Canadian MSK Rehab Research Network @mskrehabnet.bsky.social The Canadian Musculoskeletal Rehabilitation Research Network is a multidisciplinary national Network comprised of researchers, trainees, collaborators, and partner groups with a common goal of mitigating the MSK burden in Canada
Rare Disease Day Official @rarediseaseday.bsky.social The global awareness raising campaign for people living with rare diseases.
🌍 28 February 2027
ERN EURO-NMD @euronmd.bsky.social European Reference Network for Rare Neuromuscular Diseases
UCalgaryMedicine @ucalgarymed.bsky.social The University of Calgary's Cumming School of Medicine (CSM).
#UCalgaryMed #ResearchMatters
CMAJ @cmaj.ca The Canadian Medical Association Journal
Get weekly issues straight to your inbox: http://cmaj.ca/getCMAJ
University Health Network @uhn.ca Canada's Hospital:
Princess Margaret, Toronto General, Toronto Western, Toronto Rehab, West Park Healthcare & Michener.
🔗 uhn.ca
Le Neuro (Institut-Hôpital neurologique de Montréal) @theneuro.bsky.social Compte officiel du Neuro (Institut-Hôpital neurologique de Montréal)
Official account of The Neuro (Montreal Neurological Institute-Hospital)
World Muscle Society @worldmusclesociety.org The World Muscle Society is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders and the care for people living with them.
Buffer @buffer.com The social media management platform for scheduling, publishing & analytics across every major network. Plan your content calendar in one place. This account is managed by real humans. 💙
⬇️ buffer.com/bluesky
Matthew Alexander, PhD @mattmuscleguy.bsky.social Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. Lover of all things muscle. All posts are my own. Instagram @thealexanderlab
Lab website: https://www.uab.edu/medicine/peds/research/division-researc
IMPaCT @impactrials.bsky.social We are a community of mentors and partner organizations dedicated to Increasing capacity for Maternal and Paediatric Clinical Trials (IMPaCT) in Canada.
To learn more visit impactrials.ca
RareKids-CAN @rarekidscan.bsky.social RareKids-CAN is a diverse coalition of partners aimed at streamlining and accelerating rare disease clinical trials and access to innovative treatment for all patients and families in Canada. RareKids-CAN is funded by the CIHR.
The Lancet Neurology @thelancetneuro.bsky.social The Lancet Neurology is the leading journal in clinical neurology. We publish articles and reviews that advocate change in, or illuminate, clinical practice.
🌐 https://www.thelancet.com/journals/laneur/home
Melissa Bowerman @bowermanlab.bsky.social Professor of Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare neuromuscular & skeletal disorders.
www.thebowermanlab.com
Maxime Rousseaux @maximewc.bsky.social Associate Professor and CRC studying protein mislocalization, neurodegeneration and functional genomics at uOttawa Brain and Mind Research Institute and co-director of Genome Editing and Molecular biology core at uOttawa
@bentzingerlab.bsky.social @bentzingerlab.bsky.social The skeletal muscle stem cell niche in health and disease
Université de Sherbrooke
https://www.bentzingerlab.com/
Institut de Myologie @institutdemyologie.bsky.social Centre d'expertise sur le #muscle et ses pathologies, créé en 1996, l'Institut de Myologie, avec ses 300 experts, a pour objectif de favoriser l’existence, la reconnaissance et l’essor de la myologie dans le monde.
http://www.institut-myologie.org
Hermien Kan @kanhermien.bsky.social Associate professor in the CJ Gorter MRI center at the department of Radiology of the LUMC, where I lead a research group focussing on Imaging in Neuromuscular Disease.
Andras Lakatos @LakatosLab @lakatoslab.bsky.social Neurobiologist & Neurologist at Cambridge. My lab focuses on the biology of astrocytes/neurons & develops human organoid disease models to study their role in neurodegeneration and traumatic injuries.
University of Ottawa Heart Institute @heartinstitute.bsky.social Canada's largest and foremost cardiovascular health centre, understanding, treating and preventing #heartdisease #UOHI
Tyson Graber @rnaguru.bsky.social Cell biologist. Interested in identifying & decoding the public health information stored in 💩. Posting Ottawa WAVE 🌊 (wastewater analytics for viral epidemiology)
Elizabeth McNally @emmcnally.bsky.social physician, scientist, sports fan
Lyndsay Murray @lyndsaymurray.bsky.social Reseach and teaching academic at the University of Edinburgh. Interests in anatomy/spinal muscular atrophy/motor neuron development/plasticity/regeneration.
Bénédicte Chazaud @benchazaud.bsky.social Scientist trying to link cell biology and physiology.
Skeletal muscle regeneration with a strong penchant for macrophages.
Director of Research @ Inserm, Lyon, France
Nature Reviews Neurology @natrevneurol.nature.com Nature Reviews Neurology is a clinical review journal from Springer Nature. Follow us for the latest updates in neurology from the journal and beyond. www.nature.com/nrneurol
Marie-Pier Roussel 🇨🇦 @mproussel.bsky.social
Alex Hoischen @ahoischen.bsky.social Genomic technologies: WES/WGS, long-read sequencing, optical genome mapping, somatic mutations;
Immuno-genomics: rare diseases; immunodeficiencies; inborn errors of immunity; clonal hematopoiesis
https://shorturl.at/MxQ7O
https://www.immuno-genomics.com
SickKids Foundation @sickkidsvs.bsky.social We support The Hospital for Sick Children in Toronto, Canada. #PrecisionChildHealth is here. #SKHealTheFuture #SickKidsVS
Marco Savarese @marsavarese.bsky.social Myofin Principal Investigator@Folkhälsan Research Center.
Jodi Allen @jodiallenslt.bsky.social Clinical Specialist Speech & Language Therapist in Progressive Neurological & Neuromuscular Disease, University College London Hospitals #NHS & #NIHR Clinical Doctoral Research Fellow, Centre for Medical Imaging #UCL
@dm1myotonic.bsky.social @dm1myotonic.bsky.social Relaying the latest developments in the search for effective treatments for myotonic dystrophy type 1.
@maritimespor.bsky.social @maritimespor.bsky.social
Brain-Heart Interconnectome (BHI) @bhi-icc.bsky.social Our vision is to transform the prevention and treatment of brain-heart interconnected conditions, improving the health and quality of life of Canadians and people worldwide.
Hetty Mulhall @hettymulhall.bsky.social Associate Scientific Director at CIHR-IMHA | Views my own, reposts not endorsements | Non-practising Veterinary Surgeon
Brain Canada @braincanada.bsky.social Brain Canada is a national non-profit organization that enables and supports excellent, innovative, paradigm-changing brain research in Canada. #BrainCanada
CureDuchenne @cureduchenne.bsky.social Our mission is to cure Duchenne muscular dystrophy with our innovative venture philanthropy model that funds groundbreaking research, early diagnosis and treatment access.
Jean-Yves Duclos @jyduclos.bsky.social Papa, grand-papa, et économiste.
Député de Québec 🇨🇦⚜️
Clinical Trials Ontario @clinicaltrialon.bsky.social Making Ontario a preferred location for global clinical trials, while maintaining the highest ethical standards.
- B Amanda Doherty-Kirby (she/her) @biochemmama.bsky.social Mom of 6. Active patient partner with varied interests.
Rubén Marín-Juez @rmarinjuez.bsky.social Zebrafish, heart regeneration, endothelium
Group Leader at @CR_CHUSJ
Assistant Professor @UMontreal
De Bilbao de toda la vida
John Walton Muscular Dystrophy Research Centre @jwmdrc.bsky.social Performing world-class translational research to bring diagnosis, care and therapy to people with neuromuscular disease
L'Institut de recherche du CUSM / Research Institute of the MUHC @rimuhc.bsky.social Nous faisons progresser la santé de précision par une recherche multidisciplinaire. | We advance precision health through multidisciplinary research.
SCPOR @scpor.bsky.social Saskatchewan Centre for Patient-Oriented Research
SPORAlliance @sporalliance.bsky.social The Strategy for Patient-Oriented Research (SPOR) Evidence Alliance is a pan-Canadian research initiative designed to promote evidence-informed health policy and practice changes, with patient and public partner engagement embedded throughout.
Jen Heemstra @jenheemstra.bsky.social Professor and Chair of WashU Chemistry. I’m a researcher, but I’m a #MentorFirst. Author of Labwork to Leadership.
Women and Children's Health Research Institute @wchriuofa.bsky.social The Women and Children’s Health Research Institute (WCHRI) supports research dedicated to improving the health and lives of women and children.
Saeed Anwar @saeedanuj.bsky.social Genetic therapeutics researcher | Rare disease advocate | Sci-activist | Bengali SciFi writer | Overcaffeinated | Foodie | First-gen | 🇧🇩
♡︎/⟳ ≠ endorsement
Svetlana Gorokhova @sgorokhova.bsky.social Svetlana Gorokhova, M.D., Ph.D., is working in Marseille Medical Genetics (@univamu) and @aphm-chu-marseille in Marseille, France, remote member of NNDCS @NIH @NINDSnews
Physical & Occupational Therapy, McGill University @mcgillrehab.bsky.social The McGill School of Physical & Occupational Therapy (SPOT); creating leaders in rehabilitation practice, scientific innovation and community engagement.
@metabern.bsky.social @metabern.bsky.social
Medicine by Design @medicinebydesign.bsky.social Generating transformative discoveries & accelerating clinical impacts in regenerative medicine and cell & gene therapy in Canada.
Keiko Shikako, PhD, OT @keikoshikako.bsky.social Canada Research Chair in Childhood Disability: Participation and Knowledge Translation
Associate Professor, McGill University School of Physical and Occupational Therapy
Associate Member, Department of Ethics, Equity, and Policy; Department of Pediatrics
AFM-Téléthon @afm-telethon.bsky.social Compte officiel
L'AFM-Téléthon est une association de malades et parents de malades
Retrouvez-nous sur https://www.afm-telethon.fr
📆 #Téléthon2025 : 5 & 6 déc.
Jessica Trier @jesstrier.bsky.social Assistant Professor and Program Director @queensu Physical Medicine & Rehab (she/her/hers)
#MedEd #CBME #coaching #psychologicalsafety #braininjury #TBI #peripheralnerve
London Health Sciences Centre @lhsccanada.bsky.social Transforming health, together.
Inclusion Canada @inclusioncanada.bsky.social The national federation working to advance the full inclusion & human rights of people with an intellectual disability and their families.
Website: inclusioncanada.ca
Society of Neuroscience Graduate Students - UWO @songsuwo.bsky.social
Stanford Neurology & Neurological Sciences @stanfordneuro.bsky.social Official Bluesky account of Stanford Neurology & Neurological Sciences Department, Stanford University, California #Neurology 🧠
Joseph Gordon @josephwgordon.bsky.social Associate Professor, University of Prince Edward Island
Heart and Stroke Foundation Canada Provincial Advisory Board for PEI
ALS Canada @alscanada.bsky.social We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a world free of ALS.
Patty Hajdu @pattyhajdu.bsky.social Member of Parliament/Députée. Thunder Bay-Superior North/Supérieur-Nord. Minister of Jobs and Families/Ministre de l’Emploi et des Familles
https://linkin.bio/pattyhajdu
Rudnicki Lab @rudnicki-lab.bsky.social Hello everyone! Welcome to the official Bluesky account for the Rudnicki Lab. We study the biology of skeletal muscle stem cells 🔬🧫🧬 | Ottawa, ON, Canada 🇨🇦
Annemieke Aartsma-Rus @oligogirl.bsky.social Translating science from bench to bedside and from jargon to lay language
Viviane Poupon @vivianepoupon.bsky.social President and CEO at Brain Canada Foundation
Stem Cell Network @stemcellnetwork.ca SCN is a Canadian not-for-profit supporting stem cell and regenerative medicine research, training, and knowledge mobilization.
Daniel O'Neil @phoenix1189.bsky.social Endlessly curious business and web analyst, swimming in the deep sea of Information Architecture
https://understandinggroup.com
@matthiaslambert.bsky.social @matthiaslambert.bsky.social
Michael Hoffman @michaelhoffman.bsky.social Chair, Computational BIology and Medicine Program, Princess Margaret Cancer Centre, University Health Network.
Associate Professor, Medical Biophysics, University of Toronto.
Disclosures: https://github.com/michaelmhoffman/disclosure/
Heidi M McBride @mitodynamics.bsky.social Hopeless mitochondriak. Professor at McGill Neuro_MNI. Opinions my own.
uOttawa Faculty of Medicine | La Faculté de médecine @uottawamed.bsky.social Chef de file en innovation pour un monde en santé.
Leading innovation for a healthier world.
🩺🔬
uOBMRI @uobmri.bsky.social The uOBMRI is Ottawa’s largest collection of basic researchers and clinician scientists that are focused on brain and mind related health.
Mo Zhao @minervamo.bsky.social Biotech investor
Vahab Soleimani @vahabsoleimani.bsky.social Associate Professor at the University of Ottawa Canada studying skeletal muscle stem cells in development and disease.
https://soleimanilab.ca/
Sunnybrook Health Sciences Centre @sunnybrookhsc.bsky.social Official account of our Hospital, Foundation and Research Institute. Account not monitored 24/7.
🔗 sunnybrook.ca
ERDERA @erdera.bsky.social Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.
🔗 erdera.org
Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.
Stephen Holland @stephenholland.bsky.social PhD Candidate @ uOttawa studying Cellular and Molecular Medicine.
Emerging role in science policy and advocacy with Support Our Science and the Ottawa Science Policy Network
Father, Husband, Science 🥼👨👩👧❤️
Lisa Harvey-Duren @kaylashope.bsky.social
Daniel MacArthur @dgmacarthur.bsky.social Genomics, big data, open science, diversity. Director of the Centre for Population Genomics, focused on building a more equitable future for genomic medicine. Opinions my own.
Ed Yong @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Christel Depienne @christeldepienne.bsky.social Molecular geneticist | Neurogenetics | repeat expansions | chromosome X | snRNAs | and more
@ochdrako.bsky.social @ochdrako.bsky.social
Tom Gillingwater @tomgillingwater.bsky.social Professor of Anatomy at the University of Edinburgh. FRSE, FRSB, HonFAS. Mood generally influenced by family, anatomy, science (MND/SMA/ALS/NMJ), music, whisky and NFFC. Owned by a Lakeland Terrier. My opinions etc!
📍Edinburgh/East Lothian 🏴
Hana Antonicka @hantonicka.bsky.social Senior researcher in the Department of Human Genetics at McGill University in Montreal. Interested in mitochondrial biology.
Rüegg Lab @ruegglab.bsky.social
WHO @who.int The World Health Organization (WHO) is the United Nations’ health agency, championing Health For All.
Always check the latest posts for updated advice/information.
We reserve the right to remove misinformation, spam, and hate speech under our posts.
CFI | FCI @innovation.ca The Canada Foundation for Innovation funds research infrastructure. | La Fondation canadienne pour l'innovation investit dans des installations de recherche.
Genome BC @genomebc.bsky.social We lead academia, government and industry to develop world-class genome sciences that deliver social and economic benefits to British Columbia, Canada and beyond.
@ontowonka.bsky.social @ontowonka.bsky.social
Genome Canada @genomecanada.ca Transforming genomics research into solutions for Canada | Transformer la recherche en génomique en solutions pour le Canada genomecanada.ca | genomecanada.ca/fr
World Duchenne Organization @worldduchenne.bsky.social Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
🔗 https://www.worldduchenne.org/
Natasha Chang @changlab.bsky.social
Myotonic Dystrophy Foundation @myotonicstrong.bsky.social The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure.
www.myotonic.org
Canadian Science Publishing @cdnsciencepub.com Independent, not-for-profit publisher | Researcher-led | Committed to advancing excellence in scientific journal publishing | #YourResearchHome 🔬📄➡️🌐 https://cdnsciencepub.com/
FSHD Society @fshdsociety.com No one should face FSHD alone.
Our Mission: Find treatments and a cure for FSHD while empowering families.
#CureFSHD
Tuan Bui @tuanbuilab.bsky.social Neuroscientist, spinal cord and motor control, Chair (why not?) of the Department of Biology at the University of Ottawa
https://bui-lab.com/
Canadian Association for Neuroscience @canacn.bsky.social https://can-acn.org
Rashmi Kothary @kotharylab.bsky.social Neuromuscular researcher, trying to enhance muscles. Opinions my own. Why not us, why not now! He/Him
The Ottawa Hospital @ottawahospital.on.ca One of Canada’s largest learning and research hospitals / L’un des plus importants hôpitaux d’enseignement et de recherche au Canada. For emergencies call 911.
Journal of Neuromuscular Diseases @journalnd.bsky.social Facilitates progress in understanding the molecular genetics/correlates, pathogenesis, pharmacology, diagnosis and treatment of acquired and genetic NDMs. Editors: Carsten Bönnemann and Hanns Lochmüller. https://journals.sagepub.com/home/JND