Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Litsa Dremousis @litsadremousis.bsky.social ALTITUDE SICKNESS (Future Tense Books). Upcoming: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. The Blvr, Esquire, Flare Lit Mag, McSwy's, NPR, NY Mag, NYT, Pictura Journal, P&W, PW, The Rumpus, Short Beasts, et al. #pwME https://litsadremousis.com
Simon Birkett, Clean Air in London @cleanairlondon.bsky.social Simon Birkett, as Founder and Director of Clean Air in London, has championed compliance with WHO air quality guidelines throughout London and elsewhere to protect public health and fight climate change since 2006. @CleanAirLondon #AirQuality #AirPollution
Brian Shuell @bshuell.bsky.social 
Carey @29carey29.bsky.social Adjusting to chronic illness caused by a virus being ignored by society. Wanting to connect with others to learn and find community.
#LC #POTS #Keepmasksinhealthcare #AirborneAware #Covidisn’tover
pumpkin @pumpkinstars.bsky.social hi im pumpkin. she/her. 🧠🌶️. Asexual. Anti-racist. I like gardens and colors. ME/CFS, hEDS, MCAS, POTS, Fibro. bed tethered. i love people and also people scare me. 🇺🇸
Dormouse @dormousediaries.bsky.social Cartoonist, #BylinesNetwork, artist, occasional writer, and sketcher of things. Likes tea and books. Sometimes hibernates.
Living with #LongCovid
Profile picture: Dormouse in a teapot chewing on an ink-pen.
Banner: Cup, saucer and a dormouse with a pen.
Scribbler Pen @scribblerpen.bsky.social Writer, editor, analyst. Disability employment rights advocate.
Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid
JustAnne @smartpatient.bsky.social Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
Tapanui 'Flu @tapanuiflu.bsky.social Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand- J Jenny Ceolta-Smith #FBLC @jceoltasmith.bsky.social Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
Uniquely Me )0( 🌊🇺🇸🇺🇦 @psychichealerc.bsky.social Mom to ND son born w/ a missing part of his brain, Mom to 7🐈 & 🐇 Wife, Liberal, OH, Bookworm, Steelers, AI /Graphic Design Artist, Psychic Witch. Dad fought in Vietnam I am Fighting for Democracy! 🇺🇦🇺🇸💚😪 Ftrump
Solidarity RPM @solidarityrpm.bsky.social Darren Mark Skilton - Brighton & Hove. Left. Supporting activism, social action, and activist organisations. Collective Action.
Socialist. LGBTQIA+. Anti-facism. Anti-racism. Climate activism. Free Palestine. NHS. Love and Solidarity.
Health Citizens Institute @healthcitizens.org From Environment to Health
From Science to Policy-Making
The Dakini Goddess DMV-NYC @dakinigoddess.bsky.social Pleasure Giver-Passion Muse-Adult companion-Tantra Dakini-Virtual Muse-Licensed Sexologist
Nude stuff here: https://dakinigoddess.weebly.com/fsgfe-nudevidsvirtual.html
In person meets DMV-NOVA-NYC
https://dakinigoddess.weebly.com
Chris Young @squarepegsuk.bsky.social There’s Nothing About us Without us
Every day massive, life changing, decisions are made by those in power without us
Together, people like us can use the power of collective action to bring about change
Join us
https://squarepegsuk.substack.com
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Antonio Caramia @antoniocaramia.bsky.social 
Clean Air Where @cleanairwhere.bsky.social Helping schools, nurseries and childcare settings understand and improve their air quality
Training · Monitoring · Evidence-based
SE London | UK-wide remote
Enquiries welcome
https://linktr.ee/cleanairwhere
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Nathalie Pearson @natpearson.bsky.social #Hampshire
#SafeAirSchools
#Climate #Nature #LongCovid
Devoted mother | Founder SafeAirSchools.org | Proud King’s College London alumna | Founding Member Long Covid Kids | Passionate about healthcare | Leave nobody behind | Neurodivergent
Richard Vallée @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
Angry Donkey News @angrydonkeynews.bsky.social Unfiltered news, independent debate & loud music. Home to ADTV, the Vibestream Radio Network (Rock, Punk, La Cantina, Copperhead) & Dogtuuurd memes.
We build the pipelines. We break the narrative.
victoria @vashetc.blacksky.app † doktora | research+policy | perpetually horizontal
ID’s: Brown skin grl w/ curly hair wearing shirt that says hot girls arent ableist. Banner: Sepia picture of a couple married w/ family around.
vashetc.com | restandmecfs.com | survivorsandallies.com
Miranda 🌸 @crookedneighbor.bsky.social Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)
LongCovidSafety.net
Disability News Service @johnpring.bsky.social In-depth reporting on issues affecting disabled people in the UK since 2009. www.disabilitynewsservice.com
The Real McCoy @rippermd41.bsky.social My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@rucmin.bsky.social @rucmin.bsky.social 
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Douglas Kell @dbkell.bsky.social Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/. 
Avishek ghosh @avishekcolours.bsky.social 
VirusSucks.com @virussucks.com #LongCovid since May 9, 2022. I was out for my morning run when exhaustion hit me. PEM, orthostatic intolerance, etc
Last #SARSCov2 infection: April 2022.
Medical news
https://m.youtube.com/@VirusSucks-com/shorts
#COVID is airborne so ventilate
Esther @elhopkins.bsky.social Composer
Clean Air Advocate
#Covidisairborne #FBCV
Vote Green Party 💚
#Feminist
James Glen @jamesglen.bsky.social Having a bit of a break O_o
● Founding member @LongCovidSupport
● Long Covid advocate #FBLC
● Watford FC fan
● #FBPE 🇪🇺
Tilman Andris @tilmanandris.bsky.social Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Emma Wooller @emmawooller.bsky.social 
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Amanda Finley Digs All the Things @rubyslippahs.bsky.social COVID long-hauler. Former archaeologist, opera, fed employee. Kids & homeless. Feral princess. Topes #WearAMask Comms: @publichealthaction.bsky.social
📍 Ba'al Pit
FB: is.gd/bp2vTA
Media: covidlonghaulers@gmail.com
YouTube.com/@covidlonghaulers
She/her
Dr Kate Cushing @drkatecushing.bsky.social Doctor, scientist, mum, cat slave.
Public Governor Newcastle upon Tyne Hospitals Trust
Long Covid & CCH.
Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU
Wrote Little Orange Book 4 parents of babies & small kids.
Green Party member
Steve Griffin @profstevegriffin.bsky.social Professor of Cancer Virology, University of Leeds.
Co-Chair, Independent SAGE
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Nina Steinkopf @ninasteinkopf.bsky.social Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com
Anti-genocide.
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Sally Doherty @sallywrites.bsky.social MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary
Winner of the Book Bloggers' Novel of the Year Award 2022
Owned by three-legged rescue dog
ME/CFS
https://linktr.ee/SallyDoherty
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚
Murasaki @mooremurasaki.bsky.social I most certainly am not a burrito.
Professional hermit & tea snob.
Divergent brain & defective body.
Sometimes writer & terrible gamer.
🖤🤎🩵🩷🤍❤️🧡💛💚💙💜
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Cynthia Johnson @minetodo.bsky.social Storyteller. Advocate. Stand By ME/CFS!
#StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs since 2009
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Donia ♾️ ♿️ @ethyricalartist.bsky.social Disabled artist 🇵🇷🏳️🌈
HOMELESS since 2025 🔗🌲⬇️🆘
Cats, art, nature, knit, crochet
PNW 🇱🇸
Create in bed when able bc of #MyalgicEncephalomyelitis
#SevereME since 2015
Late #ActuallyAutistic 🖖
Abolitionist
Anti-imperialist
Anti-AI
https://linktr.ee/EthyricalArtist
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
#MEAction Scotland @meactionscotland.bsky.social 
+AdamBlack @redrocket.bsky.social Kick at the Darkness~Till it BLeeds Daylight!
#G+ ~🌈BentMan ~☸️ #Dharma ~ #TPOT
Big♥️:
#Psychedelic Music, Art & Love #JustPressPlay #Livetronica
#DoctorWho #SF
#Disability: #NEisVoid🥄 #Spoonie
SFN #Neuropathy LongHauler
#Antifascism is Life
Long COVID Campaign | www.longcovidcampaign.org @lccampaign.bsky.social Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
DoRaine&🌩️ @doradica.bsky.social PNW Progressive. Bernie Sanders would've won. Mom to GingerJack the happy Husky mix; late-Dx ÃûDHD ♾️ Lefty, tax Bnaire$, UBI. Likes ≠ endorsements necessarily
🚫: money| crypto| magats| unreg. AI🤮| porn| bots⛔ ➡️ get blocked.
No interest in blank profiles.
X-POD™ @xpodtech.com “A global technology leader developing advanced occupant‑safety solutions, including the Safety‑X‑Pod®—an ejectable, crash‑proof passenger cocoon with an integrated Environmental Control and Life Support System.” https://xpodtech.com/
Camille @camillesonwheels.bsky.social AuDHD, hEDS & co, ME/CFS
They/them
Queer
Mostly housebound, but I love a vintage dress when I make it out. Still masking
Profile pic ID: Selfie of Camille, a white femme with red braided hair, smiling with an orange cat on their lap.
Lene Benedicte @lenebene.bsky.social Music was my occupation before #MEcfs took it away from me. Education #music plus #drama and #theatre #Iwrite
#animals #genealogy #litterature #languages #BritishTVseries #equalopportunities #environment #endallwars #endpoverty
Rae Rae @desiraemessenger.bsky.social former trombonist
former content writer
tai chi
me/cfs/longcovid
she/her
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Chronic Illness Friendship Club @chronicillnessfc.bsky.social An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! 📍SF
#EDS #MCAS #POTS #ME #PMDD #AuDHD #PTSD
Mental health advocate, indigenous #LGBTQIA+🍉
Sign up at the form below🤍✨
Kathryn C @ballerina92082.bsky.social 
Maggie Boxey Writes @maggieboxey.bsky.social Writer & bridge-builder. For the stuck, the healing, and the waking up. Author . Podcaster . TEDx Speaker . in recovery . ME/CFS . collective hope 🦋
Jessica Vereijssen @jvereijssen.bsky.social Scientist crop protection, biosecurity, insect vectors, end-user engagement, cyclist, traveler, photography, views my own, #pwME, mild #MECFS, 🇳🇱 in 🇳🇿 #WomeninSTEM
https://www.plantandfood.com/en-nz/staff/jessica-vereijssen
Rowan @emerald-mountain.bsky.social Free 🍉 She/her
Katie W. (She/her) @kweston27.bsky.social Chronically ill feminist,Trekkie, Book lover, wife, and mother. Ass kicker. Very sweary.
Cyn Sparkles (she/her) @cynsparkles.bsky.social 
Vincent @vince212.bsky.social I’m just as simple as it gets
Minister Denzil Carnegie @lloydmill.bsky.social 🇨🇦 🍁 🇨🇦 Faith Family Outreach Ministry focuses on sharing the good news of salvation to all nations Jesus Christ teaching on repentance and forgiveness of sins to all nations Toronto Ontario Canada 🇨🇦 ♥️ ❤️ 💙
Juicy Burgers @juicyburgerssd.bsky.social Juicy Burgers in San Diego’s Midway District serves up gourmet burgers, crispy wings, and rich cheesecake. Enjoy dine-in, takeout, or delivery near Liberty Station! Permanently closed.