Kirsty 🌻 @kirstysmestory.bsky.social Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Katiana Mekka @katiamek.bsky.social 26. Former greek Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
https://linktr.ee/katiamek- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Tavares Speer @tavaresspeer.bsky.social Afro Cuban, Husband, Dog Dad, Fmr Business Analyst and FSU Alum. I was diagnosed w/ #als 10/4/18. Still here, still fighting. #lougehrigsdisease #endals. 💙🏳️🌈
https://linktr.ee/tavaresspeer
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Neurologist Mom @neurologistmom.bsky.social A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Amy DeBellis @amykdebellis.bsky.social Books: All Our Tomorrows • Methuselah • The Widening Gyre🖤
Also in X-R-A-Y, The Pinch, Vol. 1 Brooklyn, HAD, Hobart, etc.
https://linktree.com/amykatherrrine
Jacob @jhealth123.bsky.social 28 | COVID-19, Clean Air & for nasal vaccines that can stop an infection:) // Deutsch & English
M.M. @mzuml.bsky.social 🏴🌏🔧🐙😷
*ME/CFS sufferer * One of millions missing
* Safe passage
*Environmentalism *Politics
*Radical left *Craftsman 🔧🔩
*Outdoor enthusiast *Lab rat 🐀 * he/him *📍BLN
Climate change <—> Social conflicts
🚫Schwurbeln verboten!
Berlin Buyers Club @berlin-buyers-club.bsky.social Cure Long Covid & ME/CFS berlinbuyersclub.com
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
yes, it’s tess. 🇵🇸🇸🇩🇨🇩 @sickkwitch.bsky.social disabled baddie 😷 comma splice queen ✨she/her✨
Sebas @sebajones.bsky.social Long covid/ME since 2020. Literary fiction and em dash fan. Retired junglist. 🪴 patient.
Guiri madrileño. Socialista. Anti-fascista.
sibylle dahrendorf @sibylledahrendorf.bsky.social Ex-filmmaker, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
Sickandtiredaus Jordan Crane @sickandtiredaus.bsky.social http://heymp.com.au/sickandtired
http://change.org/LongCOVIDInquiry
http://www.instagram.com/sickandtiredaus
https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09
https://www.facebook.com/share/19nSvtGPNz/
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Lundin Advocates @lundinadvocates.bsky.social MEDICAL ADVOCATE, immune mediated neurologic illness-ie; autoimmune autonomic small neuropathy, POTS, previously Human Service Management for Medically Intensive 24/7 Residential, Disability Advocate, Elder Advocate
Lara Crowther @fillthewhole.bsky.social Neuroscience. Biomedical Sciences. Med Ed.
Covid aware. Clean the air. Wear a mask.
Dianna Cowern @thephysicsgirl.bsky.social Lame puns and #longcovid. Maybe some science here and there.
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Marij @marijiserbij.bsky.social Grunneger met Rotterdamse 'r'.
Roze hoodie, panter Vans, zwarte ziel. Precies cynisch genoeg, maar flexibel af te stellen. Had vroeger al gelijk, voordat het hip werd.
ME/CVS ✔️
Also available in English
ME/CFS✔️
Celine @healingfromlc.bsky.social 
Syd @fknsyd.bsky.social @fcknsyd on the other app
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Binita Kane @binitakane.bsky.social Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Ciara Wright PhD @ciarawrightphd.bsky.social Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
Sarah @sarahlizzylou.bsky.social She/her, Physio student on hold since Oct 2021 LongCovid/ME 🇬🇧
Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME
My Twitter handle was @SarahLizzyLou
Karen Lubell @karenlubell.bsky.social Caregiver. #mespine #cci #eds #mecfs
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚
Guus @guusontheinternet.bsky.social Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Carl @carlf.bsky.social ME secondary to Covid vaccination. pro vax/vax injured.
Zero tolerance for personal abuse.
Do unto others as you would have others do unto you.
Nele @nelehelena.bsky.social I'll "tweet" here about the things I don't like if the other app goes down
James @jdcantor.bsky.social 
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Amy @alexandrite113.bsky.social 
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
Emma 🌲 @peaksandwaves00.bsky.social Love the outdoors, reading books, cosy fires and wildlife. Experienced hiker. Amateur forager. Scotland.
Trying to survive with dysautonomia and chronic illness from Covid.
elle carnitine 🪳 @ellecarnitine.bsky.social immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
S💿phie CD @sophie-cd.bsky.social Australian, Cypriot & Greek anti-disease designer existing in Berlin. Been to hell & back thanks to the pandemic. check @sophsoph.psd & @berlin_buyers_club on the gram 🤓
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Daniel Lewis @daniellewis.bsky.social My #LongCovid is mainly #PEM + #POTS + #MCAS
meg’s malaise @megclems.bsky.social she/her
Long COVID/ME + Dysautonomia since 2020
C.H. Romatowski @romatowski.bsky.social Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
Thaïs @thais22.bsky.social 
Tara ✨ @taramaac.bsky.social 
Julie for M.E./LC treatment 😷 @dualiejulie.bsky.social In LongCOVID/M.E. hell looking for a way out! First wave Longhauler.
Trying to get my personality back from the disease.
Very cute dog.
Taylor Lorenz @taylorlorenz.bsky.social Subscribe to my tech and online culture newsletter UserMag.co
Listen/watch Power User podcast on all platforms!!
Support my work on Patreon: https://www.patreon.com/cw/taylorlorenz
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Olenka Sayko @osayko.bsky.social Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
Claudia ✨ @theclaw.bsky.social Now, more: Great value 
Sita 💫 @mamasita.bsky.social surviving dystopia | astrology | long covid | cannabis 
Pats @patt.bsky.social dev @skyswipe.bsky.social @atdigitalgarden.bsky.social
software engineering, social networks, financial markets, medicine, algorithms, decentralization, swe, cs, math, stats
Join Skyswipe today:
→ https://apps.apple.com/us/app/skyswipe/id6745531492