Dave Jorgenson @davejorgenson.bsky.social Host of Local News International
Non-partisan public data petition: https://usafacts.org/data-we-depend-on/
Bundle: https://trustfnd.com/davejorgenson/c/local-garbage-fire--vSrCPBRkF8C4LhjLJbKo
Support us: http://LNI.media/membership
Felicity Nelson @frogsandstars.bsky.social Award-winning freelance science & medical journalist | Bylines in Nature, Medscape, C&EN, Veritasium, ScienceAlert, The Guardian, ABC News, The Sick Times | http://frogsandstars.com (she/her)
Hallie Levine @hallielevine.bsky.social Journalist, mom of three, and dog-lover. 
Catherine Rampell @crampell.bsky.social Economics editor at The Bulwark. MS NOW (formerly MSNBC) anchor.
Previously WaPo op-ed columnist and NYT reporter.
Econ, politics, immigration, tax, etc. + occasional theater nerdery.
Long COVID Campaign | www.longcovidcampaign.org @lccampaign.bsky.social Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
Working Families Party πΊ @workingfamilies.org We are a progressive grassroots political party building a multiracial, feminist movement of working people. Text WFP to 30403 to join us.
linktr.ee/workingfamilies
@howtone.bsky.social @howtone.bsky.social 
Madeline Ostrander @madelinevo.bsky.social Climate journalist, author, AT HOME ON AN UNRULY PLANET
http://madelineostrander.com
KSJ at MIT Fellow 2023-2024
Mastodon: @madelineostrander@journa.host,
@madelinevo on Insta
Julia Rosen @1juliarosen.bsky.social Journalist. Working on a book about grass.
AlphaFold Unofficial @alphafold.bsky.social Unofficial account exploring the intersection of biology, molecules, science, AI and protein folding with AlphaFold.
Jane Qiu, PhD @janeqiu.bsky.social Globe-trotting, award-winning independent science writer in China | Words in @nature.com, @sciam.bsky.social, National Geographic and more | Writing a book on emerging diseases for @scribnerbooks.bsky.social | Ex: @ksjatmit.bsky.social, @nature.com
@mikelemonick.bsky.social @mikelemonick.bsky.social 
Jenny Cox @jencox11.bsky.social Retired writer of science who still does some freelance. Lover of science, dogs, long walks at the beach and mountains, all things nature, reading science-related books and mysteries and well-written novels. SCONC and NASW member. 
Covid Long Haulers Podcast @longhaulerspodcast.bsky.social Weβre a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how theyβre surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
Science News @scinews.bsky.social Science News from Academic Journals etc.
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if youβre in a trial or otherwise have information to share.
Melissa Gira Grant @melissagiragrant.com staff writer, @newrepublic.com // author, A WOMAN IS AGAINST THE LAW (2KTK, @littlebrown.bsky.social) + PLAYING THE WHORE (Verso)
// melissagiragrant.com
Β» melissa@melissagira.com
Β» tips (encrypted): melissagira.01 on Signal
@nyguild.bsky.social member
Jodi Ettenberg @legalnomads.com Once a lawyer, then a celiac travel writer. Now disabled, writing about curiosity & health.
Travel writing & gluten-free guides: legalnomads.com
The best things I read each month: jodiettenberg.substack.com
MCAS, meditation, & health: jodiettenberg.com
Merve Tepe, PhD @mervetepephd.bsky.social PhD MICROBIOLOGIST
AMR, Biofilms, Phage Therapy, Drug Design and some other similar topics π€«π
@remissionbiome.bsky.social team
@renegaderesearch.bsky.social volunteer
DEFEND SCIENCE, RESIST IGNORANCE π«
#SonKale06
Ankara
Lisa Diedrich @lisadiedrich.bsky.social Coming in early 2026: KEYWORDS/KEYIMAGES IN GRAPHIC MEDICINE
Current projects: #IllnessPolitics, chronic forms, & multi-modal pedagogies in action. Author of ILLNESS POLITICS & HASHTAG ACTIVISM, TREATMENTS, & INDIRECT ACTION.
Blogging at: lisadiedrich.org
Bridget Copley PhD @moppety.bsky.social Parisienne Buffalonian linguist spoonie mom. http://bcopley.com "The line separating good and evil passes...right through every human heart." -Solzhenitsyn
Jonas R. Kunst @kunstjonas.bsky.social Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo
Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in
Father. Views are my own.
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Myra Batchelder @myrabatchelder.bsky.social Advocate. Consultant. Health Equity. Social Impact. SRHRJ.
New Yorker. Midwesterner.
She/her.
Olenka Sayko @osayko.bsky.social Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Daniel Lewis @daniellewis.bsky.social My #LongCovid is mainly #PEM + #POTS + #MCAS
Vicky van der Togt @vickyvdtogt.bsky.social Facilitator | Researcher | Advocate
Alexis M. π @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Cate @midcatecrisis.bsky.social I have had myalgic encephalomyelitis (ME) since 2020 and spend the majority of my time in bed, of necessity. Mostly homebound. I used to be a climate activist, but spend any available energy parenting now. FUNCAP 2.5
Toronto, Canada
Autigender She/they π·
@creighton.bsky.social @creighton.bsky.social she/her | 27 π»
Emmi Skyten @emmiskyten.bsky.social Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Janna Moen, PhD @jannamoen.bsky.social Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | βΏπ³οΈβπ | she/her
My long COVID research newsletter: lcbreakdown.substack.com
TwoShaws @twoshaws.bsky.social #MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation π·
melinda_is_done π¦ @melindaiscomplex.bsky.social My body has given up but I haven't...
Bed-tethered disabled Advocate on hiatus (but RESISTing) due to severe ME & LC & comorbids. Co-founder #MEAction Maryland.
Orioles/Ravens/Caps fan. She/her
π©·ππ
Josh @properchels34.bsky.social Long Covid, ME/CFS, POTSβ¦. For now 
Liz Worthey @lizworthey.bsky.social #AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected
sites.uab.edu/cgds/ she/her
ME/CFS San Diego @mecfssd.bsky.social ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
Shelley @shellchat.bsky.social Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
Michael Sieverts @yogafogie.bsky.social DMV native. COVID long hauler. Patient-Led Research Collaborative.
Brian Fog @uselesspriest.bsky.social Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
Julia MV @julialmv.bsky.social Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Nele @nelehelena.bsky.social I'll "tweet" here about the things I don't like if the other app goes down
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
π»πͺ»πΌ
Lonnie R Marcum, PT BSHCA @lonniemarcumpt.bsky.social Wife/Mother, Science Writer, PT, HC Admin, Disease Detective, Voracious Reader, Connoisseur of Coffee, Graduate CSUN, Olive Farmer, HHS 2019-2022 Tick-Borne Disease Working Group, CDC Fdn ICUE patient advocate. 
Cindy L @cuboidalhug.bsky.social - E Miri Ranel @eyebrowse.bsky.social
@anneromatowski.bsky.social @anneromatowski.bsky.social tinyurl.com/ARealCancer
Hey Janae𧑠@heyjanae.bsky.social she/her | βοΈ | copywriter & π©΅ @ctpublic.bsky.social social media editor π©΅ Anime & Cartoons | ζ₯ζ¬θͺOK | Long Covid Mar 2022 | I complain often β¨πΊπ§‘ #CovidCompetent
Anna Kerr @annajk.bsky.social ME patient, art appreciator, advocate, mother.
Rachel Riggs @rachelriggs.bsky.social Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life
instagram.com/the.rachel.riggs
#EDS #MECFS #Food
#paleo #glutenfree #dairyfree
Kerrie McCure @kerriemccure.bsky.social Writer / editor / photographer / full-time sick person. Cinema lover, cat-and-dog person, mostly horizontal. π
#MECFS #hEDS #HSD #POTS #MCAS #CCI #CSFleak
Kayli Jamieson @wanderingkayli.bsky.social @wandering on Instagram βπ»
Disabled with Long Covid 52+ months
Long COVID Researcher @sfu-fhs.bsky.social
Masterβs in Communication
kaylijamieson.notion.site/research
Christina Steiger @steigerecon.bsky.social Assistant professor of economics on medical leave from Northeastern University; macroeconomics, growth and development. Severely ill with MCAS/POTS/EDS/ME. Catholic convert who loves the balance of faith and reason. Native Oregonian. 
Julie for M.E./LC treatment π· @dualiejulie.bsky.social In LongCOVID/M.E. hell looking for a way out! First wave Longhauler.
Trying to get my personality back from the disease.
Very cute dog.
Shelley Jules @shelleyjules.bsky.social MECFS from the long before times but not diagnosed for 23 yearsβ¦LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. π
victoria @vashetc.blacksky.app β doktora | research+policy | perpetually horizontal
IDβs: Brown skin grl w/ curly hair wearing shirt that says hot girls arent ableist. Banner: Sepia picture of a couple married w/ family around.
vashetc.com | restandmecfs.com | survivorsandallies.com
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Regina M @rejayjay.bsky.social Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. π
Covid19 @friendlycovid19.bsky.social Novel coronavirus looking for friends. Always evolving. Pronouns it/its.
Dr. Raven the Science Maven @ravenscimaven.bsky.social I'm Raven Baxter, Ph.D. I'm molecular biologist and science educator who loves sharing science with the world! thesciencemaven.com
Lisa Gralinski @lisagralinski.bsky.social Virologist at UNC, travel and food lover. 
@JohnVsJonVsME @johnvsjonvsme.bsky.social #JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light
JohnVsJon.com
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social COVID-19 Longhauler Advocacy Project is a patient-led #LongCOVID 501(c)(3).
Visit longhauler-advocacy.org/lcamonth26 to learn more and take action this #LongCOVIDAwarenessMonth.
#LongCOVIDAwareness #OneInfectionAway- M @marydimmock.bsky.social @marydimmock.bsky.social US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
- J Jen B @jenbo1.bsky.social
Karyn Bishof @kbishof.bsky.social π΅ Founder & Pres. @C19LAP https://www.longhauler-advocacy.org
π΅ Pw/ #LongCOVID, #IACCS, #Disability
π΅ Fmr. Firefighter/Paramedic
π΅ Fmr. Educator, Coach, & Dir. of Athletics
π΅ B.S. (ex science & health promotion)
π΅ #StillCOVIDING #COVIDConscious #Mask- G Ginaassaf @ginaassaf.bsky.social
Lygia Navarro (she/ella) βΏοΈ + π³οΈβπ π π³οΈββ§οΈ @lygianavarro.com indie journalist
Signal: Lygia.65
(editor, producer, en ES & EN)
cover: Latine, LGBTQ+, health stories +more #DisabilityJustice.
disabled. queer. #LongCovid + #ME.
lygianavarro.com
contributing writer @discojourno.bsky.social & @thesicktimes.bsky.social
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions π
#MECFS #LongCovid #IACC #PAIS
π https://crunchme.org/
Rene Sugar @renesugar.bsky.social https://renesugar.substack.com/
dSavannah @dsavannah.bsky.social ~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014
~ #LiveInBedButIAintDead
~ When brain & body behave: Chronic Illness Advocate
~ Discworldian, Browncoat
~π±(x3)π’ππ»π·πΈππΌοΈ
~ she / her ~ Love Is Love β€οΈππ§‘ππ©΅πππ€π€π©Άπ€π©·
https://linktr.ee/thedsavannah
Rebecca Nagle @rebeccanagle.bsky.social Cherokee writer and journalist, check out my substack: https://gohini.substack.com/
Author of BY THE FIRE WE CARRY. Host of First America podcast. Out June 22. Subscribe now! firstamerica.info
Sickandtiredaus Jordan Crane @sickandtiredaus.bsky.social http://heymp.com.au/sickandtired
http://change.org/LongCOVIDInquiry
http://www.instagram.com/sickandtiredaus
https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09
https://www.facebook.com/share/19nSvtGPNz/
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Oonagh Cousins @oonaghcousins.bsky.social 
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Liz Burlingame @lizmeactga.bsky.social Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Liz Nevra A. @nlizaki.bsky.social #MEActionNetwork health activist. Patient, project manager, translator & polyglot. βπΎ #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
CrunchME @crunchme.bsky.social CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
π https://crunchme.org/
Kat Boniface @katboniface.bsky.social Riverside, CA
Equine History Collective
Renegade Research
https://katboniface.wordpress.com/the-glutamate-boss/
David Kaufman @kaufmanmd.bsky.social Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup. 
Jamie Zvirzdin @jamiezvirzdin.com Research: Ultrahigh-energy cosmic rays with #machinelearning at #TelescopeArray. Past: Science editor and #ScienceWriting faculty at Johns Hopkins. Essays: The Atlantic, Orion, Aeon, etc. Book: #SubatomicWriting (JHU Press). I worship MacGyver and Picard.
Liz Seegert @lizseegert.bsky.social health journalist. Focus on aging, caregiving, policy, and more. Grandma. Dog mom. Partial to strong coffee, dark chocolate, red wine. AHCJ, ASJA, JAWS.
Michael Osterholm, PhD, MPH @mtosterholm.bsky.social Director, @cidrap.bsky.social
π§ Host of the Osterholm Update podcast: https://www.cidrap.umn.edu/osterholm-update
Beth Howard @bethrites.bsky.social Health journalist (AARP; Prevention; US News; WSJ), SELF survivor, mom of 20-something, amateur genealogist. 
The Flytrap @theflytrapmedia.com Worker-owned, community-oriented intersectional feminist journalism to unfuck your algorithm.
π theflytrapmedia.com
Lyz @lyz.bsky.social Men Yell at Me. I write books.
Mark Boslough @boslough.bsky.social Physicist, airburst specialist, planetary defender, & CSI Fellow. I'm critical of the Younger Dryas impact hypothesis (YDIH) which has strong links to global warming denial, creationism, & pseudoarchaeology. It relies on misinformation & fake peer review. 
ME Advocacy Network Australia @meana-au.bsky.social 
Marcia Gossard @marciagossard.bsky.social Science writer. Communications director #WSUVetMed. NW Public Broadcasting voice. Yoga teacher. Opinions mine.
vetmed.wsu.edu
nasw.org/users/mgossard
Thomas Lin @7homaslin.com Super nerd here to spread the joy of learning.
π Publisher @quantabooks.orgβ¬ at @simonsfoundation.org
π Author list: Terence Tao, David Tong, Kevin Hartnett
βοΈ Founding EIC @quantamagazine.bsky.social
πΌ Prev @nytimes.com, CASW, CUNY J-School
π΄πΌπΎβοΈ
Claudia Lopez Lloreda @claudia-lopez.bsky.social Reporter at The Transmitter | PhD, Neuroscience from UPenn π§ | Prev: Science, The Open Notebook & β21 AAAS Mass Media Fellow at STAT News | Boricua π΅π·
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Long Covid Resource @longcovidresource.bsky.social The Long COVID Resource is dedicated to providing information and resources on Long COVID and summaries of studies.
Long COVID Resource: https://longcovidresource.com