Patient Advocate Foundation @patient-advocates.bsky.social Patient Advocate Foundation and the PAN Foundation have merged to create the nation's most comprehensive nonprofit dedicated to helping people navigate, access, and afford healthcare. Learn more at
uniting.patientadvocate.org
Rare Disease Clinical Trial Network @rarediseasectn.bsky.social HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Journal of Communication in Healthcare (JCIH) @jcihonline.bsky.social Leading journal by Taylor and Francis. Publishes research, interventions & perspectives on #healthcommunication in #healthcare #publichealth and #medicine.
https://linktr.ee/jcihonline
Rare Disease Advisor @rarediseaseadvisor.bsky.social Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor.com/
Senator Amanda M. Cappelletti @pasenatorcappelletti.com The official account of Senator Amanda M. Cappelletti, serving the people in PA's 17th District. She/ her. Follow on FB, IG, and Threads @SenCappelletti.
KFF @kff.org The independent source for health policy research, polling, and news.
KFF Health News @kffhealthnews.org A national newsroom that produces in-depth journalism about health issues; a core program of @KFF.org.
Pennsylvania Developmental Disabilities Coucil (PADDC) @paddc.bsky.social The Council works to promote advocacy, drive systems change, and build community capacity alongside people with developmental disabilities and their families. We envision a Commonwealth where all people are valued and thrive.
Disability Rights Pennsylvania @disabilityrtspa.bsky.social Protecting and Advancing the Rights of People with Disabilities in Pennsylvania.
https://www.disabilityrightspa.org/
Pennsylvania Department of Human Services @pahumanservices.bsky.social Our vision is that all Pennsylvanians live safe, healthy, and independent lives, free of discrimination and inequity.
PA Department of Aging @pennsylvaniaaging.bsky.social The Pennsylvania Department of Aging (PDA) oversees and administers aging services and advocates on behalf of older adults.
PA Department of Health @pahealthdept.bsky.social Official account for the Pennsylvania Department of Health. DOH is Pennsylvania’s primary source for public health information and services.
EveryLife Foundation for Rare Diseases @everylifeorg.bsky.social We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
National Organization for Rare Disorders (NORD) @nordrare.bsky.social NORD is a patient advocacy organization leading the fight to improve the lives of rare disease patients. Alone we are rare. Together we are strong.®
www.rarediseases.org
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app