Miska Knapek @miskaknapek.bsky.social Data analyst/scientist making data analysis software, #datavis, #datascience , etc, nature photography, some creativity and hobbyist personal complex medical research . ( Did I miss anything?... well, #mecfs ;)
miskaknapek.eu
Taija Rutanen @taijarutanen.bsky.social TtM | Kansanterveystieteilijä | Työkykykoordinaattori | Työllisyysasiantuntija | Sairaanhoitaja | Kiinnostunut pandemiaan liittyvistä asioista ja työhyvinvoinnista | long covid since 04/2020
Pauli Rautiainen @paulirautiainen.bsky.social Human rights and old movies. University Lecturer on Law and Welfare, University of Eastern Finland.
Benjamin Pitkänen @benjaminpitkanen.bsky.social Rakkaat eläimet, joita syömme -tietokirjan kirjoittaja📚
Viral Vegans toiminnanjohtaja 🌱
Valtiotieteiden maisteri 🎓
Vegaaneista tykkään -podcast host 🎙
Pavel Tahkovuori @paveltahkovuori.bsky.social Tietokirjailija & vastuullisuusasiantuntija
🎤Vegaaneista tykkään -podcast
📚Rakkaat eläimet, joita syömme
@yawningraptor.bsky.social @yawningraptor.bsky.social
Ursa ry @ursa.fi Mitä taivaalla tapahtuu? Ursa pitää sinut kärryillä. Ajankohtaista ja luotettavaa tietoa ilmakehän ilmiöistä, tähtitaivaasta ja kaikesta niiden takana. www.ursa.fi
Liity mukaan tähtiharrastuskeskusteluun: #tähtitaivas, #tähtiharrastus
Otsakekuva: JWST
Mikko Tuomi @mustapipa.bsky.social Astronomer, researcher at Helsinki University.
Science (exoplanet astronomy mostly) blog in Finnish: https://tuomim.wordpress.com/
Find me at Mastodon for science: https://scicomm.xyz/@mustapipa
Minna Haavisto @minnahaavisto.bsky.social Vihreä paikallispoliitikko, projektipäällikkö, tekniikan tohtori ja äiti. Arvostan tiedettä, terveyttä ja luontoa.
Sune Lang @sunerl.bsky.social MD, psychiatrist, retired hospital director, grandfather, husband, humanist etc. 🇫🇮🇪🇺🇺🇦🇨🇦🇩🇰🇬🇱
"Most people don't want the truth.
They want their beliefs reinforced."
Lotta Oksanen MD, PhD @oksanenlotta.bsky.social Doctor, postdoc researcher, and PhD in airborne infections, with a passion for studying airborne exposures, infection prevention, pandemic preparedness and occupational safety. Proud mom. #ScienceForSafety #MomAndResear
Tuomas Aivelo @aivelo.bsky.social Assistant professor in science communication with emphasis at biodiversity & society at Leiden University
Academy Research Fellow leading Helsinki Urban Rat Project at University of Helsinki
Okko Ojala @okko.fi
Ilkka Rauvola @jukka235.bsky.social Covid-19. In God we trust, all others must bring data.
X: @jukka235 or https://x.com/jukka235
Johanna Hellsten @johannahellsten.bsky.social Rakentaminen, työmarkkinat, työturvallisuus, terveys, sosiaalipolitiikka, hömppä. Tweets in Finnish, but might reply in English or Swedish too. Päätoimittaja, Rakennusliiton lehti Rakentaja. https://rakennusliitto.fi/rakentaja/
Annu Näkki @anakki.bsky.social DI, FT, LK - COVID on ilmavälitteinen, aiheuttaa pitkäaikaishaittoja eikä ole ohi. Riskiryhmien suojelu on yhteinen, yhdenvertaisuusasia. Maskit, ilmahygienia, testaus.
MSc(Tech), PhD, MD student. COVID19, Long Covid, #CovidCompetent
Tanhis @tanhisjussi.bsky.social Sarcastic science and math teacher, who likes education, theatre, stand up comedy, cooking and both whisky and whiskey
Clean Air Club @cleanairclub.bsky.social Providing free air purifiers to Chicago artists, organizers, and touring musicians.
linktr.ee/cleanairclub
Tuomas Pernu @tuomaspernu.bsky.social PhD and all that. Lecturer in Philosophy of Science and Research Ethics at the University of Eastern Finland (UEF). Some things I'm responsible for:
http://www.tuomaspernu.london
Iikka Kivi @koomikkokivi.bsky.social Stand up -koomikko. Tuottaja. Käsikirjoittaja. Luonnonsuojelija. Videopelinörtti.
Tuuli Lappalainen @tuuliel.bsky.social Professor at KTH, NY Genome Center, SciLifeLab, working on functional genomics and human genetics.
Health Nerd @gidmk.bsky.social Epidemiologist. Research Fellow. Doctor of Spreadsheets. Writer (Slate, TIME, Guardian, etc). PhD, MPH. Host of senscipod Email gidmk.healthnerd@gmail.com he/him. Find my writing on Substack and Medium.
Uusi Juttu @uusijuttu.fi Uusi Juttu on oleelliseen keskittyvä media, joka syntyy yhdessä jäsenten kanssa. Poimimme puolestasi olennaisen informaatiotulvasta: emme vain kerro, mitä on tapahtunut, vaan myös sen miksi. Liity jäseneksi uusijuttu.fi!
Li Andersson @liandersson.bsky.social Vasemmistoliiton EU-parlamentaarikko
Varsinais-Suomesta, kaupunginvaltuutettu Turussa. Chair of Committee on Employment and Social Affairs in the EP.
Elina Valtonen @elinavaltonen.bsky.social Minister for Foreign Affairs, Finland. 🇫🇮
Also 🏀🎾⚽️ & 🚤
Antti Rasi @anttirasi.bsky.social
Matti Heino @heinonmatti.bsky.social Crisis preparedness 🛡️ Complex systems approach to behaviour change science. Resilience 🔀 Antifragility. PhD social psychology by accident.
Elokapina / XR Finland @elokapina.bsky.social Olemme Elokapina, kapinoimme elämän puolesta.
We are Extinction Rebellion Finland, we rebel for life.
Tutustu meihin: https://linktr.ee/Elokapina
Mastodon: https://social.rebellion.global/@elokapina
Martin Scheinin @martinscheinin.bsky.social Human rights law professor, expert, practitioner. Current affiliations: European University Institute @eui-eu.bsky.social (Law Department and Horizon Europe project @eloquenceai.bsky.social), Lund University @lund-university.bsky.social (Faculty of Law)
Dr. Lucky Tran @luckytran.com Scientist, science communicator, public health & climate justice advocate
Biology PhD from Cambridge
WHO Fides member, Grist 50 Fixer, Creative Change alum
New Yorker/Aussie
Opinions my own
https://instagram.com/luckytran
http://linktr.ee/luckytran
Ville Niinistö @villeniinisto.vihreat.fi Luonnon, ihmisten ja jalkapallon ystävä.
Europarlamentaarikko.
Entinen ympäristöministeri, vihreiden puheenjohtaja ja kansanedustaja.
Turkulaislähtöinen espoolainen.
#vihreät
Tapani Kudjoi @takud.bsky.social Lifelong learner. BSc in engineering and healthcare, M.Sc. in gerontology and public health.
Acupuncturist, martial artist, hobbyist gardener and carpenter.
Jufo Peltomaa @jufopeltomaa.bsky.social Rapper & lyricist @ Raptori, futurist, bird photographer & public speaker. Eating volatility for breakfast, thinking empathy is in the core of all technologies.
Kaisa S @kaisasaurio.bsky.social Cat lady, neulootikko, psykologi ja sosiaalipsykologian väitöskirjatutkija.
Valerio Pergola @valeriopergola.bsky.social Science Communicator 🌌 and Computer Engineer 👨🏻💻 | Dedicated to inspiring people through Science and Technology 🌲 | Also into Sci-Fi | From Italy 🇮🇹
valoisa ⚧ @valoisa.bsky.social ValoisaTM
⚧
#TootFairy
#Valtakunnanelffi
#sivuttais-micro-flutter
HYVÄ SÄNGYSSÄ!
Aurinkoinen mutta tylsä survelopersoona.
Lihaton, holiton, savuton, ismitön.
Koodia, luontoa, ääntä, liikuntaa, rakkautta.
Luultu Legolakseksi syystä ja syyttä!
Neil deGrasse Tyson @neildegrassetyson.com Astrophysicist
Sydänliitto @sydanliitto.bsky.social Sydämen asialla vuodesta 1955.
Tavoitteemme on, että mahdollisimman harva ihminen sairastuisi sydänsairauksiin ja että sairastuneet saisivat tukea.
Lue lisää: https://sydan.fi/
Isabell Kraemer @isabellkraemer.bsky.social Knitwear Designer
find my knitting patterns on Ravelry or Lovecrafts
https://www.ravelry.com/designers/isabell-kraemer
Darren Brown OBE @darrenabrown.bsky.social Physiotherapist | OBE 2024 | Fellow of Chartered Society of Physiotherapy | Elisse Zack Award for Excellence in #HIV #Rehabilitation | World Physiotherapy International Practice Award | Long COVID Physio past Chair
https://linktr.ee/darrenabrown
Julia MV @julialmv.bsky.social Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Anne Rimoin @annerimoin.bsky.social Infectious Disease Epidemiologist. Science Communicator. Professor. Gordon-Levin Endowed Chair in Infectious Diseases & Public Heath @UCLAFSPH. Director/Founder #UCLADRC @UCLA_CGIH Insta: @annerimoin
Margaret O’Hara @margaretohara.bsky.social Patient Advocate in #LongCovid and #HyperemesisGravidarum
Patient Involvement in Research in #NHS
Dr Elisa Perego @elisaperego78.bsky.social #LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Prof Ros Gleadow FAA 💙🕯️💚 @rgleadow.bsky.social Plant scientist studying how climate change affects plant toxicity (#cyanide). Born 314ppm.
Interested in science, tech, plants. #MECFS ally #botanist 🌾🪴🧪🌱🌿💉
Views my own
Kelly O'Brien @kellyobrien25.bsky.social Physical Therapist and Researcher, Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation
University of Toronto
https://www.physicaltherapy.utoronto.ca/kelly-obrien
Lumia @wearlumia.bsky.social What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Louise Gustafsson @lougust.bsky.social Professor of Occupational Therapy, Griffith University, mixed methods and participatory research.
Helen/OT_Skiff @otskiff.bsky.social Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots 🫁
Swiftie 🫶, F1 🏎, cricket 🏏 fan
London, UK
Ina Hallström @killedbyproxy.bsky.social PhD candidate | Gender Studies, Stockholm University 🇸🇪 | Fulbright, Philosophy, Columbia University 19/20 🇺🇲 #recognitiontheory #phenomenology Researching gender and chronic illness
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Blake Murdoch @blakemurdoch.bsky.social JD, MBA. Canadian. Health policy, law, bioethics and inconvenient truths.
Bozhinski Handmade @bozhinskihandmade.bsky.social Master of yarn, thread, and fabric - dabbling in my own designs with knitting, crochet, and sewing. Creating handcrafted, sustainable fashion from my cozy corner in sunny California!
🛍️ https://rb.gy/e8o9b5
🧶 www.bozhinskihandmade.com
@boylandknitworks.bsky.social @boylandknitworks.bsky.social
Kevin Yee @kevinyeedotcom.bsky.social Writer: Netflix/Disney/Hulu
Actor: Dickinson
Filmmaker: SXSW/Outfest
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Anna Johanna @annaj0hanna.bsky.social Knitwear designer
Romantic knits from the north
Find my patterns on Ravelry:
https://www.ravelry.com/designers/anna-johanna
Debbie T Knits 🧶 @debbietknits.bsky.social Prolific knitter 🧶 Aran & cables are my passion.
Collector of much yarn / not a yarn snob
Disabled / northern UK based
Chronic spinal pain / fibromyalgia / essential tremor
WOKE 🏳️🌈 / left / atheist
No uninvited DMs.
No profile = no follow
Be nice 😊
Gabby Oglesby @gabbyoglesby.bsky.social Activist. Cherokee. Artist & Technologist (for good)
Disability Advocate. Neurodivergent Chronic Illness girlie
📍SF/DC
Former: @WhoSayInc @JonasBrothers @TRADESHIFT @AOL @UMG @FIDM #Startups
https://linktr.ee/gabbyoglesby
EDS MCAS POTS AuDHD🤍LGBTQIA+
Chronic Illness Friendship Club @chronicillnessfc.bsky.social An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! 📍SF
#EDS #MCAS #POTS #ME #PMDD #AuDHD #PTSD
Mental health advocate, indigenous #LGBTQIA+🍉
Sign up at the form below🤍✨
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Daniel Moore @talmandaniel.bsky.social Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Maike Osborne 🏳️⚧️🏳️🌈 @maosbot.bsky.social Mother, wife, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb. She/her
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Long Covid Switzerland @longcovidch.bsky.social Long Covid Switzerland. The voice of people affected by long covid and long covid kids. Evidence-based, provaxx, promask, protect the kids.
Raoul Schendel @raoullucas.bsky.social 27 I ME/CFS seit 2021 I WING Universität Augsburg I DE II EN
https://www.mecfs.de/was-ist-me-cfs/
Dt. Ges. für ME/CFS @dgmecfs.bsky.social ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
mecfs.de
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Isabel Ramirez-Burnett @isabelrb.bsky.social CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
Workwell Foundation @workwellfoundation.bsky.social #Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Bettina Grande @bettinagrande.bsky.social Psychological psychotherapist | Heidelberg & Charité Berlin
Advocacy against psychologization of #MECFS, #PEM & #PENE
Research & psychotherapy
adapted to ME/CFS
Psychotherapie-Netzwerk ME/CFS
https://doi.org/10.3390/medicina59040719
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Mark Faghy @profmarkfaghy.bsky.social Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Pirta Hotulainen @pirtahotulainen.bsky.social Cell biologist, neuroscientist, inflammation, long covid
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Ebidemiologi Kalmanen @ekalmanen.bsky.social Valtion viraalinen ebidemiologi. N:nnen aallon tukahduttaja. Viruslogian asiantuntia.
Kausivaihtelun mukaan parodiaa, satiiria ja sarkasmia tai suoraa asiaa.
Heikki Rayhantausta @heikkiray.bsky.social Justice for all. Talk is cheap, action speaks louder than words. Politics and ideology agnostic.- T Terttu Pakarinen @terttu.bsky.social OD, HRM, Future of working Life, Covid
MillionsMissingFinland @missingfinland.bsky.social ME/CFS G93.3 hoito & diagnosointi:
2021 Duodecim
https://rb.gy/m9spr
2021 NICE
https://rb.gy/h7eok
2021 Mayo Clinic Proceedings
https://rb.gy/fd54d
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Dan Wyke @danwyke.bsky.social Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Marjukka Myllärniemi @myllarni.bsky.social Pulmonary professor, comics artist, nature lover
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Ben H @benhmecfs.bsky.social ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Jonas R. Kunst @kunstjonas.bsky.social Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo
Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in
Father. Views are my own.