xx Rose xx @tanteros.bsky.social Not much energy / too many migraines. Nature keeps me going #pwME #MillionsMissing
@wlamin.bsky.social @wlamin.bsky.social Belgian living in #Scotland.
Opinions = mine.
@ayechavin.bsky.social @ayechavin.bsky.social 
@radioluxradar.bsky.social @radioluxradar.bsky.social 
Katie Shoop @katieshoop.bsky.social Interested in the world, watching it go by from my sickbed. “Living” with Long Covid (& ME & POTS) since Jan 22. she/her
@a-morrison.bsky.social @a-morrison.bsky.social 
Cleo👠✨ @ozgib.bsky.social Silliness ~ Movies ~ Music ~ Being supportive ~ Animals ~ Nature ~ Arts & crafts ~ INFJ
👉🏻NO unsolicited DMs👈🏻
♿️ Myalgic encephalomyelitis, Fibro, hEDS, LongCovid, MCAS, POTS
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org- D @dbach.bsky.social @dbach.bsky.social
Alan Rew @alanrew.bsky.social UK-based retired software developer.
Art, Photography, Science, Music, Economics, Politics, Geology, Physics, Chemistry, Earth Science, Architecture, Archaeology
I can't send/receive DMs here.
Signal: alan.285
Penelope Bobelope @larougeabeille.bsky.social Invisible Kingdom Dweller
(She’s come undone)
@verdantspace.bsky.social @verdantspace.bsky.social 
Roy H @royh99.bsky.social Electronics engineer.
Dogs ( Lurchers / whippets )
Woodlands, trees and meadows
Wiltshire, SW England
C.Buchkremer @cbuchkremer.bsky.social Description, you know me or not.
Not anonymous but private.
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
#LongCoid + #Philosophy (Wild Strain) @be-herenow.bsky.social https://www.online-tribute.com/AdamWolk
Long COVID takes lives, but we can keep their legacy alive. 💓
Don’t erase them a second time.
Philosophy @
https://doi.org/10.5281/zenodo.20779467
🦉naked alien🪐 @pinealgasm.bsky.social #feral #jaded #cynical #nonconformist #imaginalcell #stardust #artist. professional #spamscamscum #bully annihilator. #outgrowcapitalism.
https://undetectablelight.substack.com/
https://www.tumblr.com/theozzcause
Daniel Menjívar @danielmenjivar.com Retired musician. Now I sew things.
🔗 https://DanielMenjivar.com/
🐘 https://mastodon.social/@DanielMenjivar
Charity Today @charitytoday.co.uk The UK’s leading charity news platform sharing sector news, insight & inspiring stories. Got a story? support@charitytoday.co.uk
Visit 👉 app.charitytoday.co.uk & save to your home screen.
Claudia Doppioslash @doppioslash.bsky.social Principal Graphics Programmer
Rendering, PBR, ProcGen (Houdini, Blender), Tools, Optimisation, Photography, UE5, camera lens simulation
Rust, C++, C#, Python
Author of "Physically Based Shader Development for Unity 2017", Apress
Amy Blackstone, PhD @amyblackstone.bsky.social Sociologist~Craftivist~Long COVID since 3/15/20
podcast/newsletter: NEVERTHELESS, PERSISTING
book: CHILDFREE BY CHOICE (Dutton/PRH)
https://www.amyblackstonephd.com/
@petergunner.bsky.social @petergunner.bsky.social 
Alec Finlay @alecfinlay.bsky.social artist and poet; ecological remediation and human recuperation; landscape, tea, limit and creativity; lives by the sea in Edinburgh; mostly sharing a daily poem here.
HERITAGE Long COVID and ME/CFS study @heritage-study.bsky.social HERITAGE is a UK research study on Long Covid Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) study. Led with patients, studying care models, outcomes & costs to improve services nationwide. NIHR funded.
https://heritage.leeds.ac.uk/join/
Count Melancholia @lillyh.bsky.social Working for a fascism-free, habitable Earth and for Scottish independence. #MECFS #BasicIncome WGB'er
I spend more time on Mastodon, the ethical platform. You can follow my bridge from there at: @LillyHerself.mastodon.social.ap.brid.gy
BlueSky broke DMs.
aaron @amdesign.bsky.social architectural designer. science and technology enthusiast
Tiger-Lily Snowdon @tigerlilywrites.bsky.social Freelance Journalist
London School of Journalism Diploma
Bylines: The Guardian, The i Paper, The Lead, Inspire the Mind, Shout Out UK
https://linktr.ee/tigerlilywrites
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Liminal glimpses & absurdity @francescaprada.bsky.social Filmmaking, story seeking, flaneur, friend
♿ hiding from plagues - Always masked - N95 or bust @smollestbunny2.bsky.social ⚒️Aotearoa
Uppity disabled poor person
Political commentator
Knowledgeable but always learning
AuDHD
#StillCoviding
#landback
Human made only
Consider supporting me and my projects/survival
https://ko-fi.com/systemerror
https://payhip.com/Smollestbunny
Micahdahikah @hffmn.us Micah (⚠️🤬) (he/him/his), nerd 💻, hiker of long trails 🏔️ (PCT’23, AT’18, CDT’🤷♂️), fueled by plants 🌱, driven by justice ⚖️, informed by empathy ♥️ and the collective knowledge 📚 of scientists, intellectuals, and journalists, 🏳️🌈 intersectional feminist ally 🐈⬛.
@redwonder317.bsky.social @redwonder317.bsky.social 
Matt Wake @mattowake.bsky.social 
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
skeleton online @yrriban.net busy falling through the void, check back later.
Todger1 @todger1.bsky.social 
Tony Britton @thewestonmale.bsky.social Retired UK journo and charity PR/fundraiser. Proud dad and grandad. Such an Oddfellow. Soft spots for @MillMedia.bsky.social, @newjournal.bsky.social and @FenlandOF.bsky.social. By the way, I also ❤️ #Tasmania
Accidental Decaf @accidentaldecaf.bsky.social Non-profit Comms, writing about corporate impacts on climate, worker rights & access to health care. Long-time #Union activist. Has been known to shout "Capitalism is obscene!" at parties once or twice.
Royal Life Saving Society UK (RLSS UK) @rlssuk.bsky.social Since 1891 we’ve been sharing our expertise in water safety, lifesaving, and lifeguarding to educate everyone to enjoy water safely. #EnjoyWaterSafely
Long Covid Scotland @longcovidscot.bsky.social Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid.
https://www.longcovid.scot
Chim ☭ @chimmysthoughts.northsky.social Disabled, gay, communist currently living on occupied Duwamish land also known as Seattle. Head to RealRentDuwamish.org to pay your rent.
Tom @tbourney.bsky.social 
Fluffy Cyborg, IInd of the name @avel.kairos-research.org Our world is not pre-given, it's enacted.
Physics of biology & cognition; mind & socio-material practices; political ecology.
All views, expressed or not, are the sole responsibility of the ambient Lebensform.
https://avel.kairos-research.org
Tetisheri @tetisheri.eurosky.social Photographer specialising in heritage and ancient Egyptian artefacts. Neurodivergent and living with MECFS.
Also at https://tetisheri.co.uk and https://tetisheri.substack.com. She/her.
Ollie @chamberlago.bsky.social cham·ber·lar·go: Mostly tired and angry #mecfs He/Him cis
HercuWise @hercuwise.bsky.social UK 🏴 start-up focussed on preventive workplace health | Evidence-based digital solutions for all sizes of organisations | hercuwise.com | info@hercuwise.com | Posts by @drsuzannebarr.bsky.social (Senior Research Fellow (Visiting) @KCL)
Jonathon Marsden @jonathonmarsden.com Civic technologist
Candidate for Master of Cyber Security, RMIT
I built a live feed of all 538 Australian councils' news, in 8 state feeds: https://bsky.app/starter-pack/jonathonmarsden.com/3mrrr5vrdhz2x
Patienterna @patienterna.bsky.social 📍Kunskapshub med patientperspektiv. 🔎Postcovid & ME/CFS ⚖️ Jämlik och tillgänglig vård för alla - oavsett diagnos, ekonomi eller geografi.
—-
📍Swedish knowledge hub with a patient perspective. 🔎Post-COVID & ME/CFS
Temme Tacsume @tem-me.bsky.social #CitizenScientist living with challenging chronic illnesses, among them severe skin conditions triggered by allergies. #ME/CFS. Promoting advocacy and efforts to improve research into these debilitating illnesses. Mastodon: @Temme@chaos.social
The Daily Sarah @thedailysarah.bsky.social 
@picophage.bsky.social @picophage.bsky.social 
Citizens Advice Wirral @citadvicewirral.bsky.social Welcome to Citizens Advice Wirral, your local charity offering free, independent, confidential, and impartial advice 💙
We help residents of Wirral tackle a wide range of issues, including debt, benefits, employment, housing, and more. 
Margaret Nelson 🌦 @flashmaggie.bsky.social Old, knackered. Cloud-spotter and dendrophile. Suffolk UK. Cat's mother.
"The cure for boredom is curiousity. There is no cure for curiousity."
- Dorothy Parker
https://deadinteresting.blogspot.com/2018/01/death-doesnt-misgender-you-die-as-you.html
Prof Nisreen Alwan @nisreenalwan.bsky.social نسرين العلوان
Pronounced /nisri:n/ with an s not a z and a long ee ☺️
Professor of Public Health MBE
Southampton
Not afraid of my voice
Still curious
Posting my personal views not those of any organisation
Reposts not necessarily endorsements
💚 🧿 🌻
Ramses Temmerman @ramsestemmerman.bsky.social Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | 🇧🇪 🇪🇺
Olivia @imoliviaaaaa.bsky.social What are you going to do if our opinion is not the same as yours.... let's find out.
Work with me https://interview-prep-class.getrewardful.com/signup
https://buttondown.com/amoveablefeed
http://www.interviewprepclass.com
Staff @AMF
Panda Queen @jaycee888.bsky.social In my Rebellious Queen Era - living life in PJs. Compassion, Creativity, Self-Love & Long Covid. With just a little bit of glitter.
#longcovid #mecfs
#emotionalwellbeing #selflove #mentalhealth
ME International @meinternational.bsky.social Delivering direct support and advocacy for people with ME/CFS worldwide.
#MECFS #MEGlobalSupport
Our Future Health @ourfuturehealthuk.bsky.social The UK’s largest health research programme, bringing people together to develop new ways to prevent, detect and treat diseases.
https://ourfuturehealth.org.uk/
Lacinda @lacindahummel.bsky.social Chicago parent interested in local and international human rights, chronic illness treatment, and social justice. I like board games, beautiful outdoor spaces, and speculative fiction.
*my icon is a photo of green leafy branches against a blue sky
Maroon Phoenix @maroonphoenix.bsky.social It is all one fight. I’m on the side of the oppressed over the oppressor. Learn to tell the difference.
#LandBack #Enough #ProtectTransKids #TeamOrca #CovidIsAirborne #CleanTheAir
#TaxWealthNotWork
Elle A. Sickandtired 💪🏼🧡✨ @bubbaann.bsky.social Autoimmune fighting, music loving, former news junkie. Gardener. Pastry snob. Neurospicy. More glitter is always better! #mamatried #dmb #curems #longcovid #sicsempertyrannis #newjerseygirl
#lfgm🗽🍎⚾️🧢🧡
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
🦊Lauren🦊 @lollyfox12.uk Living with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Long Covid since 2022.
Big fan of: McLaren F1 🏁 ★ Foxes 🦊 ★ Stars ✨ ★ PC Gaming 🖥️ ★ Nature 🌿
Emma 🛏️♿🌱☮️♻️🍉 @veganmua.bsky.social She/her. Severe ME, CCI/AAI, hEDS & co, AuDHD. Ex makeup artist, ethical vegan, socialist. #BlackLivesMatter
#TransRightsAreHumanRights
Support striking workers
@nikki-992.bsky.social @nikki-992.bsky.social #MECFS #longcovid
Chronic Allies @chronicallies.bsky.social Chronic Allies is a health advocacy website dedicated to providing reliable information, practical strategies, and resources to support individuals in managing chronic illnesses and enhancing their quality of life.
Jess @jesspearce.bsky.social Interested in public policy, public health, planetary health, risk, philosophy, and ethics.
Living with long covid since 2022.
Wanderscotwild @wanderscotwild.bsky.social University of Sussex Social Policy Alumna; Carer; LGBTQ+/Disability ally; Hater of Fascists; Nature, Health, Science & Politics; Based in UK
@tomewatts.bsky.social @tomewatts.bsky.social 
@swippell.bsky.social @swippell.bsky.social 
Ⓜ️ Melissa May Ⓜ️ @melissamay.bsky.social Award-winning TV producer turned communications consultant.
Media & Storytelling expert.
Former CBS / ABC/ CNN journalist | writer | producer
🔹Every Executive Needs A Producer
www.theexecutivesproducer.com
Go Dodgers! ⚾️ Go Vols! 🏈 ME/CFS 🫶🏻
@miniminuet.bsky.social @miniminuet.bsky.social 
More Onion @moreonion.bsky.social The digital mobilisation agency. We help charities and non-profits boost their campaign and fundraising impact. Follow us for tips and free reports. https://www.more-onion.com
Sleepy Portal Ghost @sleepyportalghost.bsky.social 
reformed MCU slop enjoyer @eviltwunk.bsky.social sometimes artist fagguette with a resentment for cars. chronically ill.
Iftah Aynayk @iftahayounak.bsky.social Veteran. Polyglot. Analyst. Resist. Wear an N95.
Andrea Is Sick of Long Covid @andreastudiescovid.bsky.social Devout KN95 wearer.
MS.Ed., LPC, MA Sociology/Criminology
Trained, published researcher.
ADHD, C-PTSD, Long COVID since 1/2020.
Pro-LGBTQIA+, Anti-racist.
Listens to Genesis on an endless loop.
(Previously Ruth Langmore's Salty Attitude on Twitter.)
2covet @2covet.bsky.social NZ museums and heritage aficionado, shoe fancier, curator baiter, demure chocoholic, and all-round-caffeine fiend. Personal views; Not those of my employer.
Graeme Fox @graefox.bsky.social Bioinformatics, Genomics, etc. @ Manchester University
https://graemefox.github.io/
www.longroutes.co.uk - Track your progress across Britain's long-distance trails
Jeramaya James @foretellband.bsky.social A dusky resemblance. Intercepting. Becoming.
https://foretell.bandcamp.com/music
Athena @Glutenfreeology @glutenfreeology.bsky.social When I'm not making gluten free comfort food or watching 80s & 90s movies on repeat, I send countless emails to elected officials trying to get them to care about genocide, America's broken healthcare system and Long Covid.
Alice B @atomicyoghurt.bsky.social Norwich, Europe. Riding the planet and seeing where it takes me. All views are my own, obviously.
A Moveable Feed @talentx.bsky.social Moveable Feed: sharp, biased dispatches from Trump’s America and the AI future. Ex‑DC comms hack, still talking. Read + subscribe here → https://buttondown.com/amoveablefeed
KassandraB @kassandra3.eurosky.social 
@hermaphrodyk3.bsky.social @hermaphrodyk3.bsky.social 
Louise Foster @louisefoster.bsky.social @SfpLouise on X, much prefer to be here!
Anti Brexit, pro immigration, humanist, (actually Marxist), studied & am passionate about politics & economics. Hate current journey of travel in UK, US & on X. Diminished by Long Covid, Fibro, ME & PoTS.
A tired human @saffronandsky.bsky.social disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Jen @ Everwise @everwisedigital.bsky.social Everwise supports charities across the UK with digital strategy, web management and Salesforce.
Kent, UK
www.everwisedigital.co.uk
#webmanagement #salesforce #digitalstrategy #digitalsupport
Fliss @flisstolian.bsky.social 
@maritskotheim.bsky.social @maritskotheim.bsky.social Society, politics, human rights, science, research.
Myalgic Encephalopathy (ME) since 2010.
MSc Chem Eng. Former B2B advisor. 🇳🇴 🤝 🇺🇦
@jeffreyalexander07.bsky.social @jeffreyalexander07.bsky.social #HUMANS>$ Love my HUSBAND, NO BOTS or FRAUDS; I REPORT, nature loving gardeners, photographers, & cooks, TRAINS, especially vintage & Bri'ish steam. 4EVER LIBERAL WOKE DEM, UNION, BLM, LGBTQIA+, anti-bullying, & providing a safe space to everyone.
Rose @nebraskaredrose.bsky.social A nurse who finally retired after 46 years DNP, RN. Long Covid changed my life. Mask up. Completed LC PT/OT and it helped a little. Now planning to experiment with an auricular vagus nerve stimulator. Hope it takes me further along in my recovery!
@kchappell.bsky.social @kchappell.bsky.social The heart lies a little to the left 💙
Women were birds 🕊🦅🦉
Aquarian 💦 Professional in non-profit philanthropy. Hiker 🚶♀️ Birder 🐦 Reader 📚 #Resist ✊️
Chicago.
Dr Eleanor Roberts @elbelbumble.bsky.social Neuroscientist, writer, singer, artist, thinker, doer, laugher, unabashed lefty, feminist, ME/CFS absolute warrior, disability campaigner, 100% LGBTQI+ ally (and all-round Q), all from a small flat in noisy South London.
James. @rbmdm.bsky.social Sou'West UK. Have M.E.
Likes; Nature, engineering, brewing and history.
Sue Nicholls 💚 @suenicholls.bsky.social Green Party Councillor for Buntingford, East Herts District Council. A director at 20’s Plenty for Us. Promoted by Alex Daar on behalf of Sue Nicholls, c/o 55 High St, Ware, Herts SG12 9BA
bexlogan.bsky.social @bexlogan.bsky.social Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |