Just Treatment @justtreatment.org We campaign to put patients and the #NHS before profit. ✊
Lucy Brisbane Mckay @lucybrisbane.bsky.social 📢 Interested in story telling for social change
💼 Community & impact @tbij.bsky.social
🪧 Freelance campaigns & media - trainer & facilitator
🎙️ Co-creator of @inquest-org.bsky.social Unlawful Killing podcast
⚧️ she/her
🏳️🌈 Queer as in 🍉 ✊❤️🏳️⚧️
Connected by Data @connectedbydata.org The campaign for communities to have a powerful say on data and AI, to help create an equitable and sustainable world.
connectedbydata.org
Marissa ♿🥀🌹 @djdusk.bsky.social 26 | She/They | CF Warrior | Raging Bisexual | Biggest Touhou Nerd | Fellow #artist and #disabledartist
"Lost in preparing the birthday party, you forget who it was for."
Caitlin Moran @mscaitlinmoran.bsky.social In the culture wars, I want to be the bit on Christmas Day where they all knocked it on the head for a bit and played football.
Royal Brompton and Harefield @rbandh.bsky.social The UK’s largest centre for specialist heart and lung care, part of @GSTTnhs and @NHSuk. 
Zoe Williams @zoesqwilliams.bsky.social Guardian writer, but one time I said something inflammatory to the US right & they called me a Diseased Pitmommy. So that's what I go by now 
Dr Fiona McEvoy @drfmc.bsky.social Mum, GP, artist
Member NI Bma council
Budding gardener 👨🌾
Chief dinner maker
Open water dipper
ADHD advocate
Touring caravan for the win, hotels with kids are overrated
UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social A collaboration between clinical, patient, public, and scientific representatives to support research in organ donation and transplantation for patient benefit
https://ukodtrn.org/ 
Trailfinder CF Innovation Hub @cf-trailfinder.bsky.social Serving people with Cystic Fibrosis at all life stages through cutting-edge research, meaningful partnerships and innovation. Based at @liverpooluni.bsky.social and funded by @lifearc.bsky.social and @cysticfibrosis.org.uk
Oli Rayner @olirayner.bsky.social 🧬 Co-Founder & CEO @ Gramics Bio
🚀 Building the non-viral DNA delivery platform to unlock a new class of re-dosable gene therapy
📣 Patient advocate with activist tendencies
🤝 Previously led BD for the Cystic Fibrosis Foundation in Europe
The Charity Show @thecharityshow.bsky.social 🎙️Charity from every angle 🎙️
The podcast for charity insiders, by charity insiders.
Hosts Tim Beynon & Piers Townley tackle the topics that matter for third sector staff, fundraisers, supporters & charity gurus!
linktr.ee/thecharityshow
@sacollins6.bsky.social @sacollins6.bsky.social 
Dan Beever @danbeever.bsky.social Research Fellow @ University of Nottingham & PhD student @ MAGNIFY SRC• University of Sheffield🎓 & Action for Pulmonary Fibrosis💜 alumni • Passionate about lived experience • Living with CF🫁
Tim Rutherford-Johnson @purlis.bsky.social Listener, CFer, wordmonger. Written books about new music; trying to write one about Schubert.
https://johnsonsrambler.wordpress.com/about/
Substack here: http://purlis.substack.com
NHLI @imperialnhli.bsky.social We're the National Heart & Lung Institute (NHLI) at Imperial College London, part of the Faculty of Medicine. Improving heart, lung & vascular health through education & research 🫀🫁 
Emma Thorne @emmathorne.bsky.social She/her, or if you're a cowboy, sheehawww. Professional silly lil' guy, likeable bisexual. All your friends are secretly spiders.
Proud member of the LG TV community
Lung Gene Therapy @cfgtedinburgh.bsky.social Retired Pulmonary Gene Therapist affiliated to the University of Edinburgh. Strategy Group member of UK Respiratory Gene Therapy Consortium. Opinions are mine but you may share them. https://www.respiratorygenetherapy.org.uk/meet-the-strategy-group
Emma Raywood, PhD @respisbest.bsky.social (she/her) I am aka Fizzy_Emma on the other app.
🫁 Respiratory Physiologist (paediatrics)
👩🏻🎓 PhD in Digital Health #FizzyoCF #UCL
Ronan McCarthy @ronanmccarthy.bsky.social Professor at Brunel University of London. Into all things Antibiotic Resistance, Drug Discovery, Biofilms and Signalling
Gayle Pledger @gaylepledger.bsky.social CF mum & global campaigner, fighting for access to lifesaving medicines for all. 💊🌍
Founder VertexSaveUs, ‘Right to Breathe’ campaign, working at JustTreatment. Views my own.
Ben Oxlade @benoxlade.bsky.social Husband and father to two boys. Raising awareness of #cysticfibrosis to anyone who'll listen!
Charlie Merriman (Chazingdra) @chazingdra.bsky.social Merri by name, merry by nature! Presenter/Caster for Pokémon (posts mine) | Content Creator | Host of Chazingdra Chats Podcast | Actor - rep Simon & How | Cystic Fibrosis | chazingdra@gmail.com
Science Media Centre UK @smclondon.bsky.social An independent press office helping to ensure that the public have access to the best scientific evidence and expertise through the news media
www.sciencemediacentre.org
Sharon Brennan @sharonbrennan.bsky.social Director of Policy and External Affairs @nationalvoices.bsky.social Prev. Asthma&LungUK, Alzheimer’s Society and award winning journalist HSJ
Emily’s Entourage @emilysentourage.bsky.social Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from existing mutation-targeted therapies. Learn more at www.emilysentourage.org
NIHR Biomedical Research Centre: Cambridge @cambridgebrc.bsky.social An @nihr.bsky.social partnership between @cuh.nhs.uk and the University of Cambridge @cam.ac.uk We research different diseases to find new treatments & medicines. Based at CUH & Cambridge Biomedical Research Centre https://cambridgebrc.nihr.ac.uk
Chelsea Community Hospital School @hospitalschool.bsky.social Chelsea Community Hospital School provides education for hospitalised children & young people, and those in the community, at six sites across London.
www.cchs.org.uk
Gwyneth Davies @gwynethdavies.bsky.social UKRI FLF (UCL), paediatrician (GOSH), mum. Research: Cystic Fibrosis, treatment burden, co-design, health informatics, pragmatic clinical trials. Views my own
Andres Floto @andresfloto.bsky.social Prof. of Respiratory Biology & Co-Director Cambridge Centre for AI in Medicine, U of Cambridge. Studying Bacteria, Innate Immunity & Antibiotic Discovery, CF/Bronchiectasis/NTM using genetics & ML
Ed Owen @ed-owen.bsky.social Political strategist for @labourtogether.bsky.social. Fellow of @ThirdWay.bsky.social & @AtlanticCouncil.bsky.social. Ex-UK government adviser, always Man City 🩵 🇬🇧🇺🇸
JoDavidson@CFcarer @jodavidson.bsky.social Family. Friends Cystic Fibrosis Strictly. Ghosts. Schitts Creek. Indie music. Cats. Reading. Unison.
https://www.justgiving.com/fundraising/joanne-davidson2026?utm_medium=FR&utm_source=CL
PULSE-CF Research Innovation Hub @pulse-cf.bsky.social Research programme funded by the Cystic Fibrosis (CF) Trust and LifeArc and hosted by University of Manchester. We are doctors and scientists looking to better understand CF exacerbations and improve the lives of people with CF.
www.pulse-cf.com
Association of Medical Research Charities @amrc-uk.bsky.social The membership organisation of leading medical and health research charities in the UK.
www.amrc.org.uk
@mshore25.bsky.social @mshore25.bsky.social 
Filière Muco-CFTR @filieremucocftr.bsky.social Le domaine d’expertise de la filière Muco-CFTR couvre la mucoviscidose et les affections liées à une anomalie de la protéine CFTR.
#mucoviscidose #maladiesrares
Lost Women of Science @lostwomenofsci.bsky.social Well tell the stories of remarkable female scientists that history forgot
Go and listen to our podcast👇
lostwomenofscience.org
Dr Katie Gathercole @katiegathercole.bsky.social Lecturer in Childhood Studies and Inclusive Education | Plant nerd 🌷
Katie Fielding @katiefielding.com Always Creating | #ISTECert & Community Leader | Managing Content @ BookCreator.com | #MIEExpert & Fellow | #GoogleEI Champion | #UDL and #a11y | 🫁 @cf_foundation | She/Her #EDUSky
https://m.mtrbio.com/katief
Patient Information Forum @pifonline.bsky.social PIF is the independent voice of health information. We promote access to trusted, evidence-based health information for all. We run the PIF TICK – the independent credibility mark for health information.
www.pifonline.org.uk www.piftick.org.uk
@belindacupid.bsky.social @belindacupid.bsky.social 
@paulasommer.bsky.social @paulasommer.bsky.social 
Cystic Fibrosis Ireland @cfireland.bsky.social Cystic Fibrosis Ireland is the national charity advocating for people with Cystic Fibrosis in Ireland.
Registered Charity Number 20011376
CharityComms @charitycomms.bsky.social CharityComms is the membership network for communications professionals working in and with UK charities. Find out more about us and our membership at www.charitycomms.org.uk 
Jimmy @jimmygregory84.bsky.social Work Forwards Programme Manager at CF Trust. Living with CF. 40 something sausage dog father
Cystic Fibrosis Research Institute @cfricurecf.bsky.social CFRI funds research, provides educational and personal support, and spreads awareness to #curecf. For more, visit cfri.org
Inspiring Communities @inspiring-comms.bsky.social Co-designing and delivering people-centred community regeneration in Stirling. We focus on employability, training, digital inclusion, volunteering, intergenerational connections, and family support—empowering communities to create change.
Jane Davies @janedaviescf.bsky.social Medical research & clinical care for cystic fibrosis, NHLI Imperial College & Royal Brompton Hospital, London; allergic dog-lover and die-hard folkie
Rare Disease Research UK @rdrukhub.bsky.social We hope to be able to significantly impact the RD research landscape and improve the lives of those directly or indirectly affected by rare diseases.
@alexhorsley.bsky.social @alexhorsley.bsky.social 
Chris van der Gast @chrisvandergast.bsky.social Professor of Microbiome Ecology. Gut & Lung Microbiomes in Cystic Fibrosis. #Firstgen
https://www.northumbria.ac.uk/about-us/our-staff/v/chris-van-der-gast/
Kieran Earlam @kieranearlam.bsky.social Policy professional. All opinions are my own personal views and do not express those of my employer.
Cystic Fibrosis Trust @cysticfibrosis.org.uk We're dedicated to uniting for a life unlimited for those living with cystic fibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
cysticfibrosis.org.uk
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.