Action for ME

@actionforme.bsky.social

617 Followers 14 Following

Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452

Graphic promoting an Action for ME self‑advocacy resource titled “Impact Statement Template”. The image highlights how the template helps people with ME explain how the condition affects them and what adjustments would support them. Action for ME logo in top right.
Steve Gardener and Sonya Chowdhury speaking with each other. Overlaid text reads “Chief Executive, Sonya Chowdhury, joins PrecisionLife CEO Steve Gardner on the Biology Matters podcast.” Action for ME logo.
Graphic from Action for ME promoting the third PRIME online workshop about post-exertional malaise (PEM), being held online on Thursday 30 July 2-5pm GMT. Action for ME logo in top right with PRIME logo in top left.
Graphic from Action for ME about the Health Bill Committee Debate where Tessa Munt MP’s amendment to strengthen compliance with the 2021 NICE Guidelines on ME was debated. Action for ME logo in top right and photo of Parliament along the bottom.
Graphic from Action for ME about updates from the Timms Review. Text details how the interim findings are expected to conclude that the current points-based disability benefits system is not fit for purpose. Photo of Parliament and Action for ME logo in top right. 
Graphic from Action for ME promoting the ME Friends Online Forum, open to adults in the UK living with ME. Photo in bottom half shows a man using a tablet, with a QR code to the forum sign up page in right corner. Text in top half details the forums support. Action for ME logo in top right corner. 
Graphic from Action for ME advising that Parliamentary written questions on severe and vey severe ME have been submitted and answered. Text advises the community to read more on their website. Action for ME logo top right and QR code bottom right. 
Graphic from Action for ME detailing the impact of their BBC Lifeline Appeal, including two quotes providing positive feedback about the campaign.
Graphic from Action for ME detailing the impact of their BBC Lifeline Appeal campaign, which has now come to an end.
Graphic promoting the “Sequence ME & Long Covid Webinar” from Action for ME. The image includes webinar details for Tuesday 26 May, 14:30–15:30, alongside a blue-toned DNA illustration and Action for ME branding.
Graphic with text: “An estimated 1.35 million people in the UK have ME or ME symptoms, yet there is still no cure, diagnostic test or effective treatments.”
Image of bed with rumpled sheets in low light with text: “5 things everyone should know about ME.”
Graphic with Montell Douglas sharing a quote about raising awareness of ME, highlighting that it is widely misunderstood. Action for ME branding included.
Graphic from Action for ME promoting their Family Support Service. Top half includes a photo of a mother and young daughter sat talking. Bottom half includes a quote from a Family Support service user details how helpful the service is.
Poster showing a video camera on a tripod with text “BBC Lifeline Appeal – Airing Sunday 26 April.” The Action for ME logo appears in the top right, and a Lifeline logo with two reaching hands is at the bottom.
Text reads: Reminder: Register for our PRIME workshop. Join our second online workshop to learn more about the similarities and distinctions between Long Covid and ME/CFS. Friday 24 April, 2-5pm.
Graphic from Action for ME promoting the ME Friends Online Forum, open to adults in the UK living with ME. Photo in bottom half shows a man using a tablet, with a QR code to the forum sign up page in right corner. Text in top half details the forums support. Action for ME logo in top right corner. 
Graphic from Action for ME promoting their Family Support Service. Top half includes a photo of a mother and young daughter sat talking. Bottom half includes a quote from a Family Support service user details how helpful the service is.
Graphic from the Neurological Alliance of Scotland for Brain Awareness Week. Text on purple background ‘Don’t assume I’m ok’ with text beneath on white background ‘1 in 6 people live with a neurological condition’. Logos of alliance members along the bottom.
Graphic highlights Long Covid Awareness Day. Text reads 'Did you know that Long Covid can cause heart amd chest symptoms?' with image of a heartbeat.
Graphic promoting an Action for ME self‑advocacy resource titled “Impact Statement Template”. The image highlights how the template helps people with ME explain how the condition affects them and what adjustments would support them. Action for ME logo in top right.
Graphic shows image of a scientist with text: ME Research Seminar, from rare cancers to ME and long Covid: a new model for research in neglected disease. Join us and share your views on a proposed new research project. Thursday 26 March, 17:00-18:00
Portrait of a suited man against a grey background. A graphic reads “Policy news” and “Greg Stafford MP joins Action for ME’s Parliamentary Champions network & APPG.” The Action for ME logo appears in the top right.
Graphic promoting the Forward ME Annual General Meeting and Guest Lecture, taking place on Thursday 5th March via Zoom. The AGM starts at 2:15pm GMT and the Guest Lecture at 3pm GMT. 
Graphic from Action for ME promoting the next free online Mindfulness workshop for adult with ME & carers. This takes place on Friday 27 March 2026 at 12.30pm. Top half of graphic features a photo of several daffodils in bloom. Action for ME logo in top left corner.
Graphic from Action for ME promoting the ME Friends Online Forum, open to adults in the UK living with ME. Photo in bottom half shows a person using a mobile phone with a QR code to the forum sign up page in right corner. Text in top half details the forums support. Action for ME logo in top right.
Photo in top half of graphic of a forest floor with snowdrops. In bottom half is text in blue on a white background: ‘February online Mindfulness session recording now available! Watch now on our YouTube channel!’. Action for ME logo in top left corner with QR code in bottom right corner. 
Image shows Radio 4's Inside Health programme logo along with text: 'Prof Chris Ponting discusses DecodeME on BBC Radio 4's Inside Health'
Graphic from Action for ME promoting their Family Support Service. Top half includes a photo of a mother and young daughter sat talking. Bottom half includes a quote from a Family Support service user details how helpful the service is.
Image of a lab scientist, with ME/CFS Alliance logo on top right corner. Text reads 'Research Event. The ME/CFS Alliance in collaboration with Professor Sir Stephen Holgate is spearheading a symposium
Image of a DNA double helix against a soft blue background with light particles. The Action for ME logo appears in the top right corner. Text on the image reads: “Research News – SequenceME and Long Covid study launches. The world’s largest long-read, whole-genome study of any disease.”
Smiling runner holding up her finisher’s medal, surrounded by other runners, with text overlay: “Take part in the Great North Run in aid of Action for ME – 1 week left to apply!” and the Action for ME logo.
Policy News: Tom Morrison MP joins our Parliamentary Champions network and APPG on ME. Image of Tom and Action for ME logo.
Graphic promoting Children’s Mental Health Week by Action for ME. Text in top half details how Action for ME support young people with ME through their Young People’s Counselling and Community Service. Photo in bottom half shows a young person on their phone with Children's Mental Health Week logo.
Graphic promoting Children’s Mental Health Week by Action for ME. Text in top half details how Action for ME support young people with ME through their Young People’s Counselling and Community Service. Photo in bottom half shows a young person using a laptop with Children's Mental Heath Week logo.
Photo of representatives from the Overlapping Illness Alliance at their recent in person meeting.
Graphic promoting Children’s Mental Health Week by Action for ME. Text in top half details how Action for ME support young people with ME through their Young People’s Counselling and Community Service. Photo in bottom half of a child smiling with Children's Mental Health Week logo in bottom left.
Action for ME graphic celebrating 5,113 people taking part in the Big Survey, with a thank-you message and heart illustration.
Panoramic image of the Houses of Parliament and Big Ben under a blue sky. Logos for Action for ME, the ME Association and the APPG on Myalgic Encephalomyelitis appear at the top. Text reads: “APPG on ME update: Annual General Meeting and 2026 schedule”.
Graphic from Action for ME promoting the ME Friends Online Forum, open to adults in the UK living with ME. Photo in bottom half shows a man using a tablet, with a QR code to the forum sign up page in right corner. Text in top half details the forums support. Action for ME logo in top right corner. 
Graphic from Action for ME. Text details management strategies for ME and how there is no diagnostic test for ME. Action for ME mission along bottom with Action for ME logo in bottom right corner.