Miri @miri2.bsky.social Idk man I’m just here to get weather news and talk about being chronically ill
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Cath @cathdicentra.bsky.social Passionate about: ME/CFS, moths, native plants, early music
#visibleapp
Anna H. @annahh.bsky.social 🍋 MEcfs seit 2002, Diagnose 2021
mild zu moderat nach Covid 2020
Ü50, Hamburg
#lemonchallenge #MEcfs #pwME #PAIS #POTS #PEM
#WirLiegenDasLeben #MEawareness
#DavosStandard #CleanAir #Lufthygiene #MillionsMissing
#TeamVorsicht #TeamScience #TeamGrundgesetz
Too Tired To Make @tootiredtomake.bsky.social Too Tired To Make: An act of thinking in public about how creativity actually happens under constraint.
#M.E.
#CFA
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#ADHD
#Creators
#Makers
@mac-cruiskeen.bsky.social @mac-cruiskeen.bsky.social
Maud Sac @papillyon.bsky.social Severe ME/CFS, mostly bedbound.
@voxem.bsky.social
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
arianek (she/her) @arianek.bsky.social Still alive. Exiled from YVR / taking refuge in MTL • Public health/urban planning/open source nerd • SFU Geog • Co-founded Textillia.com w/ @brunodbo.bsky.social ✂️💕 • ♿️🌈🇦🇲🦆🐶🖖📚💌🌿 • PLEASE NO LISTS!!!
Dr. Annie Feighery @afeighery.bsky.social Behavioral health scientist specializing in tech & infrastructure in international dev/aid. CEO of mWater & Solstice, the world's largest platform for managing water, sanitation, & health.
mwater.co
solsticeinstitute.com
Mom of 3, partner of @jfeighery
Dan the LC Kiwi @longcovidkiwi.bsky.social Kiwi/New Zealander 🇳🇿 with #LongCovid (since 01/06/2022). Former Ophthalmic Technician 👨⚕️.
Here to keep up with LC advocacy, LC news, and LC research updates. 📰😷🌏🩻❤️🩹🔬🥼
Wave of Change @waveofchangeglobal.bsky.social Community powered online fundraisers. #waveofchange2025
https://linktr.ee/waveofchange.global
Juo @juoig7799.bsky.social
e. hashman @eha.sh Hacker and open sourcerer, 🇨🇦 settler south of the medicine line, exhausted tech worker (SWE @ Apple). Tea aficionado 🍵 Amateur botanist, naturalist, and radio operator. Fighting severe ME/CFS. ♿ https://hashman.ca/
רעדסטו יידיש?
Leslie Kasza @lesliekasza.bsky.social - J @justindstern.bsky.social @justindstern.bsky.social
Dr. Carla, neuropsychiater, post-COVID researcher @carlarus.bsky.social I am both a doctor and a patient (other chronic illness than post-COVID). So I know both sides of the bed. Very educational.
Marcia Mersky @marciamam.bsky.social Long Covid/MECFS patient, quilter and gardener when able to be active.
Long COVID Campaign | www.longcovidcampaign.org @lccampaign.bsky.social Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
Michelle @thunderhoneysnow.bsky.social PhD in Food Politics, Social Movements, Feminist Theory, Social Media
Joy: Ultra Trail, Running, Yoga, Dog, Cooking, Bike
Life: Mask Up, Covid Aware, Disability Justice, Sjogrens, Scent Free, MCS
My Yoga Studio:
https://thunderhoneysnowstudio.ca/
MS Sucks 🎗 @handle.invalid Web Developer #Joomla | Beekeeper | Widow
Disabled USMC Vet | Living with #DDD & #MS
📓 MS Sucks: a snarky journal for tracking your MS bullshit → mssucks.co/links
☕️ Buy me a coffee ➜ https://buymeacoffee.com/mssucks
Kim @justkim.bsky.social Using social media to try to find ways to heal from long COVID. And learning things in general.
Sam Norpel @samnorpel.bsky.social Wife, Mom, Former Executive, now #disabled by #LongCOVID.
When I feel up to it, I try to use #ArtTherapy 🎨 to express what life is like as a LC patient 🖼️ & raise awareness. I also paint flowers 💐🌺🌻 to bring a little joy.
Biotech Digest @biotechdigest.bsky.social Complex chronic illness patient advocacy
Holly H-K @hollyhk.bsky.social Professor of literacy education. PhD. Mom: 2 great kids, 2 great rescue pups. Lifelong public school educator. Cajun born, Texas resident. ❤️Fiction & Podcasts❤️Currently living life at a slower pace with Long COVID.
Supporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social 💙UK Registered Charity: 1205685
💙Long COVID doesn’t stop the care - neither do we.
💙Join our Campaign: #SafeAir4All
Alone LL @ladylonghaul.bsky.social Born 324 ppm. small spoons & sensory spaces. 🥄🎧
#ADHD #hEDS #LongCovid #MCAS #pwME #Migraine #POTS #PsoriaticArthritis #Tinnitus #Disability #Adoptee #Climate
ko-fi.com/ladylonghaul
LongCovidKids
Awareness Banner
5 years since Long Covid Changed Lives
Satcha EM @satcha.bsky.social Encéphalomyélite myalgique
#mecfs #emsfc @voxem.bsky.social
Handie 🛌🏽👩🏽🦼
Chris Simms @chrisnsimms.bsky.social Science journalist covering all fields. Formerly an editor at New Scientist and Nature. 🧪🐸 🍄
New Scientist: https://tinyurl.com/2tvwfa2b
Live Science: https://tinyurl.com/4mbyh7a9
Sci Am: https://tinyurl.com/bdza74ta
Nature: https://tinyurl.com/yc265esp
Giada @dreoilinbeag.bsky.social Academic librarian, poet, gardener, not necessarily in that order. Winner of Seán Dunne Poetry Award 2024. Seeds are not numbers.
Au Contraire @jcontraire.bsky.social Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
Long COVID Canada - Collaborative @longcovidcan-co.bsky.social We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
@ularkin.bsky.social @ularkin.bsky.social
LongCovidPharmD @longcovidpharmd.bsky.social Pharmacist interested in Long COVID and ME/CFS research
Pro-mask, pro-clean air!
Substack: https://pharmd.substack.com/
Wen Dombrowski MD MBA @resilienx.bsky.social Expressive Arts + Trauma Healing + Brain Health + Fascia + Movement + Healthcare + Aging + Faith + Tech + Innovation Pioneer Catalyst Connector
(was @HealthcareWen @CATALAIZE on the bird app)
MicMak @micmak.bsky.social Afro TCK.
Cornelia ME/CFS @corandmecfs.bsky.social I used to be a person, now I’m a ghost, lingering on in the world of the living. ME/CFS since 2011, severe since 2021.
Sarah O'Connell @sarahoc1.bsky.social #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
The Weekly Show with Jon Stewart @weeklyshowpodcast.bsky.social On Mondays Jon Stewart hosts The Daily Show, but on Wednesdays he hosts The Weekly Show. Listen wherever you get your podcasts & watch on YouTube.
Last Week Tonight with John Oliver @lastweektonight.com The official Bluesky account of Last Week Tonight with John Oliver. youtube.com/lastweektonight
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
Fake Doctor Real Data - verified☕ @fakedoctorrealdata.bsky.social Bin wirklich kein Doktor und auch kein Agentur-Account #TeamWissenschaft!
Aktuelles zu #FakeNius. Querdeppen, #PostVac und sonstigen Schwurbel
Ehemals https://xcancel.com/fakedoctorreal1
Mackenzie Mediatrix Meditator Medium @mack-bhairava.bsky.social Note: I post a lot about covid science.
I also talk to dead people.
Jungian. Platonist. Yogi.
Anti capitalist/greed/selfishness, very very anti covid.
Long Covid since 2021. Ex Engineer. Sci fi nerd. CATS.
@alexabruxy.bsky.social @alexabruxy.bsky.social #covidisNOTover #brusselssafeschools
#dieMaskebleibtauf
Brussels
Living Safely With Covid @covidsafenz.bsky.social Covid Safe NZ #CovidIsNotOver
Layers of Protection: Vaccines + Masks + Ventilation + Filtration
Indoor Air Quality Standards
Masks in Healthcare and Aged Care
Aotearoa New Zealand Kikorangi
Pandemics | Typos- E Erika Meboe @erikameboe.bsky.social Posts about ME/CFS, POTS, MCAS, Migraine, Small Fiber Neuropathy
@mariesteph.bsky.social @mariesteph.bsky.social Wifey/mom/pet mama learning to live with and embrace this new life level that has been forever altered by chronic illness 💙
#longcovid #pwME #POTs #MCAS #MECFS
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Dr Kevin Lee @dr-kevinlee.com Physician-Imager: endocrinology & nuclear medicine
#AusMedSky
https://www.linkedin.com/in/kevinleefracp/
Abolish Police Nussbaum @rnussbaum11.bsky.social it's a-me, mario. MPH, writer, journalist, joker, acab. #longcovid, #environmentalhealth, #nature, #publichealth, nonsequitors. goof and comedy lover. she/her, @rnussbaum11 on twitter- T Thelonevirologist @thelonevirologist.bsky.social Virologist. Likes history, hiking, tea, coffee & a good movie.Favourite viruses? Coronavirus, Emerging & Oncogenic Viruses. Favourite country? UK. Dad. Bibliophile.
Just Nick - 🇵🇸 🇮🇷 🇨🇺 @nick-boileau.bsky.social Songwriter - International Political Economist - Guerrilla Gardener
#architecture #gardening #LGBTQ2 #MECFS #ONTECH #socialist
Sue Palmer @suepalmer.bsky.social East Coast Girl living in a West Coast World. TV Writer and Script Coord. Quantum Leap, One Of Us Is Lying, Angelyne, Hawaii Five-0 - she/her
Rudy Hallé @rudyhalle.bsky.social La folie qui nous entoure ne m'empêche pas de constater qu'une structure de phrase trop longue et ambigu n'abouti pas toujours au résultat escompté. De toute façon, le temps avance trop vite pour s'y figer de manière efficace. Ceci est une 3e phrase.
Joaquín Beltrán @joaquinlife.bsky.social
@breathewellphysio.bsky.social @breathewellphysio.bsky.social
MiftyJackson @miftyjack.bsky.social Living in North Wales 2 cat household
. Worrying about our NHS 💙 😷 Covid CC. Love nature
under_transformation @trans4m8tion.bsky.social Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS
Mastodon: @_trans4m8tion@zeroes.ca
Covid Caution - KP.2, KP.2.3, KP.3.1.1, LB.1, XEC @covidcaution.bsky.social Collection of news, resources, and discourse related to the ongoing COVID-19 pandemic & health advocacy. Occasional venting, hot-takes and memes.
Los Angeles, CA.
Spoons and POTS @spoonsandpots.bsky.social She/her/them
Autistic human with EDS, POTS, LC + like 1000 others
Far left, queer af, pissed US citizen
Happily married!
May have used this same handle on the bluebird place a long time ago
🫶🏻
Em FA @mfatoms.bsky.social MasksRCommunityCare, Rebel Alliance 4ever, PNW, queers, small towns, and secure attachment-yaaaay 👊🏼❤️🌈
Rebecca @softgothkitten.bsky.social She/her, chronically ill, writer.
BA degree in Disability Studies
Anti-eugenics, pro-masking & clean air.
RFK Jr & MAHA hater
Free Palestine
@tarairwin.bsky.social @tarairwin.bsky.social
A Sleeping Tiger 🐯 and Hettie the elderly rescue kitty 🇨🇦🍁 @atigersleeping.bsky.social living w severe mast cell disease/MECFS/Fibro/hEDS/HαT/POTs 🫠
🤓way before it was cool..believe in kindness-even to🕷..
pls get💉for the sake of public health & 😷up
Just another ‘Nasty Canadian’
Happily gazing at Blueskies since Aug 30, 2023
Tim/Adrian @sillyputty78.bsky.social FQAD since the 90's - "Mild" ME/CFS & Mast Cell Issues
Gave up on centrist Democrats when they gave up on the working class & poor in the 80's. #MMT #StillCoviding #CovidIsNotOver #CovidCautious
Faye @fayemickelson.bsky.social homeschool mom with Mast Cell Activation Syndrome, POTS, dysautonomia, and asthma. pansexual/ LGBTQ+ advocate. In my downtime, you’ll find me diving into hydroponics, silversmithing, and tackling home improvement projects.
Atanas G. Atanasov @atanas-g-atanasov.bsky.social Lead Editor: #CRBIOTECH & #ExplorDHT | Chair of Pharmacology at DPU | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Author of #HealthHacksThatWork
🔗Web: https://digitalpatientsafety.com/atanas-g-atanasov/- L FrancoiseDupont with ME @latortuebleue.bsky.social ME/CFS
In France
Rebecca Pompano @pompanolab.bsky.social Assoc Professor @ University of Virginia. Microfluidics | Bioanalytical Chem | Ex vivo models of immunity | Organs-on-chip | Vaccines | DEI | www.pompanolab.com
Harry van Gerven @drenrettiwt.bsky.social Born @ 335.42 ppm CO2 #LongCovid since april 2020.
Emma Wooller @emmawooller.bsky.social
remi (they/them) @dominosmum444.bsky.social cvd conscious queer living with ME/CFS + long cvd. currently doing life from bed. meanjin, au.
Em @medays.bsky.social (She/her) ME, hEDS, adeno ~ surviving being housebound with birds, books, embroidery ~ still masking 😷
#pwME #MillionsMissing
Mica @rashmica.bsky.social Formerly healthy, fit and adventurous, now living a shell of a life thanks to SARS-CoV2
Tamara | ME/CFS Mama @mecfsmama.bsky.social Just a Mama navigating parenting with a chronic illness.
Mild ME/CFS & IST
Aotearoa, New Zealand.
Francesca @franoflittlespoons.bsky.social (she/they)
Chronically ill, ridiculous. I like more things than I can list here. Forever looking for small wonders.
Jessie @jessie-siobhan.bsky.social Hi! I'm Jessie. Full time Covid Longhauler surviving in Meanjin/Brisbane, Australia with my fluffy little demon cat, Harry.
Nanette Suzanne Danielsson @nanettedanielsson.bsky.social 🦋 Activist with ME ♿️ PhD in Psychology 🎓Former researcher 📚 & integration strategist💡Expat in Sweden 🇺🇸➡️🇸🇪 #Latina🌶🐕🌳🎨🖼✍️ #Democracy #ProChoice #HumanRights #SocialJustice 🏳️🌈🏳️⚧️♀️♻️✊🏾⚖️🌎🙏🕊💙 #ChronicIllness #ME #MECFS
#MillionsMissing 🚫Crypto 🚫DMs 🟰 Block 🚫Porn
oculiauris @oculiauris.bsky.social ME/CFS/𝕄ℂ𝕊/FIBROMYALGIE/ℙ𝕆𝕃𝕐ℕ𝔼𝕌ℝ𝕆ℙ𝔸𝕋ℍ𝕀𝔼/… => ©️®️ℂ𝕎𝔾 = OCULIAURIS =
GESUNDHEIT,
FLORA, FAUNA, NACHHALTIGKEIT,
POLITIK
#fcknazis #fckafd #mecfs
💜💚♥️❤️💚❤️♥️💚💜
=> Ich ♥️-e und teile Deinen Input auf Insta, Bluesky, Tumblr, Threads, like YouTube.
Victoria @vicblu-river.bsky.social Covid competent, masked teacher. Trying to make sense of it all.
Arthur @unrealarthur.bsky.social ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
@lucyainsley.bsky.social @lucyainsley.bsky.social
Donata 🍋 @donata1608.bsky.social Nach EBV Reaktivierung und #longcovid an #MECFS erkrankt.
https://x.com/donata1608?s=21&t=F8uKwluVNekKRdF5TBO1Pg
@unfancynancie.bsky.social @unfancynancie.bsky.social No DMs 🚫
Humanist, Progressive
Australian living on Wiradjuri country
Wife, Mother, Gma
Gen X, retired Public Servant due to chronic illness
Interested in politics, news, nature, human rights, justice, history, science, education, books, art, music.
Jen Porritt @jenporritt.bsky.social Lead by love and data. Doing my best to reduce the suffering in the world. Hope is Not a Plan. Universal Design benefits Universally. Amiskwaciwâskahikan #MaskUp #CleanAirRevolution #Decarbonize #Decolonize
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Vanessa @yellownessvjt04.bsky.social B.C. 🇨🇦 Working hard to be part of solutions rather than problems. Vet Med. 🐾 🇺🇦😷🌎 💪🏻
“The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.”
George Orwell, 1984- N @niliamsamoth.bsky.social @niliamsamoth.bsky.social
Jen M 😷 🇨🇦 @notfred4ever.bsky.social Canadian watching the horror that Bronzolini and minions are inflicting on the world.
Never MapleMaga.
PwD just getting through the days…
she/her
#MECFS #ADHD
#DisabilityAdvocate
#COVIDIsAirborne
#CanPoli #OntPoli
#ClimateCrisis
#WomenAgainstPoilievre
Jess @curvywitch.bsky.social Witchy RN ✨♓️🌞♉️🌙♌️🌅✨ Feminist, geeky, nerd & fierce advocate for change 💫 #LongCovid #POTS #MECFS #hEDS #PwLC #PwME #Disability #ChronicIllness #Spoonie
Jeanne-Marie Vaidie @lujane.bsky.social ME/CFS sufferer
Courtney Baker @cbakerls.bsky.social Educator. Athlete. Lifelong learner. Auntie supreme. #LongCovid advocate. Bluesky newbie. Currently in an LTR with Los Angeles… but it’s complicated.
Running 100 miles ain’t nothing compared to living with Long Covid.
Gabriele Ströck @gaby0605.bsky.social CEO @weandmecfs Supporting our sons and everyone else fighting with #MECFS and #PAIS
Edna, ME Advocate & Carer 💙 @ednamacnamara.bsky.social 💙 M.E.Carer of son aged 32, ME for 13yrs 💙.
RaisingAwareness for
#PwME.
#Carers
#LCovid
#greatestMEdicalscandal
X Edna, M.E.Advocate 🇨🇮
https://www.irishexaminer.com/news/arid-40218716.html
http://www.idonate.ie/aMothersWalkforMECFSresearch
Jo Summers (@joissummer from Twitter) @joissummers.bsky.social Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid.
#FBPE #FBLC #PWLC
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
Sarah Weston RD @sarahwestonrd.bsky.social Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume.
Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍
Facilitator PACE program 👣🫂🌈
Anne Vroegindeweij @thisistheillme.bsky.social 🇬🇧: Severe ME & long covid
🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
🏳️🌈