Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
The Patani Laboratory @patanilab.bsky.social We use human stem cell models to understand a range of neurodegenerative disorders, with particular focus on RNA metabolism and cellular autonomy. We are based at the National University of Singapore in the LSI: https://www.nus.edu.sg/lsi/
MND Education @mndeducation.bsky.social Supporting Health and Social Care Professionals who provide care and support for people affected by MND. Because every day matters.
Brian Dickie @bd365.bsky.social Chief Scientist, MND Association
Oxford MND Research @mndoxford.bsky.social Oxford MND/ALS Research Groups at @ndcnoxford.bsky.social and @kavlioxford.bsky.social
Researching MND/ALS through early disease modelling and biomarker discovery
Website: https://www.ndcn.ox.ac.uk/research/oxford-motor-neuron-disease-centre
Dementia Researcher @dementiaresearcher.bsky.social A support service for Early Career Dementia Researchers Worldwide. Delivered by UCL funded by Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia & the NIHR - https://www.dementiaresearcher.nihr.ac.uk
Ruben van Eijk @rpavaneijk.bsky.social ALS/MND Researcher @ UMCU | Clinical Trial Methodology, Outcomes & Statistics | Part-time cyclist 🚴♂️
MND-SMART @mndsmart.bsky.social An innovative clinical trial for MND led by the Euan MacDonald Centre based at The University of Edinburgh.
http://mnd-smart.org
MND Research @mndresearch.bsky.social Every day we drive research into motor neurone disease — from understanding causes to finding treatments. Because every day matters.
MND Scotland @mndscotland.bsky.social Making time count for people living with motor neuron disease.
https://linktr.ee/MNDScotland
Mark Zaid, Esq @markzaidesq.bsky.social National Security Attorney, Comic Book Historian, University of Rochester Alum
The National Academies of Sciences, Engineering and Medicine @nationalacademies.org Providing expert advice on some of the most pressing challenges facing the nation and world. Non-partisan. Non-profit. https://nationalacademies.org
Academy of Medical Sciences @acmedsci.bsky.social The Academy of Medical Sciences makes medical science work for everyone. Our vision is good health for all, supported by the best research and evidence.
Visit www.acmedsci.ac.uk for more info.
Women in Medicine @womeninmedicine.bsky.social 🌟Leadership.Research.Advocacy
👩🏿⚕️🧑🏽⚕️👩🏻⚕️👩⚕️Women in Medicine®
🩺 Shaping Healthcare’s Future Together
#WIMStrongerTogether #WomeninMedicine
UC San Diego School of Medicine @ucsdmedschool.bsky.social Serving our communities & creating a healthier world through research, education and patient care. 🩺
M.D., M.S., Ph.D., P.A., residency and fellowship programs.
medschool.ucsd.edu
Euan MacDonald Centre for Motor Neuron Disease Research @euanscentre.bsky.social We are no longer using BlueSky as a social media platform. We look forward to you following us on LinkedIn and Facebook for all our MND/ALS/SMA research news.
Cure NF2 Foundation UK & Europe @nf2biosolutionsuk.bsky.social Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2 Schwannomatosis.
Longitude Prize on ALS @longitudeprize.bsky.social Join us in bringing AI to the fight against ALS. Learn more about the Longitude Prize on ALS at our website (https://bit.ly/457a8zo), and follow us for updates.
Bridging Voice @bridgingvoice.bsky.social Non-profit supporting ALS clients with communication technology. Learn more at www.bridgingvoice.org.
Daniel Mordes @mordeslab.bsky.social Neuropathologist and Investigator at the Institute for Neurodegenerative Diseases and Weill Institute for Neurosciences at UCSF; aspiring coffee connoisseur 
Angeliki Filippatou, MD @agfilippatou.bsky.social Neuroimmunology Clinical Fellow, Johns Hopkins University
Nik Sharma @drniksharma.bsky.social CEO and co-founder at BioCorteX, bacteria, data, ML, scientist, clinician (neurologist)
RASopathies Network @rasnet.bsky.social Nonprofit research advocacy org for conditions caused by dysfunctional RAS/MAPK signaling. #rasopathies #raredisease
by Stronach in Pittsburgh
NF Bot @nfbot.bsky.social NF Bot looking to publish any news, pubmed articles, NF Events, Reddit posts and Bluesky posts.
Please let me know if something doesn't look right.
CareALS+ @neurodegeneration.bsky.social Follow to get regular updates on ALS+, Neurodegenerative Biology, Aging and Medicine
Research | Education | Awareness | Importance | Medicine | Human Health | Neurons | Life | Nature
#neurodegeneration #aging #breakthrough #clinicaltrial
Sam Wang @samwang.bsky.social Recent candidate for New Jersey's 12th Congressional District. SamForNJ.org.
Neurosciencer, democracy reform studier, plotter of data by hand as first step. At Princeton too. Long-form essays at samwang.substack.com.
Matt Krebs @mattokrebs.bsky.social BioCentury Inc. ( www.biocentury.com )
* Empowering Biopharma & Finance Execs | Travel Junkie & weekend warrior golfer
* Global Strategic Account Manager & Growth Team Sales Manager
Alex Rubinsteyn @alexr.bsky.social personalized cancer immunotherapy = genomics + immunology + machine learning + oncology
(pirl.unc.edu)
Alexis Licht @alexislicht.bsky.social Geologist, paleobiologist, @CNRS.fr research scientist, co-director of the Climate team at CEREGE @climatecerege.bsky.social, PI of ERC-funded
@dispersal-erc.bsky.social project
amfAR @amfarofficial.bsky.social amfAR advances scientific discovery to improve global health, with a primary and enduring commitment to ending the HIV/AIDS epidemic. www.amfAR.org
Nicolas Robine 🇪🇺🇫🇷🇺🇸 @nicorobine.bsky.social Artisanal Genomics since 2002. Mostly in English, sometimes in French. #NoPasaran
Pearl Freier @pearlf.bsky.social From Boston, MA. I'm @pearlf on the other blue-colored place. Founder of Cambridge BioPartners, Inc. I post mostly healthcare-related and biotech-related news items. 
Zinan Zhou @zinan-zhou.bsky.social Postdoc in the Walsh lab at BCH. Incoming Assistant Professor, Dept. of Neurology & Center for MND, UChicago. Studying somatic mutations in neurodegeneration.
Science Rabbit @sciencerabbit.bsky.social Elevating quality scientific research | Debunking health myths | Protecting evidence-based research | Fact > Fad
www.sciencerabbit.org
Barry Seemungal @barryseemungal.bsky.social Neurologist
Burning 🔥 Iceberg @burningiceberg.bsky.social Fighting for a 🧬 cure for familial #ALS in honor of my family living with #FALS. #Remembering dad & grandma #FundNIH 5calls.org
Robert Cooper @robertcooper-us.bsky.social Enjoyed a long career as a bilingual community advocate. Gay papa of five wonderful kids. Lifelong progressive. Love to cook and travel. Follow me on TikTok, YouTube and Instagram: @CubanPapaCooks. 👨🏼🍳🍳🥘
Jon Cooper @joncooper-us.bsky.social Democratic strategist. Formerly Long Island Campaign Chair for Barack Obama; Majority Leader of the Suffolk County Legislature. Gay dad of five terrific kids. Writer and producer of echoesoftheunknownpodcast.com. Coffee addict. New York/Florida. 🌴
Joshua Walker @bigjosh84.bsky.social I take up space, even when the world says I shouldn’t.
Poet. Observer. Rebel of thought.
Every heartbeat a manifesto. Resisting always. 💙
2025 Pushcart & Best Microfiction Nominee
https://www.amazon.com/Least-Weird-Person-Awake/dp/B0GT1262KP
Tristan Snell @tristansnell.bsky.social Lawyer, commentator, fighter for democracy. Prosecuted Trump University @ NY AG. #NAFO Fella. Author of Taking Down Trump. Host of the Tristan Snell Show on Apple and Spotify.
Substack - tristansnell.com
Rep. Jamie Raskin @raskin.house.gov Proudly serving Maryland's beautiful Eighth Congressional District and leading House Judiciary Committee Democrats in Congress.
Alt18F @alt18f.bsky.social Delivered effective, efficient, and secure digital services for the American people until we were forced to stop on March 1, 2025. Not an official government account. Reposts are not endorsements. Our new website: https://18f.org/ #AltGov
Josh Busby @busbyj2.bsky.social Professor at the University of Texas-Austin. Former Senior Climate Advisor DOD. Climate security, climate governance, clean energy, global health, US foreign policy. Author of States and Nature: The Effects of Climate Change on Security (Cambridge, 2022).
AlwaysACivilServant @drneuro.bsky.social No longer former CDC guy | He/him | Opinion =My own
Alex Sundermann, DrPH @sundermannaj.bsky.social Assistant Professor in Epidemiology @ Pitt Public Health | Outbreaks, Genomic Epidemiology, Public Health 🕵🏼♂️ | DrPH, CIC, FAPIC | Hubs & Dad of 2
https://www.publichealth.pitt.edu/directory/alexander-sundermann
PacBio @pacbio.bsky.social Our mission is to enable the promise of genomics to better human health by creating the world’s most advanced sequencing technologies. 
Science Magazine @science.org Cutting-edge research, news, commentary, and visuals from the Science family of journals. https://www.science.org
Nature @nature.com Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Nature-Briefing
Rebecca Gottesman @gottesmanlab.bsky.social Stroke neurologist and epidemiologist; Stroke Branch chief at NINDS
Moritz Mall @moritzmall.bsky.social Research group leader @German Cancer Research Center, reconstructing human development and disease using cell fate engineering
Alt NIH Bluesky 🧪 @altnih4science.bsky.social Facts & strategy, in an authoritarian takeover.
Rightwing billionaires want to privatize NIH and use it to control universities.
We work to cure diseases like cancer.
Pers views. #science #medicine
Critical Path Institute (C-Path) @cpathinstitute.bsky.social Advancing Drug Development. Improving Lives. Together.
Albert Vilella, PhD. @albertvilella.bsky.social Bioinformatics Scientist / Next Generation Sequencing, Single Cell and Spatial Biology, Next Generation Proteomics, Liquid Biopsy, SynBio, AI/ML in biotech // http://albertvilella.substack.com
Stand Up for Science! @standupforscience.net We mobilize the fight for science and democracy - because science is for everyone! 🧬🧪🌎
Donate here: https://bit.ly/SUFS_GIVING
Learn more ⬇️
https://linktr.ee/standupforscience_bluesky
Atanas G. Atanasov @atanas-g-atanasov.bsky.social Lead Editor: #CRBIOTECH & #ExplorDHT | Chair of Pharmacology at DPU | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Author of #HealthHacksThatWork
🔗Web: https://digitalpatientsafety.com/atanas-g-atanasov/
Marc Elias @marcelias.bsky.social Founder @democracydocket.com. Chair of Elias Law Group. My dog's name is Blue.
Electronic Frontier Foundation @eff.org We're the Electronic Frontier Foundation. We're a nonprofit that fights for your privacy and free speech online. Find all of EFF's social media accounts at eff.org/social.
Data Rescue Project #DataRescue @datarescueproject.org Public Access to Public Data is a Public Good. We want to ensure our data are not gone forever. Read more about our efforts: https://www.datarescueproject.org/press/
WeRateDogs @weratedogs.com Your Only Source For Professional Dog Ratings
nonprofit: @15outof10.org ❤️🩹
links.weratedogs.com
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Elisabeth_3 @elion3.bsky.social Medical School Counselor, Lost my partner of 40 years to ALS. #ALSSUCKS
#EndALS #IAmALS. Love my dogs and hate trump. No DMs unless I know you. #Resistance2.0
Tavares Speer @tavaresspeer.bsky.social Afro Cuban, Husband, Dog Dad, Fmr Business Analyst and FSU Alum. I was diagnosed w/ #als 10/4/18. Still here, still fighting. #lougehrigsdisease #endals. 💙🏳️🌈
https://linktr.ee/tavaresspeer
Karen Mullins🇺🇸🌈☘️🚌 #ALS #NOW #Women'sRights @dunedin.bsky.social “You are the change. You are the government. You are the power. “ ~Karen Mullins
Alt National Park Service @altnps.bsky.social The official "Resistance" team of U.S. National Park Service. Our website: www.ourparks.org
Pete Spencer @sciencepete.bsky.social Retired educator. Early in an acoustic guitar journey. ALS advocate. Learning to love bluegrass and Americana music. Believes in the scientific process.
Pete Buttigieg @petebuttigieg.bsky.social Husband, dad, veteran, writer, and proud Midwesterner. 19th US Secretary of Transportation and former Mayor of South Bend.
American Institute for Medical & Biological Engineering (AIMBE) @aimbe-official.bsky.social AIMBE is a nonprofit organization representing the most accomplished individuals in the fields of medical and biological engineering. Our mission is to provide leadership and advocacy in medical and biological engineering. https://linktr.ee/AIMBEOfficial
Paul Knoepfler @stemcells.bsky.social Professor at UC Davis studying cancer & stem cell epigenomics. I also do outreach and blog The Niche http://ipscell.com Also stem cell YouTube channel http://cutt.ly/vcsev4J STAT column https://www.statnews.com/category/lab-dish-paul-knoepfler/
Elias Sotirchos @esotirchos.bsky.social Neurologist at Johns Hopkins University. Opinions my own.
DG @deesull.bsky.social Truth and reason ⚖️ 📎
Democracy defender
Love our Earth
Don’t care at all about Mars
🐕🐕🐩🐕🦺🦮🐕🦺
🇺🇸🇺🇦🇨🇦🇬🇱
Anonymous @youranoncentral.bsky.social #Anonymous: Actions Not Nouns. All that exists is interaction. #BindingChaos #3E https://yacnews.com/
Rob F. @rfaulst.bsky.social 
Derek Lowe @dereklowe.bsky.social Medicinal chemist / chemical biologist, author of “In the Pipeline” at http://science.org/blogs/pipeline. derekb.lowe@gmail.com and on Signal at Dblowe.18
All opinions are mine; I don’t speak for my employer in any way.
Indy Auntie @indyauntie.bsky.social Aunt. Dog mom. Biz owner. News junkie. Interests: cities, culture, faith, centrist politics, travel, whimsy. I don't repost profanity or articles I haven't read.
RJ @rjooh.bsky.social ALS Advocate and Volunteer 💙
ALS United Greater New York @alsofgny.bsky.social We provide local, on-the-ground services to patients and families living with ALS throughout the Greater New York area, including New York City, Long Island, lower and mid-Hudson Valley, and northern and central New Jersey. als-ny.org 
U.S. Food and Drug Administration @fda.gov Yes, it’s really us!
Our posts are FDA-approved!
Visit us at https://www.fda.gov
The Parkinson's Foundation @parkinsondotorg.bsky.social The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community.
Parkinson.org
Brain @brain1878.bsky.social Brain has published landmark papers in clinical neurology and translational neuroscience since 1878. 
Alt CDC (they/them) @altcdc.altgov.info Public health experts resisting harmful policies, fighting disinformation, and defending public health from within.
Not official CDC—but close enough for transmission.
Proudly #AltGov
Tips? signal altCDC.99, email altCDCtips@proton.me or DM
Charles Gaba ✡️ @charlesgaba.com Healthcare data analysis, advocacy & snark.
I also raise money for Dems.
🏥 https://ACASignups.net
🔵 https://Blue26.org
My Name'5 Doddie Foundation @mndoddie5.bsky.social Our vision: a world free of MND 💙💛
Sancha Brody-Stalker @sanchabrodystalker.bsky.social Communications Officer - Research, Motor Neurone Disease Association
@mndassoc.bsky.social
@mndresearch.bsky.social
Susan 🌻💙🌊🌎🌳🐄🐖🐑🐓 @susancr.bsky.social 💙 Liberal Democrat in PA 🌊 | Vegan 🌻| Equality for All | Climate Crisis | Animal Rights | a Caregiver to My Son Suffering w/ALS | Philly Sports | Pink Floyd | LOTR | Cat Lover | Fuck Trump-MAGA-ICE 🤬 | Impeach-Convict-Remove the Criminal-in-Chief
Gary Swergold MD, PhD @gs314.bsky.social Husband, Father, GrandFather, Scientist, physician, Translational Medicine & Drug Development, Clinical Trial Design, Int Med, Geneticist, photographer, woodworker
You can purchase my photos at:
https://garyswergold.smugmug.com
Theneueargumentclinic.com
Catherine Rampell @crampell.bsky.social Economics editor at The Bulwark. MS NOW (formerly MSNBC) anchor.
Previously WaPo op-ed columnist and NYT reporter.
Econ, politics, immigration, tax, etc. + occasional theater nerdery.
Dr. Rabbithole @drrabbithole.bsky.social Scientist, mom, creator, nerd.
"held under these smothering waves, by your cold and thick-veined hand. But one of these days, I'm gonna wriggle up on dry land" -John Darnielle
Signer of the Bethesda Declaration.
Views are my own
Dimensions @dimensions.ai We make finding and interpreting global research data fast and simple.
MeidasTouch @meidastouch.com The fastest growing independent news network in the world. We cover breaking news, politics, law and more. We are unapologetically pro-democracy.
Hoarse Whisperer @therealhoarse.bsky.social Father, writer, photographer, drinker of Guinness. 
Buffalo Sabres @sabres.com The official Bluesky of the Buffalo Sabres.
#LetsGoBuffalo | #sabrehood
Carol Tutzauer @tutzauerc.bsky.social Cat caregiver, TNVR advocate, lover of Democracy & the US Constitution
Association of Academic Leaders of Neurology (Formerly AUPN) @aaln-leaders.bsky.social Formerly the Association of University Professors of Neurology (AUPN), AALN empowers those shaping the future of neurology through connection, shared wisdom, and transformative leadership development.
Visit aaln.org to learn more.
Spartan Girl @ninaascencio.bsky.social Someone living with ALS
Rosa HP Sca @rosca26.bsky.social Postdoc'ing @WashU 👩🏻🔬 AHA fellow 🫀
Rare musculoskeletal diseases & ion channels🔬
Bookworm 📚 avocaddicted 🥑 4strings lover 🎻
📍🇺🇸 🇫🇷 🇨🇱 | 🇮🇹
Yuri Quintana @yuriquintana.com Chief Clinical Informatics @ BIDMC & Faculty Harvard Medical School, Chief of @DCINetwork.org #MedicalInformatics #AI #DigitalHealth #MobileHealth #LearningHealthSystems
https://www.LinkedIn.com/in/yuriquintana
http://www.yuriquintana.com
Melissa Rayhill, MD, FAHS, FAAN @melissarayhill.bsky.social Neurologist, Headache doc, Vice Chair for Education, Residency Program Director, reluctant dance/soccer mom, and member of Bills Mafia
Dr. Sanjeevani Arora @dr-arora.bsky.social Posts= my own opinions, Likes\Reposts not an endorsement.