Amy Lavallee @amylavallee.bsky.social Young-Onset Parkinson's warrior (#yopd) and super mom. Works as the Parkinson's community liaison at the Brian Grant Foundation
https://briangrant.org/amy/
https://briangrant.org/test-digital-story/
Tams the Elder @tamstheelder.bsky.social Mom. Recovering career public servant. News junkie. Wiccan Crone. Animal lover & hound mom/foster mom. Sadly allergic to cats. Parkinson’s warrior.
Social media neophyte. NO: DMs, porn, crypto/investments/donations.
Brandi L @witchybrandi.bsky.social Oregonian, disabled small business owner, mom of teens, wife, capitalist consumer waste pirate 🏴☠️ forest witch 🧙🏻 Liberal AF—the Dems are NOT liberal enough for me 🤷🏼♀️ I’m a Gen X Crone with ADHD and Early Onset Parkinson’s; NO random DM’s, NO CRYPTO/MAGA!!!
Minister Denzil Carnegie @lloydmill.bsky.social 🇨🇦 🍁 🇨🇦 Faith Family Outreach Ministry focuses on sharing the good news of salvation to all nations Jesus Christ teaching on repentance and forgiveness of sins to all nations Toronto Ontario Canada 🇨🇦 ♥️ ❤️ 💙
Geoffrey geoff @geofferygeoff.bsky.social Non Trump person
Like news and goofing off
Recovering cartoonist
Celebrated pundit
Chef extraordinaire!!
Twitter refugee
Kristi LaMonica, PhD @kristilamonica.bsky.social Cell and developmental biologist and department chair with young onset Parkinson’s (YOPD). DBS in May 2024.
Jools @jools4773.bsky.social Tory hating 50 something , full respect for the overworked nhs! ..and farage is a fanny !
Fan girl of holding absence and kings of leon!
Deb the Hermit @debthehermit.bsky.social You’re “friendly” neighborhood hermit. Dog lover, mom, and political junkie. I love photos of nature. I just never get out in it to take them anymore. 😢 I am prone to typos as I have a disorder called Essential Tremor. I’m a big mess!
Disciple of Marcus Aurelius @stoicveteran.bsky.social Army Veteran (OIF), Defender of Democracy,
Warrior for Truth, love all fellow human beings.
Anti Facist, Son of Odin, Defend the US Constitution against all enemies foreign and domestic.
Diboba1 @diboba1.bsky.social Wife, mother, grandmother, and great-grandmother. True blue Aussie. Disgusted in what Trump has done to America. Please no DMs.
Michelle Cini @mmccini.bsky.social Retired academic. Living with Parkinsons. Bristol. Enjoys reading and writing. Studies the EU. Currently working on post-Brexit UK subsidy policy.
Laura Xavier @lauraxaviermd.bsky.social Movement Disorders fellow @WashUNeurology | alumnus @UNCneurology | @SimonyanLab @harvardmed 👩💻| @pucrs MD 🩺| Brain Imaging | #NeuroEthics⚡️🧠🔬 Gaúcha 🇧🇷
Fargo in OK @kukini.bsky.social Social justice advocate. Blue dot in a red state. 🏳️🌈 Avid reader, runner, cyclist, hiker, tree-hugger, science-lover, painter. Tired, but not retired.
Seeking to build and create.
@7linelady.bsky.social @7linelady.bsky.social 
Bridget Ryan @bridgeto.bsky.social Retired. Now caretaker for my wonderful husband who has Parkinson’s.
Sara Riggare, PhD @sarariggare.bsky.social Swedish patient researcher living with #ParkinsonsDisease. #Spetspatient #QuantifiedSelf #PersonalScience #CitizenScience Uppsala University
https://www.riggare.se
https://www.spetspatienterna.se
Allie Signorelli @alliesiggy.bsky.social Young Onset Parkinson’s Patient & Advocate | Writer | Storyteller | Mildly Funny | Always Feisty | Tragically Hopeful
Aligning Science Across Parkinson's @asapresearch.parkinsonsroadmap.org Global initiative to accelerate Parkinson's disease research. Programs include GP2 and CRN. Managed by the Coalition for Aligning Science and part of the CNS Quest.
parkinsonsroadmap.org
@yopdtv.bsky.social @yopdtv.bsky.social 
Graeme Masson @graememasson.bsky.social Winning some and losing some v #Parkinsons. 49ers, Aberdeen FC, only listen to bands beginning with “R”…REM, Radiohead, Rush.
I swear. A lot.
@martinhmfc.bsky.social @martinhmfc.bsky.social 
Rory Cellan-Jones @rorycj.bsky.social Technology, Parkinson’s, #sophiefromromania
Phil Jerky @philjerky.bsky.social Tall, beardy, stand-up comedian with Young-onset Parkinson's based in Brum. All views expressed are my own.
The Science of Parkinson's @scienceofpd.bsky.social Personal account of the Director of Research at Cure Parkinson's - All views my own - Kiwi - Kia kaha - 侘寂 - https://scienceofparkinsons.com/
Rachel Reid @rachelreidwrites.bsky.social Author of the GAME CHANGERS series and TIME TO SHINE. New book: THE SHOTS YOU TAKE out March 4, 2025. Living that Early Onset Parkinson’s life in Nova Scotia. she/her
Parkinson's Europe @parkinsonseurope.bsky.social 🌷The leading voice for #Parkinson's in Europe since 1992
🌷Supporting the 1.2m Europeans with #Parkinsons and their families
🌷Founder of #WorldParkinsonsDay
Spitfire, PhD @spitfirephd.bsky.social Neuroscientist
Stella’s mom and professional photographer 🐶
Scuba diver 🤿
Views: mine 🧿
Ellie @pdmama.bsky.social From the mighty North East, living in Surrey. Mother of 2. Dx #yopd 2013 aged 29. DBS Jan 2024, removal June 2024. Re-implantation imminent...
Matt Eagles @matteagles.bsky.social Parkinson’s for 50 years, positivity activist ⚒️lifelong Hammers fan
Pete Langman @elegantfowl.bsky.social Writer, editor, historian, cricketer and Parkinsonian. YOPD, OED, PhD. Co-author of Spycraft. petelangman.com
Paula Croxson (she/her) @paulacroxson.bsky.social Neuroscientist & science communicator. President at @stellatecomms.bsky.social, Senior Producer for @storycollider.bsky.social, musician and open-water swimmer.
Rickety Warrior @ricketywarrior.bsky.social 60-year-old Parkinson's Warrior diagnosed in 2018. Parkinson's advocate and volunteer. Devoted husband of @HelenJane369
#parkinsons
#parkinsonscommunity
#pdcommunity
Sarah_says_hi @sarahsayshi.bsky.social Retired teacher, l love my family and friends, poetry, art, writing, and Mother Nature.🌸 Supporter of peace, love, and caring for each other and the planet.💗 English/Dutch. ⚡️⚡️PD makes life a big challenge at times. Still grateful 🙏
Grove Ayers @groveayers.bsky.social Amalgamist
Stage 2 Chronic Volunteerism
Living on my feet, 12 words at a time.
Keep Moving.
nwpf.donordrive.com/team/5157
Tara Spires-Jones 🌈🔬 @tspiresjones.bsky.social Neuroscientist. 🧠
Professor at the University of Edinburgh
Past President of the British Neuroscience Association
FENS-Kavli Network Alumna
Mom to 2 teens, a cat, and a rescue dog. 🐈⬛🐕🐾
SciFi/fantasy nut - book recommendations welcome! 👽🚀🛸
Lushlobster @lushlobster.bsky.social Beermonster
Pro-Europe
Anti-Corrupt Tories. Anti-Hunting.
Cancer & Parkinsons advocate
2024 and still no social care provision
Wulalowe☘️ 🇺🇸 🇮🇪 🇦🇺 🌎 Science and Justice Matter ⚖️ @wulalowe.bsky.social Liberal Irish Catholic, former ranger / wildland firefighter now battling fascism. Wilderness / wildlife advocate, dog dad, #Parkinsons #YOPD #MLB #Mets #Baseball #BlueCrew #NeverTrump #Resist #FBR
🚫MAGAts
Helen Jane 🪷 @helenjane369.bsky.social 🧘♀️ ♻️ 📚 🧶 🎗️ Parkinson’s community advocate & devoted wife to @RicketyWarrior.
#parkinsons
#parkinsonscommunity
#pdcommunity
Annie Hickox @dranniehickox.bsky.social Clinical Psychologist, Neuropsychologist, PhD (Neurosciences).
Therapist in private practice.
I blog on Medium about mental illness, families, mental health shaming and stigma.
My blogs: https://medium.com/@anniehickox
Graham Jackson @grahamjackson.bsky.social Living a full life with Parkinson's in Shropshire UK. Retired Physics and chemistry teacher. Love fell walking in the Lake District.
Floyd Skloot @floydskloot.bsky.social Married to Beverly Hallberg. Author of 21 books-poetry, essays, memoirs, and fiction. Father of NYT bestselling author Rebecca Skloot. #Parkinsons diagnosis 2018. "Dancing in the Cosmos: New and Selected Poems" LSU Press Fall 2025 floydskloot.com
Beverly Hallberg @bbplover.bsky.social PNW Birder, Artist. Married to author @floydskloot.bsky.social who has #Parkinsons, Stepmother to NYT bestselling writer Rebecca Skloot.
seffalopod @seffyg.bsky.social sometimes a melody is louder than a shout
Kevin Quinn @kevq.bsky.social Mainly visual stargazer/takes the occasional phone snaps. Has Parkinson's. Has written a few astronomy/stargazing & sci-fi books : https://tinyurl.com/y3jpm9wt
allparkedout @allparkedout.bsky.social 
Shaky Wombat @shakywombat.bsky.social YOPD Game dev,
Bonnie Ferrante @bonnieht.bsky.social Writer. Retired teacher & Lay Buddhist Leader. XX. INFJ. LFL. Parkinson's, arthritis, osteoporosis. Wife, mother, Nana, step-mom, auntie. North Canada. Vegetarian. YouTuber. No DMs. 🇨🇦❤️🇺🇦
Puckfarkinsons @puckfarkinsons.bsky.social Sort of blogging about life with young onset Parkinson's disease (amongst other stuff)
www.puckfarkinsons.uk
Latest fundraising: https://www.givewheel.com/fundraising/5606/100-mile-grand-slam-thats-4-x-100-miles/
Marie McNeely @phdmarie.bsky.social Interested in all science, but particularly neuroscience and neurorehabilitation!
Science communicator, consultant, & podcast host (People Behind the Science, Neurorehab Resources and Insights, The Anti-Doping Podcast).
Joe @dempseytwo.bsky.social Observer of things. Writer of words. Thinker of thoughts. These are them. For Justice, Democracy, voting rights, neurology, pugs. Truth is an objective standard of reality.
Feel free to browse. I read the documents.
Deena @momfisch3.bsky.social Living with #Parkinson’s/ Disciple of Jesus/ Wife/Mom/ Grandma/ Reforming
Couch Potato/ Peds Dental Assistant/Dog lover/ Interested in helping others traverse medical journeys
Caroline Nettekoven @carobellum.bsky.social ✨Cerebellum✨, Neuroimaging, Brain Stimulation, ML & NLP
Wellcome Early Career Fellow at University of Oxford 🇬🇧
Formerly Postdoc at Western University 🇨🇦 & University of Cambridge 🇬🇧
PhD at University of Oxford 🇬🇧
https://www.caroline-nettekoven.com
Alfonso Fasano @alfonsofasano.bsky.social Professor of Neurology, University of Toronto, Mov Disord Centre, Toronto Western Hospital, Krembil Brain Institute
Twitter exile
Veerle Visser-Vandewalle @vvvcologne.bsky.social Head of the Dep. of Stereotactic and Functional Neurosurgery of the University Hospital Cologne, Germany. Passionate about DBS for movement, psychiatric and cognitive disorders.
Maximilian Friedrich, vertigologist @vertigologist.bsky.social Neurologist and Neuroscientist studying movement and balance through the lens of computer vision, neuroimaging and neurostimulation. @University Hospital Ulm by way of @braincircuits.bsky.social
Wolf-Julian Neumann @julianneumann.bsky.social Associate Professor für invasive neurotechnology, interested in dopamine, brain signal decoding and connectomics. Reach me electronically via @charite.de but add julian.neumann before that.
Charité - Universitätsmedizin Berlin
Opinions my own.
Kara Johnson, PhD @karaannjohnson.bsky.social Assistant Professor in BME & Neurosurgery @utah.edu | Former Postdoc
@UF | @NIH_NINDS K99/R00 | Neuromodulation 🧠⚡️ + Neuroimaging + Psychiatry + Movement Disorders
Martijn Arns @martijn-arns.bsky.social Brainclinics Foundation | Applied Neuroscientist | TMS | Psychedelics | Neurofeedback/BCI | Depression | Heart-Brain Coupling | Stratified Psychiatry | ADHD | Sleep | Chronobiology | Marathon running | Guitar |
Sarah Heilbronner @srheilbronner.bsky.social nonjudgmental neuroanatomist
https://sites.google.com/view/heilbronnerlab
Jonathan C. Lau @jclauneuro.bsky.social Neurosurgeon. Anatomy • Informatics • Modulation • Surgery. AIMS Lab.🧠🎯
Collaborative Medicine. Collaborative Science. Multisport.🏊🚴🏃
https://jclauneurolab.io
Alik Widge @alikwidge.bsky.social Neural engineer, stealth mode neuro-entrepreneur, interventional psychiatrist, sometimes neuroscientist, dad. Making brains work better.
https://www.tnelab.org
Rimona Weil @rimonaweil.bsky.social Neurologist and Neuroscientist trying to understand how dementia happens in Parkinson's
Sergiu Groppa @segroppa.bsky.social Professor and Director of #Neurology, Saarland University, Germany
www.uks.eu/neurologie
Alberto Espay @albertoespay.bsky.social Neurology professor at the University of Cincinnati, an advocate of precision and rescue medicines for Parkinson's & Alzheimer's. Author #BrainFables.
Till Dembek @tilldembek.bsky.social Clinical Neuroscientist focussed on Deep Brain Stmulation | Based in Cologne
@ckidder.bsky.social @ckidder.bsky.social Blue Ohio native. Love crochet. Parkinson’s warrior!!!
James Boxall 🇨🇦🍁 @jamesgis.bsky.social Geography/GIS educator FRCGS FRGS ClimateSci | Adj.Prof. Dalhousie Marine Affairs Program | QE2PlatMedal |Semple GeogEd Award Apoplectic vs. adorable Shot 67. Addicted to books, CBCIdeas & Space COYI WHU I Shake a lot Parkinsons.ca Mi’kma’ki (Nova Scotia)
Jorrit Hoff @youreit.bsky.social Neurologist with interest in Parkinson's disease and related movement disorders 
Emma Edwards @cllremmaedwards.bsky.social Councillor for Bishopston and Ashley Down and Green Group leader on Bristol City Council. Transport geek. Loves trams and dogs. She/her
Don Kelly @dkindc.bsky.social PD Dx 2016 (selective in following people due to time constraints)
"..the symptom of gastroparesis in a Parkinson patient is delayed onset of a dose of levodopa." https://www.neurologylive.com/view/effects-of-gi-dysmotility-with-parkinson-medicati
Ali Turnbull @parkytracks.bsky.social Writer, #Parkinsons 6 years, tackling with fresh air, #exercise, music, humour and fabulous support from family and friends www.parkytracks.com #BuryStEdmunds #NeuroHeroes #ParkinsonsExcellenceNetwork
Sgrace @sin-gra.bsky.social Lawyer living with yopd since 2023 but symptomatic for at least 5 years prior. Trying to slow it with exercise cold plunging - anything that might !
@hititwiththerock.bsky.social @hititwiththerock.bsky.social Siren symphony (911 police dispatcher). Young Onset Parkinson’s since 2020. Cold water plunger. #yopd #parkinsons #iam911
TomP @docpesky.bsky.social Worked in sports. Most enjoy talking about the beautiful game, sports in general, music and family. Parkinson’s knocks us down often but we get back up each time (with a lot of help). #YNWA
🎶MM🎶 @mysticalmadness.bsky.social 🔵☮️🏳️🌈🌳🏳️⚧️🟧♾️
I 🩷 all things music, film, TV, photography, animals, nature, & politics (liberal). I have 40+ chronic health conditions, many of which cause chronic pain. ♿️ #MusicSky #SoberSky
Ian Weissman, DO @drianweissman.bsky.social Radiologist @DeptVetAffairs #AdvocatingForPatients #PublicHealth #Activist @RadiologyACR and @RSNA #Leadership http://www.linkedin.com/in/ianweissmando
Aaron L Wong @aaronlwong.bsky.social Motor control neuroscientist, Jefferson Moss Rehab Research Institute. Motor planning, learning, and cognitive-motor interactions. https://www.jefferson.edu/academics/colleges-schools-institutes/skmc/departments/rehabilitation/faculty/wong.html (he/him) 🏳️🌈
Ren Kiff @renintheredwoods.bsky.social Living my best life in the magical redwoods. Follow NorCal fire in summer, flood risk in winter. Love huskies & shibas, former foster dog parent. YOPD dx in 2011, DBS (deep brain stimulation) in 2017
🌩️👀 C2riuxWYgyFk
Barbara Salsberg Mathews @salsbergmathews.bsky.social Artist, Educator, Mom, Parkinson’s Advocate
Pat Oddy 🇪🇺📚📻🎙️ @rossaverde.bsky.social Politics (red/green) Convinced Remainer. Enjoy reading, particularly crime fiction and C19th literature. Love Italy and Yorkshire. Can get ranty about car culture. Have Vasculitic neuropathy and Parkinson’s #facciamorete Born 310ppm
Allison Day @sushiday.bsky.social bookish. occasionally cookish. eternally tired.
https://sushiday.substack.com/
Alison Day @atday.bsky.social Professional Engagement Lead at Parkinson's UK. Views are my own.
Here for dogs, books, travel, cinema, comedy, theatre, sewing... the list goes on...
@kchipps78.bsky.social @kchipps78.bsky.social Rescue mutt mom, Parkinson’s warrior, Democratic strategist & Beatles fan.
Nick Cole @nickc01.bsky.social Lover of Battenburg Cake, dopamine deficient, retired nurse
Chardcore @charware.dev 42/trans /poly /gamer /metalhead /queen of the magnets disabled (young onset parkinsons) AI music creator Minors DNI
Chardcore is a retro gaming creator focused on speedrunning, TAS, video game-inspired music and game design.
https://linktr.ee/chardcore
World Parkinson Congress @worldpdcongress.bsky.social Only global meeting to include ALL members of the Parkinson's community. #WPC2026 #parkinsons #neurology #neuroscience BLOG: http://worldpdcongress.org
Dr Poonam Thakur @poonamthakur.bsky.social Assistant Professor at IISER-Thiruvananthapuram, India. Working on the neurobiology of Parkinson's disease using mouse models. https://sites.google.com/view/thakurlab/home
Benjamin Stecher @benjaminstecher.bsky.social Associate Director of the Silverstein Foundation for Parkinson's with GBA as well as Chair of the Patient Advisory Board to Rune Labs.
Don Gilbert @gilbertpedneuro.bsky.social Pediatric neurologist, movement disorders specialist, educator, researcher
Arthur Buijink @arthurbuijink.bsky.social neurologist // movement disorders // deep brain stimulation @ Amsterdam UMC
David aka intenseCA @intenseca.bsky.social Clinical research on neg effects of #dopamine agonists on #Parkinson’s, #DBS patient, #polyglot x4, #TheoreticalPhysics #astrophysics, Save #Chandra 🇮🇱 🇦🇺🇨🇦🇺🇸 #FBPE #gay #Sondheim, Not a fan of #biologic meds, 💙 ✡️ Am Yisroel Chai
Raphaella So, PhD @raphaellaso.bsky.social she/her
👩🏻🔬 Parkinson’s disease/alpha-synuclein researcher.
📍 University of Toronto, Canada.
💃 Hobby dancer, 🐹 hamster mom.
📺 Enjoys Korean/Japanese/Chinese dramas.
🎵 Stray Kids, GFRIEND, VIVIZ, Kickflip.
Views my own!