Jaakko Sarparanta @jaakkosarparanta.bsky.social Molecular biologist studying neuromuscular disease in the Myofin group (@myofinlab.bsky.social) at Folkhälsan Research Center (@folkhalsanresearch.bsky.social), Helsinki, Finland.
Robert Muní Lofra @rmunil.bsky.social PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc.bsky.social John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
MYO-MRI+ 2025 @myo-mri.bsky.social The 5th MYO-MRI+ International Imaging in Neuromuscular Disease Conference (MYO-MRI+ 2025) at Langenbeck-Virchow-Haus, Berlin, Germany, November 9th-11th, 2025.
Buffer @buffer.com The social media management platform for scheduling, publishing & analytics across every major network. Plan your content calendar in one place. This account is managed by real humans. 💙
⬇️ buffer.com/bluesky
Kate Fallon @katefallon.bsky.social • MD/PhD Candidate | Ervasti & Lowe Labs
• University of Minnesota MSTP
• Interested in muscle, physiology, & genetics
https://scholar.google.com/citations?user=M9ahMIAAAAAJ&hl=en&oi=sra
Annemieke Aartsma-Rus @oligogirl.bsky.social Translating science from bench to bedside and from jargon to lay language
The BMJ @bmj.com The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and comment.
The Lancet @thelancet.com Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.
🌐 thelancet.com
NIHR @nihr.bsky.social National Institute for Health and Care Research - we fund, enable and deliver world-leading health and social care research that improves people's health and wellbeing, and promotes economic growth.
Impact, Innovation, Investment, Inclusion
FSHD Society @fshdsociety.com No one should face FSHD alone.
Our Mission: Find treatments and a cure for FSHD while empowering families.
#CureFSHD
Rare Genomics Institute @raregenomics.bsky.social Rare Genomics Institute (RG) is a 501(c)3 non-profit organization committed to filling the unmet needs of patients and families affected by rare diseases.
https://www.raregenomics.org/
Neuromuscular Disease Network for Canada @nmd4c.ca Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Funded through CIHR-IMHA and Muscular Dystrophy Canada
Visit us at: https://neuromuscularnetwork.ca/
European Reference Network - MetabERN @ernmetabern.bsky.social The European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN). A better future for Rare Inherited Metabolic Disease patients.
Visit us 🔗 https://metab.ern-net.eu/
John Walton Muscular Dystrophy Research Centre @jwmdrc.bsky.social Performing world-class translational research to bring diagnosis, care and therapy to people with neuromuscular disease
JWMDRC Patient Registries @jwmdrc-registries.bsky.social Our neuromuscular research databases offer patients the chance to securely share their data and stories to support and access research.
https://linktr.ee/jwmdrcregistries
#UK #NMD #DM1 #DM2 #FSHD #SMA #Col6 #FKRP #MTM #CNM #Myotonic #MuscularDystrophy
Juanma Fernández Costa (He/Him) @juanmafercos.bsky.social Scientists | Molecular biologist playing bioengineering to fight muscular dystrophies at IBEC 🦾🧬⚙️💊🏳️🌈
Svetlana Gorokhova @sgorokhova.bsky.social Svetlana Gorokhova, M.D., Ph.D., is working in Marseille Medical Genetics (@univamu) and @aphm-chu-marseille in Marseille, France, remote member of NNDCS @NIH @NINDSnews
Andrés F. Correa-Sánchez @a-correasanchez.bsky.social Oligonucleotide development and translational science.
📌 Nucleic Acid Therapy Accelerator - NATA
Views on my own.
#PrideInSTEM 🏳️⚧️🏳️🌈 (He/Him)
Virginia Arechavala @varechavala.bsky.social Scientist and mum. Ikerbasque Professor @ Biobizkaia HRI
Interested in #RNAtherapy for #neuromuscular disorders. De Bilbao de toda la vida and adopted Londoner.
https://www.linkedin.com/in/virginia-arechavala-gomeza-a482509/
Jordi Diaz-Manera @querques.bsky.social Professor of Neuromuscular Diseases at the John Walton Muscular Dystrophy Research Centre of the Newcastle University and Honorary Consultant in Genetics at the NHS Newcastle Hospital Trust. Member of the Neuromuscular diseases lab of Sant Pau Hospital.
Prof Gina Ravenscroft🇿🇦🇦🇺 @ginaravenscroft.bsky.social Rare & neuromuscular disease researcher at UWA & the Harry Perkins Institute, Perth 🇦🇺
Passionate about #sciencefunding, #womeninSTEM, #EMCRs
Mum of 👦👧🐶
Posting about genomics, rare disease, PI life & wine
https://www.ravenscroftlab.com
Matthew Alexander, PhD @mattmuscleguy.bsky.social Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. Lover of all things muscle. All posts are my own. Instagram @thealexanderlab
Lab website: https://www.uab.edu/medicine/peds/research/division-researc
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app