De Morgen @demorgen.be Vandaag vraagt om een krant die duiding en inspiratie brengt. Vandaag vraagt om De Morgen.
Joeri Thijs @joerithijs.bsky.social Woordvoerder & expert @Greenpeace_be.
Papa Titus & Felix. Hij/hem.
@kaagent ๐๐ค.
"Pessimism is a luxury we can't afford."
Manuel Ruiz-Pablos @manruipa.bsky.social ๐ฌDiving deep into #MECFS, #LongCOVID, #LongEBV & post-vaccine syndrome research. ๐ฆ Dual role:Researcher and EBV ME/CFS patient. Seeking answers. #Antivirals #HLA
FionaMECFS @fioname.bsky.social Victoria, Australia. Former professional wordsmith. 16 years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV ๐ค
Suzanne Forbes aka Slurketta @suzanneforbes.bsky.social Queer disabled MECFS (and Filth!) Elder in Berlin, housebound retired artist. Still respirator masking. Trans rights FOREVER. Sex worker ally. Baby vegan. Location: Atlantis by Gaslight. She/her.
Ellie @ellie9.bsky.social Climate lawyer on pause with ME/CFS and LC
Verena Hackl @verhac.bsky.social ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | ๐Vienna | posts/skeets = personal opinion
www.verhac.at
de/en
Dr. med. Michaela Bauer @drmichaelabauer.bsky.social https://www.dr-michaela-bauer.ch/
Fachรคrztin fรผr Psychiatrie & Psychotherapie FMH; Fรคhigkeitsausweis Abhรคngigkeitserkrankungen
Entpsychologisierung von ME/CFS
Grรผndungsmitglied Psychotherapie-Netzwerk ME/CFS e.V.
Wayside Scribbles @waysidescribbles.bsky.social Left by the wayside. Won't give up without a scribble. #longcovid #mecfs | Also on: ๐ Twitter ๐ธ IG ๐ฅ FB @waysidescribbles (no S on X) | Support me: https://buymeacoffee.com/waysidescribbles
Long Covid The Answers @longcovidanswers.bsky.social The CREDIBLE destination for Long COVID | Dr. Funmi Okunola MD At: longcovidtheanswers.com
#longcovid Symptom Info & Evidence-Based Relief
Ask Our Experts โ FREE Access to Top Global LC Experts
Accredited Educational Podcasts & CPD/CME Credits
Millions Missing France @millionsmissingfr.bsky.social Asso de patientยทeยทs. Pour la prise en charge de l'encรฉphalomyรฉlite myalgique #EM en France et le dรฉveloppement de la recherche.
Entraide & soutien ๐ค www.millionsmissing.fr
๐ด Membre de World ME Alliance.
Klimaatcoalitie @klimaatcoalitie.bsky.social De Klimaatcoalitie is een nationale organisatie die zich inzet voor een beter klimaat en het tegengaan van verlies aan biodiversiteit. www.klimaatcoalitie.org
Mark Faghy @profmarkfaghy.bsky.social Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Miranda ๐ธ @crookedneighbor.bsky.social Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)
LongCovidSafety.net
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid ๐ https://linktr.ee/renegaderesearch โข Runs @remissionbiome.bsky.social
Patricia Donnellan, MPH ๐บ๐ฆ๐ @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving itโs fluid, not fatโfrom Long COVID to Maternal Mortality. ๐งฌ
www.beyondbloodtests.org
Tamara C @tamararivc.bsky.social Published an ME/CFS Hypothesis of Noradrenergic Neuron Dysfunction and Phosphatidylcholine Deficiency - https://www.preprints.org/manuscript/202409.1467/v2
Ginger Billie @gingerbillie.bsky.social 
Gezondheid en Wetenschap - Zoek Gezond @zoekgezond.bsky.social Betrouwbare medische info op mensenmaat - gezondheidenwetenschap.be
Het ACV @hetacv.bsky.social Het ACV is met meer dan 1,4 miljoen leden de grootste vakbond van het land. Samen staan we sterk en werken we dag in dag uit aan een rechtvaardige en solidaire samenleving! โน๏ธwww.hetacv.be
Naima Charkaoui @naimacharkaoui.bsky.social Rechtvaardigheid - gelijkheid - mensenrechten
auteur #racisme en #opengrenzenmanifest
directeur beleid bij 11.11.11
(posts in eigen naam)
UZ Leuven @uzleuven.bsky.social Officieel account van UZ Leuven
www.uzleuven.be
Als grootste universitaire ziekenhuis van Belgiรซ wil UZ Leuven grenzen verleggen door gespecialiseerde zorg en innovatieve behandelingen te combineren met menselijke aandacht en respect voor elke patiรซnt.
KU Leuven Department of Public Health and Primary Care @dphpckuleuven.bsky.social Advancing healthier communities through multidisciplinary research, education and policy in #publichealth, #primarycare & #healthpolicy.
Bart Le Fermier @bart-lefermier.bsky.social Long Covid since feb '21.
Wim Van Lancker @wimvanlancker.be Professor sociaal beleid / Professor Social Policy @ KU Leuven, Belgium. Research on poverty and inequality, social and family policies, and the welfare state. http://www.wimvanlancker.be
Bart Eeckhout @barteeckhout.bsky.social Commentator en journalist bij @demorgen. Maakt al eens een mopje maar NOOIT over le Royal Sporting Club Anderlecht
๐๐ค
Wim De Maeseneer @wimdemaeseneer.bsky.social (Wetenschaps)journalist @vrtnws
Pieterjan Huyghebaert (VRT NWS) @pjhuyghebaert.bsky.social Journalist en eindredacteur @vrtnws.be
Ik deel vooral nieuws, al dan niet met een kwinkslag.
Gert-Jan Vanaken @gertjanvanaken.bsky.social ๐ฅresearcher, activist, writer
๐จhe/him๐Brussels, BE
๐ gertjanvanaken.be
๐postdoc in neurodiversity-affirmative autism care, KU Leuven, UAntwerp.
โ๐ผclimate justice and degrowth organiser
๐๏ธwriting a book on neurodiversity politics at De Bezige Bij
Nele @nelec.bsky.social 
Emerge Australia @emergeaustralia.bsky.social Not-for-Profit Organisation supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome) and long COVID.
Education | Research | Advocacy | Support Services
Website: www.emerge.org.au
Donate: www.emerge.org.au/donate/
Thomas Goorden @goorden.be Investigative Journalist, Writer and Bag of Real Meat
www.goorden.be
e/slopp/acc >> /dev/null
Valerie van de Velde @lievalerie.bsky.social ๐ชซ Life on hold // ๐ฆ long-COVID since march 2020 // ๐Zeeuws-Vlaanderen
Jennie Jacques @jenniejacques1.bsky.social Donate to Justice For ME here if you can please ๐ ๐๐ฆ
https://shorturl.at/x1Vyx
Naomi Whittingham @naomiwhitt.bsky.social Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
@longcovidbelgium.bsky.social @longcovidbelgium.bsky.social 
Vicky van der Togt @vickyvdtogt.bsky.social Facilitator | Researcher | Advocate
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound ๐
Documenting my life like it is now, advocacy through photography ๐ท
๐Finland
https://nikosuvisto.com/
Erin Lee @erinmarilee.bsky.social ME/CFS since 2001 | Passionate about improving med ed, increasing access to care, and finding a cure | Faith, Hope, Love
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Crystal @gemzme.bsky.social 
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate โข Chair of #MedicalEducation Group โข #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Sinรฉad @spoonless-me.bsky.social 
๐พ๐๐กาป๐๐๐๐ (๐๐๐๐๐ ๐ฟาป๐๐๐) @keyfe.bsky.social ๐๐๐๐๐ ๐๐๐ฃ๐ ๐ ๐๐๐๐ ๐๐๐ก๐๐๐ฆ? ๐๐๐๐๐ค๐๐๐๐ ๐๐๐ก๐ค๐๐๐ ๐๐๐ฃ๐๐๐ ๐ข๐ ๐๐๐ ๐ ๐๐๐๐๐ ๐๐๐ค ๐๐ข๐๐ ๐๐๐๐ ๐ ๐๐๐ ๐๐๐๐๐๐.
๐๐๐๐๐'๐ ๐ ๐๐๐๐๐ ๐๐๐ ๐๐ฃ๐๐๐ฆ๐๐๐ ๐๐ ๐ก๐๐๐ ๐ค๐๐๐๐, ๐๐ข๐ก ๐ก๐๐๐ก'๐ ๐๐๐ก ๐๐ข๐๐ก๐ ๐๐๐ค ๐ก๐๐ ๐ค๐๐๐๐ ๐๐ ๐๐ข๐๐๐๐๐ ๐ก๐๐๐๐ฆ.
๐ ๐๐๐๐ ๐ก๐ ๐ค๐๐๐ก๐ ๐๐๐ค๐ ๐๐ฆ ๐ ๐ก๐๐๐ฆ ๐๐๐ ๐๐๐ฆ.
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid โข Renegade-Research.org โข RemissionBiome.org ๐ Donate now โถ๏ธ tinyurl.com/44azdsxm
Jack - amatica health @jackamatica.bsky.social ME/CFS patient and researcher
Co founder of amatica health
https://amaticahealth.com
joostifant @joostifant.bsky.social Hier voor muziek, koers, wetenschap en leven met MEcvs.
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Hannes Heynderickx @heynderhannes.bsky.social chef politiek van @Nieuwsblad ๐ง๐ช
Amateur-ambassadeur van Lokeren
Part-time ๐ณ๐ฑ
ME/CFS San Diego @mecfssd.bsky.social ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social #LongCovid Scientific Consultant
PhD Nutrition & Metabolism
Hon Research Fellow, Lund Uni
Posts: nutrition โช health โช all-things-science โช activism โช fun facts โช #PostVac
Donations: https://ko-fi.com/drsmash
Facebook: https://www.facebook.com/LongCovidSC
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Jeffrey Lubell (EDS, ME/CFS, LongCOVID Research) @jefflubellc19.bsky.social I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
Tom Molmans, MD @molbaas.bsky.social Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Tingting @tingting1407.bsky.social Looking behind the obvious || Tingting is my nickname || Pro science || #MECFS #POTS #MCAS || Former management consultant & university guest lecturer || Posts in English & German || Jazz Funk lover
megโs malaise @megclems.bsky.social she/her
Long COVID/ME + Dysautonomia since 2020
Veerle Provoost @veerleprovoost.bsky.social Prof Ghent University โข Philosopher & Social Scientist โข Empirical ethics methodology โข Moral reasoning โข Ethics of reproduction โข Families in all forms โข Ethics of chronic illness care โข Chair Ethics Committee โข Research Integrity โข Long Covid 
Barbara Jansma @barbarajansma.bsky.social Long Covid, kunst, architectuur, muziek, moederschap, tuin, hond, lezen, wetenschap, politiek, psychologie, filosofie, en zo vreselijk moe.
Fred Verdult @fredverdult.bsky.social Passie voor Perry, fietsen in Alpen, zweten in sauna | Levensgeluk verknald door lyme | Directeur Lymefonds | Trots Ridder op voorspraak Nobel laureate
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
Rowan Walrath @rowanwalrath.bsky.social Associate editor, life sciences reporter @cenmag.bsky.social. Texan Bostonian. she/her. r_walrath@acs.org. For sensitive tips, I'm on Signal @rowanwalrath.01 or email rowan.walrath@proton.me
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed researchโcomplex chronic illnesses and Covidโw/some material on disability justice and organizing.
ME โ05, LC โ23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
ME Association @meassociation.org.uk A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
Marรญa Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de Mรฉxico. #ME #MECFS #POTS #LongCovid
Liz Nevra A. @nlizaki.bsky.social #MEActionNetwork health activist. Patient, project manager, translator & polyglot. โ๐พ #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
Tania J. Spencer @taniaspencer.bsky.social ๐จ๐ฆ๐ฟ๐ฆ โข writer โข photographer โข social anthropology โข former journalist โข Long COVID first waver โข vaxxer โข masker โข maker of Corsi-Rosenthals โข Antifa, obviously
๐ Whitehorse, YT
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Stefanie Weichselbaumer @sweichselbaumer.bsky.social (Former) DGKP | BSc Nursing Science
Life on hold since Sept 2022 due to SARS-CoV-2 โ #MECFS #POTS #Dysautonomia #MCAS #hEDS
ME/CFS Research Foundation @mecfsresearch.bsky.social Fรผr mehr ME/CFS Forschung!
We promote & finance #MECFS research!
ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Linkรผbersicht: https://t.ly/Tt3W8
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. ๐ #ThereForME #GreatestMEdicalScandal #PEM ๐ฌ๐ง๐ฒ๐ซ๐ช๐ฆ๐ง๐ช
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. ๐ณ๐ฑ in ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Jeannette Metaal @jeannettemetaal.bsky.social Brugge
Josse de Voogd @jossedevoogd.bsky.social Ruimte, politiek & samenleving.
Verkiezingsgeografie/(on)gelijkheid/stedenbouw. Onderzoeker & publicist. ZZP. Atlas Afgehaakt NL. #mecvs #longcovid
John Kieboom @johnkieboom.bsky.social Dordtenaar|MECVS|
Brian Fog @uselesspriest.bsky.social Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
Paul Keeble ME/LC @paulkeeble.co.uk ME since 2017 (Mild), 2019 Moderate , 2020 Severe
Long Covid since March 2020 (V Severe)
Funcap55 = 1.9 ( (Severe)
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
๐๐Home to the #cripademia book club.
https://www.longcovidadvoc.com/
๐๏ธ https://longcovidadvoc.shop/
Knack @knack.be knack.be
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
๐ป๐ชป๐ผ
emily fraser ๐ฟ๐โจ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
themupsmuppet @sophie11.bsky.social enkel MEmorabele tweets, uh blueskies? skeets? ....whatever!
Mark Vink, MD @huisarts-vink.bsky.social Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth.
CBT + GET for MEcfs = quackery
https://www.researchgate.net/profile/Mark-Vink-2
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa โฟ๏ธ๐ณ๏ธโ๐๐
Ina @tink-ina.bsky.social #mecfs 12 yrs, severe. Bed bound w spine injury
๐ธ๐ช
DanielleMors @daniellemors.bsky.social Audiobook Narrator. Writer. Singing songs and smirking. She/her. hEDS, POTS, ME/CFS
Dr LG @subversivepsych.bsky.social Iโm a qualified Dr /Psychiatrist, life is currently on hold due to Long Covid complicated by Covid vaccine injury. I used to be a travel junkie, gym goer, party lover.. trying to get my life back!
I moved to Spain to be with my parents whilst sick.
Anna Brooks, PhD @drannanz.bsky.social Immunologist | Flow Cytometrist
Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS
Senior Research Fellow
Liggins Institute | University of Auckland
DysImmune Research Aotearoa
www.dysimmune.nz
๐ณ๐ฟ๐ฅ๐ฉธ๐งฌ๐งช๐ฌ๐ฉ๐ผโ๐ฌ
Sarah O'Connell @sarahoc1.bsky.social #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS โข ME & LC Advocate โข Co-Founder LCAI โข Women's Health; Endometriosis,PMDD โข Sci-fi & movie lover
Danielle Beckman @daniellebeckman.bsky.social I like brains and microscopes. Interested in Neurovirology
PharmD, MS in Biophysics, PhD in Biochemistry
๐ง๐ท Rio ๐บ๐ธ Sacramento ๐ฉ๐ช Munich
International Society of Long COVID & Post-Acute Infection Syndromes: https://islc-pais.com/
daniellebeckman.com
Annie ๐ป @annitht.bsky.social history nerd. notorious globetrotter. tv-junkie. bardolater. storyteller. scientist. EU-Lover. she/her. In March 2020, #LongCovid stole my life. 
Alex @admiringbog.bsky.social person with ME/CFS
professional slug
DecodeME @decodemestudy.bsky.social ๐งฌ The worldโs biggest study of genetic causes of #MECFS. Launched September 2022. ๐งฌ decodeme.ed.ac.uk
Rhi Rhi @rhiarhiarhi.bsky.social Featherless biped
#mecfs #mcas