@iwabuti.bsky.social @iwabuti.bsky.social
CoPace: Pacing & Fatigue @copaceapp.bsky.social Honest pacing for energy-limiting conditions. Your heart-rate threshold, on the watch you already own. Works with Apple Watch, Garmin, Oura. On-device, no account, no cloud AI. Free to use, Pro optional. Not medical advice.
Miri @miri2.bsky.social Idk man I’m just here to get weather news and talk about being chronically ill
Snarlifax @snarlifax.bsky.social 114 520 € (Cent quatorze mille cinq cent vingt euros). 🫰💵 🎰💲👛💰😆 Tout ça pour un photomontage "Super Nanny" ! 😝🥴😜🤪🤣😅😂
publié une seule et unique fois le lundi 27 février 2017...
mdr #114Kvs5K #8ans #Supernanny #Dinguerie #Quérulence #Quérulent #Quéruleux
ME/CFS warrior @justjones43.bsky.social Standing at the corner of Social determinants of health & Common sense and wondering where everyone else is.
Free-thinker. Sometimes my thoughts wander off and I have to go look for them.
Dr. Alyssa (they/them) @yesthattoo.bsky.social Autistic researcher with too many interests and no real intention of narrowing it down. Mostly AAC research at the moment. Sometimes a math teacher.
Not speaking on behalf of any companies/organizations here.
Jennifer Gable @jennifergable.bsky.social 🌎🏟️🎪🎫Touring Headliner Viral🦠Comedian, Lol0nKillTony,
Funny0r😵,Special ‘6 DRINK MINIMUM’ 269K+ Views on YouTube!🤣🫳🎤JenniferGableOfficial.com PHILLY 10/29! FL 4 Shows! Denver 5 Shows! 🎟️🎫& Subscribe: https://bnds.us/4otirb 2nd📺🃏🍿⛲️
Argent @warden-010.bsky.social #base44 #deepai #chromebook
https://www.epa.gov/
nida.nih.gov/ bop.gov/contact/
livecodes.io/
https://www.pacificdrivegame.com/
https://one.one.one.one/
https://www.earthevolution.com/
Tony Britton @thewestonmale.bsky.social Retired UK journo and charity PR/fundraiser. Proud dad and grandad. Such an Oddfellow. Soft spots for @MillMedia.bsky.social, @newjournal.bsky.social and @FenlandOF.bsky.social. By the way, I also ❤️ #Tasmania
Ravredd @ravredd.bsky.social Mindfully striving!
Wayside Scribbles @waysidescribbles.bsky.social Left by the wayside. Won't give up without a scribble. #longcovid #mecfs | Also on: 𝕏 Twitter 📸 IG 👥 FB @waysidescribbles (no S on X) | Support me: https://buymeacoffee.com/waysidescribbles
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
🍉🍋 😷🩼🇱🇧ⒿⒿ 🇵🇸 @msjacksonnm.bsky.social COVID realist 😷💜 Accomplice 🏳️⚧️🏳️🌈 who loves to repost (she/they) abolitionist feminist rewilding one unlearning at a time … header pic by incredible @CourtneyAhnDesign on IG!
Embodiment for the Rest Of Us @embodimentrestofus.bsky.social EFTROU podcast empowers listeners to radically improve their relationships with their bodies & look beyond oppressive systems. We’re on a temporary hiatus - thank you for your patience! http://EmbodimentForTheRestOfUs.com
Temme Tacsume @tem-me.bsky.social #CitizenScientist living with challenging chronic illnesses, among them severe skin conditions triggered by allergies. #ME/CFS. Promoting advocacy and efforts to improve research into these debilitating illnesses. Mastodon: @Temme@chaos.social
@egreiml.bsky.social @egreiml.bsky.social - P @philippe606.eurosky.social @philippe606.eurosky.social
@heronsend.bsky.social @heronsend.bsky.social Art and literature. #ME.
Resting on the Chesapeake.
Thank You for Masking! @thanksformasking.bsky.social A sticker project supporting a wonderful family in Gaza - Bahaa, Manal, and their two kids Anwar (3) and Ayla (6mo).
https://linktree.com/thanksformasking- J @jessicawinter.bsky.social @jessicawinter.bsky.social
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person
Bean & Sprout's Mom @beansproutsmom.bsky.social STEM mom dodging airborne pathogens. Ankylosing spondylitis warrior. Very sweary 😆
despondentindystopia ✨ @saltingthevibes.bsky.social Clean Air & Public Health Advocate 💨💉😷
😻😻🏳️🌈✊🏼🖇️ 🫘🖖🏼
Links to discounts on Far UVC:
https://linktr.ee/saltingthevibes
A Moveable Feed @amoveablefeed.bsky.social Blunt, funny takes on today’s biggest stories from a recovering DC insider. One sharp email a day so you actually understand the news. Subscribe ↓ https://buttondown.com/amoveablefeed
Olivia Macassey @macassey.bsky.social I'm not really here.
www.macassey.com
(actually I'm not there either lately. Just email me).
Simmaron Research Foundation @simmaronresearch.bsky.social 501c3 dedicated to discovering treatments for ME/CFS, LongCovid and IACCs, collaborating with expert clinicians and scientists.
Nev @alphukit.bsky.social Outdoors and all things nature type of guy.
I love camping, hiking, foraging and travelling anywhere, anytime.
@sburket.bsky.social @sburket.bsky.social
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Taija Rutanen @taijarutanen.bsky.social TtM | Kansanterveystieteilijä | Työkykykoordinaattori | Työllisyysasiantuntija | Sairaanhoitaja | Kiinnostunut pandemiaan liittyvistä asioista ja työhyvinvoinnista | long covid since 04/2020
Too Tired To Make @tootiredtomake.bsky.social Too Tired To Make: An act of thinking in public about how creativity actually happens under constraint.
#M.E.
#CFA
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#ADHD
#Creators
#Makers
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
@danirmt.bsky.social @danirmt.bsky.social
Reese @puppylove23.bsky.social 🐶 Woof! I'm Reese , a Boston Terrier with a black belt in snuggles. My human, BRETT CULBERT– you know, my actor papa who's on TV and all that? – thinks he's the star, but let's be real, I'm the real leading role here.- G Just Gerver @gerver.bsky.social nonprofit controller in higher education; freelance writer/editor/educator/patient advocate; interested in non-profit finance, public transit, history, science, Jewish texts #FBLC
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
@calltobase.bsky.social @calltobase.bsky.social
Michelle @itsmefromcan.bsky.social 🇨🇦 YVR 🐈⬛🐈⬛🍫🧁🍪☕️🫣📷🧶🧵
lele87 @lele8787.bsky.social Dog lover
Foodie, nature lover
Democrat
Music producer
Instrumental music maker
Hiker
Neurodivergent
Nomad
Adventurer
Digital music creator
Loop music creator
Dj
Sound creator
Observer
Animal lover
Vanessa Global @vanessaglobal.bsky.social 207K LIBRARY: universities,libraries,politicians,scientists,academics, lawyers,economists,linguists,historians,writers,BLUE, ANTIFA!
Me: brown NA,Oregonian,veteran,globetrotter,critical thinker,linguist,teacher,reader,atheist,constructive,ANTI-TRUMPIST
Callum Laing @callumlaing.bsky.social I help ambitious people raise capital, get board seats, take companies public. Let's get more entrepreneurs and builders on bsky!
Author of 4 best selling business books
Roku @rokupz.bsky.social Monster Hunter and JPRG player.
Graduate in Biology from Universidad de León (ULE).
Get Launched @getlaunched.bsky.social Make yourself the 'Go To' person in any industry and earn a side income from running small networking events.
Earn through entrance fees, membership fees, sponsorships & deals. GetLaunched.org
Sam McIntyre @sammc44.bsky.social Long Covid Patient Advocate
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Masks 4 Victoria @masks4victoriabc.bsky.social 📍 Unceded lək̓ʷəŋən territories
Contact us for free (& by donation) masks, RATs, and air purifier loans for local events.
https://linktr.ee/masks4victoria
Profile ID: Masks 4 Victoria logo with a black KN95 face mask with a smiley face in the middle.
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Monica A. Ross @drmonicaross.bsky.social Visiting Scholar @ UC Berkeley CSTMS/OHST. Psychotherapist–writer. Philosophy of science • Philosophy of psychiatry • STS. Interpretation • Classification • Institutional Authority. 🏳️🌈 Website: drmonicaross.com
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚
ProdigalHoosier @prodigalhoosier.medsky.network Co-conspirator/Partner to @Bellmore
Mom
OG Punk Rock Grrrl
IU Alum
CASA Volunteer
Mantid Mom
Future Corvid Murder Bestie
NERD: History, Politics, Policy
Healthcare, Justice, & Education Equity, Organizing, Books, Research, Data, Trauma Informed Care
Ann Forbes @aeforbes.bsky.social noticing–wondering–learning–creating–critiquing–revising
Comprendre l'EM @comprendrelem.bsky.social Comprendre L’Encéphalomyélite Myalgique est une publication par et pour les personnes avec EM. Il est voué à la diffusion des savoirs sur l’EM/SFC, en français, de manière simple et didactique. Et aux réflexions politiques.
Thea @theajs.bsky.social
Rachel K. (Tala) @talaattanagra.bsky.social Here for science, nature, philosophy, mycology, history, advocacy, Afroasiatic languages, linguistics in general.
Medically-retired analyst w/ MEcfs. Epicurean. Humanist. Existentialist. DMV-area forager. SCA, Atlantia. Harvard, GSE. Tinzouline ⵣ♡.
Steph @handle.invalid I am a beautiful young adult vixen thats waiting for something.
SunCat Trinkets @suncattrinkets.bsky.social Hand-made bracelets and beadwork specializing in custom and intentional pieces ✨
Online Shop:
www.suncattrinkets.com
Whatnot:
https://www.whatnot.com/user/moondrivezee
TikTok :
https://www.tiktok.com/@suncat.trinkets
🍎 Taylor Twins 🍏 @thirstytwins.satan.social 🦋Taylor Twins TWINS BING TWINS🦋
🌀gemelos Taylor Gemelos siendo gemelas🌀
⓸ 泰勒双胞胎 双胞胎就是双胞胎 ⓸
#instagram #threads #X #tumblr #bluesky https://0-info.my.canva.site/barcode-century-docx
Print Play Protect @printplayprotect.bsky.social We make cool tabletop items :D
@inthelonghaul.bsky.social @inthelonghaul.bsky.social
Dan the LC Kiwi @longcovidkiwi.bsky.social Kiwi/New Zealander 🇳🇿 with #LongCovid (since 01/06/2022). Former Ophthalmic Technician 👨⚕️.
Here to keep up with LC advocacy, LC news, and LC research updates. 📰😷🌏🩻❤️🩹🔬🥼
Jodi @jcfineartphoto.bsky.social Searching for beauty, goodness and truth. I am a non-apologetic liberal. Don't bother trying to DM. Also, for fuck's sake, spare me the porn. I love art, photography, poetry.
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.- D Drew Hyde @drewhyde.bsky.social Misdiagnosed with essential tremor for thirty years. Now writing about Parkinson's — what I track, and what the evidence actually says.
@kali-cohn.bsky.social @kali-cohn.bsky.social
Sonic J she/her @sonic25.bsky.social Disability advocate, animal rescuer, grower of flowers in the desert. Currently residing in Vernae Province, planet Gedrel.
#MECFS for over 2 decades
#GeneticBeriberi
@goodvibes24.bsky.social @goodvibes24.bsky.social Health and wellness guru. Nature lover. Vikings fan. Iowa native. Resident of Florida. Pro-climate. Pro-science. Independent lean 💙 (all blue until the MAGA/Trump nightmare is over).
NO DM's or Porn
Some Random Monk @phranicholas.bsky.social Educator. Community builder. ☸️ monk. Tragically woke. Race traitor. Tends not to reply to DMs. https://linktr.ee/phranicholas
Tiny Dog Time @tinydogtime.cryptoanarchy.network Avatar is a sleeping Golden doodle puppy
Trying to put mutual aid into practice
Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
👉Safe housing needed 🏡
#Melbourne 🇦🇺
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
David @wasabookshop.bsky.social No longer in a bookshop but still in a pandemic. Going to mask etc as long as it takes. Clean the air! Don’t bother messaging ‘cos I don’t have access to that part of the app…
Helen @helenld.bsky.social Jeweller 💍 Scientific & Archeological Illustrator 👩🏼🎨 Graphic Designer 👩💻 I ♥️ dogs🐕 rats🐀 nature🍃 bugs🐞 skulls💀 water💦 flowers🌸 music🎶
first wave #LongCovid 🌊
Team member @longcovidsos 🛟
Minnesota Monarch 🌱🐛🦋 @jnp-mn.bsky.social Nature lover. Loves all creatures, including dogs, cats, and monarch butterflies. (Except that one cat. You know who you are…)
Committed to supporting #Monarch #Butterflies & other #pollinators. #GrowMilkweed #Bees | 🇺🇸 USDA #zone4b
stygimoloch @stygimolochu.bsky.social extant! poet, insufferable dittymaker, largely housebound charmer. collecting my ME/CFS research here w attempts at translating jargon into more accessible language
they/them, as relevant
SAGE POETESS, WRITER, EDITOR @sagetaylorkingsley.bsky.social 🌊💙🌀Protest + Mystic POET *BEAUTIFUL LATE BLOOMER* Best-Selling Author EDITOR GHOSTWRITER 100 books. LoA~Self-Love~Lover of democracy, nature, dogs, life! Kindness is my religion 🙏
TONS of poetry ➡️ https://sagepoetess.substack.com
ME-CFS Spoonie Bibliophile
The_Maltese_Autist @themalteseautist.bsky.social Neurodivergent (AuDHD and co.), Queer, Chronically Ill, Disabled, Mad...
...MALTESE 🇲🇹♿️♾️🏳️🌈
Sparrow Zennik (They/Them) @sparrowzennik.bsky.social Climate destabilization, me/cfs, infectious disease tracking, food security, city design, green transportation, passive architecture, and others
Long distance travel and flight free since 2020.
Stands with Palestine, Ukraine, and Sudan.
@skellou.bsky.social @skellou.bsky.social
Michelle Mahoney @michellemahoney.bsky.social Neurodivergent Activist, Writer, Educator, Disability Advocate.
Author of Strange Fellow Bobby: The Neurodivergence of Robert F. Kennedy, Sr.
Substack: michellemahoneyautisticadvocate.substack.com
@groundpizza.bsky.social @groundpizza.bsky.social
Aideen Blackborough @ablackborough.bsky.social Disability Trainer & Writer who has Cerebral Palsy. Mum to 2 gorgeous boys & author of "Does it wet the bed?"
LisaE @lisae92853661.bsky.social mom of 4 beautiful kids
(2 human daughters & 2 miniAussies)I’m a grandma(1 Amazing Granddaughter. 1 Strong Smart Grandson & 2 Grandogs). I suffer with ME/CFS
N🚫MAGA.
fhronesis @fhronesis.bsky.social Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
COVID-Safe South Bend @covidsafesouthbend.bsky.social Mutual aid org focused on pandemic safety and sources in South Bend, IN
We have FREE MASKS + TESTS! Request at covidsafesouthbend.org/free-pandemic-supplies 😷
@mellowpurple.bsky.social @mellowpurple.bsky.social
Faith @faith13.bsky.social We the people 💙🕊️❤️
🌎☮️♿️🎨🖥️
Speak your truth
Vote 💙🕊️🩷
#AnimalRights #HumanRights
Dignity for all 💞
😊Artist watercolor & ink & embroidery designer/digital/Dyslexic
My online Etsy shop
Mostly embroidery designs 🌷
https://www.etsy.com/shop/FRenee2Embroidery
Rupert Rivett @rupertrivett.bsky.social 📸 Photographer | capturing life's candid moments with my camera 📸
🌍 https://rupertrivett.photoshelter.com 🌍
#RealStreetPhotography #Photojournalism|
Skilled in unobtrusive, authentic #storytelling
📣NEW SUBSTACK 📔
👇📸👇📸👇📸👇📸
https://rupephoto.substack.com/
@caliclimatedoc.bsky.social ❌ 👑 @caliclimatedoc.bsky.social
Tim Irwin @timirwin.bsky.social (He/Him/His), Random guy trying to make things better, Husband, Dad, (out of work) Software architect / manager, cyclist, autocrosser, driving instructor- J @justindstern.bsky.social @justindstern.bsky.social
Moira California @moiracalifornia.bsky.social Eco-Friendly Art & Culture from the Sierra Foothills
Photography. Dogs. Flowers. Climate. Art. Rage. Divinity in Nature.
“Beautiful Things for Catastrophic Times”
{pronounced mora}
@curemecfs.bsky.social @curemecfs.bsky.social