Alt NIH Bluesky 🧪 @altnih4science.bsky.social Facts & strategy, in an authoritarian takeover.
Rightwing billionaires want to privatize NIH and use it to control universities.
We work to cure diseases like cancer.
Pers views. #science #medicine
NIH Vigils @nihvigils.bsky.social We commemorate and mourn the losses resulting from cuts to funding, programs, and people that have been both discriminatory and indiscriminate. We gather every Saturday at 10 am at the Medical Center Metro station at NIH in Bethesda. Opinions are our own.
Rep. Jason Crow @crow.house.gov Dad. Little League Baseball Coach. Army Ranger. Westerner & Whiskey Enthusiast. Colorado Congressman. 🏔️
Andrea Pauls Backman @andreaalsstrategy.bsky.social ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
ALS United Rocky Mountain @alsunitedrm.bsky.social Our mission is to unite and empower the ALS community through a collaborative approach of providing comprehensive care and support to individuals and families affected by ALS, advancing national and state advocacy, and fostering bold research
Rare Disease Advisor @rarediseaseadvisor.bsky.social Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor.com/
Aaron Rupar @atrupar.com Independent journalist, SnapStream brand ambassador, and publisher of the Public Notice newsletter https://www.publicnotice.co/subscribe
Muscular Dystrophy Association @mda.org MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
ALS Double Play @alsdoubleplay.bsky.social We raise awareness for ALS and support ALS research. Find out more at ALSdoubleplay.com
#makeALShistory
Lisa's Legacy for ALS @lisalegacy4als.bsky.social Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honorinf Lisa’s legacy by advocating for ALS.
MND Education @mndeducation.bsky.social Supporting Health and Social Care Professionals who provide care and support for people affected by MND. Because every day matters.
Heather Cox Richardson (TDPR) @hcrichardson.bsky.social Historian. Author. Professor. Budding Curmudgeon. I study the contrast between image and reality in America, especially in politics.
ALS United Mid-Atlantic @alsmidatlantic.bsky.social Supporting ALS families in Pennsylvania, New Jersey, and Delaware. Learn more at www.alsmidatlantic.org
ALS United Connecticut @alsunitedct.bsky.social ALS United Connecticut provides comprehensive support to improve the quality of life for people with ALS and their families while advocating for increased support and advancing innovative research for new treatments and an end to ALS.
MND Association @mndassoc.bsky.social Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Andy @andyh-r.bsky.social Motor Neurone Disease/ALS campaigner and husband to a brave MND warrior
Mental Health Awareness Champion.
Private Equity, Real Estate and Construction Industry Specialist.
All views my own
Ibeloved @merricksy.bsky.social Cardiac RN, ALS Clinic Coordinator, Music Lover 🎶🎵, Food aficionado🥓🥑, Cat Servant 🐈🐾
(All views do not reflect that of my employers)
Aarti Sharma @aartisharma.bsky.social Neuroscientist 🧠 | ALS researcher 🧪👩🏽🔬 | human | biotech | she/her
There is no 🌍 without ART
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
Science Friday @scifri.bsky.social Entertaining & educational conversations about science, tech, + more. Hosted by Ira Flatow and Flora Lichtman. From WNYCStudios.
Rebecca Solnit @rebeccasolnit.bsky.social Writer of books. Guardian columnist. Newsletter at MeditationsInAnEmergency.com. Board member, Third Act and Oil Change International.
The New York Times @nytimes.com We seek the truth and help people understand the world. Not a subscriber? Your first month is now free in our app. https://nytimes.onelink.me/Xpht/zbx4nci9
The Washington Post @washingtonpost.com Democracy Skies in Blueness
PrecisionLife @precisionlife.bsky.social Solving chronic disease with the world’s leading precision medicine AI. Creating better, more personalized treatment options and diagnostic tools to predict, treat, and prevent the most common, costly, and complex diseases.
U.S. Food and Drug Administration @fda.gov Yes, it’s really us!
Our posts are FDA-approved!
Visit us at https://www.fda.gov
Brian Wallach @bsw5020.bsky.social Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
www.iamals.org/als-awareness-month
#ALSisHere
#SoAreWe
AZLatina @endrarediseases.bsky.social Blue Dog Dem. Rare Disease Patient Advocate for Amyloidosis that killed my Mom & ALS that is killing my friends. Passionate about Enviro Justice, Foster Care & Gun Safety. Proud GGD of a Righteous Gentile murdered by Nazis. 💙LA sports.
End ALS @alswarriors.bsky.social Widow due to ALS.
Warrior because of ALS.
Three words for ALS...
WE WILL WIN!
Dog momma. Musical Lover. Total Ham!
my thoughts are mine and not my employer.
ALS Therapy Development Institute @alstdi.bsky.social The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net
ALS Advocacy @alsadvocacy.bsky.social ALS = Lou Gehrig's Disease Thought it had been cured by now?
Still no known cause. Still no cure. Still meh treatments. Still quickly fatal. Still outrageous.
https://x.com/alsadvocacy
Jean Swidler @jeanc9orf72.bsky.social Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
@KickALS @kickals.bsky.social Here, until we end #ALS
@alsunited.bsky.social @alsunited.bsky.social
@iamals.bsky.social @iamals.bsky.social I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.
Bluesky @bsky.app official Bluesky account (check username👆)
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