jessica @luludji.bsky.social #me/cfs #LongCovid #teamwolf
Stacy @stacysp.bsky.social Former healthcare worker #MECFS #FM
Jenn๐ฆAnne๐Miller๐ท @jennannemiller.bsky.social #MECFS #MEPOTS #MEPEM #MillionsMissing #MEWarrior #Disability - live it daily #IACC #PAISs #MillionsMoreMissing #LongCovid
FDR Socially Progressive Democrat #StopProject2025 ๐๐๐๐ ๐๐ฉต๐ฉต๐ค๐ฉท๐ฉท #Equality #AmericaIsAntifa #Resist
๐๐๐๐๐๐๐๐me/it๐๐๐๐๐๐๐๐
Flashes App ๐ฉ๏ธ @flashes.blue A photo viewing client for u from the creator of @skeetsapp.com & @bluescreen.blue
iOS: https://t1p.de/b3o4x
Android: Not available yet
โ FAQS: https://t1p.de/24kj0
๐ Bug Reports: https://t1p.de/phwii
๐ก Feature Requests: https://t1p.de/8tmnc
a lil butt @emerysage.bsky.social they/them
โฟ๏ธ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ๐ฒ๐ฝ/๐ต๐ท
i dunno man iโm just doing my best
Radderss - Vtuber ๐ฝ ๐ฉโ๐ฆฝ | @radderss.bsky.social My brain is often chaos
Disabled creator, Twitch Ambassador, Voice Actor
Contact: radderssgaming@gmail.com
twitch.tv/Radderss
Open to work / collabs
Amanda Hu @amandalhu.bsky.social I do advocacy for public good, communications, problem solving, and sometimes I get people elected. She/her.
๐Treaty 7 Territory (Calgary, Canada)
(Opinions expressed are solely my own and do not reflect the views or opinions of my employer.)
Brain Spike @positivelyominous.bsky.social Art, psychology, tattoos, and human rights enthusiast. ๐จ
Published neuroscientist at Yale, neuropsychiatric disorders, spinal cord injury. ๐ง
Writing โ๏ธ and poetry โจ๏ธ
I love reading all kinds of books ๐ ๐ค
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. ๐ณ๐ฑ in ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
TinfoilHatGirl @tinfoilhatgirl.bsky.social
Patients with Power @ptswithpower.com Patient-scientist fighting for medicine based in SCIENCE; NOT BIASโกCalling out harmful healthcare cultureโกBreaking down difficult doctor behaviourโ๏ธ๐ง
Beth is still team N95 @bethwalloch.bsky.social plague-averse necessitative macgyverist creative with hyper-selective hug capacities
@swimmingducks.bsky.social @swimmingducks.bsky.social
Seren8y @seren8y.bsky.social Retired Social Worker living with chronic illness, doing my best to live a life of kindness. Interests include progressive politics, protecting our planet, greenhouse gardening, meditation & compassionate approaches to health & mental health care.
@katrinakrog.bsky.social @katrinakrog.bsky.social
Sarah O'Connell @sarahoc1.bsky.social #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS โข ME & LC Advocate โข Co-Founder LCAI โข Women's Health; Endometriosis,PMDD โข Sci-fi & movie lover
Saya / DirtKitten ๐ณ๏ธโโง๏ธ๐จ @straykreature.bsky.social ๐Portland, OR ๐ณ๏ธโโง๏ธ they/them/mayhem
๐๐ TATT00 B00KS CL0SED ๐๐
๐คDisabled. Imaginative. Illustrator. Tattoo Artist.
๐คWastelander Nomad aka DiRTKiTTEN
๐๐ฝPatreon | Ko-fi | Shop | Commissions
linktr.ee/straykreature
๐ค 18+ โพ be gay do crime ๐ค NO AI ๐ซ๐ง
โโบโ Alba เฟ iteotwawki @albadocherty.bsky.social Every violation of truth is not only a sort of suicide in the liar, but is a stab at the health of human society. -Ralph Waldo Emerson
Sarah R W @sreithwatso.bsky.social
Jennifer Thorvig @absurdities.bsky.social
MECFS Clinic MN @mecfsclinicmn.bsky.social We are a free clinic staffed by all volunteers to treat ME/CFS and Long COVID.
Deborah @mergyeugnau.bsky.social Genderqueer, bisexual, artist, activist, spoonie zebra, shakula.
pumpkin @pumpkinstars.bsky.social hi im pumpkin. she/her. ๐ง ๐ถ๏ธ. Asexual. Anti-racist. I like gardens and colors. ME/CFS, hEDS, MCAS, POTS, Fibro. bed tethered. i love people and also people scare me. ๐บ๐ธ
jewelwing audio @jewelwingaudio.bsky.social Long Covid since 2020 & vax injured since 2021; use a Flo-Mask n99, HEPA and far-UV-C to make the basics safe, and otherwise feel lucky to be an introvert at a time when it's the safest way for me to live :) Breast cancer survivor since 2019. ๐ค๐ค๐ ๐ณ๏ธโโง๏ธ
Soen @ohsoen.bsky.social Autistic Iconoclastic Polymath: Award-winning Software Developer, Neuroscientist, CAA Qualified Drone Pilot, Go-go, Viking, DJ and Podcaster
#LGBTQIA
Miriam Perkins @itsmiriam.bsky.social Political Commentator, Academic, Disability Advocate, Accountant, Autistic, Business Owner, Gamer ๐ฆ๐บ ๐ฆ ๐ณ๏ธโ๐ ๐ต๐ธ ๐ฒ๐ฝ
Bsc. Acc, Fin, Bus Law
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed researchโcomplex chronic illnesses and Covidโw/some material on disability justice and organizing.
ME โ05, LC โ23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
mash ๐ (they/them) ๐๐ท @maiar.bsky.social UK โข 27 โญ auDHD โข #longcovid โข dysautonomia โข ME/CFS โข PCOS โข fibro โข hEDS โข IBD โข ๐ณ๏ธโโง๏ธ โข abolitionist โข 1312 โข ๐
i make things
madewithsash.etsy.com
https://ko-fi.com/isthisrunning
Mutual Aid saves lives
use alt text!
Free ๐ต๐ธ ๐จ๐ฉ ๐ธ๐ฉ BLM. MDNI๐
Rachel @justrachel75.bsky.social Slightly muzzy, slightly forgetful, somewhat alternative, somewhat political, chronically ill & disabled, and always totally me ... (cis, ace-het, she/her)
Kelly Blew๐ณ๏ธโ๐๐จ๐งถ๐๐ดโโ ๏ธ๐ผ๐ฉโโค๏ธโ๐ฉ๐ชท๐ฃ๐ฝ๐๐ @kblewcrew.bsky.social #Artist
Married Lefty #Liberal #LGBTQIA #DSA
Childless #cat Lady๐ธ KittenFoster #Disabled #pwME #CFS
#POTS #MCAS #SFN
Former Healthcare worker
#Durham Urb/suburb homesteading co-op
#DurhamNC #RESIST #BullCity #Feminist #Bluecrew #SocialDemocrat
Transmasc George Costanza @zeppelliot.bsky.social Heyyyy iโm Elliot :) 29 y/o menace to society
He/they/it transmasc enby type ๐ณ๏ธโโง๏ธ โฟ๏ธ
Ask me about my special interests!
Alt CDC (they/them) @altcdc.altgov.info Public health experts resisting harmful policies, fighting disinformation, and defending public health from within.
Not official CDCโbut close enough for transmission.
Proudly #AltGov
Tips? signal altCDC.99, email altCDCtips@proton.me or DM
Another NYer @anothernyer.bsky.social Iโm just sitting here watching the world go round and round #nevertrumper #goodtrouble #fucktoseintolerant #slavaukraine #fafo #nothingisnormal
Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers
Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.
https://mecfsdiagnosticbiomarkers.substack.com/
๐thee agnes de buffle๐ @vanadiumzest.bsky.social ๐eugenics leads to fascism๐LC/ME/MCAS/lupus/endo๐still with her๐OG khive๐smash the motherfucking white supremacist patriarchy on the right AND the left๐
Make America Kind Again @jlpsea.bsky.social ๐ PNW born and raised. Never Trumper. Lifelong ๐. Tired, but still resisting.
Esther @dungeonminister.bsky.social Minister, chaplain, organizer, artist. Founder @numinousprod.bsky.social, DS9 fan. โฟ๏ธ๐ณ๏ธโโง๏ธ๐ณ๏ธโ๐. #pwME. Anti-Zionist Jew. Free Palestine. zhe/she.
Tom Jackman @frozen.bsky.social Dad, ally, and keeper of digital receipts | #MECFS since 2004 | #LongCovid since 2020 | Archivist by training | ๐จ๐ฆ by choice | @frozen in the old ๐ฆ country | he/him
Olenka Sayko @osayko.bsky.social Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
Linda Lou (say it ain't true) @lindalouwhoblue.bsky.social Don't DM if we just met - that's a block ๐#Resister #EndWhiteSupremacy
๐ซTrumpers/MAGA, #BLM,
#MotherOfCats, #LGBTQ+
Anthony Leonardi @fitterhappieraj.bsky.social
tamsin yeld into the void @68thmonkey.bsky.social Previously an alien, but really a monkey. MECFS since 2017. โฟ๏ธ๐ Science, nature, climate, dogs, politics makes me mad but I just cant help myself. Peace & Love ๐โ๏ธ (definitely not fear). Lucky to live in Bundjalung Country ๐ฆ๐บ (Advocate for Bleats not Skeets)
Michael Askren @yungfetus.bsky.social Former video game industry person disabled by Long COVID. Leftist. I like vinyl, animation, and reading.
Dr Noor Bari @njbbari3.bsky.social MBBS BSc Hons Infectious Diseases ๐ฌ๐ง ๐ฆ๐บ Zero COVID Australia NjbBari3@mastodon.social NjbBari3 on X
AngelikaSu @angelikasu.bsky.social Caretaker of a serverly ME/CFS sick 28 year old daughter post Covid.
Rieve Alavaix @rieve.bsky.social An improbable coalescence of stardust
Disabled, Medically Complex (EDSS 6.0)
A Little Peculiar (they/them) โ
โฅ Cats, Hockey, Video Games, Photography, Embroidery, Crochet
Owner of a 6 year migraine- B bp @baddpenny.bsky.social
@petitefun.bsky.social @petitefun.bsky.social
Place for my pets and things that make me laugh ๐พ๐คญ maybe a fit dump or two.
๐ณ๏ธโโง๏ธ โพ๏ธ AuDHD.
๐They/Them
๐ฎ Jedi Survivor
Hypermobile โฐ
Fibro Warrior
LDN ๐
Psychonaut ๐
Carey @29carey29.bsky.social Adjusting to chronic illness caused by a virus being ignored by society. Wanting to connect with others to learn and find community.
#LC #POTS #Keepmasksinhealthcare #AirborneAware #Covidisnโtover
Brenda MacIntyre, แชแขแญแญแแฒแงแฃ แแขแซแงแค ๐ท @mswcreations.bsky.social Medicine Song Woman. ๐ค๐ทIndigenous Keynote Speaker/Singer, Hand Drummer. Long COVID, CFS/ME & CPTSD. GenX. Trauma-informed virtual circles and mentoring for COVID-conscious women. NO DMs without permission. https://medicinesongwoman.com ๐ทshe/her
Hanna Jo @hannajow.bsky.social Medically retired PT bc decades-long #ME/CFS, #MCAS, #hEDS, #POTS, #IIH, #CPP. Worked w/ ppl like me in a system that refuses to meet our medical needs. ๐ฉบ๐History/GINT B.A. b/f PT. #Alaskan born in #SC. ๐
Happiness is #GamecockWBB๐๐ #WNBA #Unrivaled
โฟ๏ธ๐ฉ๐ผโ๐ฆผโโก
A Darkened Room @adarkenedroom.bsky.social One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Jodie Handley - Embroidery Artist @jodiehandley.bsky.social Chronically ill embroidery artist
Highly Commended - Qld Regional Art Awards 2023 (Textiles)
She/Her
https://beacons.ai/jodiehandleyembroideryartist
Rachel Leigh @3feralcats.bsky.social They/Them ๐จ๐ฆUrban farmer, 2x MSc Human & Medical Genetics, felted wool artist, musician. Disabled, AuDHD, Queer. BLM, Indigenous Lives Matter, Trans Lives Matter,ACAB,๐
https://www.amazon.ca/hz/wishlist/ls/UYYEH2OOBIZP?ref_=wl_share
Chronic Illness Memes @chronicillnessmeme.bsky.social Just a place where a bunch of chronically ill peeps can come to laugh through the pain together and maybe earn some extra spoons ๐ฅ instagram.com/chronicallyillmemes
Oliver Cassidy @olivertapenade.bsky.social Filmmaker (Franklin), activist (Tas Conservation Trust), musician (Philomath), queer (trans/bi/poly), disabled (CFS), cat companion (Mr Kitten) ๐ฑ
Carmen San Diego @carmensandiego.bsky.social Meh
Salty Beach (she/her) @zierrazunset.bsky.social Living life with POTS, dysautonomia, Long Covid, MCAS, and CFS/ME symptoms as best I can, guided by research, medication and exercise techniques adapted for chronic illness warriors whose biggest battle is against gravity.
ME RESPITE @merespite.bsky.social ME RESPITE is a registered New Zealand Charity providing practical support to those with Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS) and related illnesses.
Nanette Suzanne Danielsson @nanettedanielsson.bsky.social ๐ฆ Activist with ME โฟ๏ธ PhD in Psychology ๐Former researcher ๐ & integration strategist๐กExpat in Sweden ๐บ๐ธโก๏ธ๐ธ๐ช #Latina๐ถ๐๐ณ๐จ๐ผโ๏ธ #Democracy #ProChoice #HumanRights #SocialJustice ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธโ๏ธโป๏ธโ๐พโ๏ธ๐๐๐๐ #ChronicIllness #ME #MECFS
#MillionsMissing ๐ซCrypto ๐ซDMs ๐ฐ Block ๐ซPorn
@jiripiri.bsky.social @jiripiri.bsky.social
Colin-Roy Hunter aka criquaer @criquaer.bsky.social Queer, humanist, pantheistic Quaker.
Politically non-partisan.
Disabled & chronically ill
#pwME #MyalgicEncephalomyelitis #SevereME
๐ช๐บ๐ฃ๏ธ ๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ๐ฆ๐น๐ฉ๐ช๐ช๐ธ๐ซ๐ท๐ต๐น
Malwsmefys @malwsmefys.bsky.social Welsh, arty, crafty, cat lover ๐ป Humanist and Terry Pratchett disciple. Disabled with ME/CFS #pwME
chadzia dax ๐๐ท @m00psy.bsky.social they/them, 30s; disabled, auADHD, agender, kinky.
๐ #NSFW #art #SFW prints: inprnt.com/gallery/m00psy/
#jayvik #garashir
banner: masked people, PFP: garak w/ an assprint on his face (text: โniceโ); both my art.
pls donโt repost my art to other sites. ๐ซถ๐ป
๐ fruittea ๐ @fruittea.bsky.social goblin in a fruit bat costume ๐
๐ โข 26 โข Twitch Affiliate โข ME/CFS, EDS, POTS ๐ฆ โข queer โข noob digital artist โข she/they โข โ โข anti-AI and bigotry โ๏ธ๐ท
Business: fruitteafax@gmail.com
https://linktr.ee/fruitteabat
Teddy M. Bear @thisbear.bsky.social Philosopher. Poet. Soft toy. Knight of the BT Posse.
Sally Doherty @sallywrites.bsky.social MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary
Winner of the Book Bloggers' Novel of the Year Award 2022
Owned by three-legged rescue dog
ME/CFS
https://linktr.ee/SallyDoherty
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Ani @randiani.bsky.social #DoNoHarm
#CallForPublicHealthAction
words assure, actions commit
Squatter on Indigenous Land
Gin | soft hiatus (carpal tunnel) @ziinnias.bsky.social Illustrator, writer, comics. they/them. 30. Currently working on Marmalade Gaze (slice of life, supernatural horror, crime comic).
โ https://ko-fi.com/ziinnias
๐ต https://vgen.co/ziinnias
๐ซ AI/NFT or T*RF shit
#ziinniart #comic #OCsky
Robbie @robbielane87.bsky.social Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD..
Trying to get by one day at a time ๐ค
NoniMarie @nonimarie.bsky.social Educated as a teacher
ME/CFS resident of troubling times
๐โค๏ธ๐ณ๐ด๐๐บ๐ธ๐๐บ๐ฆโค๏ธ๐
Photography & history
Books & music
Birds & beasts
Psychology/therapy/(Marion)Rosen method
-Trying to make sense of things
Which I admit is not too easy
Am Chima @ace9801.bsky.social ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my โcerebral nerd crushes'!
Taylor R.W. Brown @taylorrwbrown.bsky.social โ๏ธ๐ผ Screenwriter (THE TIME JERK, 4th draft completed! AT THE END OF THE BLOCK, 1st draft in progress.) ๐จ๐ฆ
๐ฌ Film, TV, & music lover. Gamer. ๐ฎ
๐ Gay/Non-binary (They/He) ๐๐ค๐๐ค / Taken
๐ซ Disabled with ME/CFS, Long-Covid, MPS, cPTSD. Neurodivergent. ๐ง
genXcrone (she/her)(tldegray, anonymous_sibyl, gen_crone) @genxcrone.bsky.social CVID. Disabled. Gen-X. Seven Sisters. She/her. Voracious reader. I like SFF, fiber crafts, sim games, wrestling, tarot, & genealogy.
[Avatar: A B&W headshot of me. I am goofily sticking out my tongue. Background: pink cherry blossoms against a blue sky]
Daniel Padfield @padpadpadpad.bsky.social Microbial ecologist/carer. NERC IRF and MRF Emerging Leaders Fellow at the University of Exeter in Penryn. I like warming up bacteria, open & reproducible science, making focaccia, and exercise.
Swifts and Swallows @swiftsandswallows.bsky.social My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
Ollie C @olliecornes.bsky.social Living in London with a Hungarian, two Russian Blue cats, #MEcfs and a healthy obsession with the art of Keith Haring. ๐ฌ๐ง๐ช๐บ๐ณ๏ธโ๐๐บ๐ฆโฅ๏ธ
Jamie ๐ณ๏ธโโง๏ธ๐ณ๏ธโ๐ (they/them) @treesofreverie.bsky.social they/them ๐ณ๏ธโโง๏ธ queer, trans non-binary | disabled. neurodivergent. chronic illnesses. | artist. reader. writer. | cats: Charlie & Lola |
Ex-Bookseller 7yrs.
Mostly bedbound with Severe ME. #MECFS #MillionsMissing #pwME
Brianne Benness @bennessb.bsky.social currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Donโt Tell in Toronto | she / her
Richelle Sepulveda @richellesepulveda.bsky.social Long Covid, MECFS, ADHD, etc.
Patient-led research is my jam.
A bit obsessed with GIP.
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Whitney is Wicked @itswhitneywitch.bsky.social Disability Justice
Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more
Ambulatory wheelchair user
Cozy gamer, lazy gardener, hopeful baker
Wendy Kloiber @wendykloiber.bsky.social So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her. Ashland, WI โ> MSP.
Matthew Cortland (they) @matthewcort.land Chronically ill public health JD writing to make sense of the policy hellscape so you don't have to do it alone. Actionable analysis & trustworthy guidance for people the system wasn't built to protect. Free & paid: ShouldntNeed.com
Sr. Fellow DFP. ๐ณ๏ธโโง๏ธnb
Imani Barbarin @imanibarbarin.bsky.social Disabled Loudmouth.
https://www.canva.com/design/DAFjqA7WtS0/11YO6Ql6Yl9J792_jipiwQ/edit?utm_content=DAFjqA7WtS0&utm_campaign=designshare&utm_medium=link2&utm_source=sharebutton
Brian Vastag @brianvastag.sciencemastodon.com.ap.brid.gy Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes [โฆ]
๐ bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/
Debra Guckenheimer, PhD @debraguckenheimer.com Writer, activist, artist, teacher, sociologist, ๐ฅ , neurodivergent, disabled, queer, single mom.
๐ณ๏ธโ๐ Pronouns: she/they
debraguckenheimer.com
#livingwithableism #resist
Jodi Ettenberg @legalnomads.com Once a lawyer, then a celiac travel writer. Now disabled, writing about curiosity & health.
Travel writing & gluten-free guides: legalnomads.com
The best things I read each month: jodiettenberg.substack.com
MCAS, meditation, & health: jodiettenberg.com
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate โข Chair of #MedicalEducation Group โข #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Dr. Sabine Hermisson ๐ฆ @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Bridget Copley PhD @moppety.bsky.social Parisienne Buffalonian linguist spoonie mom. http://bcopley.com "The line separating good and evil passes...right through every human heart." -Solzhenitsyn
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Ben H @benhmecfs.bsky.social ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia