- S Steve Chrzanowski @stevechrz.bsky.social Assistant Professor at UMassChan’s Duchenne Program via UofCincy → UFMedicine → TheBCRP → BCHNeuroRes → @arvardneuromds • Messages my own • Messages ≠endorsement
Jenni Laitila, PhD @laitilajenni.bsky.social Researcher in the field of #nemalinemyopathy and #raredisease. Finn at heart and an honorary Aussie.
Junior PI, Myofin-lab
Folkhälsan Research Center
Helsinki, Finland
Nemalinehelsinki.fi
#myoblue
🧘♀️👩🔬🏄♀️
Jaakko Sarparanta @jaakkosarparanta.bsky.social Molecular biologist studying neuromuscular disease in the Myofin group (@myofinlab.bsky.social) at Folkhälsan Research Center (@folkhalsanresearch.bsky.social), Helsinki, Finland.
Marco Savarese @marsavarese.bsky.social Myofin Principal Investigator@Folkhälsan Research Center.
Exeter Rare Disease @rdexeter.bsky.social Prof Emma Baple and team at @exeter.ac.uk defining the genomic and molecular basis of rare diseases
https://wohproject.com/
Virginia Arechavala @varechavala.bsky.social Scientist and mum. Ikerbasque Professor @ Biobizkaia HRI
Interested in #RNAtherapy for #neuromuscular disorders. De Bilbao de toda la vida and adopted Londoner.
https://www.linkedin.com/in/virginia-arechavala-gomeza-a482509/
Svetlana Gorokhova @sgorokhova.bsky.social Svetlana Gorokhova, M.D., Ph.D., is working in Marseille Medical Genetics (@univamu) and @aphm-chu-marseille in Marseille, France, remote member of NNDCS @NIH @NINDSnews
Robert Muní Lofra @rmunil.bsky.social PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc.bsky.social John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Simon Waddington @profsimonwad.bsky.social 𝘗𝘳𝘰𝘧𝘦𝘴𝘴𝘰𝘳 𝘰𝘧 𝘎𝘦𝘯𝘦 𝘛𝘩𝘦𝘳𝘢𝘱𝘺, 𝘜𝘊𝘓
𝘎𝘦𝘯𝘦𝘵𝘪𝘤 𝘵𝘩𝘦𝘳𝘢𝘱𝘪𝘦𝘴 𝘧𝘰𝘳 𝘤𝘩𝘪𝘭𝘥𝘩𝘰𝘰𝘥 𝘨𝘦𝘯𝘦𝘵𝘪𝘤 𝘥𝘪𝘴𝘦𝘢𝘴𝘦𝘴
𝘈𝘈𝘝, 𝘭𝘦𝘯𝘵𝘪, 𝘢𝘥𝘦𝘯𝘰, 𝘮𝘙𝘕𝘈
🧬🚲
Institut de Myologie @institutdemyologie.bsky.social Centre d'expertise sur le #muscle et ses pathologies, créé en 1996, l'Institut de Myologie, avec ses 300 experts, a pour objectif de favoriser l’existence, la reconnaissance et l’essor de la myologie dans le monde.
http://www.institut-myologie.org
John Walton Muscular Dystrophy Research Centre @jwmdrc.bsky.social Performing world-class translational research to bring diagnosis, care and therapy to people with neuromuscular disease
SMA Europe @sma-europe.bsky.social SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
Visit our website: https://www.sma-europe.eu/
Annemieke Aartsma-Rus @oligogirl.bsky.social Translating science from bench to bedside and from jargon to lay language
Jordi Diaz-Manera @querques.bsky.social Professor of Neuromuscular Diseases at the John Walton Muscular Dystrophy Research Centre of the Newcastle University and Honorary Consultant in Genetics at the NHS Newcastle Hospital Trust. Member of the Neuromuscular diseases lab of Sant Pau Hospital.
Matthew Alexander, PhD @mattmuscleguy.bsky.social Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. Lover of all things muscle. All posts are my own. Instagram @thealexanderlab
Lab website: https://www.uab.edu/medicine/peds/research/division-researc
Hermien Kan @kanhermien.bsky.social Associate professor in the CJ Gorter MRI center at the department of Radiology of the LUMC, where I lead a research group focussing on Imaging in Neuromuscular Disease. 
Dr Gita Ramdharry PhD @gitaramdharry.bsky.social Consultant Allied Health Professional; Physiotherapist; Honorary Associate Professor; Research; Neuromuscular Diseases; Diversity & belonging (she/her)
Neuromuscular Disease Network for Canada @nmd4c.ca Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Funded through CIHR-IMHA and Muscular Dystrophy Canada
Visit us at: https://neuromuscularnetwork.ca/
Euan's Guide @euansguide.com Award-winning charity known for our disabled access review website, making accessible loos safer with our Red Cord Cards, and the UK's largest Access Survey.
www.EuansGuide.com
RenewableUK @renewableuk.bsky.social The UK’s leading renewable energy trade association. We're building a future energy system powered by clean electricity: better for consumers & the environment.
https://www.renewableuk.com/
Catherine Ross @qcattq.bsky.social She/her
Feminist. Environmentalist. Friend. Parent. Optimist. 🏳️🌈🏳️⚧️
Prof Gina Ravenscroft🇿🇦🇦🇺 @ginaravenscroft.bsky.social Rare & neuromuscular disease researcher at UWA & the Harry Perkins Institute, Perth 🇦🇺
Passionate about #sciencefunding, #womeninSTEM, #EMCRs
Mum of 👦👧🐶
Posting about genomics, rare disease, PI life & wine
https://www.ravenscroftlab.com
MYO-MRI+ 2025 @myo-mri.bsky.social The 5th MYO-MRI+ International Imaging in Neuromuscular Disease Conference (MYO-MRI+ 2025) at Langenbeck-Virchow-Haus, Berlin, Germany, November 9th-11th, 2025.
World Muscle Society @worldmusclesociety.org The World Muscle Society is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders and the care for people living with them.
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app