by @symptomodyssee.bsky.social
ME/CFS #MECFS awareness. Searches for #MEAwarenessHour #MEAwarenessDay #MEAwarenessWeek #MEAwarenessMonth #SevereMEDay #MillionsMissing in posts and replies
Liz Nevra A. From Nevra's drafts: Young heart for love Not heartache Dark hair for catching the wind Not to veil the sight of a cold world gofundme.com/f/save-nevra paypal.me/SaveLizNevra #VerySevereME #MillionsMissing #DisabilityJusticeForGlobalSouth #MyalgicEncephalomyelitis
Liz Nevra A. In Pakistan, landlords do not like to rent to unmarried women, much less disabled women. Your support helps Nevra overcome barriers and meet basic needs for housing, food, and medical care. gofundme.com/f/save-nevra paypal.me/SaveLizNevra #SaveLizNevra #MECFS #SevereME #MillionsMissing #pwME
Solve M.E. Today, we're celebrating advocacy in action! Advocate & caregiver to her son, Gabe, Rebecca Groble secured an Illinois Senate Resolution acknowledging the prevalence & impact of ME/CFS across the state. Thanks, Rebecca, for your dedication to raising awareness! #MEAwarenessHour
Liz Nevra A. ‼️ URGENT UPDATE FOR NEVRA ‼️ Please share widely and support. Links: gofundme.com/f/save-nevra paypal.me/saveliznevra #myalgicencephalomyelitis #SaveLizNevra #SevereME #MECFS #MillionsMissing
Dt. Ges. für ME/CFS 🥳🎉 2026 markiert das zehnte Jahr seit der Vereinsgründung der Deutschen Gesellschaft für ME/CFS e. V. im April 2016. Genau heute vor 10 Jahren, am 27. September 2016, sind wir als Verein bei der #MillionsMissing - Aktion in Hamburg erstmals öffentlich in Erscheinung getreten. ↘️
Liz Nevra A. ‼️ URGENT UPDATE FOR NEVRA ‼️ Please share widely and support. gofundme.com/f/save-nevra paypal.me/saveliznevra #myalgicencephalomyelitis #SaveLizNevra #SevereME #MECFS #MillionsMissing
Crash Margulies New blog post: Memorializing ME/cfs Deaths - Arnaud Denis crashmargulies.dreamwidth.org/37076.html #MEcfs #MillionsMissing #MAID #MyalgicEncephalomyelitis
Xondaria Wir brauchen eine #AufklärungskampagneMECFS! @bmg-bund.bsky.social, nehmen Sie sich ein Vorbild an #RitaSuessmuth! #MEcfs tötet. Aufklärung rettet Leben. Apropos: Medizinische Versorgung ist ein #Menschenrecht #MEAWarenessHour
Anil van der Zee Wow. Oscar winning filmmaker Martin Strange-Hansen has made a short film about the forced removal of a very severe ME patient in Denmark. This looks really amazing!! vimeo.com/user10350947... #pwme #myalgicE #millionsmissing #severeME
Anil van der Zee Vanaf vandaag is deze hand-out mét stappenplan ter ondersteuning van patiënten met post-acuut infectieuze ziektes gratis te downloaden via: www.devragendokter.nl/webshop/prod... #pwme #myalgicE #millionsmissing #severeME #LongCovid #lyme #QVS #postsepsis #PAIZ #PAIS #IACC