Zalissa @zalissa.bsky.social 
Stevie P @steviep65.bsky.social Restaurant Server at T. Marieโs in Mobile, Alabama, US Navy Veteran, Epileptic, avid Cyclist
JohnnyToronto @johnf2023.bsky.social Toronto.
Deadhead.
The Jays.
Bike Riding Pinko.
Guitars, Cadillacs, Hillbilly music...
Anymouse @anymouse.bsky.social Village Trustee (Chairman/mayor), village of 92 in the Nebraska Panhandle. Democratic Socialist. Disabled Navy veteran with epilepsy. Former erotic Romance novel editor. Flag committee chair. broadwater.nebraska.gov He/him
jeanie52 ๐๐๐บ๐ฆ @jeanie52.bsky.social Fueled by caffeine โ | Future survivor of the Zombie Apocalypse ๐งโโ๏ธ | Professional cat wrangler ๐พ | #SlavaUkraini #Resist #UnionStrong #LiberalAF
John @jrh2385.bsky.social Middle aged, volunteer photographer, epilepsy warrior, cyborg, veggie, gamer, dog person. JRH2385, SW-7284-4924-6113, steam 152532536
Ariel @arielgross.bsky.social Founder of teamaud.io and techaud.io, currently Audio Director at Ghost Story Games working on Judas, prev BioWare, Volition, old indie games on GBA and DOS, yer game dev pal but I do other stuff too like occasionally brush my teeth you still reading this?
@blurenze.bsky.social @blurenze.bsky.social I do photoshop, u can dm me if u have req. i mostly do free req and if u liked my work u can buy me ko-fi/Tip
Chronic Illness Resource Library @spoonieresources.bsky.social Sharing fact sheets, how-to guides, online tools, worksheets, research, and other helpful info for people living with chronic illness(es).
Not a health professional.
Requests/suggestions welcome.
๐ซ No AI
linktr.ee/chronicillnessresourcelibrary
LAFAYETTE @lastudiolafayette.bsky.social Father, Writer, Photographer, Herbalists, Tribal Medicine Researcher, Explorer, Seeker, Int Negotiator, FIT, Designer, Airline Safety & Health Chairperson, Jungle Crisis Counselor, 105 Countries, Navy Vet, Futurist, 60 yrs Cooking. ๐ซMAGA
๐ณ๏ธโ๐๐ณ๏ธโ๐A Fancy Whimsy - Kindle @samhanepublishing.bsky.social Queer, HIV+U Gaymer who writes gay fiction and occasionally posts some NSFW content
https://linktr.ee/samhane.publishing
https://ko-fi.com/U6U61JQY42/shop
MichiFinds @michifinds.bsky.social I like to find deals and share them with others. join me at michifinds.com to track price history and save money!
CURE Epilepsy @cureepilepsy.bsky.social CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 19 countries to date.
KnightHawk @knighthawk899.bsky.social Millennial him/he
Disabled & Chronically ill,
Into Movies, Video Games,
โฟ Disability Awarenessโฟ+Politics
Needs of the disabled are not being met in the US, help me change that!
My Links๐
๐ https://ko-fi.com/knighthawk899
๐ venmo.com/u/Knighthawk899
Moobsky @i-like-to-moob-it.bsky.social The Bluesky -> https://moob.app migration is happening fast!
๐พ๐ค๐ข๐ข๐ช๐ฃ๐๐ฉ๐ฎ ๐๐๐ฅ: ๐ฉ๐๐๐จ ๐๐๐๐ค๐ช๐ฃ๐ฉ ๐๐๐จ ๐๐๐๐ฃ ๐ข๐๐ง๐ ๐๐ ๐๐จ ๐ฃ๐ค๐ฉ ๐ ๐ฃ๐ค๐ฌ๐ฃ ๐ฉ๐ค ๐๐ ๐ค๐๐๐๐๐๐๐ก๐ก๐ฎ ๐๐จ๐จ๐ค๐๐๐๐ฉ๐๐ ๐ฌ๐๐ฉ๐ '๐๐ค๐ค๐ ๐ผ๐ฅ๐ฅ'
@patchworkgeneva.bsky.social @patchworkgeneva.bsky.social Just a patchwork dog in DC. Living with a rare disease.
The Mark Shaparin Foundation @markshaparinfdn.bsky.social The Mark Shaparin Foundation honors the life and legacy of Mark Shaparin through awareness, education, and action to prevent Sudden Unexpected Death in Epilepsy (SUDEP) with the goal of saving lives.
Genetic Epilepsy in Adults Network @gean-epilepsy.bsky.social Founded to change the way genetics is integrated into adult epilepsy care ๐งฌ๐ฅผ #AdultsHaveGenesToo
Jason Kelly @jasonkelly.cloud Cloud economist in Seattle with 2 dogs and an unhealthy obsession with soccer ๐๐โฝ๏ธ
Pete @pmullen.com Raising three boys, including one brave epilepsy warrior. Navigating the space between web development and system engineering. Started when <table> layouts were a thing.
MefAction @mefaction.com Mefloquine International Action Network
Uniting victims of Mefloquine Toxicity (Quinism) across groups (military, volunteer, traveler, etc) and countries. #ABI (RPCV Kenya, Deaf Ed)
www.mefaction.com
action@mefaction.com
Shared Umbrellas @sharedumbrellas.bsky.social Supporting those proving extra care for themselves or a loved one. It can be isolating and often extremely challenging, now more than ever in these times of uncertain funding. You are not alone. Letโs help each other. #Disability #ChronicIllness #CareGiver
Nicole Cosette Werner @jesuisunenicole.nuggettesnation.com #Socialjusticewarrior #concerts #indiemusic #denvernuggets #MileHighBasketball #anxiety #autismlatediagnosis #adhdwomen #factorvleiden #complexptsd #SeniorSwiftie
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Retention Project @retentionproject.bsky.social RETENTION is a H2020 funded project conceived to support clinical decision making, clinical monitoring and data-driven interventions for heart failure patients in need of ventricular assist devices (VAD) and patients who received a heart transplant.
Anna Hurley @drannaneuro.bsky.social Paediatric Neuropsychologist | Cognitive assessments (ADHD, ASD, learning, epilepsy) | Medico-legal assessments | @GreatOrmondSt | @UCL | London & UK
๐ง 
Dr. Helga D. รsfold Sigurรฐardรณttir @isfold.bsky.social Game researcher, PhD. Posts in English, Icelandic, Norwegian. She/her ๐ฆ๐ง๐ป๐ฎ๐ธ
Ruben Crouten @crouttedemiel.bsky.social 
John Salts @johnsalts.bsky.social One crisis after another.
Canadian Epilepsy Alliance @ceaofficialnews.bsky.social The Canadian Epilepsy Alliance is a national network of 26 community-based organizations supporting 1 in 100 Canadians living with epilepsy. We advance education, advocacy, awareness, and inclusive services to improve quality of life nationwide.
Epilepsy South Central Ontario @epilepsysco.bsky.social Epilepsy South Central Ontario is a nonprofit empowering individuals and families affected by epilepsy through education, advocacy, and compassionate support. We build understanding, independence, and community through programs for all ages.
GirlRebuilt ๐จ๐ฆ๐ง๐ง @girlrebuilt.bsky.social Mom to humans & cats. DV survivor. Goth. Writer. Music Junkie. Pain + illness warrior ๐ฅ. ๐ณ๏ธโ๐ ally. Photographer. Proud member of East Coast Kin #ECK. Join me in my amusement park of misadventures... it's dark in here, but I'm searching for the light.
The Zebra Alliance Community @thezebraalliance.bsky.social The Zebra Alliance represents a beacon of solidarity for navigating the challenging waters of Ehlers-Danlos Syndrome, Rare Diseases, and Chronic Illness.
Education โข Resources โข Advocacy
https://linktr.ee/thezebraalliance
@andrew19834.bsky.social @andrew19834.bsky.social 
Brain Ablaze @brainablaze.bsky.social As people with Epilepsy, we support anyone dealing with seizures.
Alexander Symon-Allen @asallele.bsky.social NHS Clinical Scientist in Genomics ๐งฌ
Epilepsy ๐ฃ Neuro Tumours ๐ง Inherited Cancers ๐ฆ
Emily Pegg @emilyjpegg.bsky.social Neurologist. Epilepsy and hormones, health inequalities, obstetric neurology, brain network analysis
https://research.manchester.ac.uk/en/persons/emily-pegg
The North American AED Pregnancy Registry @aedregistry.bsky.social Empowering Pregnant Women with Information About Anticonvulsants through Research
Paula @paula890590.bsky.social @encephalitisint & @ocdaction supporter/advocate
epil volunteer.
an OCD
Advocate
Advocate
OCDAdvocate &
I support
@encephalitisint.bsk..
Chris Churchill @seizedandshaken.bsky.social Settler. Survivor. Epilepsy and CPTSD (he/him)
Adjunct historian: Malcolm Bowie Prize (2013); 2x Joseph Kruson Teaching Award (2014, 2017); CAFA Distinguished Teaching Award for a Precarious Academic (2023)
IctalGroup Research Network @ictalgroup.bsky.social #neurocriticalcare #statusepilepticus #epilepsy #CriticalCareEEG #SUDEP #EBM #nursingresearch #EEG
https://ictalgroup.org
https://www.helloasso.com/associations/ictalgroup/formulaires/1/widget/en
@ctown9516.bsky.social @ctown9516.bsky.social 
Torie Robinson @torierobinson.bsky.social ๐ฌ Epilepsy Sparks Insights Podcast Host & YouTuber ๐ง ๐งฌ | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
KearneyLab @kearneylab.bsky.social Neuroscience | Genetics | Pharmacology | Epilepsy | Neurodevelopmental Disorders | Targeted therapeutics | Northwestern University, Chicago | Opinions are my own ๐งช๐ฉโ๐ฌ๐ง ๐งฌ๐
FutureNeuro Centre @futureneuro.bsky.social FutureNeuro is the Research Ireland Centre for Translational Brain Science, based in RCSI University of Medicine and Health Sciences. Our vision is to change the patient journey for people affected by brain conditions.
Melissa McCarron @mjmccarron.bsky.social 
ThePlaguesRUS @theplaguesrus.bsky.social Covering all news on wars, politics, climate change, science, travelling, photography and more.
๐ ๐ ๐ ๐ฆ ๐ ๐ซ๐ธ๐งณ
Jennifed @jennifed.bsky.social Cloud groupie. Weather fan. Wildlife observer๐ธ
Dogs! Living in The Land on the Fresh Coast. She/her.
I will swear on occasion. Auntifa logistician & procurement specialist๐ซก๐๐ผ
JdS @jdsoak.bsky.social Public defender turned civil rights lawyer.
@the-other-dog.bsky.social @the-other-dog.bsky.social 
Dr. Amy L. Brewster, PhD @amylbrewster.bsky.social Scientist (epilepsy research) and educator. When Iโm not in the lab or classroom, Iโm out on the trails with my golden sidekick, Beto, researching new adventures. 
Epilepsy Sparks @epilepsysparks.bsky.social Educating re #epilepsy ๐ง โก๐ฌ๐งฌ! Check out our podcast & website! We bridge the comms gaps between clinicians, researchers, & people with epilepsy!
American Epilepsy Society @amepilepsysoc.bsky.social Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RPs โ endorsements.