Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
~ Shanna Lee James~ Author @2bdynamic.bsky.social Retired Nurse and Author who loves writing about 'real life' stuff. Visit my Author website @ shannaleejamesauthor.com to see my bio and books. And my 2nd site @ https://bsky.app/profile/jami-jam.bsky.social
Ted McCormick @tedmccormick.bsky.social Historian of scientific, economic and colonial projects in early modern Britain, Ireland, and the Atlantic; books http://bit.ly/3HYwNiA & http://bit.ly/3rKdAvt; http://memoriousblog.com; views mine; he/him. Montrealer in Philly, except when I’m in Montreal
jazzrat2000 AKA Bonsai anonymous @jazzrat2000.bsky.social #ND #Artist #Spoonie #Retired #Mentalhealth #jazz #trumpet. S FL, #LGBT #ally, #trans! 71, #married 50, #sober 20: #AA. #Suicide, #animalrehab. All posts: IMHO. No DMS, I FB. he/him/not yours
"Please put the #trumpet down and slowly back away"
Harrison @harrison565.bsky.social CLB💚ALB 💙JRW💛77.10.20RIPDADDY🕊️
I divorced since 3 years ago 💔
Sharing their testimony and the Gospel with others.Regularly reading and applying the Bible📕 to their life.
The Real McCoy @rippermd41.bsky.social My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
michaeledward @michaeledward.bsky.social American In Transiet
Emily @emilyrose.bsky.social Autistic. ADHD. Chihuahua parent. Not actually a hedgehog. She/her.
Occasional swearing, but pretty SFW.
Redbubble Shop: https://www.redbubble.com/people/emilyrosew1/shop
📍Concord, CA
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Dr. Emily Arndt 🏳️⚧️ @brachinus.bsky.social Polymer chemist & engineer in industry. Spent some quality time studying bombardier beetles. CWRU Macro & MIT PPSM alumna. Loves science, animals esp insects & cats, photography, computers, cooking, & the outdoors. Trans queer autistic woman. She/her
Goalie Host Canada 🇨🇦 @littleriverk.bsky.social Mom, Nana,Septuagenarian runner, retired skilled trades / English teacher, artist, progressive, gardener, designer, carpenter/woodworker, rural living urbanist
Jane Rosenzweig @janerosenzweig.bsky.social Writing in the age of AI stuff
Newsletter: writinghacks.substack.com
Also curate theimportantwork.substack.com
COVID Chronicles @covidchronicles.bsky.social Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
Andrea @retiredcasac.bsky.social Desert lover forced to abandon my dream life and return east after my life being stolen by LC/M.E. Rapamycin has given me some life back, but it's not enough! #longcovid #myalgicencephalomyelitis #covidstealslives #pasc And #fucktrump
Clinical Infectious Diseases @cidjournal.bsky.social The world's leading journal on infectious diseases. Clinical ID, public health, microbiology, and everything in-between. Official publication of @idsainfo.bsky.social
Dr. Damien P. Williams, dread portent down from a mountain cave @wolven.blacksky.app Assistant Prof Philosophy & Data Sci.
PhD Sci., Technology, & Society
MA Philosophy & Religious Studies
"AI" Criticality; Centering Marginalized Exp. in Tech; Magic; Knowledge, Values, Beliefs
He/Him
Unless explicitly stated, not speaking for my employer
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Kelly @broadwaybabyto.bsky.social Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷
https://www.disabledginger.com
A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
Timnit Gebru @timnitgebru.blacksky.app Personal Account
Author: Deep Unlearning (you can now preorder at https://shorturl.at/sCdjl)
Founder: The Distributed AI Research Institute (https://dair-institute.org)
Tech Won’t Save Us @techwontsave.us A left-wing podcast for a better world and better tech. Hosted by @parismarx.com. Made in partnership with @thenation.com.
https://techwontsave.us/
Aurelien Mondon @aurelmondon.com "Leftwing professor" - in other words, researching the mainstreaming of reactionary/far-right politics
Co-convenor of @reacpolrn.bsky.social
Publications etc 👇🏻
https://aurelmondon.com/
Emily M. Bender @emilymbender.bsky.social Book: https://thecon.ai
Web: https://faculty.washington.edu/ebender
Joseph Hewitt @gearheadrpg.com Cartoonist, programmer, educator, Newfoundlander living in Korea. Hamster herder. Creator of mecha RPG GearHead. Lead penguin of Polar Bear Comix. Mask wearer. He/him. Old. #Comics #GameDev #ghrpg
https://polarbearcomix.com/
https://gearhead.itch.io/
Lorna Richardson @lornarichardson.bsky.social Norwich academic/lecturer in digital media/public archaeology/AI/multimedia storytelling/UCU/bassline junkie/dogmother/stuff/nonsense/whimsy/claptrap
Derrick Orphanage @littlepalacehome.bsky.social Just an orphan trying to change the lives of these poor kids and orphans to give them hope for a better future.
DONATE HERE 👇👇
https://gofund.me/cdd67c27
Rohan Maitzen @rohanmaitzen.bsky.social English prof at King's / Dalhousie (mostly Victorian lit, detective fiction), critic, blogger at 'Novel Readings'. Essays and reviews in the TLS, LRC, Q&Q, CNQ, LARB, etc. It's pronounced "Rowan." She / her. Halifax, NS. http://rohanmaitzen.com
Au Contraire @jcontraire.bsky.social Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
KimK @kimk-research.bsky.social Retired 🪷 grandmother ♿️ amputee 🥩 animal-based keto 🥄 longCOVID ESKD advocacy @renegaderesearch.bsky.social
Jess Badger @jesshoneybadger.bsky.social Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
JenCruz4Change @jacbluesky.bsky.social 
Zed Zha, MD, FAAFP @drzedzha.bsky.social Physician | Author | Feminist Patient Advocate I drzedzha.substack.com
WillowMD @willowmd.bsky.social Integrative/lifestyle med doc, primary care, prevention, and whole body treatment of connective tissue disease & associated symptoms
Virginia
Putrino Lab @putrinolab.bsky.social 
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@tallannie.bsky.social @tallannie.bsky.social 
Lori Tindall 🔘 @loritindall.bsky.social 🖤 Art + Science of Deep Health
Coaching: Nutrition, Sleep, Movement, Mindfulness, Breath
• Everything is political.
• Fueling better, feeling better.
www.LoriTindall.com
Belasco @belasco.bsky.social Queer disabled chronically ill nature-loving nerd trapped in Texas
ME/CFS research @cfsresearch.bsky.social Interested in research into ME/CFS/MECFS, FND and related conditions. https://medium.com/@cfs_research
Ous @hamabi136.bsky.social 
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Crystal @gemzme.bsky.social 
Maike Osborne @maosbot.bsky.social Mother, wife, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb. She/her 🏳️⚧️🏳️🌈
John Haughton MD, MS @doc4care.bsky.social
Physician. Recovered, Long Covid 2022. continues
John@100apples.com
Metformin, TLR4 quieting, microclot busting, NRF2 promoting, HIF1a limiting approach. “CORE” circ, oxygen, rebuild energy
Tx Long Covid & MECFS
Chief Med Officer Renegade Research
Jeffrey Lubell (EDS, ME/CFS, LongCOVID Research) @jefflubellc19.bsky.social I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
Kat Boniface @katboniface.bsky.social Riverside, CA
Equine History Collective
Renegade Research
https://katboniface.wordpress.com/the-glutamate-boss/
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Workwell Foundation @workwellfoundation.bsky.social #Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Trans Journalists Association @transjournalists.org Promoting more accurate, nuanced coverage of trans issues and communities in the media. Supporting gender-expansive journalists in their workplaces and careers. https://linktr.ee/transjournalists
Support us: https://bit.ly/tja_pride
Bill Nemacheck @billnemacheck.bsky.social I'm trying to stay engaged in the goings on in the US, whilst keeping my sanity. Mostly a shit posting, reply guy. Expect a mediocre white guy perspective, but I'm always seeking different viewpoints.
no.click @handle.invalid Web engineer, and entrepreneur living in Thailand.
Streaming @ twitch.tv/nodotclick
> former apple / media arts lab engineer
Ari Drennen @aridrennen.bsky.social we’re all transsexuals now
• EDITOR: The New Transsexual
• FOUNDER: Pink & Blue Strategies
• former: MMFA, CAP, HFA, LCV
Sandcastle Kat @sandcastlekat.bsky.social A cat trying to survive in a world without adequate public health protections.
tern @1goodtern.bsky.social truth, science, hope
Danielle Belton @daniellecbelton.bsky.social An all-around word hustlin', perambulating pontificator. Former EIC HuffPost, The Root; The OG Black Snob; Alexander's auntie; Journalist.
blacksnob.com
Fiona Wood @mewarrior1.bsky.social Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia
Observe small things, don't rush, love & forgive
#loveyourself #loveothers ❤️
#chronicillnesswarrior1 on X & IG
Opinions are my own 🤓
Thanh Neville, MD, MSHS @thanh-neville.bsky.social ICU physician & researcher, EOL/pall care, ethics; #3WishesProgram Medical Dir, #medsky, #firstgen, #refugee, love to cook, #DoctorsWhoCook, over-educated cat lady. Posts are MY opinions & not of my employer. I am my own person.
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Manpreet Singh @gorichodni.bsky.social 
Elly Brosius, MS @ellybrosius.bsky.social Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
David Kaufman @kaufmanmd.bsky.social Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup. 
Anderbergskan @anderbergskan.bsky.social Born at 320, learning anew 😷♿ 🐸
#CallForPublicHealthAction
Flo-mask ✨ Zimi ✨ Dräger ✨ Zekler ✨ Aura
Sparrow / Liz @untonuggan.myatproto.social angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. Disabled queer. white. emperor of typos. brain fog zone ⚠️. they/them
🎶 iii'm still masking 🎶
working on porting more of my body science infodumps and such to:
liminalnest.wordpress.com
#NEISvoid
Allison Bond @allisonrbond.bsky.social Infectious Diseases & Hospital Med MD @ UCSF; former journalist. MedEd, clinical reasoning, #infectiousdiseases for non-ID specialists — and puns. Puns are my favorite. #medsky #IDsky
@gemgirl.bsky.social @gemgirl.bsky.social Kentucky Democrat.💙
PedsHemeDoc @pedshemedoc.bsky.social #PHO doc - MPNs, clots,🩸cells, MedEd, equity, mentoring, writing, crafting. Opinions are my own. #FunEarringFriday #HemeFashion #mpnsm #PedSky #HemeSky
Toby Mac @tobymac00.bsky.social My new song "Nothin'Sweeter" is available now, wherever you listen to music...
Scissors @scissors.myatproto.social #I’llFigureItOut
pfp: @moxiest.art
Scrappy @scrappyaf.bsky.social Shoving off once in a while.
VT, GA, wherever.
Illustrator, potter, maker, fixer.
————
Please use alt text.
Profile: me/she yukking it up. Banner: Another Day in Paradise.
J Willson @zhaydub.bsky.social 
Katiana Mekka @katiamek.bsky.social 26. Former greek Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
https://linktr.ee/katiamek
OhTWIST @ohtwist.bsky.social Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2026 (tbd) (toes crossed)
https://ohtwist.com
Dr. Glaucomflecken @glaucomflecken.bsky.social Ophthalmologist. Comedian. Speaker. Jonathan.
Molly Gordon, she/her @mollyboom.bsky.social Typically preoccupied with wisdom & justice. Occasionally unwise or unjust.
Tough canary. Ecstatic cranky. Queer.
#LongCovid #MECFS FUNCAP 1.1
Ryan Marino, MD @ryanmarino.bsky.social Human Doctor • Toxicology • Addiction • Emergency • #WTFentanyl & more often just WTF • drugs are misunderstood but people are misunderstood more • he/him • YouTube.com/@RyanMD • #MedSky
Tara F, PhD, MPH @taraf.bsky.social Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer
Tampa, FL
😷🌈☮️📊📚🫂🩼♿️🗣️
#Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD
Neurologist Mom @neurologistmom.bsky.social A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
C.H. Romatowski @romatowski.bsky.social Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
Liz Whitmere @lizwhitmere.bsky.social 🇨🇦
I like making movies, I like taking pictures. You can find my photography/videography on instagram @LizWhitmere
www.lizwhitmere.com
Signal: @lizw.85
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice