SaskiaBelleman @saskiabelleman.bsky.social Rechtbankverslaggever De Telegraaf, podcasts De zaak ontleed en Zij is van mij (winnaar Dutch Podcast Award Journalistiek 2024). “Praattafeltrut”.
Brian Vastag @brianvastag.sciencemastodon.com.ap.brid.gy Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […]
🌉 bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Marc Bonten @marcbonten.bsky.social Vice-Dean of education & Professor of Molecular Epidemiology of Infectious Diseases @UMCUtrecht. All opinions my own.
Marion Koopmans @marionkoopmans.bsky.social Virologist, into emerging viral infections, one health, climate and health. Head viroscience department ErasmusMC, Rotterdam NL. Backup for the ex-bird platform. ORCHID 0000-0002-5204-2312; https://pure.eur.nl/en/persons/marion-koopmans .
Alma Tostmann @almatostmann.bsky.social #DiseaseDetective 🕵🏻♀️ | applied infectious disease epidemiology #episky | infection prevention and control #IPC | global public health |
@radboudumc.bsky.social | #LindyHop
Chantal Rovers @chantalrovers.bsky.social Internist infectious diseases physician | professor | Radboudumc 🇳🇱 | Q fever | COVID-19 | pandemic preparedness | high consequence infectious diseases | One Health | emerging infections | fever of unknown origin | ORCID 0000-0003-4900-6262 | #IDSky #MedSky
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Putrino Lab @putrinolab.bsky.social
Kein Geloel @keingeloel.bsky.social Alles over de mooiste club van Nederland. Twee keer per week een verse podcast in je favoriete podcast-app!
👉 Check onze vernieuwde webshop: https://keingeloel.nl/webshop/
FR12.nl @fr12nl.bsky.social Waar Feyenoord is zijn wij! ❤️🤍
Siebe @siebepersists.bsky.social Be kind
Be rational
Protect democracy
Govern AGI
Cure ME/CFS & Long Covid
Babs Ruiz @ixabil.bsky.social LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..)
Love animals, science, nature, history.
Once an active girl; swimming and hiking. Have 2 lady-cats.
Médecins Sans Frontières (MSF) @msfincanada.bsky.social This account isn't currently active | Ce compte est actuellement inactif. Veuillez plutôt suivre : @msf.ca.
hootbio.com/DoctorsWithoutBorders
Amrish Baidjoe @amrishbaidjoe.bsky.social Infectious Disease Epidemiologist and Microbiologist.
Director of the Doctors without Borders (MSF) LuxOR Unit (Operational research and Epidemiology Support)
MSF Operational Centre Brussels
MSF Luxembourg
#episky
#medsky
Chris Klomp @chrisklomp.nl Journalist. Eigen baas. Werkt met donaties op www.chrisklomp.nl en realtwitcourt (op X). Voormalig AD , ANP en regionale kranten. Wappie-fluisteraar en complotbestrijder.
Doctors Without Borders / Médecins Sans Frontières (MSF) @msf.ca 🚑 Providing medical care where & when it’s needed.
🥼 Fournir des soins médicaux humanitaires là où les besoins sont les plus grands.
Independent. Neutral. Impartial. | Indépendant. Neutre. Impartial.
doctorswithoutborders.ca | medecinssansfrontieres.ca
Ed Yong is offline @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Lisa McCorkell @lisamccorkell.bsky.social formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Beatrice Adler-Bolton @reallandsend.bsky.social cohost @deathpanel.bsky.social podcast
www.patreon.com/deathpanelpod
coauthor with @avierkant.bsky.social Health Communism (Verso); forthcoming All Care For All People (Haymarket)
theorizing health, debility, class struggle & the state
minneapolis
Imani Barbarin @imanibarbarin.bsky.social Disabled Loudmouth.
https://www.canva.com/design/DAFjqA7WtS0/11YO6Ql6Yl9J792_jipiwQ/edit?utm_content=DAFjqA7WtS0&utm_campaign=designshare&utm_medium=link2&utm_source=sharebutton
Dr. Lucky Tran @luckytran.com Scientist, science communicator, public health & climate justice advocate
Biology PhD from Cambridge
WHO Fides member, Grist 50 Fixer, Creative Change alum
New Yorker/Aussie
Opinions my own
https://instagram.com/luckytran
http://linktr.ee/luckytran
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Isabel Ramirez-Burnett @isabelrb.bsky.social CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
elle carnitine 🪳 @ellecarnitine.bsky.social immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
Michael Stingl @neurostingl.bsky.social Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Dysautonomia International @dysautonomia.bsky.social We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
Long Covid Families @longcovidfam.bsky.social We are families working inside research, public health, and policy. Turning lived experience into system change for children. U.S. based.
Workwell Foundation @workwellfoundation.bsky.social #Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Josh @properchels34.bsky.social Long Covid, ME/CFS, POTS…. For now
ME/CFS San Diego @mecfssd.bsky.social ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
Shelley @shellchat.bsky.social Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
Julia MV @julialmv.bsky.social Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Nele @nelehelena.bsky.social I'll "tweet" here about the things I don't like if the other app goes down
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
Ziyad Al-Aly MD @zalaly.bsky.social Physician | Scientist | working on Long Covid
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social COVID-19 Longhauler Advocacy Project is a patient-led #LongCOVID 501(c)(3).
Visit longhauler-advocacy.org/lcamonth26 to learn more and take action this #LongCOVIDAwarenessMonth.
#LongCOVIDAwareness #OneInfectionAway
Prof Danny Altmann @daltmann.bsky.social Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Tom Molmans, MD @molbaas.bsky.social Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Judith @notsofancylife.bsky.social 30 | voormalig jeugdzorgwerker | Long Covid sinds sept. '20 | is graag creatief bezig ⬇️
www.handmadebyjuud.nl
Bilge Cetin @bilgecetin.bsky.social Living in the Netherlands. M.E. since 2019. Here to connect with the ME folks and researchers. english, dutch and turkish
Sadalbaran @sadalbaran.bsky.social NL / 20Y Daughter with severe/20J Tochter mit schweren LongCovid & ASS / C⭕️vd19 is NOT just a mild Flu!/ C⭕️vid19 is GEEN mild griepje! / UWV-WAJong / Genealogy 🧬/ Dividend-Stocks / Astronomy 🔭🌙 / He/Hij/Him- Z Elja @zorgvoorme.bsky.social Here for ME/CFS awareness
@moonique.bsky.social @moonique.bsky.social Long Covid sinds December 2020.
Gespecialiseerd Verzorgende Psychogeriatrie. Nu huis/bed/bank gebonden.
Merel @mepe176.bsky.social Ambulant coördinerend begeleider en trainer BGZ in de zorg voor mensen met een verst. beperking, bordspellen, haken, vegetariër in opleiding, mantelzorg veteraan, LongCOVID
Willy @willy58.bsky.social Stilstaand leven door longcovid, maar leven in de brouwerij door 🐕 Nikki en kleinkids.
Twente, Rijssen, roots in de Achterhoek
Fred Verdult @fredverdult.bsky.social Passie voor Perry, fietsen in Alpen, zweten in sauna | Levensgeluk verknald door lyme | Directeur Lymefonds | Trots Ridder op voorspraak Nobel laureate
Roger S @sjekes.bsky.social Ex-ambuvpk tgv Long Covid
Ben van Omme @bvomme.bsky.social Ex ambulance verpleegkundige nu Lc patiënt.
Rien de Böck @riendebock.bsky.social Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English.
@LongCovidNL.
Marie-José @seedekkers.bsky.social Doet aan Long Covid sinds maart 2020. Schrijft. 040. Deuglinks. Poezelpubers Pixy en Foxy. Volleerd tante.
Eva @empdp812.bsky.social In het dagelijkse leven bankier, getrouwd met Mehmet, moeder van Iker. Lezen. #Outlander fan. Reizen. Koken 🇪🇸🇳🇱🇹🇷🏴.Katten #astma #introvert #herst #autumn
Leonard van den Pol @lvdpol.bsky.social Familie | Long-covid | whoodle | muziek | gezondheidszorg | CDA |
Amersfoort - Vathorst
Et geyt sou as et geyt.
Lisanne (zij/haar) @lisannejanna.bsky.social Heeft een fulltime, maar onderbetaalde baan als #Spoonie en onderzoekt of ze ooit kunstenaar zou kunnen worden. Opgeleid tot psycholoog, fan van #Muis en kijkt het liefste naar live sport 💚🐭
MT 💙🕊🦸🏻♀️🌻🌍 @mtwoltering.bsky.social Creative & social project initiator used to work 🌎👩🏻💻 and💃🏻 a lot internationally.
Can't stand injustice. Designing solutions for health for everyone in the few moments my inflamed🤯 brain allows me to. @ 🛏🏠
#ME #LongCovid #NeuroInflammation
Jippeke @jippeke.bsky.social - M MEnaced @menaced.bsky.social for when the birdapp goes down for good
(Severe ME)
Rona @maiyra.bsky.social Almere l #NietHersteld l PAIS - longcovid
ME Centraal @mecentraal.bsky.social Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geïnteresseerden.
https://mecentraal.wordpress.com
https://www.facebook.com/MECentraal
mecentraal@gmail.com
MillionsMissingNL @mmissingholland.bsky.social Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
ME/cvs Vereniging @mecvsvereniging.bsky.social Patiëntenvereniging die zich inzet voor mensen met ME/cvs en hun omgeving. Op naar meer erkenning, kennis, steun en zorg voor ME/cvs patiënten.
www.me-cvsvereniging.nl
Els ten Napel @fiederels.bsky.social Lost geographer. Washed ashore on the island of Texel. Living in the parallel universe of chronic illness. MECFS with a generous dollop of Long Covid
MarliesKdG @marlieskdg.bsky.social Imperfecte deugkneus. Helaas met ME/LongCovid. Probeert Covid dus nog steeds te ontlopen. Steekt veel energie in het minder gebruiken ervan. Automatonfan.
NietHersteld @niethersteld.bsky.social Wij laten zien welke mensen we missen in de maatschappij omdat ze #NietHersteld zijn.
📣Actiegroep die zich inzet voor de honderdduizenden met Post Acute Infectieuze Syndromen (PAIS) zoals Long Covid, ME, Lyme, Q-koorts, Post Sepsis
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Begrepen Klachten @begrepenklachten.bsky.social Ondersteuning van patiënten met langdurige (onvoldoende verklaarde) klachten.
https://www.begrepenklachten.nl
themupsmuppet @sophie11.bsky.social enkel MEmorabele tweets, uh blueskies? skeets? ....whatever!
VerdermetPostCovid @verdermetpostcovid.bsky.social #longcovid since March 2020, #PEM
Tried #helpapherese , since #lowhistamin approach less #POTS issues.
Sophie @samsewams.bsky.social Schools & other indoor spaces should be safe for everyone. Trying to avoid covid.
Hermien @hermien.bsky.social Ik onderzoek, adviseer en schrijf. Ik ♥️ taal, bibliotheken, literatuur, filosofie, politiek, geschiedenis.
#NietHersteld - De Podcast
@NietHersteld.bsky.social
Eelco Ontwar Ontwaar @ontwarontwaar.bsky.social ME-warrior, homo universalis, mind the body, train the brain with words, train the soul with feelings.
Be Kho @bekhonl.bsky.social Life on hold since 2021 #LongCovid #POTS #ME
Psychologist for 25 years CBT, EMDR, ACT.
Here to advocate for biomedical research & treatment #PAIS #IACC.
Painfully aware of the harm that was done by my profession to PAIS patients.
Laura de Vries @lauravictorine.bsky.social Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
Celine @healingfromlc.bsky.social
Mariska Hoos @mariskahoos.bsky.social Ex ambulanceverpleegkundige. Nu helaas afgekeurd ivm LC
Bea Dekkers @beadekkers.bsky.social LongCovid, MEcvs, POTS en MCAS sinds oktober 2020.
Voorheen autisme specialist MSEN, persoonlijk begeleider VG zorg, nu WIA, IVA
Samen met @marcbalemans en labrador Fiep
Marianne @mariannehout.bsky.social Dutch. Bedbound with severe ME. Trying to find my way back to life.
Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social Socrates Professor focused on Medical Ethics and Postinfectious Illnesses (incl. Long Covid). Radboud University, Netherlands
Nienke @vanzelst.bsky.social Verpleegkundig specialist huisartsenzorg
Politiek junkie
Heeft een lage tolerantie voor bullshit
Rieke @itsmerieke.bsky.social moeder•vrouw•vrolijk•doorbijter•hoopvol•sarcastisch•eigenwijs•ik❤️te veel van gifjes•typgriep•huis/bedgebonden:MEcvs•
I AM ONE OF THE #MillionsMissing•
Ik ben #NietHersteld
Mariëlle Selser @marielles.bsky.social Passie voor onderzoeksjournalistiek & literaire non-fictie | Auteur van ‘Landziek, een medische geschiedenis’ | Nu bezig met onderzoek naar PZ Santpoort | Vogelaar vanuit huis | ME/POTS
Becs #TeamPlanet @becsteamplanet.bsky.social Team animals, (eco and social) mindfulness,
climate psychology, IDG Ambassador, Work that Reconnects, me/cfs, PSV
Psychosociaal counselor & mindfulness trainer.
Schijn een klimaatdrammende woke deugder te zijn. Ben vooral lief.