Andrea Is Sick of Long Covid @andreastudiescovid.bsky.social Devout KN95 wearer.
MS.Ed., LPC, MA Sociology/Criminology
Trained, published researcher.
ADHD, C-PTSD, Long COVID since 1/2020.
Pro-LGBTQIA+, Anti-racist.
Listens to Genesis on an endless loop.
(Previously Ruth Langmore's Salty Attitude on Twitter.)
Exhausted in QC 🇨🇦 @ninjazz636.bsky.social #LongCovid first-waver. Cursed by the universe. Gardens. Cheese. Cats. Science. Climate. Pardon my French!
🚫 No DMs. #Democracy 🇺🇦 🇬🇱
June @july-august-sept.bsky.social she/they 🏳️⚧️
Long Covid, housebound, likely ME/CFS 🫠😷
Rarely posts, but might post my art on here eventually
Jen @snarkmaiden.bsky.social FUCKING TAX THE RICH ALREADY
Anti-Capitalist | Anti-Fascist | Anti-SARS-CoV-2
🇵🇸 Free Palestine 🇵🇸
Chronic illness & disability-haver
[born at 342 ppm]
Sandy Fukiu @sandyfukiu.bsky.social She/her. Elder GenX. Typo queer. Flaming liberal. KHive always. Proud supporter of the Black & Jewish alliance. Big fan of algae. Disabled by Covid. Please be an organ donor, wear a mask, and VOTE FOR DEMOCRATS.
There will be swearing and #Dateline here.
@anitagc.bsky.social @anitagc.bsky.social Interested in science, AI, language, books but primarily on Long Covid issues.
CarolG @cg66.bsky.social Long COVID warrior, fighting for answers, help, awareness, fair treatment, understanding and respect! #COVID #Long COVID #mask-up #COVID is airborne #clean air #follow the science #not recovered #advocating#LongCOVIDCanadaCollaborative(LC3)
Carey @29carey29.bsky.social Adjusting to chronic illness caused by a virus being ignored by society. Wanting to connect with others to learn and find community.
#LC #POTS #Keepmasksinhealthcare #AirborneAware #Covidisn’tover
I Am Anti-COVID @iamanticovid.bsky.social I was born at 372 PPM atmospheric CO2 in July of 2003, thwarting my parents' plans to attend SARS Fest. They, and I, have hated SARS and its relatives ever since. Join us in telling all of Bluesky that #IAmAntiCovid!
@med2ariana.bsky.social @med2ariana.bsky.social NYU med student. NYC. Krebs cycle and rent are equally hard.
I write about invisible illness. @elephantstalk.bsky.social Harvard trained narrative storyteller. Formerly @Forbes. Author, The Elephant in the Playroom. Every patient has a story a doctor never hears. Tell yours at spikethegame.net #peersupport
DaytonCharityChicken🐔💜 @charitychicken.bsky.social 🐓 I used to cross Ohio roads for charitable health causes. Disaster/safety support. U.S. NWS Trained Weather Spotter. Same name on 🐘(as part of zeroes dot ca) & old Twitter. #CovidIsntOver #CovidIsAirborne 😷N95+
Long COVID Signal @longcovidsignal.bsky.social Tracking the latest Long COVID research so you don't have to.
Randi Weingarten 🖇️📚✊🇺🇸 @rweingarten.bsky.social AFT President. Teacher. Unionist. Fighting for a better life for children, families & communities through educ & eco opportunity, fairness & freedom & democracy Wife of Sharon Kleinbaum.- M Jason Cohen, MD @memorydoc.bsky.social Neurologist, dementia specialist @ Montefiore-Einstein, New Yorker, dad. Puns welcome. Brain damage not welcome. All opinions my own and are not medical advice. He/him.
The Vertlartnic @thev.bsky.social Democracy Drowns In Dankness
Jenn Jackson, MPH, RDN, LD (she/they) @lovejennik.bsky.social Fat liberationist, COVID realist😷, queer AF 🏳️🌈, trauma-responsive eating disorder dietitian (she/they) - lived experience=disability, T2DM, perimenopause + neurodivergence 🎙️ podcast: https://bsky.app/profile/embodimentrestofus.bsky.social
Disability Communities Defending Democracy @dcddemocracy.bsky.social Disability organizers founded DCDD in 2025. We empower disability communities to defend inclusive democracy and our communities from anti-democracy groups, movements, and narratives. We are based in the Pacific Northwest. dcddemocracy.org
Chise @sailorrooscout.bsky.social Senior Scientist | Vaccine Research & Development | NIH | NIAID | VRC | 🧬🧫🦠🔬💉🥼🥽 | 🏳️🌈 | @coralchimera.bsky.social 💍 | @phoenixnest.bsky.social & @multicolorbark.com & @likeapalette.com 🧵🪡
Aparna Nair @disabilitystor1.bsky.social Historian, occasional anthropologist, working on disability, race and Empire; histories of public health. Eternal immigrant, writer, teacher. Indifferent cook. There will be many dogs on this feed. Luddite, yes, in the best way.
Lives with epilepsy.
Adina M. Yoffie @adinayoffie.bsky.social Academic editor, History PhD, Jewish Studies expert; adinayoffie.com.
Clean Air LA @cleanairla.bsky.social https://linktr.ee/cleanairla
Mutual aid org providing free masks and filters to people affected by LA fires + educating how to mitigate toxic air and viruses 😷
Public Health Action Network @publichealthaction.bsky.social Our mission is reducing airborne disease transmission with technology that protects people, advocacy that informs people, and community that supports people.
publichealthactionnetwork.org
Clean Air Club @cleanairclub.bsky.social Providing free air purifiers to Chicago artists, organizers, and touring musicians.
linktr.ee/cleanairclub
Air Support Project @airsupportproject.bsky.social Air Support Project is a 501(c)(3) nonprofit organization aimed at producing low-cost, high-performance air purifiers so that as many people as possible have access to Clean Air.
https://linktr.ee/AIRSUPPORTPROJECT
Mayor Zohran Kwame Mamdani @mayor.nyc.gov Fighting every day to deliver a city that working New Yorkers can actually afford. Mayor of New York City.
International Long Covid Awareness @lcawarenessint.bsky.social *Raising awareness about Long Covid with the Long Covid community
International Long Covid Awareness Day=March 15th
International Long Covid Awareness Month=March
#LongCovid #LongCovidKids #LongCovidAwarenessDay
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Puff the Magic Hater @mskellymhayes.bsky.social Menominee | Organizer | Co-author of Let This Radicalize You | Hosts Movement Memos podcast | Newsletter: organizingmythoughts.org | More: http://linktr.ee/KellyHayes
Your Local Epidemiologist @ylepidemiologist.bsky.social 👩🏻🔬 Simplifying public health with data-driven insights
💡 Helping you make informed health decisions
🎓 MPH, PhD
👇🏻 Get weekly science-backed updates
https://yourlocalepidemiologist.substack.com/
niqaeli torres, child of disaster @niq.aeli.net herein you will find: a plexiglass 4th wall, whining, cats, fannishness, occasional intersectional social commentary. she/they. blocks for bad vibes and fuckshittery. 0.00000015% of a Hugo Award Winner.
Jon Cohen @cohenjon.bsky.social Staff writer at Science, specializing in infectious diseases and immunology. Vaccine history geek. Hate outbreaks, love covering them. Serious surf addiction, occasional contributor to the incomparable Surfer's Journal.
Shelley Jules @shelleyjules.bsky.social MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Karla Monterroso @karlaliliana.bsky.social Part chaplain, part cross-pollinator, part coach, part builder. Multiracial multicultural institution dreamer. Brava pero vulnerable.
www.bravaleaders.com
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Dan Wyke @danwyke.bsky.social Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Lisa McCorkell @lisamccorkell.bsky.social formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
Brianne Benness @bennessb.bsky.social currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
Julia Métraux @juliametraux.bsky.social Disability Reporter @ Mother Jones • jmetraux@motherjones.com • She/her • Berkeley Journalism alum • Signal: @juliametraux.49
Author page: https://www.motherjones.com/author/julia-metraux/
Free monthly newsletter: https://bit.ly/4tUXg9r
Richelle Sepulveda @richellesepulveda.bsky.social Long Covid, MECFS, ADHD, etc.
Patient-led research is my jam.
A bit obsessed with GIP.
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
S💿phie CD @sophie-cd.bsky.social Australian, Cypriot & Greek anti-disease designer existing in Berlin. Been to hell & back thanks to the pandemic. check @sophsoph.psd & @berlin_buyers_club on the gram 🤓
Whitney is Wicked @itswhitneywitch.bsky.social Disability Justice
Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more
Ambulatory wheelchair user
Cozy gamer, lazy gardener, hopeful baker
Wendy Kloiber @wendykloiber.bsky.social So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her. Ashland, WI —> MSP.
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Long COVID Justice @longcovidjustice.org We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
Brian Vastag @brianvastag.sciencemastodon.com.ap.brid.gy Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […]
🌉 bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/
Angela MV (she.he.they) @angelamswinca.bsky.social 🦠😷♿️#LongCovid disabled | 📢 fmr prez Body Politic | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice
alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
Monica Verduzco-Gutierrez @mvgutierrezmd.bsky.social Professor & Chair of Rehab Med in SATX | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
Isabel Ramirez-Burnett @isabelrb.bsky.social CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
Karen Lubell @karenlubell.bsky.social Caregiver. #mespine #cci #eds #mecfs
elle carnitine 🪳 @ellecarnitine.bsky.social immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
Debra Guckenheimer, PhD @debraguckenheimer.com Writer, activist, artist, teacher, sociologist, 🥄 , neurodivergent, disabled, queer, single mom.
🏳️🌈 Pronouns: she/they
debraguckenheimer.com
#livingwithableism #resist
DanielleMors @daniellemors.bsky.social Audiobook Narrator. Writer. Singing songs and smirking. She/her. hEDS, POTS, ME/CFS
Caroline Elizabeth Christian @carolinechristian.bsky.social Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
Elizabeth Milo @akaemilo.bsky.social Derailed by #MCAS #hEDS #MEcfs #Dysautonomia #GravesDisease
Animals deserve better.
Missing Ireland.
Writer at ElizabethMilo.com
#MaskUp
Megan Hooker @meg01.bsky.social Lover of the smell of rain in the desert, free flowing rivers, a good monsoon storm and veggie gardens. Perpetual student of Feldenkrais and Organic Intelligence. Former river advocate on a life detour from ME/CFS. 
Yr buskined mistress & yr warrior love @rhymeswithvery.bsky.social ACT I: Books, bookstores, publishing, the Bay Area, my dog, trees, rocks, crows, large bodies of water. ACT II: #FcktheNIH, post-vaccine syndrome, #ME, other new health disasters, good people, disability justice. ACT III: 
steffi @mecfshawaii.bsky.social Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Melissa Gira Grant @melissagiragrant.com staff writer, @newrepublic.com // author, A WOMAN IS AGAINST THE LAW (2KTK, @littlebrown.bsky.social) + PLAYING THE WHORE (Verso)
// melissagiragrant.com
» melissa@melissagira.com
» tips (encrypted): melissagira.01 on Signal
@nyguild.bsky.social member
Michael Stingl @neurostingl.bsky.social Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Merve Tepe, PhD @mervetepephd.bsky.social PhD MICROBIOLOGIST
AMR, Biofilms, Phage Therapy, Drug Design and some other similar topics 🤫🔜
@remissionbiome.bsky.social team
@renegaderesearch.bsky.social volunteer
DEFEND SCIENCE, RESIST IGNORANCE 🚫
#SonKale06
Ankara
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Michal Caspi Tal, PhD @immunofever.bsky.social Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford
https://talresearchgroup.mit.edu/
Sparrow / Liz @untonuggan.myatproto.social angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. Disabled queer. white. emperor of typos. brain fog zone ⚠️. they/them
🎶 iii'm still masking 🎶
working on porting more of my body science infodumps and such to:
liminalnest.wordpress.com
#NEISvoid
Fi Lowenstein @filowenstein.bsky.social writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more...
https://www.fionalowenstein.com/
The Long COVID Survival Guide:
https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/
they/them 
Wes Ely, MD, MPH @weselymd.bsky.social Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Bridget Copley PhD @moppety.bsky.social Parisienne Buffalonian linguist spoonie mom. http://bcopley.com "The line separating good and evil passes...right through every human heart." -Solzhenitsyn
Jonas R. Kunst @kunstjonas.bsky.social Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo
Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in
Father. Views are my own.
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Olenka Sayko @osayko.bsky.social Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
Ben H @benhmecfs.bsky.social ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Daniel Lewis @daniellewis.bsky.social My #LongCovid is mainly #PEM + #POTS + #MCAS
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Vicky van der Togt @vickyvdtogt.bsky.social Facilitator | Researcher | Advocate
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Dysautonomia International @dysautonomia.bsky.social We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
Cate @midcatecrisis.bsky.social I have had myalgic encephalomyelitis (ME) since 2020 and spend the majority of my time in bed, of necessity. Mostly homebound. I used to be a climate activist, but spend any available energy parenting now. FUNCAP 2.5
Toronto, Canada
Autigender She/they 😷
Emmi Skyten @emmiskyten.bsky.social Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
TwoShaws @twoshaws.bsky.social #MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
melinda_is_done 💦 @melindaiscomplex.bsky.social My body has given up but I haven't...
Bed-tethered disabled Advocate on hiatus (but RESISTing) due to severe ME & LC & comorbids. Co-founder #MEAction Maryland.
Orioles/Ravens/Caps fan. She/her
🩷💜💙
Long Covid Families @longcovidfam.bsky.social We are families working inside research, public health, and policy. Turning lived experience into system change for children. U.S. based.
Fen van Rhijn, MD @fvrhijn.bsky.social MD | rheumatology resident
#ME due to #LongCovid
Nonbinary 🌈🌈🌈🌈 | views are mine. 
Workwell Foundation @workwellfoundation.bsky.social #Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Josh @properchels34.bsky.social Long Covid, ME/CFS, POTS…. For now 
Guus @guusontheinternet.bsky.social Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
Liz Worthey @lizworthey.bsky.social #AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected
sites.uab.edu/cgds/ she/her
ME/CFS San Diego @mecfssd.bsky.social ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
Shelley @shellchat.bsky.social Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.