@mariannechc.bsky.social @mariannechc.bsky.social
Diamond Geezer Blog @diamondgeezerblog.bsky.social Announcing new posts on
@diamondgeezer.bsky.social's blog
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. ๐ณ๐ฑ in ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Al Jazeera English @aljazeera.com Your story. Your platform. Follow our live coverage on aljazeera.com- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Universitรฉ de Montrรฉal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Petit Feu @petitfeu.bsky.social Still suffering from #MECFS. Life still on hold.
she/her
๐ = ME/CFS solidarity
#noAfD
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@BendyHEDS&Co @bendyhedsandco.bsky.social For Awareness & Support of
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co ๐ conditions go to:
๐ https://gptoolkit.ehlers-danlos.org/ ๐
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Richard Cann @richcann.bsky.social heathen, socialist, medically retired teacher. Living with fibromyalgia and ME sucks. Grew up in West London now live in East Cornwall #DisabledNOTDisposable
Larry the Cat @number10cat.bsky.social Chief Mouser to the Cabinet Office. 17 year old tabby. Living with my seventh Prime Minister. Unofficial.
https://www.buymeacoffee.com/Number10cat
Suitcase Genealogist @suitcasegen.bsky.social @hjarmstrong.bsky.social's eventual genealogy, heritage, history and preservation travel project. Also building @yoretravel.bsky.social.
Humbled daily by my ancestors. Neurodivergent and a misfit.
Eleanor Fielding @meownersclub.bsky.social โWeโre driving in the dark with our sunglasses on!โ
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS Bโham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Heather Wilkinson Rojo @heatherrojo.bsky.social Genealogy blogger https://nutfieldgenealogy.blogspot.com/ Genealogist, past Governor of the New Hampshire Mayflower Society, past president of the Londonderry, NH Historical Society, weathervanes, Lego, Girl Scout leader, grandmother, butler to two cats
Barbarella The Mad ๐ป Lady @themadcatlady.com Living the life in Lanzarote with her 3 cats since 2004 ๐ฎ๐จ
๐ป Ruby โ Jupiter โ Callisto โ
๐ปSpider๐Lugosi๐ป
English Teacher @Preply ๐ฌ๐ง
โค๏ธ Animals, the ocean, snorkeling, skindiving, DIY, crafts, languages ๐ฉ๐ช๐ช๐ธ
๐#CANARIAS
Sorry, but I don't follow re-posters! ๐ซ
@followthatpage.com @followthatpage.com
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Robbie @robbielane87.bsky.social Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD..
Trying to get by one day at a time ๐ค
Mr Pecksniff's Diary @pecksniffsdiary.bsky.social In which Mr Pecksniff lays before his readers for their approval certain observations and speculations reflecting on the political life. (DMs are open.) Email tips to: pecksniffsdiary@gmail.com
Diarist for eastangliabylines.co.uk
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
DecodeME @decodemestudy.bsky.social ๐งฌ The worldโs biggest study of genetic causes of #MECFS. Launched September 2022. ๐งฌ decodeme.ed.ac.uk
Alexis Gilbert @alexisme.bsky.social Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
Colin the Vexed @coliniseuropean.bsky.social Lefty, woke, gay Yorkshireman living in Spain.
Science for ME (S4ME) @s4me.info We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who support us.
Facts about ME/CFS:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. Itโll be ok in the end. If itโs not ok then it ainโt the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Crystal @gemzme.bsky.social
Sky ๐บ๐ฆ ๐ต๐ธ - Won't Interact Without Alt Text! @skyyks.bsky.social Sky, she/her.
Actress/singer till pandemic hit; now a hermit.
Queer polyglot, poet, educator, cat companion & islander.
Atheist.
Anti-fascist Anti-capitalist Anti-Covid.
Pro-Democracy, Pro-Immigration European.
I Stand with Ukraine & Palestine.
๐ญ ๐ฉ๐ปโ๐ค๐๐๐โ๐ป๐ฉ๐ปโ๐ซ๐๐๏ธ๏ธ
Ishbel Fraser @ishbelfraser.bsky.social Life in limbo for 17 years due to the #GreatestMEdicalScandal
Council Estate Media @councilestatemedia.uk
If you're reading this bio, you need to stop what you're doing and check out my Substack newsletter at the link below ๐
https://www.councilestatemedia.uk
Swifts and Swallows @swiftsandswallows.bsky.social My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
Avel Aretas @avelaretas.bsky.social Elder statesman of the Peter Pan Club. ๐
#mecfs #fibromyalgia #SFN
Bullshit Artist formerly known as Max Bond, Murray Huana, Elrond Hubbard, Arsen Balls and Anita Schitt.
Living on unceded Kokatha land.
Sometimes I lie for comedic effect.
Rachel @rachelme.bsky.social Trying to be a good human. Living with Myalgic Encephalomyelitis.
Alice Roberts @profaliceroberts.bsky.social Prof of Public Engagement in Science, Uni of Birmingham; anatomist, author, broadcaster; vice President of Humanists UK. All views my own.
marybeard @wmarybeard.bsky.social Classicist
@markstaceyantiques.bsky.social @markstaceyantiques.bsky.social
Frances Ryan @francesryan.bsky.social Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? (paperback out now) and Crippled.
E: frances.ryan.freelance@guardian.co.uk
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts โ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Brianne Benness @bennessb.bsky.social currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Donโt Tell in Toronto | she / her
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Kuntie Plopkins @kuntieplopkins.bsky.social Hider of Daily Mails
Old bag
No Parmesรกn! โ๏ธ
Illegitimi non carbonara!
SHOVE YOUR CHLORINATED CHICKEN UP YOUR CHLORINATED BUM!
Thrown out of the Brownies 4 "subversion"
C/W may contain politics
Same birthday as #craftywank & Prince George (diff year obvs)
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Carol Vorderman @carolvorders.bsky.social Hello lovelies. This is my official account.. ๐๐
Glad to be over here from the "other place"๐
It's like breathing clean air again ๐๐ผ
Binita Kane @binitakane.bsky.social Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Adam Fare ๐ค๐ค๐ @adamfare1996.bsky.social UK. Trying to muddle my way through life. Equity, AuDHD, Disability, Mental illness, Stomas and Eating Disorders. Ace ๐ค๐ค๐ Views are my own. (He/Him)
This is a bigot-free zone.
Kate Jamieson / KJ โ๏ธ @kejamieson.bsky.social Short For Bob. Naval & Maritime Historian. AFRHistS Royal Historical Society. Council Member: Society for Nautical Research. C18th Naval Ordnance & Personnel Nerd. Rower. Owned by a Greek Dog ๐พ
katejamieson.co.uk / IG: katejamieson_
Steve Fifield @stevefifield.bsky.social Informed decisions & verifiable facts please, not opinion & belief. UK. ๐ฌ๐ง
Mine of occasionally useful information.
NHS and healthcare ๐
#Equality #Justbe #Inclusion
#LGBTQ+ ๐ ally
#pwME
#MECFS
#Activetravel ๐ฒ
#Sustainability
#Gardening
#VisibleApp
The Bear @bearlypolitics.co.uk Editor of Bearly Politics. Commentator. Former NHS strategist.
bearlypolitics.co.uk
Sam and King Lucy the 1st @kinglucythe1st.bsky.social I am the King of Cats. My mum Sam posts about me, law, cooking, politics, and anything else that interests her. Sam is a trustee at Commonside, a charity serving the community of Pollard's Hill, SW London
Bluesky @bsky.app official Bluesky account (check username๐)
Bugs, feature requests, feedback: support@bsky.app