Alem Matthees @alemmatthees.bsky.social A dissident with severe ME/CFS who contributed to the PACE trial reanalysis. I was interested in the mind-body problem in philosophy and psyche-soma connection in medicine. I realised not all that glitters is gold and the emperors often have no clothes.
Cat in the Hat @catinthehat.bsky.social Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
Pwoiter @pwoiter.bsky.social I’ve been wearing the same trackie dacks since the Wuhan outbreak. ME/CFS carer. Melbun. 
@sheezamughal.bsky.social @sheezamughal.bsky.social 
Tessa Munt MP 🔶 @tessamunt.bsky.social LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social #LongCovid Scientific Consultant
PhD Nutrition & Metabolism
Hon Research Fellow, Lund Uni
Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac
Donations: https://ko-fi.com/drsmash
Facebook: https://www.facebook.com/LongCovidSC
Buffer @buffer.com The social media management platform for scheduling, publishing & analytics across every major network. Plan your content calendar in one place. This account is managed by real humans. 💙
⬇️ buffer.com/bluesky
Shematologist, MD @shematologist.medsky.social Peds hematologist oncologist, mother, dreamer, pacifist, justice seeker. Retweeted by Wonder Woman #HemeSky #MedSky #CakeForBreakfast #IronMatters http://www.HCWvsHunger.org
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Tina Katsaros @tinakatsaros.bsky.social PhD candidate researching ME/CFS at La Trobe University
📍Melbourne, Australia
Jennie Jacques @jenniejacques1.bsky.social Donate to Justice For ME here if you can please 🙏 💙🦋
https://shorturl.at/x1Vyx
Jack - amatica health @jackamatica.bsky.social ME/CFS patient and researcher
Co founder of amatica health
https://amaticahealth.com
Cornell Center for Enervating Neuroimmune Disease @cornellmecfs.bsky.social Collaborative #research center based at Cornell directed by Dr. Maureen Hanson encompassing a variety of projects on #MECFS. Visit our website below for more info.
https://neuroimmune.cornell.edu
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
elle carnitine 🪳 @ellecarnitine.bsky.social immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
miss_malingerer @missmalingerer.bsky.social absolutely zonked on the ‘oids 🥳
95% Bedbound ME/CFS/Long Covid
Michael Peluso, MD @michaelpelusomd.bsky.social Long COVID and HIV cure clinician and researcher
Audrey Ryback @aryback.bsky.social ME researcher at the University of Edinburgh.
AllisonHaynes @allisondhaynes.bsky.social Advocate for Myalgic Encephalomyelitis per ME-ICC and Ramsay/Dowsett/Hyde et al.
Severe M.E. since 1989.
Supporter of meadvocacy.org and The Nightingale Continuum (continuing to share the work of the Nightingale Research Foundation)
Dr. Jeroen den Dunnen @drdendunnen.bsky.social Immunologist and Head of Department of CIMM at the Amsterdam UMC, Netherlands. My team studies the role of antibodies during infection and autoimmune diseases, with a particular focus on post-acute infection syndromes (PAIS), such as Long-COVID and ME/CFS.
Julie for M.E./LC treatment 😷 @dualiejulie.bsky.social In LongCOVID/M.E. hell looking for a way out! First wave Longhauler.
Trying to get my personality back from the disease.
Very cute dog.
Dianna Cowern @thephysicsgirl.bsky.social Lame puns and #longcovid. Maybe some science here and there.
Jonas @jonaskunst.com 
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
ME/CFS Research Foundation @mecfsresearch.bsky.social Für mehr ME/CFS Forschung!
We promote & finance #MECFS research!
ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Linkübersicht: https://t.ly/Tt3W8
SARS‑CoV‑2 (COVID-19) @covid19disease.bsky.social Coronavirus and other health-related updates. Regular updates on Outbreaks, Pathogens For more updates follow us.
https://linktr.ee/covid19_disease
Atanas G. Atanasov @atanas-g-atanasov.bsky.social Lead Editor: #CRBIOTECH & #ExplorDHT | Chair of Pharmacology at DPU | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Author of #HealthHacksThatWork
🔗Web: https://digitalpatientsafety.com/atanas-g-atanasov/
@erinmg.bsky.social @erinmg.bsky.social Mum to very severe long Covid kid.
Formerly a journo who left media frypan for law world fire.
Here to learn.
#longcovidkids
Physiopedia @physio-pedia.com #1 Rehabilitation website | UK registered charity | Supported by Plus online professional development for rehabilitation https://members.physio-pedia.com
John Haughton MD, MS @doc4care.bsky.social
Physician. Recovered, Long Covid 2022. continues
John@100apples.com
Metformin, TLR4 quieting, microclot busting, NRF2 promoting, HIF1a limiting approach. “CORE” circ, oxygen, rebuild energy
Tx Long Covid & MECFS
Chief Med Officer Renegade Research
Al Haddrell @ukhadds.bsky.social Aerosol scientist/Aerobiologist, Canadian and #Canucks fan living in the UK. #eurovision enthusiast. https://www.youtube.com/@AlHaddrell
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
Jess Badger @jesshoneybadger.bsky.social Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
Brian Shuell @bshuell.bsky.social 
Karim Khan @profkarimkhan.bsky.social 
ME Advocacy Network Australia @meana-au.bsky.social 
Scott Squires @scottsquires.bsky.social Vfx supe
Anti-Covid
Free anti-Covid images
https://drive.google.com/drive/mobile/folders/1NptYhWsy4IsnfQOgWDtHnJ9CScQ5Y0ol?usp=share_link
The Canary @thecanaryuk.bsky.social Disrupting power since 2015
Jenny Meagher @jennmeagher.bsky.social Life stolen by Myalgic Encephalomyelitis.
Waiting to be rescued by science.
Science waiting to be funded by governments #MECFS
UniteToFight @unitetofight.bsky.social LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
David Kaufman @kaufmanmd.bsky.social Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup. 
CrunchME @crunchme.bsky.social CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
Rivka Solomon @rivkabluesky.bsky.social • Advocate/Organizer: Immune-Associated and Infection-Associated Chronic Illnesses, ME/CFS, Long COVID, Lyme, disability and women
• Writer: Washington Post, Marie Claire magazine, NPR, Ms. magazine, Newsweek
• Playwright: Dozens of productions
@breathewellphysio.bsky.social @breathewellphysio.bsky.social 
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Daria Oller, PT, DPT, ATC @ontapphysio.bsky.social Physical Therapist • Athletic Trainer • Tap Dancer • Long COVID since March 2020 • 🌈 💖💙💜
Cohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Adrian Esterman @profesterman.bsky.social Professor of Biostatistics & Epidemiology, Adelaide University.
Evidence-based updates on public health & outbreaks.
Also on X/Twitter: @profesterman
Peter White @mediumwhite.bsky.social Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
@stephanehogan.bsky.social @stephanehogan.bsky.social 
Esther @elhopkins.bsky.social Composer
Clean Air Advocate
#Covidisairborne #FBCV
Vote Green Party 💚
#Feminist
LongCovidPharmD @longcovidpharmd.bsky.social Pharmacist interested in Long COVID and ME/CFS research
Pro-mask, pro-clean air!
Substack: https://pharmd.substack.com/
Gem @GemzME.aus.social.ap.brid.gy Twitter: @GemzME
[bridged from https://aus.social/@GemzME on the fediverse by https://fed.brid.gy/ ]
Defend Public Health @defendpublichealth.bsky.social An organization of thousands of public health professionals dedicated to defending evidence-based public health.
https://www.defendpublichealth.org
Hayley Gleeson @hayleygleeson.bsky.social journalist at abc news australia. cat lady. likes words, food, bikes, books.
Miriam E. Tucker @miriametucker.bsky.social Writer/journalist specializing in medicine/health. Living with type 1 diabetes since 1973. 
Pamela PhD @pamelaraasen.bsky.social Psychologist, lifelong activist for women’s issues, peace and social justice, 40 yrs with ME from Incline Village, fight the good fight and make good trouble, here to create the Beloved Community, San Francisco East Bay transplant from MN.
Retraction Watch @retractionwatch.com A project of The Center For Scientific Integrity https://centerforscientificintegrity.org/
Daily newsletter http://eepurl.com/bNRlUn
Database http://retractiondatabase.org
Tips team@retractionwatch.com (better than @ replies)
Hilda Bastian @hildabast.bsky.social Scientist (PhD she/her), writer, cartoonist. 🦘
Tracking NextGen Covid Vaccines at https://vaxtracker.wordpress.com/
Personal newsletter: Living With Evidence https://hildabastian.wordpress.com/
Jo Platt MP @joplatt.bsky.social Labour & Co-operative Member of Parliament for Leigh and Atherton. This includes Golborne, Lowton, Tyldesley and Astley. For constituency queries, email Jo.platt.mp@parliament.uk
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Beth Paint @craftymissb.bsky.social Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs.
Himmat @himmatb.bsky.social Writer + editor on pause due to Long Covid/vaccine. Very severe and fully bedbound. ME/CFS | POTS | hEDS. he/him
OhTWIST @ohtwist.bsky.social Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2026 (tbd) (toes crossed)
https://ohtwist.com
Bazia Zeb @bazzowie.bsky.social Journeying w ME(myalgic encephalomyelitis) & assrtd illnesses frm unknown virus in 2000. 🇺🇸Learning, growing. Diving into stoicism. Here for connection, education, community. Hoping to provide a little light in this world. Covid competent. She/her.
J Peace @jpeacejpeace.bsky.social En-route to CV-19 (Long) recovery.
ThereForME @thereforme.bsky.social Working towards a world where healthcare, wider public services, & society are truly there for people affected by ME.
Registered Charity in England and Wales: 1218590
www.thereforme.uk
Cinnamon Rolling Along @cinnamonrollalong.bsky.social #pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids
#CovidisNotOver #CovidisAirborne 
Oonagh Cousins @oonaghcousins.bsky.social 
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
PLOS @plos.org PLOS is a non-profit organization on a mission to drive open science forward with measurable, meaningful change in research publishing, policy and practice.
Fran H @franhaddock.bsky.social Severe ME | Activism from bed | Small joys
She/her
Rick Morton @squigglyrick.bsky.social I write. Author of Mean Streak and other things. Reporter. I write a decent newsletter: https://rick-morton.ghost.io
Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
👉Safe housing needed 🏡
#Melbourne 🇦🇺
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Dame Sa @damesa.bsky.social Long Covid sufferer since 2020. #FBLC
Will mostly be banging on about #Covid and #LongCovid and criticising governments for their diabolical public health policies. #CleanAir
https://petition.parliament.uk/petitions/700304
Sean Mullen, Ph.D. @drseanmullen.bsky.social Research Director of the #Exercise #Technology & #Cognition Lab | #Movement #Neuroscience | Husband | Dad | #MartialArtist | #FlowArtist | #Tennis Teaching Pro | Advocate for Persons with Long Covid
Alexis Gilbert @alexisme.bsky.social Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
Alisontomyradioooo @arisonsned.bsky.social Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
Naylor007 @naylor007.bsky.social #pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others 
Caroline Elizabeth Christian @carolinechristian.bsky.social Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
Petter Brodin @petterbrodin.bsky.social Pediatrician &
Professor of Pediatric Immunology
Human Systems Immunology
MRC LMS, Imperial College London
& Karolinska Institutet
Hensley Lab @scottehensley.bsky.social dad, viral immunologist, professor
Cat @covidsolidarity.bsky.social "The sad truth is evil is done by people who never make up their minds to be good or evil". Waysider.
The Real McCoy @rippermd41.bsky.social My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Dr. Tilman Grande @tilmangrande.bsky.social Psychotherapie, Psychoanalyse, Psychotherapieforschung, ME/CFS
Johan Van Weyenbergh @johanvawe.bsky.social Immunologist curious about viruses, cancer, evolution and all things human
Likes all #systems thinking and still working out all the #omics 🤓
#immunosky #medsky #idsky
Jon Douglas @atranscendedman.bsky.social Transparent to the transcendent.
Building TrialPilot - https://www.trialpilot.app/
https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/
Jessica Taylor-Bearman @jayletay.bsky.social Author of A Girl Behind Dark Glasses, A Girl in One Room and A Girl Beyond Closed Doors. Casual artist and public speaker too
ejustin46 @ejustin46.bsky.social 
Khullain Paints (Ash) @khullainpaints.bsky.social Former commission miniature painter. POTS & ME/CFS sufferer. Disabled. Fuelled by tea. On a hiatus due to chronic illness.