Hannah ๐ซง @ahumbleburrito.bsky.social flirty but flaky, chaos included ๐
S๐ฟphie CD @sophie-cd.bsky.social Australian, Cypriot & Greek anti-disease designer existing in Berlin. Been to hell & back thanks to the pandemic. check @sophsoph.psd & @berlin_buyers_club on the gram ๐ค
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa โฟ๏ธ๐ณ๏ธโ๐๐
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Sebas @sebajones.bsky.social Long covid/ME since 2020. Literary fiction and em dash fan. Retired junglist. ๐ชด patient.
Guiri madrileรฑo. Socialista. Anti-fascista.
Germaine Hypher - Crafting A Path Through Illness @germainehypher.bsky.social ๐งต๐งถโ๐ป๐จ๐ท๐ฑ๐โโฌ๐
Author of Crafting A Path Through Illness - exploring creativity while chronically ill. Available worldwide (the book, not me ๐).
Disabled by M.E & fibromyalgia since childhood. Enabled by humour & creativity.
www.germainehypher.weebly.com
Jeff Turner ๐ฆ๐๐ฆ๐@loveneverhate @loveneverhate.bsky.social โ๏ธ NOW & FOREVER: WE WANT JUSTICE, LIBERTY & FREEDOM FOR ALL
โ๏ธ Future generations will enjoy these GOD given rights because of our courage and integrity
โ๏ธ LOVE is more powerful than fear & hate
โ๏ธ l believe in:
LOVE NEVER HATE
โ๏ธ JOIN OUR FIGHT FOR FREEDOM!
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid ๐ https://linktr.ee/renegaderesearch โข Runs @remissionbiome.bsky.social
Miah Flowers (they/them/no pronoun) @miah-flowers.bsky.social Art of diversity of humans, nature
Artist on hold by ME/CFS
Fat activist, intersec. Queer Feminism
vulvaflowers.de- L FrancoiseDupont with ME @latortuebleue.bsky.social ME/CFS
In France
christina lawrence @christinalaw.bsky.social
Kenny Boy @kenkers10.bsky.social Letโs cook!! Iโll show youโฆIf at all possible, please subscribe to my cooking YouTube channel https://youtube.com/@kenkers10?si=_OwLZ0YRFxuC-zMZ Kenโฆmarried 2 children, and I love gardening, dogs, strong IPA beer, and bourbon. Go NY Giants, NJ Devils!!!
Karen Denmark @kmdenmark.bsky.social Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
Naylor007 @naylor007.bsky.social #pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others
Michaelson @ryheim.bsky.social Random thoughts and words
Wensk. @interwen.bsky.social Mainly covid, social justice + shitposting.
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Sickandtiredaus Jordan Crane @sickandtiredaus.bsky.social http://heymp.com.au/sickandtired
http://change.org/LongCOVIDInquiry
http://www.instagram.com/sickandtiredaus
https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09
https://www.facebook.com/share/19nSvtGPNz/
Winnie โฅ๏ธ ๐จ๐ฆ๐ป ๐ ๐ ๐ฆ @winnie71.bsky.social Proud ๐จ๐ฆ mom of 2 amazing kids, wife and engineer!โท๏ธ๐ฅพ ๐ณ ๐ธ ๐ ๐ถ ๐ ๐งณ ๐ฏโโ๏ธ On a mission to share beauty, hope, strength & knowledge! Long COVID March 2020โค๏ธ โ๏ธ
X: @cockapoowinnie
faithox @faithox.bsky.social Faithless from X. Severe ME & MCAS. Used to teach and write. From Otautahi, NZ. Running out of hope. Looking for some more.
Alisontomyradioooo @arisonsned.bsky.social Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back ๐ฉต
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Esther @elhopkins.bsky.social Composer
Clean Air Advocate
#Covidisairborne #FBCV
Vote Green Party ๐
#Feminist
Tapanui 'Flu @tapanuiflu.bsky.social Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME
Katharina ๐ฆ๐๐ @katha1970.bsky.social Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Danielle Beckman @daniellebeckman.bsky.social I like brains and microscopes. Interested in Neurovirology
PharmD, MS in Biophysics, PhD in Biochemistry
๐ง๐ท Rio ๐บ๐ธ Sacramento ๐ฉ๐ช Munich
International Society of Long COVID & Post-Acute Infection Syndromes: https://islc-pais.com/
daniellebeckman.com
Nathalie Pearson @natpearson.bsky.social #Hampshire
#SafeAirSchools
#Climate #Nature #LongCovid
Devoted mother | Founder SafeAirSchools.org | Proud Kingโs College London alumna | Founding Member Long Covid Kids | Passionate about healthcare | Leave nobody behind | Neurodivergent
Amy Boylan @amyboylanwrites.bsky.social Freelance #copywriter. PhD Geology. Life on โธ 1st ๐ #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne ๐ท
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social Sharing info on COVID since the start of the pandemic.
#COVIDisNotOver #COVIDisAirborne #MaskUp๐ท
Erin Candy ๐๐จ๐ฆ @erincandy.bsky.social ๐จ๐ฆJust a chronically ill East Coast girl with a sailor mouth. #NB
History/Science/Politics/Gaming/Movies/ #Leafs Hockey/Creator/Cat Rescuer
Leukaemia cancer survivor!
Anti-fascist/Anti-disinfo activist.
Battling #LongCovid since March 2022
#MCAS
#POTS
โ
Jessamy Barker (they/she/he) @jessamybarker.bsky.social Serving genderqueer drag and goth looks
Brit living in California
Genderqueer Drag as https://www.instagram.com/lordofmxrule
Painted rocks https://www.instagram.com/stained_stones
Chronic Illness Channel @chronicchannel.bsky.social Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality.
https://www.youtube.com/@ChronicIllnessChannel
Clean The Air http://bit.ly/CleanTheAirUK
COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com
#MedSky
facebook.com/groups/COVIDLongHaulers
YouTube.com/@covidlonghaulers
Patreon.com/BrookeLine
Melissa @mcochrane13.bsky.social mum of 2 kids, 1 cat & 1 dog, wife, ADHD, PMDD, POP, & ME/CFS with fibromyalgia, she/her, human rights are for everyone. LGBTQ+ safe here. ๐จ๐ฆ in ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ
Royal Free 1955 @rfh1955.bsky.social ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
Tatiana Trifan #FBLC @tatianatrifan.bsky.social Life is full of surprises, but never when you need one.
Completely allergic to any form of racism, sexism, genderism.
#StandWithUkraine
Views are my own
Emma Wooller @emmawooller.bsky.social
A Darkened Room @adarkenedroom.bsky.social One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@jennyjones.bsky.social @jennyjones.bsky.social ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ๐ฌ๐ง๐ช๐บRejoin
Votes for 16yo
Save our publicly funded NHS& public orgs
Internatl legisltn to outlaw media misinfo
Transparency&accountability
Truth&justice
UK nds political&media reform& legislation
Music movement nature lit art & kindness- sanity essentials
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
๐ป๐ชป๐ผ
Michael Sieverts @yogafogie.bsky.social DMV native. COVID long hauler. Patient-Led Research Collaborative.
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Merve Tepe, PhD @mervetepephd.bsky.social PhD MICROBIOLOGIST
AMR, Biofilms, Phage Therapy, Drug Design and some other similar topics ๐คซ๐
@remissionbiome.bsky.social team
@renegaderesearch.bsky.social volunteer
DEFEND SCIENCE, RESIST IGNORANCE ๐ซ
#SonKale06
Ankara
Regina M @rejayjay.bsky.social Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. ๐
Liza @limiltlessliza.bsky.social LongCovid Advocate
Zebra
Yogi
Plant mom
Story Teller
Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers
Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.
https://mecfsdiagnosticbiomarkers.substack.com/
M.M. @mzuml.bsky.social ๐ด๐๐ง๐๐ท
*ME/CFS sufferer * One of millions missing
* Safe passage
*Environmentalism *Politics
*Radical left *Craftsman ๐ง๐ฉ
*Outdoor enthusiast *Lab rat ๐ * he/him *๐BLN
Climate change <โ> Social conflicts
๐ซSchwurbeln verboten!
Jacob @jhealth123.bsky.social 28 | COVID-19, Clean Air & for nasal vaccines that can stop an infection:) // Deutsch & English
Ravna Marin Siever @zesyra.bsky.social ฯnary lesbian | they/them | white | autistic | disabled | polyam | 3-5 kids | Author | "Was wird es denn? Ein Kind!"