Irene RestBreatheBe (they/them) @sokerihiirijuoru.bsky.social Trans Rights Are Human Rights. Black Lives Matter. Post-lineage yoga
Kari Cotton 📎 @bibliotekaric.bsky.social Bibliotekar av legning, men ikke lenger yrke. Helsepensjonist. Hagegal og katteelsker. Hun/henne. Mer enn litt sta - eller 'utholdende'. ME-syk siden 2016
Anne Kielland, she/her @annekiel.bsky.social 
Astrid Meyer-Knutsen @astridmeyerknutsen.bsky.social Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
Nina Steinkopf @ninasteinkopf.bsky.social Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com
Anti-genocide.
#MillionsMissing Aus @mmissingaus.bsky.social There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
George Monbiot @georgemonbiot.bsky.social Ungainly on land
Lars @larsp.bsky.social Enhver parodi har mye av virkeligheten i seg.
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Jon Douglas @atranscendedman.bsky.social Transparent to the transcendent.
Building TrialPilot - https://www.trialpilot.app/
https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/
Anna Fryxelius @annafryxelius.bsky.social Leder i MDGs Funkisnettverk.
Dynamisk funksjonshemmet: Går når jeg kan - ruller ellers ♿
Jobb: Fagsjef i helsefrivilligheten
🏳️🌈🏳️⚧️ She/her
Jo Panzer Ellegård @joellegard.bsky.social Army veteran. Norwegian armed forces.
Victor in the Thirty Years' War
VisitOSLO @visitoslo.bsky.social Everything about Oslo
Mímir Kristjánsson @mimirk.bsky.social Forfatter og stortingsrepresentant for Rødt (Rogaland). Siste bok: «Pabbi» (2024).
@visitnorway.bsky.social @visitnorway.bsky.social 
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
Resia Pretorius @resiapretorius.bsky.social Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Anja Lindtner @anjalindtner.bsky.social I followback and think you should too. I like two way streets and balance. It has become personal, i comment from that point of view :)
@geochicken.bsky.social @geochicken.bsky.social 
Erik Tornes @erik-tornes.bsky.social Debattredaktør i Aftenposten
Veslemøy Østrem @vesleost.bsky.social Editor-in-Chief at Altinget.no
Board member of World Editors Forum
Engaged in freedom of expression, trust in media, politics and jazz.
Margaret L @margaretlaverick.bsky.social Caring for my daughter diagnosed #MyalgicEncephalomyelitis 25 years ago, who is surviving 24/7 bedbound. Fighting for research #ME/CFS LongCovid #MillionsMissing- F Lena Kjempengren-Vold @foxfoot.bsky.social Stor tilhenger av faktabasert kunnskap og god forskning, etter 30 år som leder av Komparativ Medisin-Radiumhospitalet, OUS. Nå ME-pasient og -student.
Gaia Tempest @gaiatempest.bsky.social Squeezing all fun juice out of every day that I can. Mostly as horizontal as #Achalasia allows without choking 🤣 #pwME over 40 yrs #bronchiectasis #AuDHD #POTs #Fibro
Elizabeth Milo @akaemilo.bsky.social Derailed by #MCAS #hEDS #MEcfs #Dysautonomia #GravesDisease
Animals deserve better.
Missing Ireland.
Writer at ElizabethMilo.com
#MaskUp
Cecilie Asker @cecilieasker.bsky.social Kulturredaktør i Aftenposten og trommeslager i The Launderettes.
Knut Olav Åmås @knutolavamas.bsky.social Direktør i Stiftelsen Fritt Ord, lørdagskommentator i Aftenposten, styreleder i Store norske leksikon og Det norske solistkor.
Executive director, the Fritt Ord Foundation, Oslo, Norway. Columnist at Aftenposten. Opinions/reposts are my own.
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Marita I. Wangberg @maritaiw.bsky.social Kommunikasjonsrådgiver og byråkrat.
Phil Stewart @phildstewart.bsky.social Military & Intelligence Correspondent@Reuters. Reported from 60+ countries including Ukraine, Syria, Afghanistan, Russia, China. US based. phil.stewart@tr.com
Nick @detsnick.bsky.social Filmmaker • Writer • #MECFS • #LongCovid
Irene Tostrup @irene2up.bsky.social Ufrivillig ekspert i sosial isolasjon.
Hundegal. Pusler med hage og strikking.
Uforløst engasjement på mange fronter.
Har sjeldent noe fornuftig å melde.
Trygg alliert 🏳️🌈🏳️⚧️ #pwME
Frida Hovdar @fridahovdar.bsky.social professional flutist
and unprofessional activist
working towards embracing my disagreeable side
unapologetic spoonie🌻
Benedikte M-K @bmkrohn1.bsky.social Snill og grei, litt sta muligens. Siving med ME. Dvs ligger og later meg hele dagen.
Lillestrøm, Norway
Sidsel Fjelltun @sidsel.bsky.social Feminist, psykolog, nordlending. SV💚❤️ Skriver om psykologi, helse, feminisme.
Anne Røijen Størdal @anne75.bsky.social Master i spesialpedagogikk, pårørende til alvorlig ME-syk
TOTO @totototoilet.bsky.social https://www.patreon.com/INAXandTOTO
European ME Research Group @euromeresearch.bsky.social The European ME Research Group (EMERG) is a collaborative network of researchers and clinician-researchers from across Europe, dedicated to advancing research into myalgic encephalomyelitis (ME, sometimes known as ME/CFS).
Trude Schei @tschei.bsky.social ME patient advocate, architect by training
Liz Burlingame @lizmeactga.bsky.social Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Matt Lazell-Fairman @mfairma.bsky.social ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
Jørn Tore Haugen @jornth.bsky.social M. Sc. Electrical Engineering, ME and fan of good science. -Cant we agree on following the path of proper science, not defending favorite hypothesis whatsoever!
Kaja Heilo @kheilo.bsky.social ME-aktivist, jepp - derfor er jeg her. Og for litt interaksjon med den virkelige verden, da. Fra senga. 
Phil P @pprydderch.bsky.social Dad of two | EVs | Born at 332 ppm CO2 | ME, FMS, POTS | @wrexham_AFC ex part-owner⚽️ | M.CIWEM | Flood Defence & Hydrometry 💧 | @PJPrydderch on X | Medium Blogs: https://medium.com/@prydd
HegeGull @hegegull.bsky.social ME engasjert med kronisk høy puls. Jobber optimist med helsa -ingenting er konstant og alt kan bare bli bedre
Norges ME-forening @meforeningen.bsky.social Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://www.facebook.com/MEforeningen/- O Ottar Gadeholt @ottargadeholt.bsky.social Husband, father, doctor, scientist, author, essayist, critic (translator, all-round dilettante); no smartphone, but at least I've got a laptop.
ME-foreldrene @me-foreldrene.bsky.social ME-foreldrene / The M.E. Parents of Norway
Vi representerer barn og unge med myalgisk encefalomyelitt (ME) og deres pårørende. Vi har et oppdatert, biomedisinsk syn på ME.
Alle som ønsker å støtte arbeidet vårt kan bli medlemmer.
www.MEforeldrene.no
@aswathdamodaran.bsky.social @aswathdamodaran.bsky.social 
Frøydis Lilledalen @froydislilledalen.bsky.social Psykologspesialist, forfatter, tangodanser, aktiv i debatten rundt kvinnehelse og ME/long-covid
Caroline Struthers @healthycontrol.bsky.social Increasingly grumpy `healthy control’ research participant.
Working to develop a way to involve patients and the public in designing health research (e.g. trials) from the earliest stage.
Increase relevance, reduce bias, (and my grumpiness)
Putrino Lab @putrinolab.bsky.social 
Oslersweb @0slersweb.bsky.social Hillary Johnson, author of The Why: The Historic ME/CFS call to Arms.
92 pp. Audio, Ebook + paperback at Amazon.
Untold morbidity, unspeakable suffering, a pandemic ignored. A case history of what went wrong.
"Indispensable." "Jaw-dropping."
Au Contraire @jcontraire.bsky.social Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
H2oBio @h2obio.bsky.social Passionate swimmer housebound due to LongCovid.
Interested in biology, biochemistry, systems theory, exercise science and LongCovid/MECFS
Øistein Jansen @oijans.bsky.social Noe sosialt må det da være
and the US has become a real clown show this year.
Donations and losses are more expensive than tax, but maybe not Trump tariffs.
@skepticjonguy.bsky.social @skepticjonguy.bsky.social Author ✍️ | Skeptic 🤨 | #scicomm 🧬🔬| #criticalthinking 🧐 | Atheist ⚛️ | Life Enthusiast 🙌 | Love to Read 📚
Contrarianism ≠ Skepticism
@hvibeke.bsky.social @hvibeke.bsky.social 
Hanne Ramstad @hangreram.bsky.social ME-aktivist.
(Nå også LC-aktivist. Same same).
Nei, jeg gir meg ikke før vi er i mål.
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Erik Johnson @erikjohnson.bsky.social Curious about psychology, behavioral change, and decision making. Music, film, and cocktail enthusiast. Proud Chicagoan and Spartan.
Miriam E. Tucker @miriametucker.bsky.social Writer/journalist specializing in medicine/health. Living with type 1 diabetes since 1973. 
Til salgs @jespermathisen.bsky.social Send email til forvarsel_hjelpere0c@icloud.com
Diewertje @diewertje.bsky.social 
Marius Helgå @mariushelgaa.janitsjar.net Profesjonell slask. Fotball, basstrombone, mat, politikk.
⚽️: Stålkameratene, Tromsø, Elfsborg, Groundhopping, Breddefotball.
Basstrombone: Universitetets Symfoniorkester, Oslo Postorkester, Mo Hornmusikk
Kasper Wikestad @kasperwikestad.bsky.social Kommentator 
Davy Wathne @davyw.bsky.social Cand. mag. med historie, norsk og latin mellomfag.
Brann, Cola og Rolling Stones.
Pamela PhD @pamelaraasen.bsky.social Psychologist, lifelong activist for women’s issues, peace and social justice, 40 yrs with ME from Incline Village, fight the good fight and make good trouble, here to create the Beloved Community, San Francisco East Bay transplant from MN.
Paul Gads @paulgads.bsky.social 
Alvin Van @shinyeevee.bsky.social Mr. ShinyEevee ° Vanderdeer
1994 ° 🇨🇦 🏳️⚧️ 🏳️🌈 ° He/Him
https://vanderdeer.carrd.co/
Boy best friend: @kcckirby.cardgames.motorcycles
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
LongWaiter @longwaitme.bsky.social #MyalgicEncephalomyelitis and #POTS since 2009. 
@lcmebillboards.bsky.social @lcmebillboards.bsky.social Raising awareness for Long Covid and ME/CFS.
Website - www.notrecovereduk.org
Twitter - https://x.com/lcmebillboards?s=21
L @banalplay.bsky.social Keeping it tight
Dame Sa @damesa.bsky.social Long Covid sufferer since 2020. #FBLC
Will mostly be banging on about #Covid and #LongCovid and criticising governments for their diabolical public health policies. #CleanAir
https://petition.parliament.uk/petitions/700304
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
meya @meya.bsky.social it’s the little one, and I’m not bow wow.
Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers
Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.
https://mecfsdiagnosticbiomarkers.substack.com/
Bettina Grande @bettinagrande.bsky.social Psychological psychotherapist | Heidelberg & Charité Berlin
Advocacy against psychologization of #MECFS, #PEM & #PENE
Research & psychotherapy
adapted to ME/CFS
Psychotherapie-Netzwerk ME/CFS
https://doi.org/10.3390/medicina59040719
Vlad Vexler @vladvexler.bsky.social Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003.
youtube.com/vladvexler (main channel)
youtube.com/vladvexlerchat (chat channel)
youtube.com/@vladvexlerphilosophy
@stinelyngseth.bsky.social @stinelyngseth.bsky.social - H James Foulger @harrysgame.bsky.social Engineer, ME/CFS
Vibeke Vind @vibekevind.bsky.social Biokemiker, der ved en masse om sygdommen Myalgisk Encephalomyelitis (ME) og Long-covid.
Arbejder med enzymatiske assays i Novonesis.
Follow the Money EU @ftm.eu European independent investigative newsroom.
Become a member: www.ftm.eu
tern @1goodtern.bsky.social truth, science, hope
Jan Ottesen 🇺🇦🇳🇴 @janott.bsky.social 
Ed Yong is offline @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Aphra Behn @aphrabehn.bsky.social Former academic. Politics, health care, feminism, sports, history, literature. Finally made it over from The Other Place.
@probablyautistic.bsky.social @probablyautistic.bsky.social 
@deetsescondito.bsky.social @deetsescondito.bsky.social 
Hippymum @hippymum.bsky.social Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
RuthAmyAllan @ruthamyallan.bsky.social Jesus Christ is the Way, the Truth and the Life and the KJV Bible is His inspired, preserved Word in English. Love true history. Old enough to be able to see that it's being rewritten. Devon is my home and home is where my earthly heart is.
@giftedhands1.bsky.social @giftedhands1.bsky.social 
Cat in the Hat @catinthehat.bsky.social Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”