DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
The Open Notebook @theopennotebook.bsky.social Nonprofit equipping journalists to cover science: articles, tip sheets, trainings, courses, mentoring, pitch database, & more. Our new book THE BEST SCIENCE STORIES AND HOW THEY WORK: https://tinyurl.com/TBSSbook
Isocomet @isocomet.bsky.social Came to Bluesky forerunners for systems thinking and stuck with this one for kindness, generosity of spirit and disability justice.
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Emma 🛏️♿🌱☮️♻️🍉 @veganmua.bsky.social She/her. Severe ME, CCI/AAI, hEDS & co, AuDHD. Ex makeup artist, ethical vegan, socialist. #BlackLivesMatter
#TransRightsAreHumanRights
Support striking workers
Jenny Hagel @jennyhagel.bsky.social 
Amber Ruffin @amberruffin.bsky.social 
Ronny Chieng @ronnychieng.bsky.social www.ronnychieng.com
Ms. Grace Kuhlenschmidt @gkuhlenschmidt.bsky.social straight lesbian comedian
Jordan Klepper @jordanklepper.bsky.social Behind the desk and into the fray with The Daily Show.
officialjordanklepper.com
Michael Kosta @michaelkosta.bsky.social MichaelKosta.Komi.io
Stand-up comic. Lots of The Daily Show. Career high #864 world tennis ranking. See me on tour! #TennisAnyonePod
Josh Johnson @joshjohnsoncomedy.bsky.social Correspondent on the Daily Show. Standup Comic & Emmy-nominated writer. Listen to the Josh Johnson Show podcast on Spotify + Apple
https://linktr.ee/joshjohnsoncomedy
Liz Nevra A. @nlizaki.bsky.social #MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
Chen Chen @chenchenwrites.bsky.social poet, teacher, sometimes essayist. chapbook, Love That For Us, out now @andchangepoetry.bsky.social. craft book forthcoming @noemipress.bsky.social. two books @boa-editions.bsky.social.
abolish the police & free palestine.
https://www.chenchenwrites.com
Naomi Klein @naomiaklein.bsky.social "End Times Fascism" book coming September 2026.
Doppelganger. This Changes Everything. The Shock Doctrine. No Logo. On Fire.
UBC Professor of Climate Justice.
🔗 https://linktr.ee/naomiklein
Adam McKay @ghostpanther.bsky.social Filmmaker: Hyperobject Industries/Yellow Dot Studios
Climate & societal collapse with some sports and movie talk. And yes, the mixture is disorienting.
Vidya Krishnan @vidyakrishnan.bsky.social I tell stories. Nieman'21.
Probably listening to a podcast.
Alex Falcone @alexfalcone.bsky.social 🎤 Comedian, scam hunter, fun fact guy
✉️ Free newsletter w/ bonus facts and tour dates:
https://linktr.ee/alexfalcone
Rebecca Solnit @rebeccasolnit.bsky.social Writer of books. Guardian columnist. Newsletter at MeditationsInAnEmergency.com. Board member, Third Act and Oil Change International.
Brett Goldstein @mrbrettgoldstein.bsky.social Actor. Writer. Comedian. Swimmer. Shrinking. Ted Lasso. All Of You. SuperBob. Adult Life Skills. Drifters. Anything to avoid a dinner party. IG: mrbrettgoldstein
Jake Tapper, long-suffering Philly sports fan @jaketapper.bsky.social Dad, husband, CNN anchor, author, doorman to three dogs and a cat.
Greta Thunberg @thunberggreta.bsky.social Activist
David Fajgenbaum @davidfajgenbaum.bsky.social 
@saquonbarkley.bsky.social @saquonbarkley.bsky.social 
Jalen Hurts @jalenhurts.bsky.social #UNTAMED #RAREBREED
Colman Domingo @colmandomingo.bsky.social Time to sing sing
Late Night with Seth Meyers @latenightseth.bsky.social Official Bluesky handle for Late Night with Seth Meyers, weeknights at 12:35/11:35c on NBC. Streaming on Peacock now.
@grittynhl.bsky.social @grittynhl.bsky.social 
Bill Lawrence @vdoozer.bsky.social I write stuff and brag about my kids a lot
Jay Duplass @jayduplass.bsky.social 
Mark Duplass @markduplass.bsky.social 
Joel Bervell @joelbervell.bsky.social Medical MythBuster 🕵🏾♂️
Diversifying the field of medicine
Seen on NYT, NPR, Today Show
🐶: Yale ‘17
Cristina Rivera Garza @criveragarza.bsky.social Writer
New Heights @newheightsofficial.bsky.social Next level access to life in the NFL with Jason Kelce and Travis Kelce. From Wondery Media. Produced by Wave. New episodes on Wednesdays
Not Gonna Lie with Kylie Kelce @nglwithkylie.bsky.social One mic. Zero f*cks. No lies. A Wave Original. New episodes on Thursdays. 
Adam Conover @adamconover.net "Unlikable woke comedian" - the Daily Mail
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Duna 🐈 @duna.rocks 🏳️⚧️ cat mom, pinball enthusiast, ever masker, landback, unequivocally against LLMs, rawbraining it all, denizen of Rofo, future electrologist.
she/her
Maggie Boxey Writes @maggieboxey.bsky.social Writer & bridge-builder. For the stuck, the healing, and the waking up. Author . Podcaster . TEDx Speaker . in recovery . ME/CFS . collective hope 🦋
Long Covid Families @longcovidfam.bsky.social We are families working inside research, public health, and policy. Turning lived experience into system change for children. U.S. based.
John Green @johngreensbluesky.bsky.social Author (The Fault in Our Stars, The Anthropocene Reviewed, etc.)
YouTuber (vlogbrothers, Crash Course, etc.)
Football Fan (co-owner of AFC Wimbledon, longtime Liverpool fan)
Opposed to Tuberculosis
John Cusack @johncusack.bsky.social Apocalyptic shit disturber elephant trainer -
This is the only account . 👈 If I share something it doesn’t necessarily mean I agree
Founding board member
@Freedom.press please follow https://linktr.ee/freedomofpress
@johncusack on twiiter
Jane Pannell @granejane.bsky.social Disabled by ME/cfs, artist, former RN, progressive.
Molly Gordon, she/her @mollyboom.bsky.social Typically preoccupied with wisdom & justice. Occasionally unwise or unjust.
Tough canary. Ecstatic cranky. Queer.
#LongCovid #MECFS FUNCAP 1.1
mori (sep goal $27.32/$500) @kookysnell.bsky.social 25 - very severe ME/CFS, hEDS, MCAS, POTS, all manner of brain things.
if you don't believe in mutual aid, don't follow me.
https://linktr.ee/moriende
Shannon Hammond @shannonhammond.bsky.social Severely disabled but still surviving with #MECFS. Animal loving queer. Poor.
Helping and advocating for marginalized folk whenever and however I can.
#PwME
#MyalgicE
Profile: Cute black and brown dog with turquoise leash sitting on leafy forest floor.
Sonic J she/her @sonic25.bsky.social Disability advocate, animal rescuer, grower of flowers in the desert. Currently residing in Vernae Province, planet Gedrel.
#MECFS for over 2 decades
#GeneticBeriberi
Lumia @wearlumia.bsky.social What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
Maria von Scrap @kookyoldbird.bsky.social I flit, I float, I fleetly flee, I fly. CaCaw!
Spoonie w/ a fierce heart. O.G. riot grrrl.
She/They
Banner: "what doesn't kill me better run." In black typewriter font on white background
PFP: Black and white lithograph of an open beaked bird on a branch
Fandango @sherbert-lemon.bsky.social Avid reader, occasional reviewer. Beginner genealogist & dysgu Cymraeg.
Retired by moderate-severe ME/CFS & chronic migraine.
Managed by Rowan. She/her. 
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Tamara | ME/CFS Mama @mecfsmama.bsky.social Just a Mama navigating parenting with a chronic illness.
Mild ME/CFS & IST
Aotearoa, New Zealand.
m.e_and_sophs_ @sophs3.bsky.social 17 | ME since ‘20
Advocacy 💙
You are not alone 🫂
#severeME #millionsmissing
Insta - m.e_and_sophs_
Katharina 🦋🍋🍀 @katha1970.bsky.social Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
Quella 🐙 @quellaisstilldizzy.bsky.social Chronic Illnese and Disability education and advocacy. 🐙
Severe MECFS warrior with Long Covid, Dysautonomia (POTs and low blood volume), Fibromyalgia, Endometriosis, Depression.🐙
Medical researcher + Medschool Dropout 🐙
Eva-Barbara @barbaralccarer.bsky.social Carer for daughter with severe ME/CFS POSTCOVID;
Joseph @josephwithfibro.bsky.social Long Covid Toolkit | Computer Science Student | #Fibromyalgia #Dysautonomia
@petedor59.bsky.social @petedor59.bsky.social 
Long COVID Campaign | www.longcovidcampaign.org @lccampaign.bsky.social Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
@ericamhayes.bsky.social @ericamhayes.bsky.social 
Ann Forbes @aeforbes.bsky.social noticing–wondering–learning–creating–critiquing–revising
Constanze Ertl @constanzeertl.bsky.social journalist, ORF, Vienna
persistence > contacts + competence :)
constanzeertl.at
Oliver Striebling ♿️ @ostriebling.bsky.social #MECFS seit 2017 - Bell 20-30
Verena Gorris @verenagorris.bsky.social Sustainability, human-centered Mobility & green cities. Data, ML, AI. Urban sketching, Sketchnotes & LiberatingStructures. Mama.
TeamScience & TeamVorsicht - die Maske bleibt auf. FCK NZS.
Lese mehr als ich schreibe.
Gebranntes Kind @gebrannteskind.bsky.social Gebranntes Kind scheut das Feuer.
Leichtes #LongCovid ist trotzdem scheiße (Und heißt bei mir ab jetzt Heinz)
#PostCovid #POTS #TeamVorsicht #DieMaskeBleibtAuf
#FCKNZS
Tânia Pereira @seatanica.bsky.social Humanist 💀 Music addict🤘🏼 Nature lover 🐟🌿 bookworm wannabe 💭
Aquaculture project manager and communicator 🌊 with a background in seaweed cultivation and reforestation 🤿
KimK ... one day at a time 🇨🇦 @kimk-research.bsky.social Retired 🪷 Grandmother ♿️ amputee 🥄 longCOVID ESKD advocacy @renegaderes 🥩 animal-based keto
The Weekly Show with Jon Stewart @weeklyshowpodcast.bsky.social On Mondays Jon Stewart hosts The Daily Show, but on Wednesdays he hosts The Weekly Show. Listen wherever you get your podcasts & watch on YouTube.
Last Week Tonight with John Oliver @handle.invalid The official Bluesky account of Last Week Tonight with John Oliver. youtube.com/lastweektonight
Eliza Charley | Actress on Pause @elizacharley.bsky.social Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
Tapanui 'Flu @tapanuiflu.bsky.social Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
Annette @annette121020.bsky.social Post Covid | POTS | PEM | ME/CFS on the horizon |
Determined to avoid PEM at all costs.
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Phoebe Petrovic @phoebepetrovic.bsky.social now: researcher chronicling threats to democracy @ Documented. then: investigative reporter @ Wisconsin Watch & ProPublica fellow. send me tips about the anti-LGBTQ movement or authoritarianism on signal: phoebe.411
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Chantzy @chantzy.bsky.social Science communicator & writer ✍🏼 🧬
MSc epidemiology grad student @ LSHTM
Activist
📍Vancouver, BC
"Some sort of weird Covid obsessed hermit"
(Views mine)
Dan Wyke @danwyke.bsky.social Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Karla Monterroso @karlaliliana.bsky.social Part chaplain, part cross-pollinator, part coach, part builder. Multiracial multicultural institution dreamer. Brava pero vulnerable.
www.bravaleaders.com
applescruff909 @applescruff909.bsky.social It was the best of times; it was the blurst of times...
Nerd, misfit, dogparent
Oxford Comma/Alt Text enthusiast
From a family of educators
Neighbor of Fred
Neurospicy critical thinker
🖖🖖🏿🖖🏼LLAP/IDIC🖖🏾🖖🏼🖖🏽
PP: Disco Volante cover
CP: Mike Patton w/ bullhorn
jodiesattva @jodiesattva.com Irreverent cook, gamer, and dogmom
Low-Spoon Gourmet
youtube.com/@jodiesattva
reddit.com/r/jodiesattva
patreon.com/jodiesattva
♿️ #mecfs 🕉 CYT 🧪 EIT 🖖 #IDIC
Alt text ✅️
pfp: selfie
bg: OH THE HUE-MANATEE
gender: wanker (wa/wer)
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Maya Lindemann @mayalongcovid.bsky.social RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Erin Kissane @kissane.myatproto.social Away for a while. Making and mending networks and knowledge. Working and thinking at wrecka.ge, co-running a volunteer unbreak-the-news collective at @unbreaking.org.
Previously: Covid Tracking Project, OpenNews, old web nonsense.
Ziyad Al-Aly MD @zalaly.bsky.social Physician | Scientist | working on Long Covid
Matt Lazell-Fairman @mfairma.bsky.social ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
Tatiana Trifan #FBLC @tatianatrifan.bsky.social Life is full of surprises, but never when you need one.
Completely allergic to any form of racism, sexism, genderism.
#StandWithUkraine
Views are my own
Steve Griffin @profstevegriffin.bsky.social Professor of Cancer Virology, University of Leeds.
Co-Chair, Independent SAGE
Fiona Christophers @fionachris.bsky.social Nature-loving city dweller. Sewing enthusiast and crafter. Life on pause due to Long Covid Oct 2020. #FBLC #longcovid #me/cfs
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Kate Violette @kateviolette.com Multipurpose nerd. Engineering manager currently waylaid by a complex illness. On a mission to watch every Katharine Hepburn movie.
🏳️🌈 they (🇬🇧), elle (🇫🇷)
Currently in Portland OR. Always a Mainer.
✍️ www.kateviolette.com
📊 @healthlog.kateviolette.com
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
allyann @allyann.bsky.social Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie.
Living in Millowl, home of the Bunurong people, Victoria, Australia
Last Week Tonight with John Oliver UPDATE @lastweektonight1.bsky.social / video / info / resources /
Last Week Tonight with John Oliver
~ unaffiliated