Shannon Knight @shannonknight.bsky.social I write books.
Fantasy, Science Fiction, Horror
Tree watcher. First wave LC. she/her
Abolish ICE.
https://shannonknight.net
Elle Cordova @ellecordova.bsky.social A nerd at large. Writer of stuff.
Join my sci-fi book club:
http://patreon.com/ellecordova
nerd humor • space & sci fi • books
Bill Kristol @billkristolbulwark.bsky.social Editor at large, The Bulwark.
Director, Defending Democracy Together.
Host, Conversations with Bill Kristol.
Never Trump.
Beth Paint @craftymissb.bsky.social Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs.
Sierra Magazine @sierramagazine.bsky.social Environmental news, lifestyle tips, and free-ranging opinions from the editors of Sierra magazine. Follow us: https://www.sierraclub.org/sierra
Cornell Center for Enervating Neuroimmune Disease @cornellmecfs.bsky.social Collaborative #research center based at Cornell directed by Dr. Maureen Hanson encompassing a variety of projects on #MECFS. Visit our website below for more info.
https://neuroimmune.cornell.edu
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@kathleenoneill.bsky.social @kathleenoneill.bsky.social
Emerge Australia @emergeaustralia.bsky.social Not-for-Profit Organisation supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome) and long COVID.
Education | Research | Advocacy | Support Services
Website: www.emerge.org.au
Donate: www.emerge.org.au/donate/
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Stefan Hemler @stefanhemler.bsky.social historian | 1960s protest & student politics | https://lmu-munich.academia.edu/StefanHemler | #HistBav | https://histbav.hypotheses.org | Initiative #ProtectTheKids | https://LuftfilterJetzt.de/presse | https://DMZ-NEWS.eu
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Tom Gauld @tomgauld.bsky.social Cartoonist and Illustrator. My book of science cartoons, PHYSICS FOR CATS, is available now! www.tomgauld.com
Esther Wojcicki @heywoj.bsky.social
Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social Blue in Arizona, forged in the Burgh.
1elizabethtjacobs1@gmail.com
@defendpublichealth.bsky.social
https://www.defendpublichealth.org
Laura Helmuth @laurahelmuth.bsky.social Freelance writer, editor, columnist & consultant. Formerly at Scientific American, Washington Post, National Geographic, Slate, Smithsonian & Science. Past president of National Association of Science Writers. Birder.
Ludwig Cancer Research @ludwigcancer.bsky.social We fund cutting-edge scientific research across multiple Branches and Centers to better understand cancer and eliminate the suffering caused by the disease.
Benjamin Schuster-Böckler @dagams.bsky.social Group leader at the Ludwig Institute for Cancer Research in Oxford. Computational genomics and bioinformatics.
Also find me on genomic.social, a free and non-profit Mastodon instance for genomics (@bensb@genomic.social)
Disability Rights Education & Defense Fund @dredf.bsky.social DREDF is a leading national civil rights law and policy center directed by individuals with disabilities. Website: dredf.org
Edwin Park @edwincpark.bsky.social Health policy especially Medicaid, CHIP and the Affordable Care Act. Research Professor at the Center for Children and Families (CCF) at Georgetown University’s McCourt School of Public Policy.
ccf.georgetown.edu
Peter Sagal @petersagal.bsky.social I make Dad jokes on NPR and also write books and other things.
Jon Cooper @joncooper-us.bsky.social Democratic strategist. Formerly Long Island Campaign Chair for Barack Obama; Majority Leader of the Suffolk County Legislature. Gay dad of five terrific kids. Writer and producer of echoesoftheunknownpodcast.com. Coffee addict. New York/Florida. 🌴
Richard Baker @bakerart.bsky.social http://www.cambridgeartstudio.com/ https://www.flickr.com/people/bakerart/
Lifelong artist. Not actively looking for sales at present. Posting mostly older work and some new. Images copyright except for limited personal use. 🚫AI
Taylor Griggs @taylorgriggs.bsky.social Portlander, journalist, bicyclist
Writing about transportation/climate/city stuff @portlandmercury.com
tgriggs @ portlandmercury dot com
She/her
@tanyamshively.bsky.social @tanyamshively.bsky.social - M @marydimmock.bsky.social @marydimmock.bsky.social US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Emma Smith @3mm4sm1th.bsky.social Science journalist, Editorial Fellow at @sierramagazine.bsky.social
Vlad Vexler @vladvexler.bsky.social Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003.
youtube.com/vladvexler (main channel)
youtube.com/vladvexlerchat (chat channel)
youtube.com/@vladvexlerphilosophy
Chris Wexler @chriswexler.bsky.social ME/CFS, POTS, and Disautotomia triggered by Long Covid. LC since April 2020, life fully redefined by illness November 26, 2022.
Former Tech CEO & Ad Exec.
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
Congresswoman Robin Kelly @robinkelly.house.gov Proudly serving Illinois' 2nd Congressional District since 2013
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
Oregon Health Forum @oregonhealthforum.bsky.social Advancing health policy through community discourse. Learn more about our events: www.oregonhealthforum.org
https://linktr.ee/OregonHealthForum
WHO @who.int The World Health Organization (WHO) is the United Nations’ health agency, championing Health For All.
Always check the latest posts for updated advice/information.
We reserve the right to remove misinformation, spam, and hate speech under our posts.
Ashley Dalton MP @ashleydaltonmp.bsky.social Labour MP for West Lancashire, email casework to ashley.dalton.mp@parliament.uk | Living with metastatic breast cancer
🔗www.ashleydalton.uk
Instagram: @ashleydalton_mp
Facebook: @AshleyDaltonLabour
Ryan Haas @ryanjhaas.bsky.social Oregon-based investigative journalist. | Co-founder thewesternedge.media
Former OPB. Podcast producer, Bundyville, Dying for a Fight, and Hush.
www.ryanhaas.net
Tell me secrets on Signal: ryanjhaas.01
The Daily Show @thedailyshow.com Weeknights 11/10c on Comedy Central and Paramount+
allen institute @alleninstitute.org accelerating science for a healthier world
MedPage Today @medpagetoday.com Better informed, better care. #MedPageToday
Reposts, likes, and comments are not endorsements.
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
Suzette Smith @suzettesmith.bsky.social Portland Mercury culture editor. she/her. Signal @suzettesmith.66 or email suzette@portlandmercury.com, suzettesmith@protonmail.com
Alex Zielinski @alexzee.bsky.social Portland city politics reporter, @opb.org
Past lives: CA, DC, TX
📬 azielinski@opb.org
Signal: alex_zee.03
www.opb.org/author/alex-zielinski/
Julia Shumway @jmshumway.bsky.social Editor-in-chief @oregoncapitalchronicle.com , Oregon Capitol press corps president, @spjoregon.bsky.social treasurer, bookworm, cat mom, national park enthusiast.
Lisa Wood @lisaeffinwood.bsky.social -Oregon Public Broadcasting Announcer, Producer, Programming Coordinator, editor, and writer.
-KEXP Alumn
-Freelance writer, editor, voiceovers
-Writing a book about owning a food cart
-Singer, amateur sewist
*Opinions are my own*
Monica Maalouf, MD @maaloufmd.bsky.social Internist, Writer, Mother | Associate Prof of Medicine | Advocate for patients and health equity #MedicareForAll is the way
doctoredtales.com
Councilor Candace Avalos @counciloravalos.bsky.social Official account of Portland City Councilor Candace Avalos (she/ella), representing East Portland’s District 1.
🔗 More Info: linktr.ee/counciloravalos
📘 Online Policy: portland.gov/Disclaimer
#LiveFromPDXCouncil26
#LiveFromHH26
Julia Métraux @juliametraux.bsky.social Disability Reporter @ Mother Jones • jmetraux@motherjones.com • She/her • Berkeley Journalism alum • Signal: @juliametraux.49
Author page: https://www.motherjones.com/author/julia-metraux/
Free monthly newsletter: https://bit.ly/4tUXg9r
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
The Real McCoy @rippermd41.bsky.social My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@msmarquartpoetry.bsky.social @msmarquartpoetry.bsky.social
Simon Rosenberg @simonwdc.bsky.social Democratic political strategist, analyst, commentator. Hopium purveyor. More than 30 years in the fight.
My primary political home is on Substack.
Join me there too - https://www.hopiumchronicles.com/
John Fugelsang @johnfugelsang.bsky.social My book, SEPARATION OF CHURCH AND HATE, is on sale now: https://www.simonandschuster.com/books/Separation-of-Church-and-Hate/John-Fugelsang/9781668066898.
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Johnny Calcagno @morenoise.bsky.social Seattle-based musician and audio engineer of mostly trad American and related genres.
Aquidneck Island native.
Descendant of immigrants arriving in boats in 1620 and 1909.
Solidarity with, and action for, marginalized people.
Fiery hatred for fascists.
Senator Patty Murray @murray.senate.gov U.S. Senator, Washington state | Senate Appropriations Vice Chair | Working every day to help people and solve problems
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Apoorva Mandavilli @apoorvanyt.bsky.social Science and global health reporter for The New York Times
https://www.nytimes.com/by/apoorva-mandavilli
Signal: amnyt.91
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Gillian Kent @cambridgegill.bsky.social
Marisa Privitera Murdoch @marisapmurdoch.bsky.social Cuban-Sicilian-American in Scotland. Documentary filmmaker and photographer. Exhibitions: Scottish Portrait Prize, Venice Bienniale, ICP NYC, NPG Scotland: You Are Here,
Lover of rocks, mother of boys, wee wifey. marisapmurdoch.com
Insta 📷 @marisapmurdoch
Aled Thompson @aledthompson.bsky.social UK freelance illustrator and concept artist based in Wales
SAG-AFTRA @sagaftra.org SAG-AFTRA is the world’s largest labor union representing performers and broadcasters. Reposts or follows do not equal endorsements. #SagAftraMember
ACLU @aclu.org A nonprofit, nonpartisan, legal and advocacy 501(c)(4) organization. Visit our site for more about us and our affiliated organization, the ACLU Foundation.
Jeremy Jeffs | photography & documentary @jeremy-jeffs.bsky.social Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online
Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health.
https://linktr.ee/jeremyjeffs
Julianne McShane @juliannemcshane.bsky.social Reporter @ms.now 📰 | Email: julianne.mcshane@versantmedia.com | Signal: jmcshane.19 | https://www.ms.now/author/julianne-mcshane
Jonathan Bach @jonathanmbach.bsky.social Housing reporter for The Oregonian
"High Desert, Higher Costs: Bend and the Housing Crisis in the American West" (OSU Press) https://tinyurl.com/mrx84282
Banner photo: Molly J. Smith Photography
Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME.
35 countries. £52k raised.
Next race: Euro Country 36: Reykjavik, Iceland 🇮🇸 (22.08.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
Oregon Attorney General Dan Rayfield @agdanrayfield.bsky.social Oregon’s Attorney General. Fighting for working families, keeping communities safe, and defending Oregon’s values every day.
Senator Sara Gelser Blouin (Oregon) @sensgb.bsky.social Oregon State Senator
Human Services Chair
Disability and youth rights advocate
Tina Kotek @tinakotek.bsky.social Oregon Governor. Committed to building a better future for all Oregonians.
https://www.tinafororegon.com/
Dacia Grayber @djgrayber.bsky.social Oregon State Representative. Union Firefighter. Mom. Likes lifting heavy things, running far, nerdy policy. Personal account.
Resolute sin of empathy practitioner.
Carlos Fuentes @carlosfuentes.bsky.social Proud Portlander. State politics reporter for The Oregonian
Jeremiah Hayden @jeremiahhayden.bsky.social News reporter at @portlandmercury.com
Sometimes @theguardian.com
Also in Street Roots, The Nation, more.
Mike Rogoway @rogoway.bsky.social Business writer, The Oregonian
Alex Baumhardt @alexbaumhardt.bsky.social Journalist covering environment and education @oregoncapitalchronicle.com, part of @statesnewsroom.com
Shane Dixon Kavanaugh @shanedkavanaugh.bsky.social Reporter at The @Oregonian | Priors: @nydailynews @crainsnewyork| Holler: skavanaugh@oregonian.com
April Ehrlich @aprilehrlich.bsky.social Environment reporter @opb.org in Portland, Oregon. Wildfires, forests, public lands, wildlife, pollution. She/her. aehrlich@opb.org Signal: aprilehrlich.10
Chris Murphy @chrismurphyct.bsky.social U.S. Senator from Connecticut.
Jacob Soboroff @jacobsoboroff.bsky.social host of @connectwithjacob.bsky.social. weekends 10AM ET on @ms.now. author of NYT bestsellers Firestorm and Separated.
jacobsoboroff.com
Doug Emhoff @douglasemhoff.bsky.social Devoted dad. Lawyer. Proud husband to @kamalaharris.com.
Sue Poncin @sueponcin.com After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Gov. Bob Ferguson @governorferguson.bsky.social Governor of the State of Washington
David Kaufman @kaufmanmd.bsky.social Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup.
Bridget @brid41.bsky.social Chair, #MEAction Maryland
@meactmaryland.bsky.social
https://linktr.ee/meactmd
adolescent onset #MECFS, #LongCovid, #POTS, #dysautonomia, #MCAS, CPT2, #migraines, #PostHerpeticNeuralgia, #TrigeminalNeuralgia, recurrent #shingles
Howard Silverman @hsilv.bsky.social waymaking with faulty maps amidst evolving territories
Just Nick - 🇵🇸 🇮🇷 🇨🇺 @nick-boileau.bsky.social Songwriter - International Political Economist - Guerrilla Gardener
#architecture #gardening #LGBTQ2 #MECFS #ONTECH #socialist
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
The White Feather Foundation @twffofficial.bsky.social Est. 2007 by Julian Lennon. For the Conservation of Life.
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Tatiana Prowell, MD @tmprowell.bsky.social Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky
Team hope/good trouble/go high💙
https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
The New York Times @nytimes.com We seek the truth and help people understand the world. Not a subscriber? Your first month is now free in our app. https://nytimes.onelink.me/Xpht/zbx4nci9
Rep. Thuy Tran @repthuytran.bsky.social Lt. Col. Dr. Thuy Tran
State Representative representing HD-45 (NE PDX, Maywood Park, Parkrose).
For other social media: https://linktr.ee/Rep.ThuyTran
Travis Nelson @travisnelson.bsky.social Oregon St. Rep. (N/NE Portland), Registered Nurse, Head Start Kid, Former Janitor, Community College Grad, UNION Rep, 2020 National Bernie Sanders Delegate, Advocate, He/Him 🌈
Representative Dacia Grayber @daciagrayber.bsky.social Oregon State Representative - House District 28 - SW Portland, E Beaverton, and unincorporated Washington County.
#RedefinePossible
@wamesmecfs.bsky.social @wamesmecfs.bsky.social
Stanford Medicine Alliance for Disability Inclusion and Equity @stanfordsmadie.bsky.social We fight to combat systemic ableism! | Advocating for equality & accessibility; disability as a part of diversity & inclusivity.
Rhiannon Giddens @rhiannongiddens.bsky.social New album, Hope Is the Thing with Feathers, out 9/18 on Nonesuch Records!
@halwalker.bsky.social @halwalker.bsky.social
Maggie Boxey Writes @maggieboxey.bsky.social Writer & bridge-builder. For the stuck, the healing, and the waking up. Author . Podcaster . TEDx Speaker . in recovery . ME/CFS . collective hope 🦋