Charlie Hillier @charliehillier.bsky.social Science, Molecular Biology, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Georg Schomerus @geschom.bsky.social Psychiatrist, stigma researcher, w/ special interest in time trends, SUD Stigma, and Long COVID/ ME/CFS stigma. Chair of Psychiatry at Leipzig University. Opinions are my own @MHandsociety.bsky.social
Ona Albizu - PhD MSc BD @onaalbizu.bsky.social Empowering persons w Myalgic Encephalomyelitis. 35y w/ME
Colab at ONG PEM Spain, ME-International.org, EMEA
ICPrimer our best tool.
#UniteToFight2024
Empoderando a #pcME. El Manual-CI nuestra mejor herramienta.
Informando ME, MCAS, ANPE, LC
Christopher A. Baker @bakermind.bsky.social Firstgen Scientist in Yale Center for Infection and Immunity using imaging and transcriptomic technologies to alleviate pain in long COVID and similar syndromes.
Liz Worthey @lizworthey.bsky.social #AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected
sites.uab.edu/cgds/ she/her
Johan Van Weyenbergh @johanvawe.bsky.social Immunologist curious about viruses, cancer, evolution and all things human
Likes all #systems thinking and still working out all the #omics 🤓
#immunosky #medsky #idsky
Emily Mendenhall @emendenhall.bsky.social Editor-in-Chief of Science Politics, Anthropologist and Professor, Director of STIA, Author of Invisible Illness, Guggenheim Fellow
Marc Veldhoen @marcveld.bsky.social Professor of Immunology 🇳🇱 🇬🇧
Lisbon, 🇵🇹
#Immunology
Time for Science, not silence
https://scholar.google.co.uk/citations?user=7vG1jLIAAAAJ&hl=en
https://orcid.org/0000-0002-1478-9562
threads.net/@marc_veld
https://buymeacoffee.com/mveldhoen
Dada Pisconti @dadapisconti.bsky.social I wanted to be a singer, ended up being a scientist. Muscle growth + regeneration | satellite cells | muscular dystrophy | ME/CFS 💪🐭🐔🧪🧬🧫🔬
"Well-behaved women seldom make history"
https://you.stonybrook.edu/piscontilab/
derek guy @dieworkwear.bsky.social Menswear writer. Editor at Put This On. Words at The New York Times, The Washington Post, The Financial Times, Esquire, and Mr. Porter.
If you have a style question, search:
https://dieworkwear.com/ | https://putthison.com/start-here/
Hans H. Diebner @unbewegter-beweger.eurosky.social Alumnus @Ruhr-Uni-Bochum.de
Mathematical and Statistical Modelling
Interests:
- Antibiotic Resistance
- ME/CFS
- Selective Mutism
- Critique of EbM, Causality, AI
Profile Banner: Endo View of the Rössler Attractor
Audrey Ryback @aryback.bsky.social ME researcher at the University of Edinburgh.
Felicity Nelson @frogsandstars.bsky.social Award-winning freelance science & medical journalist | Bylines in Nature, Medscape, C&EN, Veritasium, ScienceAlert, The Guardian, ABC News, The Sick Times | http://frogsandstars.com (she/her)
Eugene Yan @eugeneyan.com RecSys, AI, Engineering; Principal Applied Scientist @ Amazon. Led ML @ Alibaba, Lazada, Healthtech Series A. Writing @ eugeneyan.com, aiteratelabs.com.
Yann LeCun @yann-lecun.bsky.social Professor a NYU; Executive Chairman at AMI Labs..
Researcher in AI, Machine Learning, Robotics, etc.
ACM Turing Award Laureate.
http://yann.lecun.com
Rupert Higham @ruperthigham.bsky.social 🧑🎓@UCL |⚖️Values-based leadership |✊Educational dialogue & agency | 🌍Humane intelligent responses to global threats |💕 Carer for #LongCovid-affected family
Lieven Scheire @lievenscheire.bsky.social Science and comedy on stage and on TV, in Dutch and English.
Www.lievenscheire.com
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Dorothy Bishop @deevybee.bsky.social Retired professor of psychology at University of Oxford. Interests in developmental neuropsychology and improving science. Blogs at deevybee.blogspot.com
👊 Ulrich Schimmack 👊💥 ❤️ 🇨🇦 🇪🇺 🇺🇦 👎🇺🇲 @ulrichschimmack.bsky.social Fighting for truth and ...
- Liberté, Égalité, Solidarité
- Freiheit, Gleichheit,
Gemeinsamkeit
- Freedom, Equality, Solidarity
Jack Wilkinson @jdwilko.bsky.social Centre for Biostatistics, Uni of Manchester. INSPECT-SR, a tool to identify problematic clinical trials. Research misconduct, fertility research. Own opinions.
Vincent Arel-Bundock @vincentab.bsky.social Prof. Most tweets about R. “Polisci, it’s all about what’s going on.”
http://arelbundock.com
Dave Levitan @davelevitan.bsky.social Science journalist, bylines all over the place.
Book: NOT A SCIENTIST: How politicians mistake, misrepresent, and utterly mangle science (WW Norton).
www.davelevitan.com
Sign up: www.gravityisgone.com
Hilda Bastian @hildabast.bsky.social Scientist (PhD she/her), writer, cartoonist. 🦘 Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress.com/ Mastodon enthusiast: @hildabast@mastodon.online
Astrid Meyer-Knutsen @astridmeyerknutsen.bsky.social Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
Michèle Nuijten @michelenuijten.bsky.social Assistant Professor at the Meta-Research Center, Tilburg University, NL. Interested in reproducibility, replicability, and overall robustness of psychological science. Developer of #statcheck: a spellchecker for statistics. She/her. Mom.
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Andreas Longva @andlon.bsky.social Previously: Researcher and PhD candidate @ RWTH Aachen University, now probably disabled by Long COVID.
Physics simulation, mathematics, software and science
andreaslongva.com
Tom Jackman @frozen.bsky.social Dad, ally, and keeper of digital receipts | #MECFS since 2004 | #LongCovid since 2020 | Archivist by training | 🇨🇦 by choice | @frozen in the old 🐦 country | he/him
Ioana A. Cristea @ioanaacristea.bsky.social Associate Professor @Unipd | Affiliate @METRICStanford | Scholar @FulbrightPrgrm | #Metaresearch #Openscience #Psychotherapy #Trials | @ERC_Research DECOMPOSE
https://cordis.europa.eu/project/id/101042701
Mine Doğucu @minedogucu.com teaching stats & data science by day • reading and writing stories by night • she/they/o/او • views my own • minedogucu.com • hellodata.science • datapedagogy.com • bayesrulesbook.com • ailurophile • bibliophile • cinephile
Jarrett Byrnes @jebyrnes.bsky.social marine ecologist, online bon vivant, dad, ❤️ teaching #datasci & #rstats, http://celp-lab.org #BlackLivesMatter @jebyrnes in other places https://linktr.ee/jebyrnes
Danielle Navarro @djnavarro.net occasionally reasonable
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Peter White @mediumwhite.bsky.social Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
elle carnitine 🪳 @ellecarnitine.bsky.social immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
Lisa McCorkell @lisamccorkell.bsky.social formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Alexis Gilbert @alexisme.bsky.social Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
Malte Elson @malte.the100.ci Professor at @unibe.ch
Meta Science ⸾ Science Trustworthiness Assessments ⸾ Research Methods ⸾ IT Security & Privacy ⸾ Technology Effects ⸾ Research Memes
https://the100.ci & @error.reviews
Ruben C. Arslan @ruben.the100.ci Bayescurious evidence enthusiast at the100.ci
Topics: evolution, ovulation, mutation, intelligence, personality, sexuality, R, open science & source tools. https://rubenarslan.github.io/
Giada Da Ros @giadadaros.bsky.social
Jennie Jacques @jenniejacques1.bsky.social Donate to Justice For ME here if you can please 🙏 💙🦋
https://shorturl.at/x1Vyx
Neuroskeptic @neuroskeptic.bsky.social
Cheshire @thatsregrettab1.bsky.social @Thatsregrettab1 on Twitter
👉 Not a scientist, just a nuisance 👈
Named: ‘Perpetrator 1’ by @sciguardians.bsky.social
CheshireGrins@protonmail.com
Kevin Patrick IRL
Stuart Ritchie @stuartjritchie.bsky.social
Uri Simonsohn @urisohn.bsky.social Pragmatic methodologist and behavioral scientist at Esade business school. Barcelona
website: https://urisohn.com
Blog: https://DataColada.org
Nick Brown @steamtraen.eu English/Irish/EU in Spain. PhD in psychology & self-appointed data police cadet. Interested in the lower tail of many distributions. Not yet disabled.
ID confirmation: https://x.com/sTeamTraen/status/1858181372126408774
Alexander Klöpping @alexandernl.bsky.social Founder Blendle (acquired), University of the Netherlands, http://POM.show
Berna Devezer @devezer.bsky.social Metascientist @ uidaho. Behavioral sciences, stats, modeling, phil of science. Cat slave, cook, sailor (see: https://bsky.app/profile/kumrusails.bsky.social), photographer, clarinet student, adventurer, nature lover. Allergic to unsolicited advice.
Kelly Bodwin @kellybodwin.com Looking for my #rstats friends on ALL the platforms...
Karen Hargrave @karenlhargrave.bsky.social Co-founder #ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Nele @nelehelena.bsky.social I'll "tweet" here about the things I don't like if the other app goes down
Siebe @siebepersists.bsky.social Be kind
Be rational
Protect democracy
Govern AGI
Cure ME/CFS & Long Covid
Paul Bürkner @paulbuerkner.com Full Professor of Computational Statistics at TU Dortmund University
Scientist | Statistician | Bayesian | Author of brms | Member of the Stan and BayesFlow development teams
Website: https://paulbuerkner.com
Opinions are my own
Helena Klara Jambor @helenajambor.bsky.social Data Visualization in Life and Health Science. PhD biology, trained in art, Associate Prof
Writes here: https://helenajamborwrites.netlify.app/
Following science & political content, posting mainly science
Loc: Chur, Dresden, Lüneburg
David Davies-Payne @d2p.bsky.social Paediatric Radiologist, Aotearoa New Zealand
Following more immunologists than radiologists
#MECFS #LongCOVID and a bit of #MacDev #iOSDev
he/him
https://ddp.nz | https://dysimmune.nz
Cameron Patrick @cameronpat.bsky.social biostatistician @ University of Melbourne Statistical Consulting Centre. enjoyer of multiple imputation, RCTs, and DAGs. always graph your data. also runs, bikes, hikes, etc. he/him #BiInSci 🏳️🌈
https://cameronpatrick.com/
Daniel Missailidis, PhD @danielmissailidis.bsky.social Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Big Book of R @bigbookofr.com 🤖 A collection of over 400 open-sourced, free #RStats books. This bot posts a random entry every few hours. Maintained by @oscarbaruffa.com
Michael Stingl @neurostingl.bsky.social Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Tommy Siegel @tommysiegel.bsky.social i draw comics for the New Yorker and candy hearts and extremely accurate birds and you can buy my books and calendars and things over on my webstore, xoxo
www.tommysiegel.net
Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME.
35 countries. £52k raised.
Next race: Euro Country 36: Reykjavik, Iceland 🇮🇸 (22.08.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
Brian Fog @uselesspriest.bsky.social Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Dom @domsalisbury.bsky.social Energetically compromised #pwME and patient advocate (when able) · Research scientist by trade · Interested in how we live · Open-minded but generally sceptical
https://domsalisbury.github.io
Trude Schei @tschei.bsky.social ME patient advocate, architect by training
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Science for ME (S4ME) @s4me.info We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who support us.
Facts about ME/CFS:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310
Ian Hussey @ianhussey.mmmdata.io Meta-scientist and psychologist. Senior lecturer @unibe.ch. Chief recommender @error.reviews. "Jumped up punk who hasn't earned his stripes." All views a product of my learning history. If behaviorism did not exist, it would be necessary to invent it.
Allen Downey @allendowney.bsky.social Former professor at Olin College, principal data scientist at PyMC Labs, author of Think Python, and Probably Overthinking It -- blog and book -- and stark raving Bayesian.
Hadley Wickham @hadley.nz R, data, 🐕, 🍸, 🌈. He/him.
Rohan Alexander @rohanalexander.bsky.social I spend too much money on books. And too much time writing them. 🇦🇺🇨🇦.
https://rohanalexander.com
http://tellingstorieswithdata.com
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Kristoffer Magnusson @rpsychologist.com Mostly stats, visualization, open science, and psychotherapy.
https://rpsychologist.com
Thijs Zonneveld @thijszonneveld.bsky.social Journalist, columnist, duizenddingendoekje
Frank Harrell @f2harrell.bsky.social Professor of Biostatistics
Vanderbilt University School of Medicine
Consultant, clinical trials/drug development
https://hbiostat.org https://fharrell.com
Dan Lewer @danlewer.bsky.social Consultant in Public Health at Bradford Institute for Health Research. Interested in quantitative research methods and mental health
John Burn-Murdoch @jburnmurdoch.ft.com Columnist and chief data reporter the Financial Times | Stories, stats & scatterplots | john.burn-murdoch@ft.com
📝 ft.com/jbm
Tom Chivers @tomchivers.bsky.social "Far too nice to be a journalist," per Terry Pratchett. Lead writer on Semafor's Flagship newsletter. DMs open; chiversthomas(a)gmail.
Latest book, Everything is Predictable: geni.us/EIPBook
Podcast, The Studies Show: https://www.thestudiesshowpod.com
Max Roser @maxroser.bsky.social — Founder of Our World in Data
— Professor at the University of Oxford
Data to understand global problems and research to make progress against them.
Femke Nijsse @femkenijsse.bsky.social Energy modelling | Wikipedian | Solar energy, energy storage and sector coupling | Long COVID | Senior Lecturer at ExeterUni
Sean Mackinnon @seanpmackinnon.bsky.social Instructor at Dalhousie University. Personality, statistics, mixed methods
Dr Ellie Murray, ScD @epiellie.bsky.social Epidemiologist and science communicator | newsletter: epiellie.substack.com | cohost @casualinfer podcast | Causal inference for public health #epitwitter | Canadian in US 🇨🇦 | she/her/Dr
Chelsea Parlett @chelseaparlett.bsky.social Ph.D, stats lover/writer✍🏼, #statistics #scicomm #datascience #statstiktok 👩🏻💻 she/her
Dr. Kareem Carr, Ph.D. @kareemcarr.bsky.social Statistician. PhD @Harvard • Masters degree in pure math • Follow me for fun, nerdy content.
Sign up to my newsletter: kareemcarr.substack.com
Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC | Stand with Minnesota
Binita Kane @binitakane.bsky.social Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Laura de Vries @lauravictorine.bsky.social Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
Fen van Rhijn, MD @fvrhijn.bsky.social MD | rheumatology resident
#ME due to #LongCovid
Nonbinary 🌈🌈🌈🌈 | views are mine.
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Herbert Renz-Polster @renzpolster.bsky.social physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
Winston Blick @winstonblick.bsky.social #MECFS post-viral #longhauler | ally of #LongCOVID | quoter of @mecfsquotes | previously, 🚵🏼♂️ 🏂 🏃🏻🏕️ 📖
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org