@jamesmurrayldn.bsky.social @jamesmurrayldn.bsky.social 
Publer @publer.com Schedule your Bluesky posts with Publer!
💚 Social Media Management Platform for Bluesky, Threads, Mastodon, Instagram, Facebook, TikTok, X, LinkedIn & more!
Learn more: linkie.bio/publer
PANS PANDAS UK @panspandasuk.bsky.social UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.
UK Health Security Agency @ukhsa.bsky.social Official feed of the UK Health Security Agency (UKHSA) providing regular news updates on the work of the organisation.
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
Dialogues ME/CFS @dialoguesmecfs.bsky.social https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history. 
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
#MillionsMissing Sweden @millionsmissingswe.bsky.social #MillionsMissing is a global campaign for ME health equality!
https://meaction.net
#MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
Millions Missing Podcast @millionsmissingpod.bsky.social Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: millionsmissingpodcast@gmail.com / linktr.ee/millionsmissingpodcast
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Putrino Lab @putrinolab.bsky.social 
George Monbiot @georgemonbiot.bsky.social Ungainly on land
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
STAT @statnews.com Reporting from the frontiers of health & medicine.
Explore all of our newsletters here: https://www.statnews.com/signup/
Long COVID Justice @longcovidjustice.org We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Clean Air Classrooms #CleanAirForLife @cleanairclassrm.bsky.social #CleanAir #IndoorAirQuality #HealthyLearning
#N95 #VaccinePlusPlan #CO2Monitor
#DisabilityAccess
Allied Health & Building Profession Led
Founder @mishwoz.bsky.social
Information for UK schools & parents
https://tinyurl.com/CleanAirClassroomResource
Dysautonomia International @dysautonomia.bsky.social We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
Workwell Foundation @workwellfoundation.bsky.social #Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Millions Missing France @millionsmissingfr.bsky.social Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social Billboard campaign/fundraiser here
https://www.notrecovereduk.org
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
ME Advocacy Project @meadvocacyproject.bsky.social The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Karen Hargrave @karenlhargrave.bsky.social Co-founder ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Frances Ryan @francesryan.bsky.social Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? (paperback out now) and Crippled.
E: frances.ryan.freelance@guardian.co.uk
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
UniteToFight @unitetofight.bsky.social LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
Douglas Kell @dbkell.bsky.social Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/. 
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Long COVID Physio @longcovidphysio.bsky.social #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Resia Pretorius @resiapretorius.bsky.social Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
Jim Reed @jimreedbbc.bsky.social BBC health reporter covering the Covid inquiry and all things health (and a bit science) really.
Ashley Dalton MP @ashleydaltonmp.bsky.social Labour MP for West Lancashire, email casework to ashley.dalton.mp@parliament.uk | Living with metastatic breast cancer
🔗www.ashleydalton.uk
Instagram: @ashleydalton_mp
Facebook: @AshleyDaltonLabour
David Gregory-Kumar @drdavidgk.bsky.social Dad. Husband. Reporter. I work for the BBC based out of Birmingham. Focused on Environment/Science & Rural Affairs. Cargo bike rider. PhD/DSc. RTS reporter of the year.
www.bbc.co.uk/davidgregorykumar
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Helen Ward @profhelenward.bsky.social Prof Public Health Imperial College. she/her. Social, genetic & environmental factors in health. Research & advocacy in long COVID, STI/HIV, inequalities. Patient Experience Research Centre
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
#MEAction Scotland @meactionscotland.bsky.social 
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Swifts and Swallows @swiftsandswallows.bsky.social My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day 
Janet Sylvester @janetsylvester.bsky.social Daughter with ME since 2012. Volunteer with #MEAction UK and #MEAction Scotland. Views are my own. 
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
@susiewo.bsky.social @susiewo.bsky.social Biomedical Scientist before virus in 97’ triggered ME; a body that no longer worked, lost job I loved. Supporting campaigning for change, for proper diagnosis & management #ME/CFS https://youtu.be/RiwX9Y0NbiQ
Sarah @no1sarah.bsky.social She/her.
♿️
🏳️🌈🏳️⚧️ ally
In healthier times: Health & social care; homelessness & housing.
Music, music, music. 🎶
Mostly here to connect with
#LongCovid
#MECFS
#ChronicIllness
#Dysautonomia
#hEDS
#MCAS
Kent, UK
@dspreag.bsky.social @dspreag.bsky.social 
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app