BioVie Inc @biovie.bsky.social At BioVie we believe that every person deserves to live free from the limitations of aging and disease.
bioviepharma.com
QueenBeeRob @queenbeerob.bsky.social Nature and Animal lover 🐷🇪🇺 Long Covid since 2021 - vaccine & virus injured.
Quadram Institute @quadraminstitute.bsky.social At the forefront of research into food, the gut microbiome, and human health.
Partnership between Quadram Institute Bioscience, @nnuh.bsky.social , @uniofeastanglia.bsky.social and the Biotechnology & Biological Sciences Research Council
Dale Vince @dalevince.com Green Industrialist | Founder of Ecotricity, Skydiamond, Green Britain Foundation | Chairman of Forest Green Rovers | UN Climate Change Champion |
Media enquiries: press.office@ecotricity.co.uk
Weekly Podcast: Zerocarbonista
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Emma Monk @monkemma.bsky.social Molecular Biologist. Debunker of myths. Proud European. 🇩🇰🇪🇺🇬🇧
www.emmamonk.co.uk
https://monkdebunks.substack.com
www.linkedin.com/in/emma-monk-780686190
https://medium.com/@info_28174
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Dr. Jeroen den Dunnen @drdendunnen.bsky.social Immunologist and Head of Department of CIMM at the Amsterdam UMC, Netherlands. My team studies the role of antibodies during infection and autoimmune diseases, with a particular focus on post-acute infection syndromes (PAIS), such as Long-COVID and ME/CFS.
Tessa Munt MP 🔶 @tessamunt.bsky.social LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
Jo Platt MP @joplatt.bsky.social Labour & Co-operative Member of Parliament for Leigh and Atherton. This includes Golborne, Lowton, Tyldesley and Astley. For constituency queries, email Jo.platt.mp@parliament.uk
Tax Justice UK @taxjusticeuk.bsky.social A better tax system that benefits everyone in the UK. Sister organisation of @taxjusticenet.bsky.social
https://taxjustice.uk/
David Kaufman @kaufmanmd.bsky.social Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup. 
Cass Macdonald @cm7505.bsky.social Ex nurse, Long Covid & disability activist/advocate, hEDS, PoTS,MCAS, MECFS, Keyworker Petition Founder, NB, poly, pan, liberal, human
Warren Oates @warrenoates1.bsky.social I like data, Lego & Star Trek! Also interested in education, politics and athletics. Live in Worthing, UK, originally from Yorkshire!
Post positive things our Labour government do!
https://www.threads.net/@warrenoates1
https://warrenoates1.substack.com/
Audrey Ryback @aryback.bsky.social ME researcher at the University of Edinburgh.
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
htw @heniek-htw.bsky.social Look deeply and patiently into nature, and everything will become clearer.
The Zebra Alliance Community @thezebraalliance.bsky.social The Zebra Alliance represents a beacon of solidarity for navigating the challenging waters of Ehlers-Danlos Syndrome, Rare Diseases, and Chronic Illness.
Education • Resources • Advocacy
https://linktr.ee/thezebraalliance
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Right to Roam @righttoroam.bsky.social Campaigning to unlock access to nature in England & Wales. 🥾🌿🔓
get in touch: hello@righttoroam.org.uk
resources and links: https://linktr.ee/right2roam
James Hay @jameshay.bsky.social Research Fellow at the Pandemic Sciences Institute, University of Oxford. Using maths and stats to understand infectious disease dynamics, mostly viral kinetics and serology. https://hay-idd.github.io/
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
PrecisionLife @precisionlife.bsky.social Solving chronic disease with the world’s leading precision medicine AI. Creating better, more personalized treatment options and diagnostic tools to predict, treat, and prevent the most common, costly, and complex diseases.
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Prof. Michael Fuhrer @michaelsfuhrer.bsky.social Epidemic epistemic trespassing.
Knows a lot about graphene.
Monash Uni. Directed fleet.org.au.
Fellow @scienceacademy.bsky.social
Plays bass for:
instagram.com/push_the_trigger
instagram.com/defibrillatorofficial
Bird photos:
flickr.com/photos/off-world
Radiohead @radiohead.wastehq.social https://radiohead.com
https://waste.lnk.to/radiohead.linksBS
Dr. Todd Ewing PhD. @ewingt-phd.bsky.social Drug Discovery / Aging / Fitness
Convincing myself that aging is simply loss of regulation/repair and CAN BE reversed!
I wrote a book! BIOLOGICAL YOUTH http://amazon.com/dp/1535584459
Dr Ellie Murray, ScD @epiellie.bsky.social Epidemiologist and science communicator | newsletter: epiellie.substack.com | cohost @casualinfer podcast | Causal inference for public health #epitwitter | Canadian in US 🇨🇦 | she/her/Dr
Janna Moen, PhD @jannamoen.bsky.social Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her
My long COVID research newsletter: lcbreakdown.substack.com
Kirsty 🌻 @kirstysmestory.bsky.social Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Pelechano lab @pelechanolab.bsky.social Research group at Karolinska Institute - SciLifeLab. Stockholm, Sweden. Managed by Vicent Pelechano.
Thomas Bunker Ph.D. @biologistbunk.bsky.social Battling Long COVID for 5 years. Had 2 recoveries early on, still trying for a 3rd! Ran a LC clinical trial exploring two degrees of Intermittent Fasting and we got postive results! I love science, nature and helping others...
Prof. Bethan Evans @drbevans.bsky.social Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
Ologies with Alie Ward @ologies.bsky.social A comedyish science podcast hosted by @alieward. Asking smart ologists not-smart questions about their professional obsessions. Every Tuesday. May be NSFW. https://linktr.ee/alieward
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
Barack Obama @barackobama.bsky.social Dad, husband, President, citizen. barackobamabooks.com
Jesse Lunsford, PhD @jesselunsford.bsky.social Nutrition. Public health, health justice, food access. Anti racist. Pro labor forever and always. Evidence based. #COYS, Atheist
Mostly here for the anti racism.
This is solely a personal account
Alexandria Ocasio-Cortez @aoc.bsky.social Waitress turned Congresswoman for the Bronx and Queens. Grassroots elected, small-dollar supported. A better world is possible.
ocasiocortez.com
Best for Britain @bestforbritain.org Evidence. Action. Hope.
CEO @pimlicat.bsky.social
Wendy Adams @adamswendya.bsky.social Scientific philanthropy, patient advocacy
Formerly Research Grant Director, Bay Area Lyme Foundation
Prof François Balloux @proffballoux.bsky.social Scientist, gym bro, sometimes annoying
Robert Reich @rbreich.bsky.social Berkeley professor, former Secretary of Labor. Co-founder of @inequalitymedia.bsky.social and @imcivicaction.bsky.social.
Substack: http://robertreich.substack.com
Buy my new book: https://sites.prh.com/reich
Visit my website: https://rbreich.com/
Flight Free UK @flightfreeuk.bsky.social Could you take the flight free challenge? Visit our website for information, inspiration and to make your #FlightFree2026 pledge: www.flightfree.co.uk
Armando Iannucci @aiannucci.bsky.social Words and smiles.Partridge,Thick of It,Veep,Death of Stalin, Dr Strangelove Taskmaster,Podcast #StrongMessageHere. https://www.bbc.co.uk/sounds/brand/m0024cp6?partner=uk.co.bbc&origin=share-mobile Patron of Child Poverty Action Group, @cpaguk.bsky.social.
Ed Yong is offline @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Babs Ruiz @ixabil.bsky.social LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..)
Love animals, science, nature, history.
Once an active girl; swimming and hiking. Have 2 lady-cats.
Julie for M.E./LC treatment 😷 @dualiejulie.bsky.social In LongCOVID/M.E. hell looking for a way out! First wave Longhauler.
Trying to get my personality back from the disease.
Very cute dog.
Led By Donkeys @ledbydonkeys.org Art, Activism and Accountability
https://linktr.ee/ledbydonkeys?utm_source=linktree_admin_share
Mind @mind.org.uk Fighting for mental health – for support, for respect, for you ✊
David Lynch @davidlynchlfc.co.uk Football journalist reporting on Liverpool FC. Previously: Sunday Mirror, Evening Standard, LFC, MEN, Goal.
Helen/OT_Skiff @otskiff.bsky.social Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots 🫁
Swiftie 🫶, F1 🏎, cricket 🏏 fan
London, UK
R Anne Teaze @ranneteaze.bsky.social covid vaccine injured. vaccine injury is not political. advocate for the chronically ill whether from vaccination or infection. 
LongCovidPharmD @longcovidpharmd.bsky.social Pharmacist interested in Long COVID and ME/CFS research
Pro-mask, pro-clean air!
Substack: https://pharmd.substack.com/
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
Stephanie Mathis, MLS(ASCP) 😷💜 @stephmu00mls.bsky.social USA nationally certified Medical Laboratory Scientist who has traveled to 11 states in 20 years,
works overnight shift, and loves Microbiology and Blood Bank!
(Also singing, reading, cooking/baking, & cuddling/playing with her Mom's kitties! 😻)
Dani Prieto Alhambra, He/Him @daniprietoalhambra.bsky.social Prof at Oxford and Erasmus MC, with expertise in Public health, Epidemiology, Real World Evidence, Health Data Sciences.
+ a hint of food/drinks, and fun stuff
https://www.ndorms.ox.ac.uk/team/daniel-prieto-alhambra
Leora Horwitz @leorahorwitzmd.bsky.social Director, Center for Healthcare Innovation and Delivery Science, NYU Langone Health; #NIHRECOVER adult PI; general internist; quality/safety/healthcare delivery; mom of 3 boys. Posts are my own. @medsky.social
Suzie Cro @suziecro.bsky.social Associate Professor in Medical Statistics & Clinical Trials @ Imperial Clinical Trials Unit
Jim Reed @jimreedbbc.bsky.social BBC health reporter covering the Covid inquiry and all things health (and a bit science) really.
@ficamp.bsky.social @ficamp.bsky.social 
J Alexandria Brayshaw - Clinical Psychotherapist & Psychologist @moderateuk.bsky.social Jonathan Brayshaw, broadcaster/TV scriptwriter/tech business entrepreneur. LGBT+ Labour member. ICD11 RA03: Multisystem inflammatory syndrome survivor. #Neurodivergent/DID. CEO www.digitaldreamfactory.co.uk, a UK-based innovation company.
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
Jeff Yau 姚明穎 @jeffmyau.bsky.social family guy • neuroscientist in Houston interested in touch, the body, and multisensory processing • views are mine and not my employer’s • he/him • proud immigrant • mask wearer • RT≠endorse #CIDP #autoimmune 🐆
Mads @blueforpwme.bsky.social 🇬🇧DxwM.E.1995-EBV.ex-dancer,⛱️lifeguard,performer,working on writing my 1st novel to rep #pwME! #PAIS I’m a dreamer,nature lover & surfer 🏄♂️🛹1-2 times a yr if I’m lucky. AuDHD Many undiagnosed comorbidities! Ie.MCAS.OI/DYSAUTONOMIA.EDS. GASTRO.CHIARI/SPINAL🦋
Fliss Alc @flissaki.bsky.social Microbiologist, amateur long covid specialist, mask-wearer, europhile, thalassophile, biophile, grecophile 🇬🇷.
One of #MillionsMissing - LC, ME/CFS, POTS, MCAS
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
@tjerryfan.bsky.social @tjerryfan.bsky.social It all started in March 2021 with a cytokine storm 💉
Kevin Deans @deanskevin.bsky.social Chemical Pathologist - Clin Biochem, Obesity, Nutrition, Inherited Metabolic Diseases. Personal profile; all views my own. Posts are not medical advice.
The Labour Party @teamlabouruk.bsky.social Independently championing Labour Party values for a fairer society. Not affiliated with official Labour Party. Join us in amplifying voices, championing policies, and working towards a brighter future.
elle carnitine 🪳 @ellecarnitine.bsky.social immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
Jack Sargeant MS @jacksargeantms.bsky.social MS for #AlynandDeeside | Minister for Culture, Skills and Social Partnership | Promoted by Jack Sargeant, CH5 1PP.
Alyn and Deeside Labour Party @alyndeesidelabour.bsky.social Alyn and Deeside Labour Party.
Delivering for Wales. Delivering for Alyn & Deeside
Mark Tami MP - http://marktami.co.uk
Jack Sargeant MS - https://bsky.app/profile/jacksargeantms.bsky.social
Carolyn Thomas MS
🌹
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
Laura de Vries @lauravictorine.bsky.social Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
Oonagh Cousins @oonaghcousins.bsky.social 
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
kate @bookhaven.bsky.social Neurodivergent library ghost 👻
Napping instead of making lemonade 😴
♿🦓🛏️ 😷 📚🚀
🪫 Often limited capacity #pwME
Don't share my posts on other platforms without asking.
Header: Will Santino 🍋🥛
PFP: Pies Are Awesome 🥧
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
cbme-mark.bsky.social @cbme-mark.bsky.social Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
Pronouns: depends how the day pans out
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Rachel Schraer @rachelschraer.bsky.social Global Health Correspondent for The Independent 🌎
Before: The Bureau of Investigative Journalism, BBC News + World Service ✍️ 📻 📺
Get in touch: rachel [dot] schraer [at] independent.co.uk or on Signal @rachelschraer.01
christina4hope @christina4hope.bsky.social 👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German.
Bavaria ,Germany
Prof Gemma Carey, PhD MMedSci @gemcarey.bsky.social @UNSW (& non academic author side hustle). Public administration, social policy+public health scholar .Lots of NDIS. Vax injury, but pro vax
Jeffrey Lubell (EDS, ME/CFS, LongCOVID Research) @jefflubellc19.bsky.social I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
Liz Perry @liz-sailor5.bsky.social PEI resident, ME/CFSx27yrs., Vax injured
Rega Research Ltd @rega.co.uk World Class Hi-Fi handmade in the UK since 1973. Proudly employee owned since October 2024. linktr.ee/Rega.co.uk
Guy Shrubsole @guyshrubsole.bsky.social Environmental campaigner & author, The Lie of the Land (William Collins, 2024), The Lost Rainforests of Britain (2022), & Who Owns England? (2019). Forthcoming: The Ghosts of Chalk Country (2027). Agent: @jmlockhart.bsky.social
Deborah @dembcry.bsky.social Fearful of no change for my loved one and others - ME (chronic illness). Still looking though…
Victoria Derbyshire @vicderbyshire.bsky.social Journalist, broadcaster, Mum of 2 boys, owner of 2 cocker spaniels
Unbelievable Britain - YouTube 🎧
BBC Newsnight 🎥 📱
And Then Came Breast Cancer 🎧
BAFTA RTS Sony Pink News AIB British Podcast Award winner
Deb @debwald.bsky.social 
BladeoftheSun @bladeofthes.bsky.social Author, book http://Amazon.co.uk/dp/B08KR127TN?
Preview here https://archiveofourown.org/works/47902108/chapters/120770212
I #followback
Sam @counsellingsam.bsky.social Person with #LongCovid for 5 and a half years.
Disability Campaigner and dog lover. Left-wing. Member of The Green Party
Hates Centrists for pandering to the Right.
Leveson 2 Now. Anti-Zionist. Anti-Racist pro-Trans
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.