JustAnne @smartpatient.bsky.social Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person 
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
aure π°π @maureviv.eurosky.social Anesth & Crit care physician;
ARDS research; GradCert. Stats, Bertalanffyist, #rstats geek, unlicensed programmer; postdoc. π»echo.alpha
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Ramses Temmerman @ramsestemmerman.bsky.social Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | π§πͺ πͺπΊ
Liz Worthey @lizworthey.bsky.social #AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected
sites.uab.edu/cgds/ she/her
Lemon Ride @lemonride.bandcamp.com Lemon Ride is the name on everyoneβs lips β and no one knows whoβs behind it. Blending shimmering melodies with earth-shaking basslines, Lemon Ride crafts a sound that defies definition, balancing emotion and innovation in every track.
Pwoiter @pwoiter.bsky.social Iβve been wearing the same trackie dacks since the Wuhan outbreak. ME/CFS carer. Melbun. 
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social #LongCovid Scientific Consultant
PhD Nutrition & Metabolism
Hon Research Fellow, Lund Uni
Posts: nutrition βͺ health βͺ all-things-science βͺ activism βͺ fun facts βͺ #PostVac
Donations: https://ko-fi.com/drsmash
Facebook: https://www.facebook.com/LongCovidSC
persephone @jomaselli.ca linktr.ee/jomaselli
I try to write stuff & make things but Iβm usually too sick & too busy raising a human.
π tkaronto
π΄ via sicily & bari
βΎοΈ AuDHD
βΏοΈ disabled
π· long covid + more
she/her/miss/sir
Sarah @no1sarah.bsky.social She/her.
βΏοΈ
π³οΈβππ³οΈββ§οΈ ally
In healthier times: Health & social care; homelessness & housing.
Music, music, music. πΆ
Mostly here to connect with
#LongCovid
#MECFS
#ChronicIllness
#Dysautonomia
#hEDS
#MCAS
Kent, UK
Film Milf ππBlue Dem. Resister. π³οΈβπ LGBTQ+ π @filmilf.bsky.social Work @ TrixStarT Film Productions.
ππBlue Dem. Resister. π³οΈβπLGBTQ+ π
Fully Full Frontal 4 Film. Crazy Cool Comics.
PH ποΈπ±π· @ph-ph-ph.bsky.social π 2050 is too late π itβs a climate + biodiversity EMERGENCY π¦ SARS-CoV-2 is in the AIR: ventilate/HEPA #BetterMasks π· #ZeroCovid π± PUBLIC Health
EVERYTHING is connected
30,000(+) π AUS SARS2
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
The 'Skeets' @continuitytweets.bsky.social Reposts not necessarily endorsements etc.
Also curator of @rfh1955.bsky.social.
miss_malingerer @missmalingerer.bsky.social absolutely zonked on the βoids π₯³
95% Bedbound ME/CFS/Long Covid
AllisonHaynes @allisondhaynes.bsky.social Advocate for Myalgic Encephalomyelitis per ME-ICC and Ramsay/Dowsett/Hyde et al.
Severe M.E. since 1989.
Supporter of meadvocacy.org and The Nightingale Continuum (continuing to share the work of the Nightingale Research Foundation)
@icedaft.bsky.social @icedaft.bsky.social Conglomerat - Human - German - European - Pensive π€ Husband - Father - Humanist - Directπ«£ #Triumph #Motorbikes #Motorcycles #Volunteer #Firefighter ππ¨ #Europe πͺπΊ #Travel #HSSP #onlinegamer #gamer
https://www.threads.net/@icedaft?igshid=NTc4MTIwNjQ2YQ==
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Kirsty π» @kirstysmestory.bsky.social Living with moderate/severe M.E. π¦ severely affected by the Pfizer vaccine π in 2021 and health issues from covid infection β23
Not anti-vaccine
VegPlotter: Online Vegetable Garden and Allotment Planner @vegplotter.com The best online Vegetable Garden & Allotment planning software to get you organised in the garden.
Fully featured garden planner vegplotter.com
Frost dates and growing zone calculator frostdates.com
Holly Chessman @hollychessman.bsky.social Storyteller, #Writer, #NoKings, #Pinks, #HandsOff, ππ #DoctorWho, #Marvel, π Dark Chocolate, #Feminist, Mom of 4, #disability, #chronicillness: #LongCovid, #MECFS, #Migraine, #POTS, etc. π«DMs w/out permission
https://www.linkedin.com/in/hollychessman
Nic @lilnic000.bsky.social 
@esambannar.bsky.social @esambannar.bsky.social https://gofund.me/e2edd02f https://www.paypal.com/paypalme/Esambanar1
ExplorDHT @explordht.bsky.social A peer-reviewed open access online journal (eISSN: 2996-9409) with NO APC before Nov 30, 2028. Welcome to join us!
Email: edhtjournal@explorationpub.com
Submit your article (without APC): https://edht.aressystem.com/
Jeff Turner π¦ππ¦π@loveneverhate @loveneverhate.bsky.social βοΈ NOW & FOREVER: WE WANT JUSTICE, LIBERTY & FREEDOM FOR ALL
βοΈ Future generations will enjoy these GOD given rights because of our courage and integrity
βοΈ LOVE is more powerful than fear & hate
βοΈ l believe in:
LOVE NEVER HATE
βοΈ JOIN OUR FIGHT FOR FREEDOM!
Admin @work-shirt.bsky.social β οΈ Into Fitness? We're Into Helping You! β οΈ
π―: To follow everybody on Bluesky! π―
From Certified Personal Trainers
@patrb.bsky.social @patrb.bsky.social Love cats, books, music, art, and Democracy
Oxaloacetate CFS @oxaloacetatecfs.bsky.social A Medical Food clinically proven to lower fatigue in patients with Long Covid & ME/CFS
Tired of being tired?
oxaloacetatecfs.com
Anderbergskan @anderbergskan.bsky.social Born at 320, learning anew π·βΏ πΈ
#CallForPublicHealthAction
Flo-mask β¨ Zimi β¨ DrΓ€ger β¨ Zekler β¨ Aura
Holley @holleym20.bsky.social #WHN π§ͺ
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long CΓΆvid
Vice President of ISLC & PAIS
@erinmg.bsky.social @erinmg.bsky.social Mum to very severe long Covid kid.
Formerly a journo who left media frypan for law world fire.
Here to learn.
#longcovidkids
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid π https://linktr.ee/renegaderesearch β’ Runs @remissionbiome.bsky.social
Physiopedia @physio-pedia.com #1 Rehabilitation website | UK registered charity | Supported by Plus online professional development for rehabilitation https://members.physio-pedia.com
No_M.E._Denialism @nomedenialism.bsky.social 
Brian Shuell @bshuell.bsky.social 
Jess Badger @jesshoneybadger.bsky.social Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
@breathewellphysio.bsky.social @breathewellphysio.bsky.social 
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Esther @elhopkins.bsky.social Composer
Clean Air Advocate
#Covidisairborne #FBCV
Vote Green Party π
#Feminist
Atanas G. Atanasov @atanas-g-atanasov.bsky.social Lead Editor: #CRBIOTECH & #ExplorDHT | Chair of Pharmacology at DPU | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Author of #HealthHacksThatWork
πWeb: https://digitalpatientsafety.com/atanas-g-atanasov/
AirSpot π·β€οΈ @airspotrob.bsky.social AirSpotHealth.com
Our Smallest CO2 Monitor!
#CleanIndoorAir #COVIDisAirborne
Myrl @myrljohnson.bsky.social Fan of books, movies, family, friends, recipes, beaches, mountains
Always looking for information and inspiration; #pwME #pwMCAS
Ally
Try to be of service
Fishupahill @fishupahill.bsky.social Formerly many things. Now missing, but not gone.
#pwME, #pwLC and #Lyme.
Pamela PhD @pamelaraasen.bsky.social Psychologist, lifelong activist for womenβs issues, peace and social justice, 40 yrs with ME from Incline Village, fight the good fight and make good trouble, here to create the Beloved Community, San Francisco East Bay transplant from MN.
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. π³π± in π΄σ §σ ’σ ³σ £σ ΄σ Ώ.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Himmat @himmatb.bsky.social Writer + editor on pause due to Long Covid/vaccine. Very severe and fully bedbound. ME/CFS | POTS | hEDS. he/him
Kevin Allen @concussed1.bsky.social Dad. Terrible painter, former food microbiology professor (UBC) now living with ME incurred from an mTBI.
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. π #ThereForME #GreatestMEdicalScandal #PEM π¬π§π²π«πͺπ¦π§πͺ
Beth Paint @craftymissb.bsky.social Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs.
OhTWIST @ohtwist.bsky.social Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2026 (tbd) (toes crossed)
https://ohtwist.com
Profolus @profolus.com Explainers on business and markets, science and tech, health and medicine, and society and culture. www.profolus.com
Tozzicat π¦ @tozzicat.bsky.social Extensive background in health field; clinical, management and tertiary quals. Later studies in Professional Writing and Editing, majoring in history. Never stopped studying and learning informally.
I know everything and have smart arse tendencies.
God we trust π βοΈβοΈβοΈ @ismaila007.bsky.social Charity for food
Please donate food for us in this website www.terangas.com
Name:ismaila jallow
Address Gambia brikama twon
Phone contact number:+2203282477
Eleanor Fielding @meownersclub.bsky.social βWeβre driving in the dark with our sunglasses on!β
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS Bβham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames- M Martin @martinmecfs.bsky.social ME/CFS & chronic illness since 2019
Goodmojojo @goodmojojo.bsky.social Lawyer and recovering high school History and Religion teacher: US and UK politics junky. #nevertrumpfromthejump
Also, complete book junky.πππ The sadness of my life is that I'll never be able to read ALL the books.
π¦NO DM PLEASEπ¦
Anna - Please boost pinned tweet.π @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
πSafe housing needed π‘
#Melbourne π¦πΊ
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Paul Macdonald @paulmac.bsky.social Fighting for climate action, and challenging anti-science propaganda, disinformation, and misinformation.
@DUH4Healthcare @duh4healthcare.bsky.social #Medsky,#UniversalHealthcare, #Single-Payer, #HealthEquity. #M4A, #Medicare4AlI, #HealthcareIsAHumanRight,
#Healthcare4All, #HealthcareForAll,
#DemandUniversalHealthcare,
also on FB & Instagram. DUH! No DMs
Adriana Angarita-Fonseca @adriangarita.bsky.social Postdoctoral researcher. #Physiotherapy #Epidemiology #Sex #Gender #Hypertension #Pain
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
christina4hope @christina4hope.bsky.social πME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ectβ¦ Posts English and German.
Bavaria ,Germany
Naylor007 @naylor007.bsky.social #pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others 
#pwME since 1973 @chaostocosmos.bsky.social Woke leftie snowflake, disabled, ME/CFS, C-PTSD, likes cats, genealogy, model trains. Speaks English, Spanish and Rubbish. Writes in last of those.
https://lnk.bio/chaostocosmos
Jessica Taylor-Bearman @jayletay.bsky.social Author of A Girl Behind Dark Glasses, A Girl in One Room and A Girl Beyond Closed Doors. Casual artist and public speaker too
Hippymum @hippymum.bsky.social Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.- P Peanut Proctor @peanut54.bsky.social Here from the darkside. If you can't say something nice don't say anything at all.
#cfs #ME #LongCovid
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social Sharing info on COVID since the start of the pandemic.
#COVIDisNotOver #COVIDisAirborne #MaskUpπ·
Dom @domsalisbury.bsky.social Energetically compromised #pwME and patient advocate (when able) Β· Research scientist by trade Β· Interested in how we live Β· Open-minded but generally sceptical
https://domsalisbury.github.io
Khullain Paints (Ash) @khullainpaints.bsky.social Former commission miniature painter. POTS & ME/CFS sufferer. Disabled. Fuelled by tea. On a hiatus due to chronic illness.
Douglas Kell @dbkell.bsky.social Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/. 
Helen/OT_Skiff @otskiff.bsky.social Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots π«
Swiftie π«Ά, F1 π, cricket π fan
London, UK
@baszkom.bsky.social @baszkom.bsky.social ME-dically gaslit for 10yrs.
Chronically exhausted in AB @nursesupermom.bsky.social π¨π¦ Former RN now disabled with MECFS. Dysautonomia. Paeds/OR/PARR/PublicHealth/CovidResponse.
Mostly listen and retweet.
Connecting the dots that are frustratingly ignored.
Carrying my trauma like all HCWs. Surviving Alberta. #MECFS
Winnie β₯οΈ π¨π¦π» π π π¦ @winnie71.bsky.social Proud π¨π¦ mom of 2 amazing kids, wife and engineer!β·οΈπ₯Ύ π³ πΈ π πΆ π 𧳠π―ββοΈ On a mission to share beauty, hope, strength & knowledge! Long COVID March 2020β€οΈ βοΈ
X: @cockapoowinnie
Ellena D @eld208.bsky.social PhD at the University of Exeter on conjoined twins in literature and film. Disability studies, embodiment.
Currently working at Medify.
Chronically ill. Enjoys poetry, film photography and crafting. Nerd. Views own.
sibylle dahrendorf @sibylledahrendorf.bsky.social Ex-filmmaker, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
Alisontomyradioooo @arisonsned.bsky.social Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back π©΅
Rene Sugar @renesugar.bsky.social https://renesugar.substack.com/
Tristan @tristanveness.bsky.social Proud dad. Fairness/equality. Sarcasm coping mechanism. LC since Mar 22
Serial antiviral and LC treatment self-experimenter
π΅πΈπ΅πΈπ΅πΈ FREE PALESTINE. END THE HOLOCAUST π΅πΈπ΅πΈπ΅πΈ
Hate US + Israel murdering 100,000s
Fuck π΅+π΄ parties. Both are fascist mass murderers
Pam Bishop, PhD @pamelarbishop.bsky.social Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.