Helen Manson @helenmanson.bsky.social
Caterina Casari @caterinacasari.bsky.social Researcher at @HITh lab InsermU1176 ❤️science, sharing #VWF & #VWD Previously @UniFerrara @UNC
Iliana Chatzifragkou - Physiotherapist @ilianaphysio.bsky.social Experienced clinical physiotherapist with working experience in the UK, Malta and Greece in fields such as disability, higher education and sports medicine.
Rare Disease Clinical Trial Network @rarediseasectn.bsky.social HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Fiona Robinson, PhD @fionarobinsonphd.bsky.social Consultant, Medical Writing and Editing
ETK: Empowerment Through Knowledge
Areas of specialisation: inheritable bleeding disorders, education and research that centres lived experience experts
Based in Montréal, Québec, Canada
International Society on Thrombosis and Haemostasis @isth.org The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Erasmus MC Hemostasis and Thrombosis @clotterdam.bsky.social Official channel of the Hemostasis and Thrombosis scientists at the departments of Hematology and Pediatric Hematology of Erasmus MC, Rotterdam, The Netherlands.
Dr David Canty @drdavidcanty.bsky.social Academic Cardiac and Mobile Anaesthetist | University of Melbourne and Medical School | Medical Director of Sleep Dentistry Services | Day Care Anaesthesia Special Interest Committee
🌐 www.sleepdentistryservices.com.au
📞 0429 058 878
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Junior Einsteins Science Club® @junioreinsteins.bsky.social Award-winning Science events for kids. Founded Ireland☘️ Scientist, Mum, speaker United Nations 🇺🇳 Fun, messy, screen-free hands-on, STEM fun Ireland 🇮🇪 UK 🇬🇧 Canada 🇨🇦 Saudi Arabia 🇸🇦 Luxembourg 🇱🇺 Ukraine 🇺🇦 International Schools partnerships. Franchise.
Anticoagulation Forum @anticoagforum.bsky.social Join the leading organization of anticoagulation management specialists dedicated to improving the quality of patient care by educating healthcare professionals and advocating for clinical best practices. More details at https://linktr.ee/anticoagforum
Haemophilia Journal @haemophilia.bsky.social The official journal of the World Federation of Hemophilia, EAHAD & HTRST | EiC: Cédric Hermans
European Medicines Agency @ema.europa.eu EU regulatory authority working for public and animal health.
We ensure that all medicines available on the EU market are high quality, safe and effective. Based in Amsterdam.
https://www.ema.europa.eu/
EURORDIS-Rare Diseases Europe @eurordis.bsky.social An alliance of non-profit organisations working across borders and diseases to improve the lives of all people living with rare diseases.
European Commission @ec.europa.eu News and information from the European Commission. Social media and data protection policy: http://europa.eu/!MnfFmT
POLITICO Europe @politico.eu Nobody knows politics and policy like we do.
European Economic and Social Committee @eesc.bsky.social We bring civil society together in Europe, employers, workers, NGOs. Every voice counts!
#EUCivilSociety
EP Press Service @press.europarl.europa.eu The Press Service of the European Parliament
EUCouncilPress @press.consilium.europa.eu Latest news from the European Council & the Council of the EU: 27 EU governments working together.
WHO @who.int The World Health Organization (WHO) is the United Nations’ health agency, championing Health For All.
Always check the latest posts for updated advice/information.
We reserve the right to remove misinformation, spam, and hate speech under our posts.
European Parliament @europarl.europa.eu Your voice in the EU 🇪🇺
Updates, news, and insights from the European Parliament - the heart of European democracy.
Data Protection Notice: https://link.europa.eu/nc3WbV
EU Council @consilium.europa.eu 27 EU governments making decisions together in the European Council & Council of the EU.
Learn, participate, share. Latest news @press.consilium.europa.eu
#eucouncil #euco
European Centre for Disease Prevention and Control @ecdc.europa.eu We’re the European Centre for Disease Prevention and Control. We aim to strengthen EU’s defences vs infectious diseases. Here to promote public health.
Albert Vilella, PhD. @albertvilella.bsky.social Bioinformatics Scientist / Next Generation Sequencing, Single Cell and Spatial Biology, Next Generation Proteomics, Liquid Biopsy, SynBio, AI/ML in biotech // http://albertvilella.substack.com
Kate Khair @katekhair.bsky.social Director of Research at Haemnet. Once a nurse always a nurse. Elephant 🐘🐘🐘 lover
European Haemophilia Consortium @ehc-news.bsky.social European Haemophilia Consortium (EHC) aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
https://www.ehc.eu/
NEJM.org @nejm.org Welcome to the official Bluesky account for the New England Journal of Medicine. Follow for high-quality, peer-reviewed research and clinical content from the world’s leading medical journal, online at NEJM.org.
Follow @ai.nejm.org for medical AI content.
Ty_gamingg @tygamingg.bsky.social Aspiring content creator with Hemophilia
joshed @joshed.mastodon.world.ap.brid.gy #Dad, #Techie, #Trekkie, #Lefty, #Geek, #Legalize,
#Cannabis, #Hemophilia, #Atheist, #Aquarius, #BlueCrew
[bridged from https://mastodon.world/@joshed on the fediverse by https://fed.brid.gy/ ]
Ronet Jankovski @roneteus.bsky.social Don't worry, I won't get far on foot
🇪🇪 Cinephile 🎬 Hemophilia A a̶d̶v̶o̶c̶a̶t̶e̶ cautionary tale 💉 #MFFL 🏀
Friends with crows and squirrels.
Jenny Goudemand @jenny-riejsel.bsky.social Emeritus Professor in Haematology in the Lille University ( north of France). Main interests : bleeding disorders …. and dogs !!!!!
Wilma McClure @rockyski03.bsky.social Retired RN pediatric and adult bleeding Disorders at U of A Hospital. Grandma of 5. Knits ,sews ,bakes ,plays piano ,sings in choir
Adam R Jones @adamrobertjones.bsky.social Medical communicator helping to make science easier for people to understand.
Primarily focused in physiology, haemophilia & related bleeding disorders, clinical trials, & patient advocacy for bleeding disorders, cardiomyopathy, & gene therapy.
Joan D Beckman @jdbeckman.bsky.social Lois & Richard King Assistant Professor of Medicine at University of Minnesota- hematology physician scientist, mother, cat lady, & ND native. Excited for Gopher and Bison sports, sickle cell and MPN vascular biology, and rare bleeding disorders.
Haemnet @haemnet.bsky.social Haemnet works at the heart of the bleeding disorders community.
We're a specialist consultancy, engaged in research, communications, community education and support.
#HemeSky #BloodSky
Dan Farthing @danfarthing.bsky.social Husband, Father, Friend, Liberal, European, Edinburgher.
Head of Suicide Prevention at SAMH.
Other interests include, Rugby, Politics, Rare Bleeding Disorders, Cycling, breaking down borders.
Derek J. Amaya @derekamaya.bsky.social Former journalist | Marketing and Communications for the Louisiana Center for Bleeding and Clotting Disorders | #LATech | #Tulane | #Saints | #Pelicans | #Arsenal | #NOLASky (he/him/his)
Ming Y Lim, MBBChir @heme-fan.bsky.social Classical hematologist with a focus on individuals with bleeding & clotting disorders. Dabbling in health services research.
Bethany Samuelson Bannow, MD, MCR (she/her) @btsamuelsonmd.bsky.social Hematologist researcher and advocate, wife, mom of 2 girls for whom I want to change the world. Passionate about equal care and representation in research opportunities for folks with uteruses and all folks with bleeding disorders.
Journal of Thrombosis and Haemostasis @jthjournal.bsky.social The Journal of Thrombosis and Haemostasis (JTH) is the official journal of the ISTH. The mission of JTH is to advance science related to the important medical problems of thrombosis, bleeding disorders and vascular biology. #MedSky #HemeSky #CardioSky
Emma I @egrrrl.bsky.social Health research statistical analyst in Canada. Hemophilia & rare blood disorders, Candian Blood Disorders Registry.
@seamancraig.bsky.social @seamancraig.bsky.social Hematologist, University of Pitt, Hemophilia Center of Western PA, Hemostasis/Thrombosis, Sports fanatic, and most importantly, Dad
@dragonlady42.bsky.social @dragonlady42.bsky.social Mom, gamer, history nerd, music lover, Tourette’s and hemophilia advocate. LFG!
EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social A multi-disciplinary association of healthcare professionals who provide care for individuals with haemophilia and other bleeding disorders.
🌐 www.eahad.org
📚 https://academy.eahad.org/eahad
honka @distnky.bsky.social creator • nsfw/zoos dni • t1d and hemophilia haver • they/them 🇧🇷🏳️⚧️🏳️🌈
youtube.com/@distnky #NYR #NYG
🇺🇦🇯🇵sithmaster @jedimaster1970.bsky.social I am a hemophiliac.
#hemophilia #HEMLIBRA #Foscenvivint #OgikuboHospital #Craftbeer #Cigar #Yacht #Apple教 #Movie #サバゲー #Cat #猫 #血友病A ▶️OP-724試験参加中 ★Слава Україні! Героям слава! 🇺🇦🇯🇵🇷🇴 🍦🧊🍨
Andy Blackledge @hockeyholic.bsky.social Hockey, hemophilia, healthcare, hyzer flips, harina, h2o photography, heat avoidance, human condition.
AZ 480
Brian T. Reiss, PhD @dr-reiss-science.bsky.social Postdoc at The Children's Hospital of Philadelphia studying AAV gene therapy in Hemophilia A and an Adjunct Prof at Seton Hall University. Industry experience in drug R&D. PhD in Molec Bio from SHU studying interaction of Poxviruses and dsDNA signaling.
Ryan Crowe @floydadacrowe.bsky.social Economic cheerleader for Floydada, Texas. Itinerant journalist, hemophilia advocate, rabid Baylor Bear.
trusted diet coke valet @litano.bsky.social
Blair Gage @blairkgage.bsky.social Scientist Ottawa Hospital Research Institute and Asst. Prof. at uOttawa Dept of CMM | #CellTherapist fighting #LiverDisease, #VascularDisease and #Hemophilia with #StemCells and #LSECs | he/him
https://www.ohri.ca/profile/bgage
@hemophilia.bsky.social @hemophilia.bsky.social
liam 💜♈ @hemophiliaur.bsky.social EN/ID
avalight
i draw and edit sometimes
Mike Elhardt @myendlessquest.bsky.social Hemophilia HIV/AIDS Advocate, Islanders Hockey, Yankees, Jets, Action Figure Collector, Comic Books, Sci-Fi, GI Joe, Star Wars, WWE, The Who, Classic Rock, LQBTQI+ Ally, Progressive Independent 🖖🩸💙🇺🇦🇺🇸✝️
Rene-gade 💪🏾😏 @bruisedefeated.bsky.social Severe #Hemophilia A VIII | #Mclaren #F1 | PM/CRE - FL
Lynn Malec, MD, MSc @malecly.bsky.social Adult and pediatric hematologist with hemophilia, rare coag, and
womens+ health focus. Clinical/translational researcher. Girl mom. Sports enthusiast. Leader. Dreamer.
HemoGirlsRock @hemogirlsrock.bsky.social Hemophilia Educator, Advocate, Research Supporter (Program Coordinator), Patient. All opinions are my own.🌈🏳️🌈
@hemophiliac.bsky.social @hemophiliac.bsky.social Bleeder, arranger, composer, producer, and judge at ocremix.org
ProfMakris @profmakris.bsky.social Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Bluesky @bsky.app official Bluesky account (check username👆)
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