Doug Greig 😷🍁☮️⚖️📚🎵 @douggreigyyc.bsky.social Peace. Love. Understanding. Service.
Caring for loved one with complex infection-associated chronic illness incl. #MEcfs. Decades-late biomedical research funding means no end in sight.
#Calgary #YYC #Alberta #Treaty7 #Canada 🇨🇦
Peter Neehus @peenee2.bsky.social #pwME #ME #MEcfs #MEcvs
Dutch Retired Granddad
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction- H James Foulger @harrysgame.bsky.social Engineer, ME/CFS
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
The Real ME 🏴👩🦽➡️♿️ 👩🦼🇵🇸 @therealmecfs.bsky.social Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
Millions Missing France @millionsmissingfr.bsky.social Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
Campbell J. Brice ✝️ 🌻 • 🍐 🇺🇦 @incessantbarking.bsky.social Retired child.
Jacqz-MEwarrior_au @mewarriorau.bsky.social ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease #ME (not CFS) for 28 years.
#MyalgicEncephalomyelitis #pwME #MyalgicE (#MECFS #CFS) #LongCovid #ChronicIllness
Brian Shuell @bshuell.bsky.social 
Simon Del Favero @simondelfavero.bsky.social https://simondelfavero.com
Dx Revision Watch @dxrevisionwatch.bsky.social Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
ME/cvs Vereniging @mecvsvereniging.bsky.social Patiëntenvereniging die zich inzet voor mensen met ME/cvs en hun omgeving. Op naar meer erkenning, kennis, steun en zorg voor ME/cvs patiënten.
www.me-cvsvereniging.nl
Cateye @cateye0611.bsky.social #ME #MECFS science & research nerd.
Focus: medical neglect & misinformation of/about infection driven severe #ME (Myalgic Encephalomyelitis) 🦠
22yrs 🛏️ 🏠 🤢
♥️ but 📛:
🚶♂️+🐕, 📚, 🕺🏻💃, 🎶, 🍹, …
dSavannah @dsavannah.bsky.social ~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014
~ #LiveInBedButIAintDead
~ When brain & body behave: Chronic Illness Advocate
~ Discworldian, Browncoat
~🐱(x3)🐢💐🌻🌷📸📚🖼️
~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷
https://linktr.ee/thedsavannah- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Henry Anderson @macanders.bsky.social #pwme |Mild-mannered author | chronically hopeful | Sign up for my FREE course on writing https://linktr.ee/henry.anderson
Long Covid Lad @longcovidlad.bsky.social Long covid since April 2020. R 50 participant. Trying to navigate a plethora of health conditions without any NHS support. #ME/CFS #POTS, #Long Covid, BBB dysfunction, #SIBO, #Leaky Gut, reactivated infections, #MCAS, Clots 
MillionsMissingNL @mmissingholland.bsky.social Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
Cyrus @cyruxime.bsky.social Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
David Davies-Payne @d2p.bsky.social Paediatric Radiologist, Aotearoa New Zealand
Following more immunologists than radiologists
#MECFS #LongCOVID and a bit of #MacDev #iOSDev
he/him
https://ddp.nz | https://dysimmune.nz
Tapanui 'Flu @tapanuiflu.bsky.social Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
Royal Free 1955 @rfh1955.bsky.social ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
Alyssa Harad @alyssaharad.bsky.social Writer. Reader. I live in a box of paints. She/her. Banner: a detail from Remedios Varo’s Vampiros Vegetarianos. Three vampires in fantastical golden outfits sip fruit through extra long straws.)
kate @bookhaven.bsky.social Neurodivergent library ghost 👻
Napping instead of making lemonade 😴
♿🦓🛏️ 😷 📚🚀
🪫 Often limited capacity #pwME
Don't share my posts on other platforms without asking.
Header: Will Santino 🍋🥛
PFP: Pies Are Awesome 🥧
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
Daniel Moore @talmandaniel.bsky.social Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Tilman Andris @tilmanandris.bsky.social Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
👉Safe housing needed 🏡
#Melbourne 🇦🇺
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Vlad Vexler @vladvexler.bsky.social Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003.
youtube.com/vladvexler (main channel)
youtube.com/vladvexlerchat (chat channel)
youtube.com/@vladvexlerphilosophy
Keala @keala.bsky.social ♿️ pwME since 2009.
Stephen MIA @stephenmia.bsky.social Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
Kirsty Schnickelfritz @kschnickelfritz.bsky.social Sometimes inappropriate. Knitting and chocolate addict. Political when the mood takes me. Sick and tired. ME, LongCovid, POTS, Lyme
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Anne Røijen Størdal @anne75.bsky.social Master i spesialpedagogikk, pårørende til alvorlig ME-syk
Kittybrewster @kittybrewster.bsky.social Tennis, science, comic and sci-fi fan. Politics junkie. Spoonie. Loves all things crafty. Can be found under a duvet in Cornwall #millionsmissing #MECFS
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
sam @paintingsbysam.bsky.social Former hcw with Myalgic Encephalomyelitis aka ‘the living death’ aka CFS x16 yrs
LandBack AbolishICE 🍉
“Like a bird in the tree, the prisoners must be free, yeah” Bob Marley
Sarah @birbsarereal.bsky.social Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her.
Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
Auntie K. ❌👑 @sassyauntiek.bsky.social Science nerd, show me the data. she/her 🏳️🌈-ally, 🏳️⚧️-ally, BLM, pro-choice, ME/CFS, chronic illnesses & Endometriosis suck. what I say ≠ advice
Omar Wasow @owasow.bsky.social Asst Prof, Berkeley, Political Science: 1/ Agenda Seeding http://j.mp/agenda-seeding 2/ Race as a Bundle of Sticks http://j.mp/bundle-of 3/ Text as Behavior https://cup.org/4cUmoXi 4/ Plutopopulism http://cup.org/4cfm0Az
Dysautonomia International @dysautonomia.bsky.social We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org- L Efthymios Kalafatis @lifeanalytics.bsky.social Data Scientist, Patent owner of Artificial Intelligence-assisted methodology for Medical Research Discovery. Tweets are mine/not medical advice or endorsements.
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Lisa McCorkell @lisamccorkell.bsky.social formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Ina @tink-ina.bsky.social #mecfs 12 yrs, severe. Bed bound w spine injury
🇸🇪
Rei @reialexandrayyc.bsky.social Unapologetically Disabled. Film Lover. Creative Dabbler. They/Them. NO unsolicited advice. 14 Years Severe #MECFS #PWME #YYC
schreinerorg @schreinerorg.bsky.social documentalist | one of #millionsmissing | team #GOfundMECFS & #SIGNforMECFS | suffering from #myalgicencephalomyelitis 08 | 1. FC Union Berlin
Jeffery Smith @jefferysmithme.bsky.social Lover of old films, books, Doris Day and Rosemarys Baby and other who-haa. Cranky empath. Dealing with servere ME. and cancer. Politically sensible, sensitive and left.
Alice Fricker @alicefricker.bsky.social 22, Bedridden for 11yrs with #VerySevereME #hEDS #SFPN #MCAS #PoTS Chronic Insomnia & Chronic Bladder condition.
Mother helps run account. ♥️
Instagram : @aliceandthemillions / alicefricker
Sarah @sarahlizzylou.bsky.social She/her, Physio student on hold since Oct 2021 LongCovid/ME 🇬🇧
Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME
My Twitter handle was @SarahLizzyLou
Dave Underwood @oblivionwithbells.com I blog about mortality awareness. Humanist. Anti-authoritarianism. I have #MECFS. Reposts not necessarily endorsements. (he/him)
My blog: https://oblivionwithbells.com
Location: Loughborough, United Kingdom 🇬🇧
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
PurpleSpeedwell @purplespeedwell.bsky.social Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment.
Toronto, Canada
Ally of #pwLC
#pwME #LongCovid #POTS #MCAS #MEcfs
It’s ME Kathryn @joyk8.bsky.social Medically retired palliative care RN, #pwME since 2001. #MECFS #POTS #MCAS #EDS
Enthusiastic gardener, baker, and candlestick maker.
Illustrator Interrupted @franceyme.bsky.social https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
Joanne Smith (Jo) @joannesmith.bsky.social ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs inc.welfare eg #LucysLaw .Wildlife. Books. Bit of Politics. #pwME Twitter Handle @_joannesmith 
Flor 🥀 @lugaresxcomunes.bsky.social #pwME
Simone @phoenixme.bsky.social Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.
Boonwurrung country, Australia
Emmi Skyten @emmiskyten.bsky.social Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
Dialogues ME/CFS @dialoguesmecfs.bsky.social https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history. 
Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers
Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.
https://mecfsdiagnosticbiomarkers.substack.com/
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Kirstie Sivapalan @kirsties.bsky.social UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise)
as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added
https://writingandme.com/
https://open.substack.com/pub/kirstiesi
Firstname Lastname #FuckTrump @notunpackedyet.bsky.social Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@kahicks.bsky.social @kahicks.bsky.social COO/CFO/Treasurer of OMF
| Funding outcome-driven research and changing the global landscape for chronic complex diseases: http://omf.ngo | #mecfs #longcovid
Helma @helma.bsky.social Ein freundliches Hallo an alle :)
(she/her)
"One day at a time. We cross the bridge when we get there"
Bibesch Header:
Ein Rüsseltier
Bibesch Profilfoto:
Gesicht mit Maske
Nic @nic-p5t.bsky.social #MECFS #millionsmissing
Caroline Elizabeth Christian @carolinechristian.bsky.social Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
#MillionsMissing Sweden @millionsmissingswe.bsky.social #MillionsMissing is a global campaign for ME health equality!
https://meaction.net
#MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Jen DressForME @jengovey.bsky.social I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME. 
ThisisMEtweeting @thisismetweety.bsky.social Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility;
#hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
Ody @odyody.bsky.social Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
Maya Lindemann @mayalongcovid.bsky.social RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
SharonR_MECFS 🇨🇦 @sharonrmecfs.bsky.social Nature Science politics. Elbows Up💪post my own 📸🍄🌱🐝🐸
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
a n n a @mecfsanna.bsky.social 25 y/o | she/they | ME/CFS | Bell 0
European ME Coalition (EMEC) @emec.bsky.social Advocacy organization for ME/CFS patients and their carers in Europe
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
britborg.bsky.social @britborg.bsky.social Dutch. Severe ME #Fraudevinkje #code98 @brit_borg on Twitter/X #JournalismIsNotACrime
Maike Osborne @maosbot.bsky.social Mother, wife, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb. She/her 🏳️⚧️🏳️🌈
Liz Highleyman @lizhighleyman.bsky.social Freelance medical journalist. Science editor for @pozmagazine.bsky.social, Hep & CancerHealth. Words for aidsmap, Slate, Bay Area Reporter. Research beagle adopter.
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
Dr. Karin Kelle-Herfurth @karin-kelle-herfurth.de Beratende Fachärztin PRM, MHBA: Rehabilitative Prävention und Gesundheitsökonomie – hier: Strukturanalysen und Reflexion professioneller Kommunikation, institutioneller Machtlogiken und Handlungsräume | #MECFS #LongCOVID
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).