strive to apply Baha'i Faith. Bird app projects: @eds_hub @smbsltpodcast being moved here eventually
roomcmoo at universeodon dot com as well
ME-foreldrene @me-foreldrene.bsky.social ME-foreldrene / The M.E. Parents of Norway
Vi representerer barn og unge med myalgisk encefalomyelitt (ME) og deres pårørende. Vi har et oppdatert, biomedisinsk syn på ME.
Alle som ønsker å støtte arbeidet vårt kan bli medlemmer.
www.MEforeldrene.no
Malwsmefys @malwsmefys.bsky.social Welsh, arty, crafty, cat lover 😻 Humanist and Terry Pratchett disciple. Disabled with ME/CFS #pwME
@lellin.bsky.social @lellin.bsky.social
Peter Anti-Fascist Lütken 🇳🇴🌻🇺🇦 @peterlutken.bsky.social Jobber med EDB på dagtid, opptatt av sykkel, kaffe, katter, krigsseilerhistorie og amerikansk politikk. Han/ham, Follo-gutt i trøndersk eksil
@stinelyngseth.bsky.social @stinelyngseth.bsky.social
@rigmama.bsky.social @rigmama.bsky.social opptatt av rettferdighet for ME-syke, strikker fredsvotter for Gaza og tar en dag om gangen
Melissa Orobko @melissaorobko.bsky.social (they/them)
#BLM #LandBack 🏳️🌈 #COVIDIsntOver #ChronicallyIll
MSc, now Biol PhD SFU (marine cumulative effects)
Fryvil @fryvil.bsky.social Stolt ME-aktivist og styreleder i ME-foreldrene. 🦋💙🦋
Mest om ME, litt om mangt. 🤗
www.me-foreldrene.no
Proud M.E. activist and board leader of The ME Parents of Norway. 🦋💙🦋
A lot on M.E., and a bit on a lot. 🤗
Ranft @ranft.bsky.social Verkehrswende, Entrepreneurship, Housing, Alumn #LSESociology #LSECities
FUCK FASCISM.
Cornelia ME/CFS @corandmecfs.bsky.social I used to be a person, now I’m a ghost, lingering on in the world of the living. ME/CFS since 2011, severe since 2021.
Callirhoé @callirhoe.bsky.social Between illness and rebellion.
Climate, healthcare, anti-ableism, ophthalmology. EDS,MCAS, ME/CFS.
Climat, santé, antivalidisme, ophtalmo.
Engineer by training, activist by heart.
Fantasy &SF. Good Omens &Andor.
Posting in 🇫🇷/🇬🇧
https://linktr.ee/callirhoe_
Jan Nygård @jagny.bsky.social
Anmia アンミア @anmia.bsky.social Norwegian and English and a little Serbian, TTRPGS
(She/Her)
I post nonsensical and sometimes sensible things in mostly Japanese and English
ノルウェー人
Harald Eriksen @haralderik62.bsky.social Født og oppvokst i Finnmark.
Bor nå i Søgne.
Musikk, foto og dart er mine hobbyer.
@msjohanne.bsky.social @msjohanne.bsky.social
Nanette Suzanne Danielsson @nanettedanielsson.bsky.social 🦋 Activist with ME ♿️ PhD in Psychology 🎓Former researcher 📚 & integration strategist💡Expat in Sweden 🇺🇸➡️🇸🇪 #Latina🌶🐕🌳🎨🖼✍️ #Democracy #ProChoice #HumanRights #SocialJustice 🏳️🌈🏳️⚧️♀️♻️✊🏾⚖️🌎🙏🕊💙 #ChronicIllness #ME #MECFS
#MillionsMissing 🚫Crypto 🚫DMs 🟰 Block 🚫Porn
@vincentbadger.bsky.social @vincentbadger.bsky.social
Vanessa Smith @normalness.bsky.social We're all normal to ourselves. I write. I hate hustle. I love shiny objects. Can't even influence an ant. Anthropology & sociology graduate. Author of books. Spoonie. And much more.
www.normalness.com
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@novid2catz.bsky.social @novid2catz.bsky.social
@ellebot8.bsky.social @ellebot8.bsky.social
Liv Anne Bjurgren @livanne.bsky.social Leter etter glimmer og folk som sprer sånt
Eskil @esekiel.bsky.social