Wallflower 🌸 @princessofthedark.eurosky.social 🦼 #ME/CFS
Hungry for life, future, perspective.
Instead, stagnation, trapped in MECFS hell
"and then you have no choice but to search for life in the ruins" (A. L. Tsing)
#LearnaboutME https://www.mecfs.de
Matrix: @princessofthedark:matrix.org
VirusSucks.com @virussucks.com #LongCovid since May 9, 2022. I was out for my morning run when exhaustion hit me. PEM, orthostatic intolerance, etc
Last #SARSCov2 infection: April 2022.
Medical news
https://m.youtube.com/@VirusSucks-com/shorts
#COVID is airborne so ventilate
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Tania J. Spencer @taniaspencer.bsky.social 🇨🇦🇿🇦 • writer • photographer • social anthropology • former journalist • Long COVID first waver • vaxxer • masker • maker of Corsi-Rosenthals • Antifa, obviously
📌 Whitehorse, YT
Eva @sophianicnovice.bsky.social health & beauty enthusiast ☼
acutely aware of post-infectious diseases ☠︎︎
Dan Herbert @danherb10.bsky.social Me?
Prehistory. Normans. Recently Vikings. New Model Army. Asterix. Old Gods. Arsenal. Corinthian Casuals.
University Library Buildings Development Manager.
Neurodivergent. Cursed by MECFS.
#MDANT
Hans H. Diebner @unbewegter-beweger.eurosky.social Alumnus @Ruhr-Uni-Bochum.de
Mathematical and Statistical Modelling
Interests:
- Antibiotic Resistance
- ME/CFS
- Selective Mutism
- Critique of EbM, Causality, AI
Profile Banner: Endo View of the Rössler Attractor
Gareth Murtagh @garethmurtagh.bsky.social Town Planner #Arsenal #Broncos sci-fi, music
Isi @isi0611.bsky.social ich mag fussball, am liebsten antifaschistisch
life paused due to me/cfs since 08/22
cobwebs @cobwebs.bsky.social there'll be lots of bugs here 🐛🕷
25, disabled, UK
Anna H. @annahh.bsky.social 🍋 MEcfs seit 2002, Diagnose 2021
mild zu moderat nach Covid 2020
Ü50, Hamburg
#lemonchallenge #MEcfs #pwME #PAIS #POTS #PEM
#WirLiegenDasLeben #MEawareness
#DavosStandard #CleanAir #Lufthygiene #MillionsMissing
#TeamVorsicht #TeamScience #TeamGrundgesetz
Lauren 🧙🏻♂️ @sympathizing.bsky.social 23 *:･ﾟ✧
Autistic, queer, and disabled
Non-binary lesbian
Miranda 🌸 @crookedneighbor.bsky.social Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)
LongCovidSafety.net
jonathan (pwME) @crumpledleaf.bsky.social he/him. i sometimes write about living with ME/CFS.
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Alex @admiringbog.bsky.social person with ME/CFS
professional slug
Donia ♾️ ♿️ @ethyricalartist.bsky.social Disabled artist 🇵🇷🏳️🌈
HOMELESS since 2025 🔗🌲⬇️🆘
Cats, art, nature, knit, crochet
PNW 🇱🇸
Create in bed when able bc of #MyalgicEncephalomyelitis
#SevereME since 2015
Late #ActuallyAutistic 🖖
Abolitionist
Anti-imperialist
Anti-AI
https://linktr.ee/EthyricalArtist
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
grumpyhobbit @grumpyhobbit.bsky.social I have a main account, @lattesdotter.bsky.social, but I wanted a separate account to talk about chronic illness and chronic fatigue. I have been suffering Chronic Fatigue for over 10 years and have gotten a lot of support from online communities.
Fergus Murray @oolong.co.uk Monotropic writer, science tutor, Autistic community organiser and independent researcher. Based in Edinburgh.
they/them.
https://linktr.ee/0olong
Niamh Goggin @niamh-smallchange.bsky.social Politics, local economies, social investment, credit unions, financial Inclusion, money for good.
If you haven’t posted anything, I won't follow you.
Cats, Ireland (23 yrs), Norn Iron (36 yrs), Croydon (6 yrs) France (dream). ME/CFS 20 yrs now (sigh).
Kim @trinity888.bsky.social Living on unceded Gumbaynggirr land. Writing, thinking, learning, swimming, napping. Drinking coffee ☕️.
Carla Quinn @carlaq.bsky.social I like to stir up trouble but I also need to lie down for a few minutes. She/her. 🇨🇦 #elbowsup
@kittywhisperer.bsky.social @kittywhisperer.bsky.social Cat whisperer. Vaccine injured but 💯 pro-vax. Long Vax is akin to Long Covid. Please mask up and get your jabs, this sh*t is beyond awful.
#Dysautonomia #PACVS #LongVax #LongCovid #POTS #MCAS #PEM #CTE #CovidCautious #Novid #StillMasking
Au Contraire @jcontraire.bsky.social Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
ME Vereniging Nederland @meverenigingnl.bsky.social De nationale patiëntenvereniging voor myalgische encefalomyelitis.
www.mevereniging.nl
Sb @xtasbe.bsky.social Former writer. Father of two children. I write long silly threads on old TV programmes. Have a look here https://www.buymeacoffee.com/jetelephone/posts
Yvie Juniper-Johnson @yviejohnson.com 🌈Illustrator & Storyteller & Poet
♿️ ME & TN // ✨AuDHD // 🪴Intuitive
🦋 Disability, Creativity & Feeling Whole
🏴 Denbigh, Wales // dw i'n dysgu 🏴
Delightful: https://yviejohnson.com
Suzanne Forbes aka Slurketta @suzanneforbes.bsky.social Queer disabled MECFS (and Filth!) Elder in Berlin, housebound retired artist. Still respirator masking. Trans rights FOREVER. Sex worker ally. Baby vegan. Location: Atlantis by Gaslight. She/her.
Scholen Veilig (Safe Schools) @scholenveilig.bsky.social Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com
🌍The Netherlands
Litsa Dremousis @litsadremousis.bsky.social ALTITUDE SICKNESS (Future Tense Books). Upcoming: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. The Blvr, Esquire, Flare Lit Mag, McSwy's, NPR, NY Mag, NYT, Pictura Journal, P&W, PW, The Rumpus, Short Beasts, et al. #pwME https://litsadremousis.com
KimK @kimk-research.bsky.social Retired 🪷 Grandmother ♿️ amputee 🤍 domestic violence advocacy 🥄 longCOVID advocacy @renegaderesearch.bsky.social 🥩 animal-based keto
Mel @melwin7777.bsky.social Disabled veteran with Ehlers Danlos Syndrome and ME/CFS
AuDHD - passionate about weather, music, books, animals, and kayaking/exploring nature
I live in the state of Misery- P Patrick Halston @patrickhalston.bsky.social Literary critic
Firstname Lastname #FuckTrump @notunpackedyet.bsky.social Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
Emily Chatelet @emilychatelet.bsky.social Biochemistry Geek, Research Analyst, Dogged Advocate, Optimist In Spite of The Deluge.
@cazonacloud.bsky.social @cazonacloud.bsky.social 
Gurki 🥒 @gurkigurkmeister.bsky.social Temporarily embarrassed healthy person
#pwME 🛌 seit vor 2010 - Skeets in german and english - still a #Novid
Stuttgart
Xanda @xandagamez.bsky.social Gamer
Discord - https://discord.gg/dJfU2UDNND
Sick Bound @sickbound.bsky.social Sick Bound: Life from bed with ME/CFS and Long COVID. A blog by Rosemary Harper.
Coming soon!
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
@moniwilkes.bsky.social @moniwilkes.bsky.social Once a performer, now a Covid Long Hauler
@cindyglasgow.bsky.social @cindyglasgow.bsky.social 
Kevy B 🇵🇸 @kevyb.bsky.social Official spokesperson for the Silent Majority. Fully Certified Renaissance Man. Leftist, anti-Zionist, Green party member, JC fan. Ultra longhauler ME, chronic illness sufferer. Egalitarian. Follow me if you want to live.
Cffnthmrnng @cffnthmrnng.bsky.social #LongCovidKids #LongCovid
#ME/CFSKids #ME/CFS
#MillionsMissing #CureME
SivanandaBMts @sivanandabmts.bsky.social Yoga teacher and editor, Sivananda Yoga Blue Mountains
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Laura J Mixon @laurajmg.bsky.social Six SF novels. Environmental engineer. Spousal unit. Genderqueer motherbeast. Hatch green, Chimayo red—NM nerd, born & bred. Severe MEcfs. Black Lives Matter, now and forever.
Emory 🩶 @emory-f8.bsky.social I write dark Victorian fiction and specialize in the long 19th century.
She/Her 🏳️🌈🇪🇸✡️ (I'm always kind)
#writer #historian #Lesbian #sapphic #wlw #Hispanic #feminist #goth #vampires #jpop #bibliophile
NO DMs | Terfs & Narcissists DNI
Viv @stillviv.bsky.social Biomedical engineer, mathematician, equestrian, thru-hiker and generally outdoorsy - now 99% bedbound with #severeME. I like posts on science, literature, world history and art.
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Jason Jasonson @jaseygalore.bsky.social Disabled by #MyalgicEncephalomyelitis ° Ambulatory wheelchair user ° Nazi lives don't matter ° Science is real ° #AuDHD ° #Lutruwita
I mostly repost things rather than write Bluestuff because my mind isn't sharp and lively anymore 😔
steffi @mecfshawaii.bsky.social Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
Sophia😇 @kawaiisophia.bsky.social 18 year old vet major📚 , anime lover🥺, my naughty corner to explore myself - If you wanna chat, I reply over thereeee ⤵️ (it's free I PROMISE<3) https://onlyfans.com/kawaiisophia/trial/pvbv3bewmkh5eknvegnowsujbxoszlou
Moi m'EM @nofutureforme.bsky.social #EM encéphalomyélite myalgique (c'est pas une maladie rare mais elle n'est pas enseignée en France) #MECFS #pwME #POTS
Spaghetti Carbanana @zwejas.bsky.social Comic relief
@farehamboy.bsky.social @farehamboy.bsky.social 
miss_malingerer @missmalingerer.bsky.social absolutely zonked on the ‘oids 🥳
95% Bedbound ME/CFS/Long Covid
@peterdavieson.bsky.social @peterdavieson.bsky.social 
Helen @helenld.bsky.social Jeweller 💍 Scientific & Archeological Illustrator 👩🏼🎨 Graphic Designer 👩💻 I ♥️ dogs🐕 rats🐀 nature🍃 bugs🐞 skulls💀 water💦 flowers🌸 music🎶
first wave #LongCovid 🌊
Team member @longcovidsos 🛟
Sarah Barley-McMullen (she/her) @sarahbarleymc.bsky.social Ill health retired 😞FHEA🎓Christian. Chair, Pride in Belper 🏳️🌈🏳️⚧️. Chair, Long Covid SOS. JNC. Married to my Wife. ❤️Long Covid-autoimmune/immunocompromised
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
@slow-blinks4cat.bsky.social @slow-blinks4cat.bsky.social Person with ME/CFS, formerly a science teacher
BlueSky @thrive29.bsky.social I am passionate about saving dogs and I love all animals. I’m also passionate about protecting our democracy and the environment.
Anais @anais3.bsky.social Long covid January 2020
@traceydooley.bsky.social @traceydooley.bsky.social Living an increasingly small life enforced via chronic illness yet striving to embrace snippets of delightfulness wherever and whenever I can
#MillionsMission
Leigh @leighannev.bsky.social 
Angry Redhead @sidherian.bsky.social Aus GenX, cranky femme lesbian 🐈🫖🗾 80s New Wave music nerd. Clean air, N95 😷, Greens member.
#COVIDISNOTOVER #MASKFORYOURLIFE
No DMs.
Rainer S. Cheis v2.0🍀 @sound-of-silence.bsky.social 🍀🍿🍀
Well, it will be interesting to see how it all turns out.🍿
Overall conclusion so far: 😳🫣🤯😵
Beth Paint @craftymissb.bsky.social Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs.
Sophie Delhaes @corkypirbright.bsky.social "Don't be a stinker."
When in doubt, read Wodehouse.
Peacemaker Wolf @peacemakerwolf.bsky.social Silly human Earthling
💙🌊🐺
Big ol' resister, blue through and through!
Been a Democrat since Carter.
ABSOLUTELY No DMs without prior permission!
🚫Maga!
I will steal your memes, they're made for sharing! 😁
Lydia @lydiaac.bsky.social She/her.
8+8 =10
Everything in nature is a spectrum.
Kylee @kylee.bsky.social Artist. Feminist. Autism advocate.
Trans ally. Dogs are the best people
On Bundjalung country.
Katie Shoop @katieshoop.bsky.social Interested in the world, watching it go by from my sickbed. “Living” with Long Covid (& ME & POTS) since Jan 22. she/her
Fiona Wood @mewarrior1.bsky.social Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia
Observe small things, don't rush, love & forgive
#loveyourself #loveothers ❤️
#chronicillnesswarrior1 on X & IG
Opinions are my own 🤓
FionaMECFS @fioname.bsky.social Victoria, Australia. Former professional wordsmith. 16 years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
Scott Kominers @skominers.bsky.social Market Design/Entrepreneurship Economist • Harvard
Research Partner • a16z crypto
Editor • Review of Economics and Statistics
Puzzle writer & NFT enthusiast, QED | http://scottkom.com/
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Mike Toole #I stand with Ukraine and Palestinians @profmiketoole.bsky.social Retired epidemiologist. Worked in global health for almost 50 years. Based in Melbourne, Australia with my two Coton de Tulear dogs. Associate Principal Research Fellow at the Burnet Institute. I stand with Gaza, Lebanon and Greenland.
Felix @simiaexmachina.bsky.social Ex theoretical physicist and current software engineer/metallurgist/AI developer "enjoying" his fifth year of long covid/ME
monique d'hooghe ♿ they/she @moniquedhooghe.bsky.social They, she
♿ peace & social justice activist
anarchist
Nothing about us without us
@axd-3188.bsky.social @axd-3188.bsky.social 
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Michael-Anne @michaelannewrites.bsky.social Queer crippled writer.
Disability advocate
Tired
Hannah Buttle @han-written.bsky.social freelance journalist 
Gouda Sofia @updrafter.bsky.social #ProsecuteMAGA
Free Palestine! 🍉 🇵🇸 Slava Ukraine! 🌻 🇺🇦, NAFO, Yooper, Stoopall League of America, He/Him, BLM, Amplifier
It’s a lot.
Me. You. This.
All of it.
Too much really.
Ok, if you insist!
You have been warned.
Let us away!
Humans being Funny or Stupid @noiqhumans.bsky.social Follow for your daily dose of #humour #fails #wins #funny
you are sun 🌷🦩🌸 rai @ssraii.bsky.social new start starts now but how to let go of the past? Anyways startin nov 25 I'm trying to be regular for #fungifriends so if you're here please have a look on these posts!
kuke @kuke2.bsky.social AUsocialist. Anti-imperialist. 
@lovejoy93.bsky.social @lovejoy93.bsky.social 
Elizabeth Wrigley-Field @wrigleyfield.bsky.social Sociologist/demographer specializing in mortality, racial inequity, Covid-19. Avid theater-goer, inconsistent powerlifter, and erstwhile operator of an all-volunteer bookstore. Preschool parent. Living not-quite-car-free in Minneapolis. she/her
Joe Chapman @jreidchapman.bsky.social palliative care chaplain • minister of word and sacrament in PC(USA) • poems in Best American Poetry and Boston Review • chronically ill • MUFC
Becky @pinklotus1.bsky.social ✨️Seeker of silver linings! ✨️
📚 Lover of books & dogs 🐕
Mum Nana ME/fibro 👩🦽
Disability Mental Health Writing Kidlit Art Buddhism Bristol
💛🪷🦋🪷💛
Bec @elbecp.bsky.social Student, Public Health 🤝 Medical Anthropology 🇦🇺 🇫🇮 Plant person. AuDHD. Chronically curious. Alphabet soup connoisseur. ♐⬆️ | ♃ in ♉
@elbecp on the ex-🐦 app
I Overcome ME @iovercomeme.bsky.social ☀️☺️ SARAH 😷🥱😴 (she/her)
Severe ME due to LC (2023)
ME/CFS (1999 dx 2008)
UC/IBD (2002)
ADHD (Birth😝)